new here-4 yo daughter with newly diagnosed peanut allergy

Posted on: Fri, 04/18/2008 - 12:48am
MtnDoo's picture
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Joined: 04/18/2008 - 07:42

Hi-we just found out this morning that our daughter is allergic to peanuts. It's terrifying...

Posted on: Fri, 04/18/2008 - 2:44am
Newallergymom's picture
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Joined: 03/09/2008 - 15:23

welcome!
this is a great are to get your questions answered and a wonderful site for support! I am so sorry, my 2yo was diganosed back in Feb..its quite and adjustment...and truthfully I am still upset about it..but what can you do...things could be worse.
How did you find out she was allergic, and what type of test did you have done?
my daughter had a SPT and had a 9mm wheal from that test

Posted on: Fri, 04/18/2008 - 2:47am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

MtnDoo, sorry to hear about your dd's diagnosis. This site is a place to ask any question you need to. The people here are very knowledgeable and will be happy to help. I can so remember the day we found out about my dd's allergy. In the initial days I think the shock was almost unbearable. However, it is also very important that you familiarize yourself with everything that pa involves for the safety of your daughter.
Keep in mind that it is best to give yourself time to adjust and gradually take in the information, as too much all at once will not help any anxiety you may be feeling. Did your doctor/allergist explain to avoid peanuts, items labelled may contain or made in a facility? Were you given an Epipen and shown how to use one?
Welcome to the board.

Posted on: Fri, 04/18/2008 - 5:02am
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

WELCOME! Sorry to hear about your DD's diagnosis. I was upset too when my DS was diagnoses but over the months I have gotten more comfortable with it, not complacent by any means, but more comfortable.
This site and reading, reading, reading has really helped me get a handle on things. There are some great books out there (I personally really liked Dr. Michael Young's the Peanut Allergy Answer Book) and you can search on the boards for great info too.
Please ask away on any questions you might have.

Posted on: Fri, 04/18/2008 - 9:05am
DianaMarie's picture
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Joined: 04/17/2008 - 21:49

Hi & welcome I am new as well. Hope this place brings you some comfort.

Posted on: Fri, 04/18/2008 - 1:55pm
MtnDoo's picture
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Joined: 04/18/2008 - 07:42

Thanks for replies-I'm glad to find this site.
We found out this week (we're on vacation). She has always *hated* peanuts and pb, and I never pushed them on her. This week, she accidently bit into a pb cookie and immediately complained of a scratchy throat. She was crying, and then threw up on the way to the ER. I thought maybe she had swallowed it the wrong way or something-she wasn't having any breathing issues or rash. I was optimistic that it would not be an allergy,but felt it was worth having it checked out... we were able to get in to see a local allergist and she was tested today for peanuts, all tree nuts, dogs, dust mites (she's had very mild asthma w/ colds before). She's just allergic to the peanuts and the dogs (we have 2-no need to get rid of them, just keep them out of her room with a hepa running). She was given a "5" on the skin test (from 1-10).
She now has two epipens (which cost me $100 and expire this summer! Is that normal?? I'd have thought they'd last longer...), benadryl, and she's on pediapred for a few days.

Posted on: Fri, 04/18/2008 - 11:02pm
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi There!
Sorry for the diagnosis....
To answer your question, NO that is not normal! your epi-pens should be good for a year! Take them back to the pharmacist! They did that too me the first time and I thought that was normal! If they say that is all they have tell thenm to order fresh ones... it is there problem to keep the meds current! if they won't return them tell them you will be back fro fresh one ( free of charge) in the summer! You should not have to take meds that are old! If it is a big chain pharmacy I would contact the corporate office if they will help. I would also call aoround to other pharmacies and see what the espireation is on those and return the ones they just gave you and get your money back and buy them else where!
Therese

Posted on: Fri, 04/18/2008 - 11:09pm
MtnDoo's picture
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Joined: 04/18/2008 - 07:42

I got them at Walmart. We're visiting, so I don't have time to wait around for them to re-order (hopefully they'll have newer ones available). We do have a Walmart at home, so maybe they can arrange a credit or something. I was ticked off though-now I know what to look for next time!

Posted on: Sat, 04/19/2008 - 5:41am
KSLaru's picture
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Joined: 03/28/2008 - 10:08

We had a similar experience with our pharmacy. They refused to replace them (3 of them!) since we had already picked them up (didn't check the date). I couldn't believe that was the best that could be done, so I called Dey, the epipen manufacturer. They agreed that it was not appropriate to have been issued those epipens and arranged for replacements. They sent the replacements to the pharmacy, then I brought the old ones in for exchange. Of course I made frequent calls to check on the status. Now that I think about it, Dey even called me a month after the pharmacy was supposed to return the pens to them because they had not received the old ones back yet. I would definitely give Dey a call and explain the situation!
I will confirm the expiration of what the pharmacy has on hand before allowing them to fill the script from now on. And insist on ordering fresh if I don't feel the date is appropriate. I think Dey said the expiration should be 9 months or more from the date of purchase. I had one I had to hold onto because it was 10 months later.

Posted on: Sat, 04/19/2008 - 6:14am
phoenixrizing69's picture
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Joined: 12/21/2007 - 10:54

I just went to my allergist on Thursday and I was talking to him about epi-pen expiration dates. He said that they should be dated for expiration at least a year after they were issued. He preferred that they be viable for 18 months.

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