living with peanut/egg allergic toddler

Posted on: Fri, 05/07/1999 - 5:06am
MO's picture
MO
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Joined: 05/07/1999 - 09:00

My 21 month old son is peanut/egg allergic.
I feel confident my husband and I will be able to recognize and treat an anaphylactic reaction. I taught ALL of this caregivers at daycare the same.(FAN daycare guide is the best) We teamed up for avoidance strategies and they have been wonderful. I seem to live my life just waiting for the worst to happen?
We are going on vacation next week and I'm a wreck? How can you go on with a normal life when you need to seek emergency medical attention within 15 mintues of using an epi-pen? Can you ever travel far? I know where the hospitals are? I will pack and plan his safe foods...BUT we seem to run into
peanut butter everywhere (last week in the YMCA locker room a mom ignored her son as he smeared his Pb and j all over a locker??)SO, does it get easier? Do you gain more confidence? Can we live a normal life?
Will I ever sleep again? Can I use a second epi-pen if help hasn't arrived and he is in distress again?

Posted on: Fri, 05/07/1999 - 5:47am
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Jan
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Joined: 01/26/1999 - 09:00

Hi Mo,
We just went on vacation a couple of weeks ago with our almost 18 month old son who is allergic to peanuts/eggs and everything else. We just brought our own food and when we went out for dinner I would just order him a bake potatoe and always carried his snacks with us. As soon as we got there I found out where the nearest hospital was.
I am not sure about the epi-pen, I have never had to use it but I would think you could give another one. My doctors told me to carry a couple with me at all times. I know what you mean about sleep. I am always having panic attacks when I have to leave him. Good luck.

Posted on: Fri, 05/07/1999 - 8:24am
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Joined: 03/08/1999 - 09:00

Hi Mo,
My 18 month old son is Peanut/Egg Anaphylaxis. I can tell you that an anaphylaxis experience is very scary and that since that incident, I have been very very scared. My husband and I have decided that we will bring Sean's food with us wherever he goes. I too was very disappointed last week while at Discovery Zone. A father was feeding his toddler a PB&J sandwich while playing in the toddler section. I now feel that DZ is an unsafe place to bring him since I know they probably don't wash the balls or the jungle gym equipment. I guess the best advise I have been given so far is to be very careful and educate myself and family members. Remember, you are not alone! [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]

Posted on: Fri, 05/07/1999 - 11:51pm
Anonymous's picture
Anonymous (not verified)

Hi Mo,
My 5 year old son is also peanut/egg anaphylactic and like everyone else who posted here, we too pack his food and snacks when we are out and about. It cuts down on a lot of anxiety knowing what they are eatting is safe and not having to stare at them during the entire meal looking for any kind of warning signs of a potential reaction.
Just like Lynda said, know you are not alone with this and with time, things will become second nature to you. There is a great support system here!!

Posted on: Sun, 05/09/1999 - 11:37pm
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Joined: 01/16/1999 - 09:00

Yes you can give more than one Epi-pen if help is more that 15 minutes away. We've been told to have one Epi-pen for every 15 minutes it may take you to get to a hospital (don't count on the EMT's carrying any epineprine,they may not be able to). As usuall check with your own pediatrician or allergist to be sure they recommend that for your son.

Posted on: Tue, 05/11/1999 - 2:58pm
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Joined: 04/17/1999 - 09:00

Just a couple of practical suggestions pertaining to travel and potentially emergent situations...
Jump on the net and look up the hospitals near your destination ahead of time. Print out maps from your hotel to the hospital as well as from any sight-seeing destinations to the hospital. Keep them with you just in case.....although....
Remember to use 911. Call the ambulance service/services for that area and ASK them if they carry epinephrine. Discuss your situation with them. Tell them where you are planning to visit and find out if they serve all the sites on your trip - ambulance services vary by county and city so you may need to contact more than one.
Ask your allergist for a recommendation of one of her/his peers in the area. Let that doctor know you will be vacationing in his area and would like to use him as a resource in case of an emergency.
Carry a copy or summary of your child's diagnosis. This would help any emergency room physician. It would also save time in the event of an emergency.
I know these all apply to emergent situations. I just feel better knowing I at least have a plan in case something goes wrong. I tend to plan for the worst but expect, indeed demand, that the best actually happen.
------------------
Kristin

Posted on: Sun, 05/16/1999 - 11:49am
brenda's picture
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Joined: 01/22/1999 - 09:00

re: travel. Here is a website that lists hospitals by state and includes the addresses and phone numbers.
[url="http://www.ahd.com/active/guest2.asp"]http://www.ahd.com/active/guest2.asp[/url]
Hello this is Chris@PeanutAllergy
The link didn't work so try this one
[url="http://www.ahd.com/guest1.html"]http://www.ahd.com/guest1.html[/url]
[Note: This message has been edited by Chris]

Posted on: Tue, 05/18/1999 - 5:47am
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Joined: 05/18/1999 - 09:00

My 18 Month old son had his 1st and only reaction almost 2 mos ago after eating a taste of peanut butter on whole wheat toast. It wound up in a trip to the emergency room....etc., etc......I've since reverted back to all baby food, keeping away from even those he's had before and didn't react to (peas, green beans, mixed vegetables).....I've seen a lot of what to avoid, but my problem is finding what I can safely assume is ok to give him. Any suggestions would be greatly appreciated! We won't be seeing an allergist until June 8th (the first appointment we could get from 3/29).

Posted on: Tue, 05/18/1999 - 7:11am
Anonymous's picture
Anonymous (not verified)

My son loves fresh fruit, fresh vegetables, saltines (which would come in handy for an 18 month old), applesauce. There really are a lot of foods without peanuts but it is the cross contamination we worry about. The first rule of thumb is never assume anything. Read labels even on food you routinely buy in case the ingredients change. Even with the baby food...check out food manufacturers under the "Gerber" topic. I know them eatting the same foods over and over can get boring but as long as they continue to eat it and are satisfied with it, I say continue what you are doing or unless your allergist suggests otherwise at your visit.
Hope this helps.

Posted on: Wed, 05/19/1999 - 1:24pm
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Joined: 05/18/1999 - 09:00

Thanks! That is helpful. I'm afraid of other possible allergies, so I have been avoiding green beans and peas (which he previously had enjoyed). I don't know if once an allergy surfaces if he could be allergic to other items he previously ate without any problem. Any thoughts on that?

Posted on: Wed, 05/26/1999 - 1:14am
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Joined: 05/19/1999 - 09:00

Wondering if both egg and peanuts can cause anaphylactic reaction. I thought it was just the peanuts(or bee stings or shellfish). My son has an egg white allergy, beef allergy and peanut. I thought we were only talking anaphylactic for the peanuts...I am new to this and still worried about having to use the epi pen if needed. Why don't EMT's carry the pen?
Susan

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