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Posted on: Sun, 01/21/2007 - 1:31pm
onedayatatime's picture
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Joined: 09/11/2007 - 09:00

[(
[This message has been edited by onedayatatime (edited September 11, 2007).]

Posted on: Sun, 01/21/2007 - 1:38pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

Greetings Earthling! It's raised. FYI--I started a thread somewhere--I think in Main--about protracted anaphylaxis if you ever need it.

Posted on: Sun, 01/21/2007 - 1:40pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

Here's a link to the GI reactions thread for posterity:
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum24/HTML/000176.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum24/HTML/000176.html[/url]

Posted on: Sun, 01/21/2007 - 3:03pm
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Joined: 01/18/2007 - 09:00

Please do not just scrape the cheese off. That is very dangerous. You can order the pizza without cheese. Thats what I would do for Kailey. You do never know when this could be life threatening so please for your children do not take the chance. If you would talk to Kaileys allergiest he would not give you the run around. He would tell you like he told me DO NOT HAVE IT IN THE HOUSE OR ANYWHERE NEAR YOUR CHILD.
Kailey would always drink soy milk. When I had my two boys I put them on soy milk. They did not and do not have allergies like their sister but I did not want milk to be anywhere around her. I could not take the chance of maybe some milk dripping out of a bottle and Kailey some how come across it. Or her kiss her brothers and she be gone. I just fed my children only what Kailey could have. Just so she would be safe and not singled out.
PLease learn from KAileys story. This is very serious. It is Nothing to be taken lightly.

Posted on: Sun, 01/21/2007 - 4:25pm
solarflare's picture
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Joined: 02/07/2002 - 09:00

My dd Allison has a mild milk allergy. When we go out for pizza, we order a personal sized one for her with no cheese, and we always double check to make sure there is no milk in the crust.
My MIL is one of those sorts that think you can just peel the cheese off, or just pick the sesame off of a hamburger bun, or stuff like that. It drives me insane.
We've never been able to go completely milk free in our house, because until fairly recently my oldest was allergic to soy, and neither of the older boys would touch the only other milk subs we had left (rice milk or dari-free). We have a system of keeping things separate that works pretty well for us, so we've only had a handful of "oopsies" over the past 4 years.
------------------
Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish and egg)
Joey (7 NKA)
Allison (4 milk allergic, suspect shellfish, avoiding PN/TN for now)
Ryan (1) nka *knock on wood*

Posted on: Sun, 01/21/2007 - 6:44pm
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Joined: 04/08/2000 - 09:00

The very first time I gave R (8) anything with dairy in it was when he was about 7 months old. I made him this baby pasta with baby pasta sauce that had a tiny bit of cheese in it.
Within seconds his lips swelled up to his nose, his eyes swelled closed. Frankly, I don't know how he isn't dead. I called the on-call dr. and he said to come down to the office and get an antihistamine even though he was a bit young for it. What he should have told me was CALL AN AMBULANCE (we had no epipen at that point in time and didn't know we needed one). He did say that if he had trouble breathing to call ambulance. So there I am driving like a lunatic to the doctor's office, praying my kid is still alive when I get back (his dad was with him). No mobile at the time. We were lucky, I got back with antihistamine and he was okay.
I would NEVER EVER EVER let him have even the slightest risk of exposure to anything with dairy. To be honest, the thought of scrapping cheese off a pizza just makes my blood run cold and my heart stop. Just because it is scrapped off doesn't mean it IS off. IYKWIM. The cheese is baked into the pizza - it is all over it whether you scrap the gooey bit off.
My DS is contact-sensitive. He will have a major reaction to just touching dairy.
And I hate to tell you this but each exposure to an allergen almost always makes the allergy worse. The the more traces and small amounts you are feeding your child the worse the allergy will become.
I would get a second opinion from another allergist.
Good luck.
Barb

Posted on: Mon, 01/22/2007 - 12:20am
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Joined: 12/14/2006 - 09:00

I thought I replied one last time before I went to bed last night, but I don't see it now.???
In recent months I have started ordering him(and I) our own pizza, usually pepperoni with no cheese, but now he is allergic to pork...so we haven't had pizza since. Most crusts still have milk in them anyways, so I looked further and found Domino's thin crust doesn't...for future reference.
If he were my 1st born child, I could have easily had *everyone* just drinking the rice milk(well, he started on soy milk but at age 2, after drinking/eating it for a year and being negative, he turned positive) so just he and his little sister are on rice milk. My older kids litterally make puking faces and noises when they smell the rice milk, so they are allowed to drink the cow's milk. I am careful, but not diligent....like I've explained, he's eaten plenty of pizza with the cheese peeled off and been fine(like for 3yrs). I know that Barb was really bothered that we did this, but my whole resoning behind my post is that we did and he's been fine........that I wish(and now I see a new post up top touching on this same topic) why can some kids eat tiny amounts of the food they are allergic to and some die.....I WISH this were cut and dry, black and white. I do, now, everything I can to avoid milk products for him and his sister because I don't want, down the road in 9 years for them to have a severe reaction and die, even after years of no reactions...but a positive test.
Thank you for your views and opinions on this, it helps, it really does.
psI do understand the whole *the more you're exposed* deal...his milk rast on 9/05 was 3.89 and 1/07 was 1.65 so it has come down, hopefully with me being more careful it will even further, now that I know I need to. (for refernce, his little sisters has gone up 8/06 she was .98 and 1/07 she is 2.20) Thank you!!!

Posted on: Mon, 01/22/2007 - 1:04am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Cap rasts are very inaccurate unless done at one of two labs. Hugh Sampson did a study where they sent cap rasts on the same patient but under a different name to the same lab. The results varied widely. There were only two labs where the results were consistent within the same lab. So imagine having blood on your child sent to the same lab under three different names and you get three different results. Very inaccurate. Recently dd had blood sent for cap rast to two different labs (long story why, I need to start a thread on this when I have time) and the results were so different it was mind boggling.

Posted on: Mon, 01/22/2007 - 1:28am
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Joined: 04/18/2005 - 09:00

I think that milk allergy has a wide spectrum of severity. Our next-door neighbor boy is allergic to milk. He's had allergy testing and everything. But he just can't drink any milk and he can't eat much ice cream. But he eats cheese, and he eats things with milk as an ingredient. When I first found this out, I just couldn't understand it. But apparently his Dr. has okayed this since he doesn't react badly unless it's outright milk. It is a diagnosed allergy, not lactose intolerance or something. His uncle had the same allergy throughout his life, so his mom handles it the same way.
Now, I wonder if they didn't outgrow it because they kept eating the stuff. But they appear to somehow be able to eat limited quantities of milk without worsening their allergy. I've heard of another girl in our church who's the same way: no outright milk, but milk in things is fine. Her mother said it is an allergy, although I don't know them personally like my neighbors. So there must be a wide variety of experiences with milk allergy. How you sort it out, I don't know. Lip swelling sounds serious to me.

Posted on: Mon, 01/22/2007 - 1:33am
solarflare's picture
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Joined: 02/07/2002 - 09:00

To spin off of carefulmom's last post, you also have the problem that for some reason, RAST testing on infants is more inaccurate than on an older child.
We held off testing Allison until she was 18 months old (we just worked under the assumption that she was milk allergic before that), and her initial RAST for milk was negative. Another RAST at 30 months came back positive. In that year between tests, we kept her off dairy, because IMO, a reaction trumps a test.
Skin prick tests aren't iron clad either. If you have active eczema at the time of testing, it can skew results. If you have extremely sensitive skin (a bare pin prick raises hives), that can skew results too.
My conclusions in regard to my kids allergies takes both their test results and history of reactions into account.
------------------
Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish and egg)
Joey (7 NKA)
Allison (4 milk allergic, suspect shellfish, avoiding PN/TN for now)
Ryan (1) nka *knock on wood*

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