school meeting on Wednesday

Posted on: Mon, 03/27/2000 - 5:38am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

We are having a review session of our daughters 504 plan on Wednesday. Part of this meeting will be planning for next year as well. My daughter is going from kindergarten to first grade so things change a bit.She is anaphylactic to tree nuts.

We have written up a tentative 504 for next year and attached research articles that support our wishes. Her ped. is reviewing the document and we expect his support.

Our daughter is the "first" severe allergy the district has dealt with and so now the big wigs are coming to the meeting.I think they are realizing they might be setting a precident with what is decided.Does anyone have any advice for us? Things that have worked well for you? The school personnel has been very supportive for most of the year (a few problems along the way). I am concerned over the district people becoming involved.Any advice or help would be appreciated.

Posted on: Thu, 03/30/2000 - 11:12am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pWe had our school meeting on Wednesday. We went in with a list of 26 items we wanted. They ranged from a nut free classroom to an aide to supervise our daughter to how she will be dismissed from class. We got all 26 items we wanted implemented. To put it mildly we are so excited. It feels so good to know we already have a 504 plan in place for next year.I did a lot of research to support our points and they could not argue when presented with written proof!i really feel like my daughter is going to have a great year!/p

Posted on: Thu, 03/30/2000 - 11:43am
dmh's picture
dmh
Offline
Joined: 02/21/2000 - 09:00

pRilira - Can you send me a copy of your 26 things? My son will go to kindergarten in the fall of 2001. I am already concerned and we saw our allergist last week. He said to have him take his own food and educate his teacher. He is not worried about him smelling or touching it. He said the only problem he will have is if he takes another child's pbjelly sandwich and eats it! I am worried. I have read so much that others have done at school. Is it because they are smell sensitive? My e-mail is [email]Khough003@cs.com[/email]. Thank you./p

Posted on: Thu, 03/30/2000 - 2:22pm
momma2rac's picture
Offline
Joined: 03/03/2000 - 09:00

pI'm no expert but he taking a sandwich, that being the only thing you need to worry about seems short sighted!/p

Posted on: Fri, 03/31/2000 - 12:57am
sara's picture
Offline
Joined: 11/04/1999 - 09:00

pWhen you say your child has an aide, what do you mean? Just at lunch, or all day?/p
pWhat will the aide do?/p

Posted on: Fri, 03/31/2000 - 12:53pm
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pThe aide is assigned to my daughter for 2 1/2 hours a day. This covers right before recess, recess, before during and after lunch. The aides duties are to clean my daughters spot at the designated nut free table.Monitor the food of the other kids who want to sit at the table,supervise the kids washing their hands before returning to the classroom. They carry my daughters epi-pack and are trained on when and how to give it. They are required to keep my daughter in their line of sight at all times.They are only responsible for my daughter./p

Posted on: Tue, 04/04/2000 - 4:50am
nisson's picture
Offline
Joined: 04/04/2000 - 09:00

pWhat is the 504 plan? MY daughter has the peanut and tree nut allergy and will be starting kindergarten in the fall. I would also like to see the list of things you requested. Please e-mail me at [email]belanger@mciworld.com[/email]/p
p Thank you, denise/p

Posted on: Tue, 04/04/2000 - 1:14pm
ColleenMarie's picture
Offline
Joined: 03/04/2000 - 09:00

prilira,br /
Wow! I'm impressed that you got all 26 items you requested, especially the aide. Did you meet much resistance during the meeting?/p
pMy husband and I will be meeting with school officials soon too since our son will begin kindergarten in the Fall. We have purchased just about everything it seems from the FAN and are trying to pull together a plan of action. I spoke with the secretary today about setting up an appointment with the principal and the nurse, for starters. She dismissed the need for meeting with the principal and said the school has a few food-allergic students and ones with diabetes. But I spoke with the nurse several months ago (on the phone) and my son will be the first to go to this school with a severe food allergy. I can see already that this might take some time./p
pI'm sorry to give you yet another "to-do" but would you mind emailing me too? I am worried about this first meeting. The email is in my profile./p
pThanks,br /
Colleen/p

Posted on: Thu, 04/06/2000 - 2:46am
kristene's picture
Offline
Joined: 09/27/1999 - 09:00

pRilira,/p
pI hate to ask you to go through this again, but when you get a chance can you post that list here. I would love to see it and hopefully get some ideas from you!/p
pThanks,/p
pKristene/p

Posted on: Fri, 04/07/2000 - 3:20am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pOur section 504 plan/p
pA. Nurse will provide inservice to all teachers at a staff meeting twice during the year to educate them about nut allergies and treatment of anaphylaxis. Nurse and parent will provide detailed training to classroom teacher,instructional aide,librarian, and computer lab teacher regarding emergency procedures and contamination issues./p
pB. A classroom policy will be developed as follows: All food served to students in Rachel's class must be cleared by Rachel's parents or it will not be served. Unplanned,unexpected food brought into the classroom by other parents will either not be distributed, or be distributed outside the classroom as the students leave for the day./p
pC.School and parent will write a joint letter to parents of all classmates informing them of her allergy,the classroom food policy,and the nut free status of the classroom./p
pD.Parents will provide an epi-pak containing prescribed epi-pen,antihistamine,and other materials as determined by parent. Medication consent forms will be completed yearly by parent and signed by physician. Parent will be responsible for replacing medication when it expires./p
pE.Parent or designee will walk Rachel into school each day and supervise Rachel until teacher is present. Parent or designee will meet Rachel at the classroom door as she leaves for the day.Teacher will walk Rachel to the office if parent is late./p
pF.Teacher will leave a copy of this 504 plan and any other instructions in a spot easily accessible to substitutes. Parent or designee will talk with substitute before leaving for the day and be sure that substitute has located and understands plan./p
pG.All students will be taken to the restroom to wash their hands prior to entering the classroom./p
pH.Parent and nurse will show parent provided video on food allergies to Rachel's classmates and teach them (at age appropriate level) about allergies and about steps necessary to protect Rachel./p
pI.Teacher will keep a parent provided emergency box readily available which contains first aid supplies for Rachel. Parent will provide snacks for Rachel./p
pJ.Rachel will take the epi-pak along with her whenever she leaves the classroom./p
pK.Computer keyboard in computer lab and in classroom will be cleaned prior to Rachel using it./p
pL.Rachel will eat snack and lunch at a table designated for her. Lunch table and seat where Rachel will be sitting must be wiped off prior to each time she uses it./p
pM.Parent will instruct Rachel she may not share food and utensils./p
pN.A classroom aide will be assigned to supervise Rachel between 10:45-1:15pm.Aide will be assigned to supervise cleaning of designated table prior to recess and lunch.Aide may take student to wash their hands,monitor snacks at the designated table,and will be responsible for direct supervision of Rachel during snack and lunch break,including playtime on playground./p
pO.Rachel will inform teacher or aide of any developing symptoms./p
pP.Students will not eat in classroom on rainy days./p
pQ.Rachel will only eat food brought from home or approved by parent or designee./p
pR.Parent will instuct Rachel not to use the school soap.Parent provided soap will be in her pack./p
pS.Rachel will have a parent provided water bottle to drink from so she does not have to use the water fountain.She will be allowed to have her water in class and on the playground./p
pT.Parent will volunteer in the classroom as agreed upon with classroom teacher./p
pU.Parent or designee will accompany Rachel on all field trips.br /
********************************************br /
This is our tentative plan. It is a little different then what I e-mailed some people because we combined some items./p
pThe term epi-pak refers to a small purse type bag that we use at school to keep her stuff in. We got it at Old Navy and had the front embroidered(sp?) with a red cross and Rachel's epi-pen. The back we sewed on a clear window that has Rachel's picture and descibes the symptoms of a reaction. Epi-pen instructions are on a big laminated card on the inside.It is adjustable so her aide can wear it while she plays on the playground./p
pThe letter to the parents is taken in part from Lisa Cipriano_Collins book and part we added. It will be signed by the distict nursing supervisor and the school principal.Here is the letter:/p
pDear parent,/p
pI would like to make you aware of a health issue that the children are learning about this year. One of their classmates,Rachel xxx,has a severe allergy to tree nuts,their products,and oils.Strict avoidance is the only way to prevent an allergic reaction.The allergy is life threatening. For this reason we must be most cautious with the classroom snacks and party foods.Your child is still welcome to bring nut snack items from home.However,each time he or she chooses to bring a snack without nuts,your child plays an important part in decreasing the risk to Rachel. To help further decrease the risk we have implemented the following food policy:/p
p 1.All food served to the students must be purchased in a store./p
p 2. The teacher must be given prior notice about any food items being brought into the classroom excluding the student's daily snack. If this does not occur the food item will not be distributed until the end of the day./p
p 3.All items must contain a complete ingredient list. If the list is omitted the food will not be distributed until the end of the day./p
p 4.If nuts are listed as an ingredient or the label has a"may contain nuts" warning the food will not be distributed until the end of the day./p
pWe want Rachel to partcipate fully in all class activities this year. With your help, we can keep our classroom safe for everyone. I am most appreciative of your understanding and cooperation./p
p*********************************************The distributed at the end of the day was our big compromise. What that means is the teacher would take the item to the lunch area and give it to the students as they are leaving school grounds. This will happen after my daughter has been dismissed for the day and has left the area./p
pI hope this helps point some people in the right direction. I will be happy to answer any question on the boards or otherwise.My e-mail is [email]rilira@home.com[/email]/p

Posted on: Fri, 04/07/2000 - 3:40am
kristene's picture
Offline
Joined: 09/27/1999 - 09:00

pThank YOU!!!! This has been so helpful to see, and has given me any ideas for when Eli starts school./p
pKristene/p

Posted on: Mon, 04/10/2000 - 3:53am
ColleenMarie's picture
Offline
Joined: 03/04/2000 - 09:00

pJust wanted to thank you for providing us this useful information. Our first meeting is in two days, and I'm beginning to feel prepared! The more prepared we become, the less nervous I feel./p
pThanks again,br /
Colleen/p

Posted on: Mon, 04/10/2000 - 7:04am
stefnc's picture
Offline
Joined: 04/10/2000 - 09:00

pQuote:Originally posted by rilira:br /
[b]We had our school meeting on Wednesday. We went in with a list of 26 items we wanted. They ranged from a nut free classroom to an aide to supervise our daughter to how she will be dismissed from class. We got all 26 items we wanted implemented. To put it mildly we are so excited. It feels so good to know we already have a 504 plan in place for next year.I did a lot of research to support our points and they could not argue when presented with written proof!i really feel like my daughter is going to have a great year![/b]/p

Posted on: Mon, 04/10/2000 - 7:09am
stefnc's picture
Offline
Joined: 04/10/2000 - 09:00

pQuote:Originally posted by dmh:br /
[b]Rilira - Can you send me a copy of your 26 things? My son will go to kindergarten in the fall of 2001. I am already concerned and we saw our allergist last week. He said to have him take his own food and educate his teacher. He is not worried about him smelling or touching it. He said the only problem he will have is if he takes another child's pbjelly sandwich and eats it! I am worried. I have read so much that others have done at school. Is it because they are smell sensitive? My e-mail is [email]Khough003@cs.com[/email]. Thank you.[/b]/p

Posted on: Mon, 04/10/2000 - 7:15am
stefnc's picture
Offline
Joined: 04/10/2000 - 09:00

pRilirabr /
We will be sending our PA son to a private pre-k this fall. We have aired our concerns to the "headmaster" and received a very positive response; however, we are still very nervous and would like to see your list of items you requested. My email is [email]tracy520@worldnet.att.net[/email] Quote:Originally posted by rilira:br /
[b]We had our school meeting on Wednesday. We went in with a list of 26 items we wanted. They ranged from a nut free classroom to an aide to supervise our daughter to how she will be dismissed from class. We got all 26 items we wanted implemented. To put it mildly we are so excited. It feels so good to know we already have a 504 plan in place for next year.I did a lot of research to support our points and they could not argue when presented with written proof!i really feel like my daughter is going to have a great year![/b]/p

Posted on: Thu, 04/13/2000 - 12:42pm
jennasmom's picture
Offline
Joined: 04/10/2000 - 09:00

pI would also like a copy of the 26 items you requested for your child. I would appreciate any other info you have. My e-mail is [email]belanger@netexp.com[/email] thanks for your time. Denise/p
p Quote:Originally posted by rilira:br /
[b]We had our school meeting on Wednesday. We went in with a list of 26 items we wanted. They ranged from a nut free classroom to an aide to supervise our daughter to how she will be dismissed from class. We got all 26 items we wanted implemented. To put it mildly we are so excited. It feels so good to know we already have a 504 plan in place for next year.I did a lot of research to support our points and they could not argue when presented with written proof!i really feel like my daughter is going to have a great year![/b]/p

Posted on: Fri, 04/14/2000 - 4:23am
Rae's picture
Rae
Offline
Joined: 03/28/2000 - 09:00

pRilira,br /
As I parent of a PA child and a special education teacher, I am impressed! Is the 504 plan based on health issues alone? I have difficulty getting some of my students aides. Many that need them don't have them, "funding". But, they would have them if their parents would push. I feel what you have gotten for your daughter is wonderful. I hope many others of you can get the same. Some advice I would like to give some of you from experience with the other side, bring proof. Even better than proof, if you can find cases to show (especially if a suit was involved), bring those! Parents who bug the school board, involve the media, involve any family rights activist groups, etc. usually get their way! Go in with a plan and support from outside of the school district. I am fortunate in many other ways. First of all, my daughter is not smell sensitive. Second, my daughter attends school were two of my sisters-in-law teach and two sisters (one the Principal) teach. I can guarantee when I hear someone above me (from our central office) refer to a parent as a pest or roll their eyes, I know thier child is getting the best of what their is to offer!/p

Posted on: Sun, 04/16/2000 - 8:09am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pYes our 504 plan is completely relating to her health issues. I had "overheard" the district officials were questioning the need for a 504 because my daughter is academically gifted. I noticed my daughters painting and story were missing from the display in the classroom. Her teacher had been asked to supply samples of her work.I guess some people felt that she didn't need special ed. so she didn't need a 504 plan. I am very happy with how things are going. I do feel some things aren't addressed but I think the big issues are covered.I think it is all a learning experience as we go along./p
pIn regards to our list of 26 items they are all covered in the plan listed above./p
p One thing I would recommend is checking the cleaning supplies and all craft supplies in the classroom.I know in our state (CA) schools purchasing departments have to have a list of ingredients for all items purchased for the district. It covers paint,glue,windex.... They have all the contact information for the supply companies. The school soap at my daughters school used to fill all dispensers is almond soap.The purchasing dep't gave us the numbers and my husband spoke directly with the chemist who developed the soap and found out it was completely manufactured with no actual almond in it. The janitorial staff will usually have the list on site. Our head custodian also made a list of all plants on the school grounds./p
pFor kindergarteners find out if they use finger paints and I recommend you have a set for the classroom that only your child can use.I will post more if I think about anything else.I will re read her kindergarten 504 and see if anything differs./p

Posted on: Sun, 04/16/2000 - 8:15am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pRae,/p
pI definitely was given the advice to push for any issues I felt strongly about. Many times if a parent is consistant and a little aggressive they will get what they want as opposed to someone who may be a little more calm or polite. I am not suggesting to go into a meeting like a crazy person but to stay focused on your goal and not to accept no for an answer.Use catch phrases like "I have been advised..." or " Research has shown..." "Legally speaking..." " My childs rights...". It is amazing how the idea of having someone backing you up legally or medically scares the bejebe's out of some people./p

Posted on: Sun, 04/16/2000 - 11:51pm
Rae's picture
Rae
Offline
Joined: 03/28/2000 - 09:00

pYou are right! They are scared when it is obvious you are educated on your rights and the topic. Also, get the "big wigs" in your meeting - it is harder to say no face to face. Good Luck everyone!/p

Posted on: Mon, 05/01/2000 - 10:13am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pToday I had a meeting with our allergist (whom has never been an ounce of help). We had to go to discuss my daughters 504 plan. The superintendant of special services for our school district wanted a doctor to review the plan to deem if all the modifications were necessary. I was very nervous thinking this guy could ruin everything for us./p
pWell he couldn't have been more supportive and encouraging. At the end of the appointment he thanked me for educating him!! There are now no obstacles in the way from implementing my daughters plan./p

Posted on: Fri, 05/05/2000 - 4:47am
morgansmom's picture
Offline
Joined: 04/29/2000 - 09:00

pRilira:/p
pYou have been an inspiration to me. I'm on a mission now! I'm going for the same in Canada! Time for some policy changes!!/p
pNow it's my turn, my meetings on Wednesday with the principal./p
pI've been really having a hard time with thinking through the school thing, and have been leaning towards homeschooling because it was the only option that was safe. Now with your idea of supervision over snacks, lunch and recess, I'm changing my mind. If we could implement that, I would be so much more relax. Watch out Caledonia, Ontario, Canada, here I come!/p

Posted on: Fri, 05/05/2000 - 5:00am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pMorgansmom,/p
pGood luck at your meeting!! If you need any help or have any questions please feel free to e-mail me./p
pWe just found out our district has made some policy changes and implemented some new policies in regards to food allergies. All this was based on our plan and research we backed it up with!/p
pI never thought I would be a crusader but I am so glad that i am!/p
pGood Luck [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]!/p

Posted on: Sun, 06/25/2000 - 4:27pm
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pI just was scrolling through old posts and came across our 504 plan for my daughter. This will go into effect on August 1st which is the first day of first grade. It was funny looking back at it because the wording had to be totally changed at school. Since we wrote the plan my daughter has been diagnosed with peanut allergy in addition to the tree nut. At least it happened before we distributed all the paperwork to everyone!! All the information packets I put together were geared mostly to just the tree nut allergy so I had to go back through and change things. Unfortunately I had highlighted everything in green and can not find another highlighter the exact same color so it looks kinda goofy. Oh well this way it looks like I am trying to stress some things more than others./p

Posted on: Thu, 06/29/2000 - 6:48pm
LD's picture
LD
Offline
Joined: 04/21/2000 - 09:00

pHi Rilira,/p
pMy son is only 2 1/2 but it is never to early to start building up an arsenal of information! /p
pCan you share the supporting documentation that you used to prove your points? (Links, etc.) That evidence was obviously very important to getting those 26 items approved. I'd like to put it in my "allergy attack pack"./p
pThanks, LD/p

Posted on: Sat, 07/01/2000 - 5:42am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pLD-br /
I definitely think the documentation backed us up tremendously. I am not computer savvy enough to do hyperlinks (anyone want to e-mail the computer challenged?) I read the tips on how to do it but still don't get it. Anyway here are the sources I used:/p
p PubMed [url="http://www.ncbi.nlm.nih.gov/PubMed"]www.ncbi.nlm.nih.gov/PubMed[/url]br /
articles: (The link will take you to their home page, then type the article title listed below in their search function- it will then give you the article to read.)br /
1. Fatal and Near Fatal anaphylactic reactions to food in children and adolescentsbr /
2.Management of severe food allergy in the school setting./p
pAnother article:/p
p [url="http://www.csaci.medical.org/anaphschhols.html"]www.csaci.medical.org/anaphschhols.html[/url]br /
article:br /
Anaphylaxis in schools and other child care settings/p
palso related to that article is: [url="http://www.aaaai.org/"]http://www.aaaai.org/[/url]br /
[url="http://www.aaaai.org/scripts/search/search.asp"]http://www.aaaai.org/scripts/search/search.asp[/url]br /
(search under anaphylaxis in schools)br /
AAAAI Professional Resource Center:Position statement 34br /
( This is me editing- this article is no longer available in their current data, it is basically a synposis of the article Anaphylaxis in schools and other child care settings)/p
pexcerpts from [url="http://www.anaphylaxis.org"]www.anaphylaxis.org[/url]br /
I copied info. pertaining to worsening reactions,when kids are at higher risk,where to keep epi-pen,treatment of anaphylaxis./p
p [url="http://cgi.cadvision.com/~allergy/"]http://cgi.cadvision.com/~allergy/[/url]br /
After following this link, I clicked on articles and scrolled down the list. I then clicked on each of these title and it displayed the article./p
pThe following articles:br /
Division of Responsibilitybr /
Allergy free zone protects studentbr /
Cross Contaminationbr /
Managing food allergy in your classroom/p
pThe cross contamination article is near the top , all others are under the sub topic school related./p
p [url="http://www.kidsource.com"]www.kidsource.com[/url]br /
use the search function and type in the article name.br /
article:br /
Back to school with food allergies/p
p [url="http://www.vh.org/VCH/"]www.vh.org/VCH/[/url]br /
use the search function and type in the key words listed below.br /
articles:br /
Food Allergybr /
Anaphylaxis/p
pI hope some of this is helpful./p
p----This is [email]Chris@PeanutAllergy.Com[/email]br /
Some of the links above were not going to the corresponding sites mentioned. I edited those www addresses (one went to an architectural site). I want to remind everyone to test any links you post to see that they work and go where you wanted them to. Keep on posting! /p
pI think I have fixed everything. I do not know how to make links directly to the articles, that is why I said to use the search function./p
pDo I get a prize for the most edited post? I guess that is what is referred to as a boobie prize!/p
pLinda/p
p[This message has been edited by Chris (edited January 24, 2001).]/p
p[This message has been edited by rilira (edited January 24, 2001).]/p
p[This message has been edited by rilira (edited January 24, 2001).]/p
p[This message has been edited by rilira (edited January 24, 2001).]/p

Posted on: Sat, 07/01/2000 - 5:48am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pI forgot to add that I went through the articles and highlighted anything which supported what we were wanted. One example is we wanted our daughter to have immediate access to the epi. So in the Anaphylaxis in schools and other child care settings one thing i underlined was "Data clearly shows that fatalities more often occur away from home and are associated with either not using or a delay in the use of epinephrine treatment." There is also a whole section on Epinephrine which I highlighted./p
pLet me know if there is any questions./p

Posted on: Mon, 01/01/2001 - 3:34pm
Anonymous's picture
Anonymous (not verified)

pLinda, I just read this whole thread from start to finish and I must say, what a wonderful job you did for Rachel. I'm now feeling like a complete idiot for accepting a blanket school board policy for Jesse./p
pI can kinda explain myself on that. First of all, you know I'm Canadian so we don't have a 504 here. But, when I first met with Jesse's teacher at the beginning of him going to school at 3-3/4 years old (JK), she told me that he would be sitting beside another child eating a pb sandwich. I thought, no way! I was absolutely livid and also upset that my very social little guy would not be able to go to school./p
pHowever, I settled down enough to recognize, and this was before I had a computer or the internet or found this site, that there had to be some kind of policy in place somewhere or hoped there would be. I had heard of the "issue" of peanut free schools and classrooms before. And, my MIL had worked at a school that had a peanut free room for the PA children to eat. This was in Toronto. So, I was hoping there was something in place here./p
pAs I found out, there was. When I went through it, it only allowed for a "peanut free" classroom for Jesse, not a "peanut free" or "peanut safe" school. The principal, for whatever reason, is the one who makes the decision for a school to be "peanut free". So, when presented with this, and looking at what I still consider a pretty good school board policy, I thought this blanket covering of my son was okay./p
pYou have a couple of things, in particular that struck me that I have very stupidly not even thought of. The soap. The drinking fountains. The suppliers of the cleaners used in the classroom. The aide. I don't think I would ever be able to get the aide.br /
But I do know that I'm capable of giving my child some soap (does Rachel have soft soap or a bar?) and of giving him a bottle of water. I could also ask for the cleaning suppliers names to be provided to me./p
pWow! Now, aside from my Pillsbury Dough Boy mission (I have yet to hear back from Canada Post about shipping medical waste - I am going to say because of the holidays, not that they think I'm a raving lunatic), but this is much more important./p
pI am so thankful that you took the time to post all of your 504 points on this board.br /
You can't imagine how many people you have helped and children's safety you have helped to ensure./p
pIt's simply incredible./p
pOh, and I did receive just recently the paperwork that I need to see if Jesse qualifies under the only thing that we have in our province that may pertain to him, the "severely disabled" paperwork to now do. I receive my income tax returns back so I could do the figure work. That's also important, as a test case for what financial assistance there may be available for PA parents in this particular province. Jesse's teacher even asked me that during the last week of school before Christmas. He had forgotten to take his fanny pack off and when I was giving it to her I told her that I really wanted to get him an Epi-belt but they were costly little items. She asked me if there wasn't any financial assistance whatsoever to deal with PA because she said that she sees so many people getting financial assistance for things that she considers less serious (she didn't say what). I told her that I was doing a test case to see, but as far as I knew, there was nothing./p
pI guess my point is - I have these other things I am going to do but man, I should have been checking out important threads like this one and implementing things to ensure the safety of my child more thoroughly. I am going to try to contact Morgansmom and see if she was able to get an aide for Morgan. She's also in Ontario./p
pAgain, you don't know how grateful I am for you having posted all of this information. Our school board policy does have a little bit of what you have in your 504 but it's not as all encompassing./p
pHappy New Year and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p------------------/p

Posted on: Tue, 01/02/2001 - 8:28am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pCindy,/p
pWhy should you feel bad for accepting a policy already in place? From what i know of the policy it actually is a good one. I just had to start from scratch./p
p Many things like the soap for example came about not because of the food allergy but because of the excema Rachel gets on her hands. It is aggravated by most soaps. She carries a small bottle of liquid soap in her pack./p
pThe water bottle idea came about from watching kids suck on the water fountain- way gross germ wise./p
pAnother great idea Rachel's teacher started this year was sending a buddy with Rachel went she goes to the restroom. The restroom is located near the kitchen. In kindergarten the restroom was in the classroom./p
pi am glad you liked our plan but by no means knock down your own. I think most people on here who have plans in place at school have borrowed a little from everyone else. Isn't this why we are here to help each other? I don't know how many times I have read stuff on here and then said duh why didn't I think of that?/p
pLinda/p

Posted on: Tue, 01/23/2001 - 3:49pm
California Mom's picture
Offline
Joined: 07/14/2000 - 09:00

pI am finding this thread tremendously helpful, and am trying to look at the articles mentioned. I am having trouble with the link: [url="http://www.cadivision.com/allergy"]www.cadivision.com/allergy[/url] , however. I am very interested in some of the articles mentioned for that link. If Linda or anyone else can help me with this I would really appreciate it. Thank you! Miriam/p

Posted on: Tue, 01/23/2001 - 10:33pm
Chris PeanutAllergy Com's picture
Offline
Joined: 04/25/2001 - 09:00

p[url="http://cgi.cadvision.com/~allergy/"]http://cgi.cadvision.com/~allergy/[/url] /p
p(there was an extra i in the word cadvision)/p
p------------------br /
Stay Safe,/p
p [email]"Chris@PeanutAllergy.Com"[/email]/p

Posted on: Wed, 01/24/2001 - 4:35am
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pI will update the links I have posted later today. I am happy to help anyone who needs it and hope I have not caused any confusion. I am a little (well alot) computer challenged when it comes to the hyperlinks. Chris has contacted me off the board about these links and offered his assistance. I will get to this tonight, I promise!/p
pThanks,br /
Linda/p

Posted on: Wed, 06/13/2001 - 1:16pm
Anonymous's picture
Anonymous (not verified)

pI am re-raising this thread for someone who may like to read it./p
pBest wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p------------------/p

Posted on: Thu, 07/19/2001 - 5:10pm
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pWell second grade starts for us in two weeks so I thought I would post our latest 504 plan:/p
pSection 504 Plan - Student Identification Report and Accommadation Plan/p
p1. Describe the nature of the concern:/p
pRachel suffers with a food hypersensitivity to tree nuts and peanuts. Exposure to peanuts , tree nuts, nut products or nut oils triggers an allergic response that ranges from utarica (hives) to a severe anaphylactic reaction. A food allergy such as Rachel's must be distinguished by its severity from a food intolerance, which occurs when a person is unable to properly digest a food product and suffers gastrointestinal symptoms. Rachel's allergy to peanuts and tree nuts leads to anaphylaxis, an acute and potentially life threatening reaction. Anaphylactic reactions are characteristically explosive. Surviving patients describe a " feeling of impending doom." The first symptom is a tingling sensation around the mouth or face followed by a feeling of warmth, difficulty in swallowing, and tightness in the throat or chest. There may be apprehension, weakness, sweating, itchiness; the patient becomes flushedand hives appear along with varying degrees of hoarseness, difficulty breathing and swallowing, nasal congestion, sneezing and wheezing. Abdominal cramps and diarreha may also occur. Most reactions occur within 30 minutes of exposure, some much more quickly. Effective treatment depends on immediate diagnosis and implemention of appropriate therapy. Epinephrine, supplied for Rachel by her physican in the form of easy to use injectable epi-pen, must be administered immediately in her thigh upon the onset of symptoms, and 911 accessed. Emergency care in a hospital is mandatory./p
pEmergency plan: If symptoms of allergy occur without any respiratory symptoms, send Rachel with an adult escort to the health office. Be sure that office personnel or the nurse is immediately advised. Rachel should be given her antihistamine and her parents called. One on one observation must be maintained to be certain that the reaction does not progress to anaphylaxis. Rachel must never be left alone or unobserved. If symtoms progress to an anaphylactic reaction, the epipen must be administered immediately in her thigh and paramedics called. She should lie down with her feet elevated. If she suffers an anaphylactic reaction in the classroom, the epipen should be administered there in the classroom and she should lie down with her feet elevated. Paramedics should be called simultaneously. The nurse or office health worker should then be called to come to the classroom with the second epi pen. If the paramedics don't arrive within 15 minutes and symptoms persist, a second epi pen may be administered. School personnel must be ready to perform CPR if necessary./p
p2. Describe the disability and the basis for determination:/p
pSevere food allergy to peanuts and tree nuts. Under the care of : List doctors name/p
pAllergy Listbr /
The following list is not guaranteed to be complete but is a good reference list of all nuts/products:/p
ppeanuts, acorns, almonds, beech nuts, brazil nut, caponata (sweet relish), cashew, chestnut, filbert, hazelnut, gianduja, ginkgo, sal nuts, hickory nuts, macademia, queensland nuts, australian gympie nut, bush nut, bopple nut, mortadella, mango, marzipan, almond paste, nougat, nu-nuts ( artificial nuts), pecans, mashuga nuts, pesto, pine nuts, pignolia, pinon, pinyon nuts, pili nut, japanese almonds, pistachios, squari nut, swarri nut, butter nut, paradise nut, guiana nut, terminalia nut, walnuts, wingnuts, any nut paste or nut oil. Remember artificial nuts can be peanuts that have been deflavored and reflavored with a nut like pecan or walnut. Mortadella may contain pistachios. Avoid any natural extract ( like almond extract).Mango although a fruit comes from the same family as pistachios and cashews. Bean bags, kick sacks or hacky sacks are commonly filled with crushed walnut shells. Commerically prepared cake mixes and cookies share equipment with products containing nuts. Therefore allergy patients must avoid products cooked in bakeries and store delicatessens due to shared equipment./p
p3. Describe how the disability affects a major life activity: X qualifies for 504./p
p4. if student qualifies for 504, describe the reasonable accomadations that are necessary and indicate who will be responsible./p
pA. Nurse and parent will provide detailed training to classroom teacher, instructional aide, librarian, and computer lab teacher regarding emergency procedures and contamination issues./p
pB. A classroom policy will be developed as follows: All food served to the students in Rachel's class ( for parties or treats) must be cleared by Rachel's parents or it will not be served. Unplanned, unexpected food brought into the classroom by other parnets will either not be distributed, or will be distibuted outside the classroom as the students leave for the day./p
pC. School and parent will write a joint letter to all parents of Rachel's classmates informing them of her allergy, the classroom food policy, and the nut free status of the classroom./p
pD. Parents will provide needed medications for Rachel. Medication consent forms will be completed yearly by parent and signed by physican. Parent will be responsible for replacing medications when it expires. Parent will provide a pack for Rachel to wear containing prescribed epi pen, and other materials as determined by parent./p
pE. Parent or designee will walk Rachel into school into each day and supervise Rachel until the teacher is present. Parent or designee will meet Rachel at the classroom door as she leaves for the day. Teacher will walk Rachel to school office if parent or designee is late picking up Rachel from school./p
pF. Teacher will leave a copy of this 504 plan and any other instructions he/she has in an spot easily accessible to substitutes. Parent or designee will talk with substitute before leaving Rachel for the day and be sure that substitute has located and understands plan. Teacher will notify parent if a substitute is required ( with 24 hour notice whenever possible)./p
pG. All students will be taken to the bathroom to wash their hands prior to entering the classroom at the beginning of the school day, after snack and after lunch./p
pH. Parent and/or teacher will show parent provided video on food allergies to Rachel's classmates and teach them at an age appropriate level about allergies and about steps necessary to protect Rachel. Nurse will be able to join the lesson in an advisory capacity./p
pI. TEacher will keep a parent provided emergency box readily available which contains first aid supplies for Rachel. A seond box will be lept in the health office. Parent will provide snacks for Rachel./p
pJ. Rachel will take epi pack along with her whenever she leaves the classroom./p
pK. Rachel will clean computer keyboard in computer lab before using it./p
pL. Rachel will eat snack and lunch at a table designated for her. Lunch table and seat where Rachel will be sitting must be wiped off prior to her use. Rachel will eat lunch in classroom whenever parent or staff school member feels it would be safer for her./p
pM. Parent will instruct Rachel that she may not ahare food or utensils./p
pN. An independent facilitator (IF) will be assigned to supervise Rachel from 15 minutes before the first recess until 15 minutes after lunch. This IF will be assigned to supervise cleaning of designated table prior to recess and lunch. She. he may take students to wash their hands, monitor snacks at designated table, and will be responsible for direct supervision of Rachel during snack and lunch break, including playtime on playground./p
pO. Rachel will inform IF or teacher of any developing symptoms./p
pP. Students will not eat in classroom on rainy days./p
pQ. Rachel will only eat food brought from home or approved by parent or designee./p
pR. Parent will instruct Rachel not to use the school soap. Parent provided soap will be in her pack./p
pS. Rachel will have a parent provided water bottle to drink from so she does not have to use the water fountain. She will be allowed to have her water in class and on the playground./p
pT. Parent will volunteer in classroom as agreed upon by teacher./p
pU. Parent or designee will accompany Rachel on all field trips./p
pV. Custodial staff will clean Rachel's classroom ( desk and chair surfaces, sink, computer stations) before the beginning of each track session./p
pW. Other students will be permitted to rotate into Rachel's classroom and Rachel may go to other classrooms. If foods are to be served in a classroom in which Rachel will be present, the teacher serving the food must abide by the classroom food policy as in item B above./p
pX. A classroom buddy or staff member will accompany Rachel if Rachel goe to the restroom during class time./p
pThis student's 504 disability would not be expected to interfere with her ability to understand and follow school rules./p
pPartcipants in the meeting:br /
Parentsbr /
Administratorbr /
Teacherbr /
partcipantbr /
partcipant/p
p*********************************************br /
Ok well that is this years plan. Mostly the same as last year with just a few modifications. /p
pThe letter went out today informing the parents of the situation and attached to each letter was a letter to the child from Rachel. Each letter was personalized to the specific child and their current level of knowledge on allergies./p
pI will be doing a presentation to the class first thing in the morning on the first day of school. I will be using the lesson plan given out by FAAN. I believe I got it at the conference last year or in the mail./p
pAny questions let me know in the next few days then my computer will be unplugged for a week or two./p
pTake care,/p
pLinda/p

Posted on: Thu, 07/19/2001 - 11:55pm
Rhonda RS's picture
Offline
Joined: 02/24/2001 - 09:00

pThank you for posting your 504 Plan! Is this the first draft or the final version? -Did you go to the meeting with it typed up as a proposal? How did you handle this? Thanks again.br /
Take Care, Rhonda/p

Posted on: Sat, 07/21/2001 - 3:24pm
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pRhonda,/p
pThis is the final version. Before Rachel started kindergarten, I went in with a list of accommadations that I thought were necessary. I brought along supporting material to show why those accommadations were needed. Since then we have just adjusted the plan as it fit into the new class year. For this plan, I went in with a couple of notes jotted down and we modified last years plan as needed./p
pLinda/p

Posted on: Thu, 08/02/2001 - 3:35pm
rilira's picture
Offline
Joined: 11/11/1999 - 09:00

pJust wanted to let everyone know Rachel's new school year has already begun. Things went very smoothly and her teachers are great. The 504 is being followed and the teachers are asking any questions which come up./p
pMy little education spiel for the class went well. The kids this year really wanted to know specifically what an allergy was and how it happened. This was a little bit of a challenge to explain on a second grade level but the teachers said I pulled it off./p
pWe finally reconnected our computer, so it is nice to be back on the site./p
pLinda/p

Posted on: Wed, 08/15/2001 - 7:28am
tkiamly's picture
Offline
Joined: 05/22/2001 - 09:00

pMy daughter (pnut and tnut allergic)will start school in the fall of 2002! I am preparing now for a school that seems to be very unaware of the potential dangers of food allergies...all the information everyone has provided is very helpful.br /
Just wanted to thank everybody for their input!/p
ptkiamly/p

Posted on: Thu, 01/29/2004 - 11:07am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

pIs this what you were talking about Cindy?/p
pRe-raising for another member. Also might check out RhondaRS's site [url="http://www.allergysupport.org"]www.allergysupport.org[/url] its excellent for help in creating a 504./p

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Latest Post by sunshinestate Mon, 11/11/2019 - 1:39pm
Comments: 1
Latest Post by absfabs Mon, 11/11/2019 - 1:28pm
Comments: 2
Latest Post by absfabs Mon, 11/11/2019 - 1:23pm
Comments: 3
Latest Post by Italia38 Fri, 11/08/2019 - 12:10pm
Comments: 4
Latest Post by Italia38 Fri, 11/08/2019 - 11:47am
Comments: 6
Latest Post by sunshinestate Thu, 11/07/2019 - 3:43pm
Comments: 4
Latest Post by sunshinestate Thu, 11/07/2019 - 2:48pm
Comments: 7
Latest Post by penelope Tue, 11/05/2019 - 3:44pm
Comments: 12
Latest Post by penelope Tue, 11/05/2019 - 3:35pm
Comments: 13
Latest Post by absfabs Tue, 11/05/2019 - 2:11pm
Comments: 6
Latest Post by absfabs Tue, 11/05/2019 - 2:09pm
Comments: 5
Latest Post by chicken Tue, 11/05/2019 - 12:06pm
Comments: 5
Latest Post by sunshinestate Mon, 11/04/2019 - 1:44pm
Comments: 3
Latest Post by sunshinestate Thu, 10/31/2019 - 11:20am
Comments: 2
Latest Post by penelope Wed, 10/30/2019 - 11:19am
Comments: 8
Latest Post by BD Wed, 10/30/2019 - 11:18am
Comments: 5

More Articles

Anaphylactic shock (A-nuh-fih-LAK-tik shok): A severe and sometimes life-threatening immune system reaction to an antigen that a person has been...

One of the most difficult things for a parent to do is determine whether his or her toddler has a cold or a...

You no doubt have your own way of teaching people about your child’s food allergy, a way that suits your temperament, and style of communication....

Reliable peanut allergy statistics are not that easy to come by. There is a lot of available research on food allergies in general but not too...

Most people know that to enjoy whatever food safety accommodations an airline offers they need to inform the airline of their allergy prior to...

More Articles

More Articles

A 504 plan* documents food allergy accommodations agreed to by parents and their child’s school. Plans are typically created during a 504 meeting...

If there is a child at your children's school allergic to peanuts, the school probably discourages or may not allow peanut products to be brought...

If you are on a budget, but you need to wear some sort of notification that you have a peanut...

Unless we consciously carve out time for self-care, constant food allergy management can slowly erode our sense of well-being. Signs of allergy-...

Peanuts cause more severe food allergic reactions than other foods, followed by shellfish, fish, tree nuts and eggs. Although there is only a...

If you avoid peanuts, it’s likely you know the joy of cashews. Slightly sweet and smooth in texture, cashews provide not only relief to those with...

The prevalence of food allergy has dramatically increased over the past two to three decades, and not just among children. Preliminary results...

When someone in the family is diagnosed with a food allergy, a choice must be made whether to ban the problem food or foods from the home. The...

Looking for a fun way to share what you know about your own food allergies? Or are you hoping to educate the people around you in a fun way about...

According to the results of a new study, children lacking Vitamin D may be more susceptible to food allergies. Researchers working at the Albert...

If you or your child has a peanut or nut allergy, identifying the presence of nuts in food becomes a priority, but what if the written or spoken...

Soap allergies can cause a lot of discomfort and itching. If you suddenly develop a rash or bumps on your skin, you may suspect that you have an...

Even professionals can have difficulty keeping up with the constant flow of updated information available in their field. A survey study presented...

People with pollen allergies can develop allergic reactions to fresh fruits, vegetables and/or nuts. This is called the pollen-food allergy...

There are more "peanut-free" products than ever on the supermarket shelves. This means more choices than ever for peanut-allergic shoppers and...