Proposed Food Allergy Management Plan

Posted on: Wed, 03/17/1999 - 5:36am
LauraP's picture
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Joined: 03/10/1999 - 09:00

You

Posted on: Thu, 03/18/1999 - 11:42am
Lisa M's picture
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Joined: 03/07/1999 - 09:00

Laura P
Thanks so much for taking the time to detail your experiences and suggestions for us. It is great to see a school willing to work with this issue. Thanks for giving me some things to think about and implement for when my son starts pre-school next year. Lisa M

Posted on: Thu, 03/18/1999 - 12:35pm
dhumphries's picture
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Joined: 02/02/1999 - 09:00

Hi Laura,
I am enrolling my 2 year old in a new day care (tomorrow is the first day he'll be there), and I have his emergency health care plan posted in his room. In the plan, it tells workers not to hesitate to administer the epi-pen (I used the FAN recommended plan) but now I am really worried that he will be used as a "pin-cushion" also. Guess I really hadn't considered that before. Does anyone else have any experience in this area?

Posted on: Sat, 03/20/1999 - 11:23pm
Coco's picture
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Joined: 03/14/1999 - 09:00

Well said Laura! Please also remember if you are starting school to take care of this well before the school year begins.

Posted on: Mon, 03/22/1999 - 10:07am
Janet Laflamme's picture
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Joined: 02/08/1999 - 09:00

Thank you very much Laura. We have a 504 meeting scheduled on April 1st. I'm in the process of adapting your management plan to my son's needs. You covered everything very thoroughly. The only thing I needed to work on was the transportation issue ( my main concern) and the lack of monitoring to enforce a no food sharing policy in the classroom and lunchroom.
I think your plan and all the 504 information needs a permanent place in this bulletin board so newcomers can easily find it. I found it very frustrating to feel as though I was re-inventing the wheel. Your plan was an excellent starting point and knowing that the Section 504 covers our children will save others the expense of legal research.

Posted on: Mon, 03/22/1999 - 9:04pm
LauraP's picture
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Joined: 03/10/1999 - 09:00

Hi Janet!
Good luck! Let us all know how it goes. I'd be very interested in seeing what you work out with the school on the busing issue, as this is a very important issue to many parents. Let us know what you come up with.
With respect to the lunch table, request a table that is designated "Peanut Free" for all lunch periods. See if you can get the school to select a table near the doorway to the lunch room (better ventilation) rather than one near the food preparation area.
I truly hope you have a good outcome from your meeting! Keep us posted.

Posted on: Tue, 04/06/1999 - 1:01pm
Janet Laflamme's picture
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Joined: 02/08/1999 - 09:00

We had our meeting on April 1st. The school personnel scheduled 30 minutes and it ran for 2 hours. We have another meeting scheduled to finalize some issues and to discuss further the transportation issue. My son now has the Section 504 designation and suddenly everyone is smiling at me and wanting to work together to make things safe for him. I'm thrilled that progress is being made but I won't forget what it took to get to this point.
I walked into the meeting with the "Proposed Food Allergy Management Plan" ( slightly modified), an emergency action plan sheet with my son's picture and info. on it, several references printed out, the video " It only takes one bite" from FAN, and my diary with dates and notes from every meeting and encounter dealing with this issue. I also brought my sister who is an educator in a different school district and is very close to her nephew. There was no comparison between their typewriter written form and the professional flowing outline which I handed to the room. (Thanks again Laura for the management plan!)
New developments include:
-an epi-pen in the classroom which goes where my son goes.His emergency plan is in with the epi-pen.
-starting next year there will be a peanut free table in the lunchroom and the hot lunch will be peanut and tree nut free. The school has problems with funding for aides but the maintenance man ( who is an EMT with the local fire dept.) will monitor the table and clean it. We still have a few details to work out.
-the nursing supervisor keeps revising her statement that no one under 18 yrs old may carry meds. on school property. It went to 15, then middle school, and finally to reviewing the individual on a yearly basis!
-a note will be sent out asking for a voluntary ban on peanuts and tree nuts in food sent from home. We're going to include more detailed info. about the allergy and we hope to dedicate a PTO night to education on this issue.
-the school staff will be watching the FAN video at the beginning of every school year.
-Transportation. The school offered to have my son ride the special education bus or van (less than 20 kids) with him being last on and first off. Still no access to the epi-pen. The ride will be approx. 10 min. each way. My husband and I are going to follow our instincts which means that we aren't satisfied with this. To us being without an epi-pen is not negotiable. The local ambulance company can't guarrantee a paramedic response (EMT's in CT don't carry epi-pens). So we will continue discussion about this issue at the next meeting.
My final take on all of this is basically do their job for them in regards to a management plan, compile all your information, get medical documentation from an allergist, and get the 504 designation before your child starts the school year. Don't believe staff when they tell you, "it's the law or school policy", find out for yourself and don't be afraid to make phone calls or to write letters to the state board of education, school board members, and legislators. Read this bulletin board on a regular basis. There is a wealth of information and starting points for those getting ready to deal with these issues. My family and I did all of the above for the last 6 months and things are finally falling into place for my son. The first grade isn't looking so bad right now. Take care everyone.

Posted on: Tue, 04/06/1999 - 1:06pm
Janet Laflamme's picture
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Joined: 02/08/1999 - 09:00

We had our meeting on April 1st. The school personnel scheduled 30 minutes and it ran for 2 hours. We have another meeting scheduled to finalize some issues and to discuss further the transportation issue. My son now has the Section 504 designation and suddenly everyone is smiling at me and wanting to work together to make things safe for him. I'm thrilled that progress is being made but I won't forget what it took to get to this point.
I walked into the meeting with the "Proposed Food Allergy Management Plan" ( slightly modified), an emergency action plan sheet with my son's picture and info. on it, several references printed out, the video " It only takes one bite" from FAN, and my diary with dates and notes from every meeting and encounter dealing with this issue. I also brought my sister who is an educator in a different school district and is very close to her nephew. There was no comparison between their typewriter written form and the professional flowing outline which I handed to the room. (Thanks again Laura for the management plan!)
New developments include:
-an epi-pen in the classroom which goes where my son goes.His emergency plan is in with the epi-pen.
-starting next year there will be a peanut free table in the lunchroom and the hot lunch will be peanut and tree nut free. The school has problems with funding for aides but the maintenance man ( who is an EMT with the local fire dept.) will monitor the table and clean it. We still have a few details to work out.
-the nursing supervisor keeps revising her statement that no one under 18 yrs old may carry meds. on school property. It went to 15, then middle school, and finally to reviewing the individual on a yearly basis!
-a note will be sent out asking for a voluntary ban on peanuts and tree nuts in food sent from home. We're going to include more detailed info. about the allergy and we hope to dedicate a PTO night to education on this issue.
-the school staff will be watching the FAN video at the beginning of every school year.
-Transportation. The school offered to have my son ride the special education bus or van (less than 20 kids) with him being last on and first off. Still no access to the epi-pen. The ride will be approx. 10 min. each way. My husband and I are going to follow our instincts which means that we aren't satisfied with this. To us being without an epi-pen is not negotiable. The local ambulance company can't guarrantee a paramedic response (EMT's in CT don't carry epi-pens). So we will continue discussion about this issue at the next meeting.
My final take on all of this is basically do their job for them in regards to a management plan, compile all your information, get medical documentation from an allergist, and get the 504 designation before your child starts the school year. Don't believe staff when they tell you, "it's the law or school policy", find out for yourself and don't be afraid to make phone calls or to write letters to the state board of education, school board members, and legislators. Read this bulletin board on a regular basis. There is a wealth of information and starting points for those getting ready to deal with these issues. My family and I did all of the above for the last 6 months and things are finally falling into place for my son. The first grade isn't looking so bad right now. Take care everyone.

Posted on: Tue, 04/06/1999 - 2:02pm
Teresa's picture
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Joined: 04/02/1999 - 09:00

Laura, your plan is fantastic, I wished I would have had access to this at the beginning of the school year. My daughter is in kindegarten and this has been the worst year of my life trying to deal with and educate her school. The teacher has been great, but the chain of command above her, are just plain ignorant to the fact of the severity of peanut allergies, and exactly how it does only take just one bite. With my little girl airborne peanut fumes or touching them will set her off. It is scarey. I had to contact the Dept. of ed., I have an attorney . Before I went that far I met with everyone from the bottom to the top the superintendant was a joke I may as well talked to a wall. I just wonder is it to late to put your plan in place being there is only 8 weeks of school left? Of course there is the next 12 years to go. Any suggestions let me know. One more thing my daughter is secluded in the kitchen at lunch with the doors and window closed, she feels she is always in trouble and that really bothers me. I could go on for hours on this school year. I even had my car vandalised because the teacher asked the parents to not send p.b. snacks in, a parent got ticked and scrached get a new school on my car and broke my window. People are so insensitive. Again thanks, sorry so long winded.

Posted on: Tue, 04/06/1999 - 5:43pm
LauraP's picture
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Joined: 03/10/1999 - 09:00

Hi Janet!
I'm glad to hear that everything went so well. Amazing what a classification can do. I've been festering over your busing issue, and I'm going to post some thoughts on it on the "Transportation Thread".
Theresa-
Get the ball rolling now! Send the school your initial letter.

Posted on: Tue, 04/13/1999 - 1:06pm
Teresa's picture
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Joined: 04/02/1999 - 09:00

Laura, I got the ball rolling just like you said. I brought it in for the teacher to read and she thought it was great, afterwards I brought to the principal and once again he thought it was great even highlighted things of importance, the school is getting more and more cooperative as each day passes.The teachers were even inserviced with the epi-pen trainer today including the secretary which is WONDERFUL! Your proposed Management Plan for food allergies has truely helped me and wanted to say a GREAT BIG THANK YOU! I know in my heart life at the school is gonna be a whole lot better.We are all in this together and this web site has been very educational for me. Have A safe and great day!

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