PA Mom with PA Son

Posted on: Sun, 07/11/1999 - 12:52pm
CathyT's picture
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Joined: 07/11/1999 - 09:00

I'm a 37yr old mom with two boys, 3 1/2 yr &
2 yr. I am PA, and we just found out my 2 yr
is also. Since I know firsthand what this
entails, needless to say I have been upset.
Are there any other PA parents with PA kids?
I feel like a dirty trick was played on me,
twice. I found this site this week, and have
noticed a lot of concerns of parents with
regards to when their kids get older. If it
helps any, it does get easier to deal with.
I went away to college, travelled quite a lot
due to business & pleasure. But, I do feel
that having a child with PA is a new ballgame. And one that I am tired of playing, and it has just started.

------------------
CathyT

Posted on: Sun, 07/11/1999 - 9:38pm
Christine's picture
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Joined: 02/03/1999 - 09:00

pCathy,br /
Welcome to the boards here! It sure is scary when it happens to your child isn't it? We can almost handle things better when they happen to us because we know then that we can be in total control. But, let's face it, we can't be everywhere are children are or see every move they make, especially if we have other children to watch. It is tough. I know how you feel about feeling that you've had a dirty trick played on you twice. Isn't it enough to have one bad thing! I was diagnosed with thyroid cancer when my son was about 6 months old. When he was 8 months old and I was in the throes of trying to make sure I was going to be okay, he was diagnosed with the peanut allergy. I thought "what am I being punished for?" Well, hopefully you will feel better by visiting these boards and venting your concerns.br /
Christine/p

Posted on: Mon, 07/12/1999 - 8:05am
Kelly Morse's picture
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Joined: 03/13/1999 - 09:00

pChristine - I don't mean to get off the subject but please tell me you are doing better!?!?! I feel the "dirty trick" factor too. We have a PA son and a daughter facing a kidney transplant when she hits her teen (during the growth period)./p
pCathy - My mom (the grandma) has a very mild peanut allergy. So mild in fact that I never knew until just recently./p
p------------------br /
Kelly Mbr /
Another Mom in Michigan/p

Posted on: Mon, 07/12/1999 - 9:42pm
Christine's picture
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Joined: 02/03/1999 - 09:00

pKelly,br /
Thanks so much for asking. Yes, I am doing much better. Fortunately, most thyroid cancers have a 99.9% cure rate (whew!) and as all the doctors tell us thyroid cancer patients--"if you have to get any cancer, thyroid cancer is the one to get." Nevertheless, it is still very scary and requires much monitoring over my lifetime! How come your daughter will require a kidney transplant?br /
Christine/p

Posted on: Tue, 07/13/1999 - 10:38am
Kelly Morse's picture
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Joined: 03/13/1999 - 09:00

pChristine - Madison (almost 3 yrs old) was determined to have a blockage in her kidney before she was born. It acts kind of like a stopped up sink. In the kidneys when the waste products don't drain properly you get lots of infections. We had an antibotic resistant one about 18 mos that made her kidney stop growing (apparently some died). They are very concerned about the strain on her "good kidney" from the repeated infections. She takes antibotics everyday to prevent infections but it has been a long road! They know us well at the hospital./p
pTake Care! Kelly/p
p------------------br /
Kelly Mbr /
Another Mom in Michigan/p

Posted on: Thu, 07/15/1999 - 7:36am
Anonymous's picture
Anonymous (not verified)

pHi Cathy and welcome to the boards./p
pMy son (age 5) is allergic to peanuts and I'm very sorry your son was diagnosed with this dreadful allergy./p
pHow did you handle your own P.A. growing up? /p
pHow did your parents handle it?/p
pI love learning from the "adult" population with this allergy on how things were done differently than what we do with our children or if everything was done the same. /p
pI don't think one could ever be informed enough about this allergy. /p
pPlease share your experiences with us./p
pI wish you and your family luck!/p
pStay Safe!/p

Posted on: Fri, 07/16/1999 - 9:12am
CathyT's picture
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Joined: 07/11/1999 - 09:00

pConnie,br /
I handled my PA differently than from what I've seen here. It became clear to me that very few people wanted to be responsible for giving me the epi-pen, or you got someone that found you "fascinating", like a bug. So, very few people know about my PA. Even as a child, I just naturally stayed away from anything remotely having to do with nuts. My parents say they cannot explain it.br /
Being a teenager was difficult, due to the natural tendency to "hover smother" from parents, as I call it. I refused to wear my Medic Alert bracelet, and only began again when I was pregnant with my first child. Now, of course, I feel a tremendous burden that nothing can happen to me, as I have 2 toddlers. Before that, I took each day as it came, and relied on myself to call 911, etc. Of course, when my son enters preschool, I will alert everyone, etc., but as he gets older, I hope I will remember how I felt, and respect his decisions. One thing I am going to teach him is that food is only fuel to get you from point A to B. Society places WAY too much emphasis on it. I had a much easier time of things once I realized that, and once I became much more active in sports, etc. I learned to ski, and run 5 milers, (even with asthma), and it is a huge difference in how I feel with regards to being "different". Sorry for running on.br /
Cathy/p

Posted on: Mon, 07/19/1999 - 4:47am
Anonymous's picture
Anonymous (not verified)

pCathy,/p
pThank you for your insight on your own experiences with your allergies./p
pI am one of those people that tends to "hover" and "smother" when we are out and about with Cameron and I know my attitude has a big effect on his personality. (Some days are better than others)./p
pOne thing I have started to do with Cam is let him take control of his allergy...even at the age of 5, by letting him ask for the manager of the restaurant, instead of me or my husband, and explaining his allergy and what the chef cooks in, etc. (I got that advice by reading one of Tracy's posts on this subject) and I think it has really helped./p
pThanks again for sharing your childhood experiences. I think you have a great handle on things!/p
pStay Safe!/p

Posted on: Mon, 07/19/1999 - 11:16pm
SteveW's picture
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Joined: 04/08/1999 - 09:00

pThe head of FAN gave a presentation on the management of PA at the Baltimore conference. Just like other things, you gradually turn over more and more responsibility for allergy management to your child. You can never start too young. My son beginning at 19 months responded (when he wanted to):/p
pQ: What do you say about peanuts?br /
A: No peanuts for me./p
pQ: What does your bracelet (medic alert) say?br /
A: Allergic to peanuts./p
pHe does not understand everything he says, but it's a good start./p

Posted on: Tue, 07/20/1999 - 6:56am
Anonymous's picture
Anonymous (not verified)

pSteve,/p
pThis is such an important step! Like you, we have also "drilled" our son on his allergy since he was 10 months old and the "what if's" of other people. Granted, at that age, they don't know what is going on, but as with anything, repetition is a life saving technique with this allergy./p
pIt is scary enough teaching our children not to accept food from strangers, let alone teaching them not to accept food from people they know. /p
pI need to improve on my own skills of turning the "control" over to my son and "his" allergy...to guide him without controlling him. We'll see how I do when he starts Kindergarten in 4 weeks...this will be the real test! /p
pI would love other people's feedback on this subject and get their idea's of how to "turn over" the control./p
pStay safe!/p

Posted on: Tue, 07/20/1999 - 8:15am
MCouchie's picture
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Joined: 05/18/1999 - 09:00

pI understand thos of you with the feeling of being punished.....it seems all I ever hear about anymore is cancer. It's becoming like a common cold. In 1994 we found out that my husband had a brain tumor. They were only able to remove 75% of it and since then we've been up and down with his health and treatments. On top of everything else we have to deal with, we find out that our son is Peanut allergic, and has asthma. We just can't catch a break! But looking on the other side, there are always people in worse situations, and althought this peanut allergy is scary and life-threatening it is manageable, and I believe that things will get easier as the years go on. Just thought I'd comment. Stay Well everyone!/p

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