Hi

Posted on: Fri, 04/02/1999 - 8:20am
Priscilla's picture
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Joined: 04/02/1999 - 09:00

I have a 1 year old daughter who has just been diagnosed with a life-threatining peanut allergy. I am so scared. I don't know what's safe and she just got the epi-pen. I explained to my bsitter and she quit. So now I am taking time off work, not knowing what to do. My in-laws and parents think she simply doesn't like peanuts, and won't be convinced otherwise. The one time I made the mistake of coming over the tried to give her a peanut and told her how good they taste. She cried when I said no, and we left. I have no pb in my house, but my 4 yrs old is having fits because he can't have his fave food in the world, pb. Why did this happen to me!!! I'm probably not going to be able to go back to work, however my husband will make enough to support us. What if I do some-thing wrong. What if I kill her. Oh god. HELP!!!

Posted on: Fri, 04/02/1999 - 8:40am
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Joined: 03/10/1999 - 09:00

Hi Priscilla-
Welcome to the club! Take a deep breath -- you are not going to kill your daughter. After you put the kids to bed tonight I urge you to read the posts on this board. Every single one of them. Even if it takes you all night. Why? It will educate you about so many aspects of this allergy... so many questions you may be searching for answers to... so many things you may never have thought about. Knowledge is power. The key to successfully coping with this allergy is to educate yourself, and those around you about the nature of the allergy and the ramifications of exposure.
We were all it the panic state at one point in time. This site should help speed the transition from panic to awareness. We're all here for you!

Posted on: Fri, 04/02/1999 - 9:35am
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Joined: 02/03/1999 - 09:00

HI PRISCILLA,
I THINK MOST OF US CAN IDENTIFY WITH YOUR FEELINGS. I AGREE WITH LAURA READ AND LEARN AS MUCH AS YOU CAN.
AS FOR YOUR SON YOU MIGHT TRY ALMOND BUTTER MY NON ALLERGIC SON LOVES IT. (ONLY IF YOU KNOW YOUR DAUGHTER IS NOT ALLERGIC TO ALMONDS)
THE FIRST THING I DID WAS READ ALL THE LABLES IN MY KITCHEN AND TOSSED ALL PB AND P. OIL. YOU MAY BE SURPRISED HOW LITTLE OR HOW MUCH YOU WILL FIND. THEN I CONTACTED MEDIC ALERT AND FOOD ALLERGY NET WORK. AFTER THAT I FELT I WAS IN CONTROL OF AT LEAST MY HOUSE AND THATS A START. IT DOES BECOME A WAY OF LIFE AND GETS EASIER.
IF YOU HAVE QUESTIONS DON'T BE AFRAID TO ASK!!!! I'LL BE PRAYING FOR YOU. LORI

Posted on: Fri, 04/02/1999 - 9:54am
brenda's picture
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Joined: 01/22/1999 - 09:00

Priscilla,
To educate your parents/inlaws, supply them with literature on the allergy, show them the video from FAN ("It just takes one bite") and take them with you to the allergist's appt. if you can.
I have heard soybutter is a good substitute for peanut butter. You might want to be careful of the nutbutters-they can be cross-contaiminated with pnts. Even though peanuts are not a tree nut (they are a legume) it is prudent to avoid all nuts for 2 reasons: cross-contaimination with pnts and studies have shown approx. 30% of people with pnt allergies are also allergic to tree nuts.
[This message has been edited by brenda (edited April 02, 1999).]

Posted on: Fri, 04/02/1999 - 9:56am
brenda's picture
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Joined: 01/22/1999 - 09:00

.
[This message has been edited by brenda (edited April 02, 1999).]

Posted on: Fri, 04/02/1999 - 10:46am
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Joined: 02/02/1999 - 09:00

Hi Priscilla,
I can really sympathize with you on the child care situation, as I recently have gone through that agony. My babysitter that I had from the time my son was two months old, and who was much in tune with this allergy advised my about six weeks ago that she would not be caring for my son after the end of March. I could not affored to quit working, so I proceeded to find a pnt free facility. I couldn't immediately find one, but convinced a facility to go pnt free with much literature. As everyone has mentioned here, knowledge is power. Since you have access to the net, read and print as much as you can on the allergy. Keep a file on all the literature, and use this as your sword. I had to use this to convince in laws and friends that this allergy was real and serious.
I have been dealing with this for about fifteen months now. My sons first anaphylactic reaction was at fourteen months. I was a basket case at first, but as everyone else has commented, you buiild confidence by educating yourself and sharing experiences with the posters on this board and others.
Good luck to you. It will get easier with time!

Posted on: Fri, 04/02/1999 - 10:25pm
Priscilla's picture
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Joined: 04/02/1999 - 09:00

Thank-you so much for all your help!!!
You guys are life-savers. My husband and I sorted through our kitchen cubords last night, we were amazed at the things that had peanut oil in them. Somethings acctually had peanut FLOUR in them. I promise that I will do all my reading on the subject and I dread thinking about what would have happened to Lindsay, had you not come along. I have started a file and took my parents/in-laws to my allergist. They were shocked, but it worked. In-fact they are now calling me constantly with helpful hints such as checking my toaster for crumbs of breads that were not safe, ect. Thank's again for all help and sympathy just knowing someone else is in the same boat as you makes a world of difference.
Priscilla O

Posted on: Sat, 04/03/1999 - 1:26pm
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Joined: 05/28/2009 - 16:42

Congratulations on the accomplishments you have made in just days - Your in-laws and parents now understand the allergy!
Besides this board, which is wonderful, Please think about joining the Food Allergy Network - They have great educational materials and a newsletter. Their number is 1-800-929-4040. They also have patient conferences scheduled this Spring - Check out their website for the dates and locations: [url="http://www.foodallergy.org"]www.foodallergy.org[/url]
Also check the support group board on this site and ask FAN if there is a local support group in your area.
I am so glad that you found this board!
[This message has been edited by Mary (edited April 03, 1999).]

Posted on: Wed, 04/07/1999 - 10:43am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

Hi, you are making progress after the first initial panic and shock. It is hard but it gets better and all of us here stay in touch and want to help, always!
I have one suggestion to add to all the others. Try to find a support group in your area. I attend an anaphylactic support group for food allergic persons and/or their parents and it is my local life line when dealing with this allergy becomes overwhelming sometimes. To find one in your area, check this board, check with your local allergy or lung association, ask your doctor or public health department or call your local library or community information service.
My group simply meets and talks about concerns that have come up since the last meeting: problems with schools, what it's like having to use the epi-pen, someone's child was having an airborne reaction and public reaction was hard to deal with, the fear of making our kids too fearful but knowing how careful they need to be, etcetera. We also share information from food manufacturers and hold social gatherings that are safe for our kids.
Take care. I'm thinking of you.

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