re-504 (quick answer)

Posted on: Sun, 02/04/2007 - 2:05am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Okay, I am goign to be talking with the allergist tomorrow...I faxed him sample letters and so forth asking for him to write me a letter twords the 504 for my son. It's been about 6 weeks now and I've gotten nothign in return. I have a feeling, maybe he's decided this isn't the best path to take. If he does, I need to have a really good, quick reason as to *why* it is improtant. Can you help me out?? I also get asked alot by other parents "why are you doign this, he's fine at school"......or "I'm not doing one because it will Isolate them even more at school". What do you say when approached??

Thanks for some ideas, I have a hard time getting my thoughts out, so I try to prepare ahead of time...so I don't sound like an idot!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Sun, 02/04/2007 - 3:27am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I printed one-page summaries from AAFA and AAAAIA for my allergist.... both of which ADVOCATE the use of a 504 plan for severe allergy management in schools.
FAAN doesn't, incidentally. They simply state that the plan should be comprehensive and in writing. Viola-- a 504 meets those criteria too.
A well-constructed 504 will:
1. leave no doubts about responsibilities-- whose, and what those are.
2. Will spell out how to handle the most common, foreseeable risks to an allergic child while in the school setting... including class parties, field trips, and substitute teachers. (These are times when reactions are more likely.)
3. Staff turnover is inevitable, but a 504 plan means that the rules don't change just because one of the players does... so if a new principal doesn't "feel" like diong things the way the allergist wants, it isn't up to you as a parent to "persuade" him/her to.
4. Means that your child can't be placed in a "safe place" in leui of participating with his/her classmates as a means of keeping him/her safe. Without a 504, this is pretty much an inevitability, and will lead to you needing to fight every battle every time-- every birthday, every holiday, every field trip, every time.
5. A 504 plan is binding. Without it, you are depending upon the largesse of the school for your child's safety. I don't think any allergist would want that.
HTH.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 02/04/2007 - 3:32am
JRsMami's picture
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Joined: 08/08/2005 - 09:00

Have you followed up with the dr.s office and made certain he received the info and has had a chance to review it? Drs ofc tend to have a lot of hands that can misplace. Chances are the paperwork is sitting in your childs folder waiting for your next appt.
Also, keep in mind, not all Dr.s are aware of 504 designations, their importance, and how they work. We were the first client to mention it in our office although our dr had treated many FA.
Has your dr seemed uncooperative or unsupportive in the school aspect of prevention?? If so, have you considered looking for a dr who is supportive?
As for other parents comments, ask them to walk an inch (nevermind a mile) in your shoes. Things might be okay for now but a 504 plan will be "peace of mind" that most things have been discussed & thought out to help prevent exposure without isolation today, tomorrow, and throughout the school years. Accidents happen- prevention & quick responses are all we have- and in order to prevent we need to have adults aware of a set proactive & reactive plan. This is your "peace of mind" that your child wont have a tragic ending that we all fear so much!! If they have enough energy to still respond negatively, ask them to take a day and research the topic and come up with a better solution.
Good Luck and know you have support from PA.com friends.

Posted on: Sun, 02/04/2007 - 3:54am
Ohio's picture
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Joined: 05/23/2005 - 09:00

Here are a few "bullet points"
1. All concerned parties are involved in creating a formal, documented plan to address concerns/issues.
2. 504 Plan follows the student through school, can be updated yearly.
3. A 504 includes non-academic services and third parties (sports, clubs, field trips).
4. School employees are legally responsible to implement designated accommodations/strategies in a 504 plan.
5. A 504 has grievance procedures, evaluation and placement standards, and procedural safeguards in place.
6. District administration cannot overrule 504 or special education evaluation and placement decisions.
7. Social aspects (bullying/teasing) can be appropriately addressed in the context of discrimination through a 504.
8. A 504 protects my child from inadvertent discrimination, even if it was well intentioned.

Posted on: Sun, 02/04/2007 - 4:59am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Oh THANK YOU...this was exactly what I needed, greta stuff!!!! I knew I could count on all of you, you are sooooo helpful!!!
I am printing all these out and going to try to memorize most...this will help soooo much!!!
I wanted to answer JRsMami....I did follow up a week or so ago and they recieved everything, but the nurse said the doc wanted to speak with me, just too busy at the moment. I am actually going to a support group tomorrow night and he is a speaker, so I will corner him there!!!! When I first called to ask about doing a letter, the nurse said his reply was *it's about time* which I took as he was eager to help and was happy food allergies were getting taken seriously. But as time went by and I never heard from him, I am wondering if he decided this is maybe going *over-board*?? My neighbor just had ann appt with him for her kids and she brought it up, she isn't doing one now because she thinks it will isolate her daughter too much. So I am wondering if he didn't share that thought with her, because it was her idea that sparked my fire to do one...now she's changed. She wouldn't tell me much more, I think by choice.
I want to be prepared if he does come at me with the "I don't think this is the right solution"...because I truly think it is! I have a back-up plan, he does have a new allergist and I typed up a letter to him and asked his nurse if he would reprint it and sign it...he should be mailing it. I hope he signs it. I still want his old allergist(he's know him the longest through all this)to be apart of it. We'll see though. THANKS again!!! You gals are great!!!
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Sun, 02/04/2007 - 5:33am
Momcat's picture
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Joined: 03/15/2005 - 09:00

About isolation:
A 504 plan should provide ways to safely [b] include [/b] your son. It should [b] reduce [/b] his isolation.
Cathy

Posted on: Sun, 02/04/2007 - 6:36am
gvmom's picture
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Joined: 08/24/2005 - 09:00

[b]I printed one-page summaries from AAFA and AAAAIA for my allergist.... both of which ADVOCATE the use of a 504 plan for severe allergy management in schools.
FAAN doesn't, incidentally. They simply state that the plan should be comprehensive and in writing. Viola-- a 504 meets those criteria too. [/b]
FAAN may not have something, but Anne Munoz-Furlong wrote up something for the NSBA titled: School Board Guide to Food Allergy Management. It might help with backing up support for a 504. Here is the link:
[url="http://www.nsba.org/site/doc_micro.asp?TRACKID=&CID=1141&DID=31327"]http://www.nsba.org/site/doc_micro.asp?TRACKID=&CID=1141&DID=31327[/url]
edited to add that the section of interest is toward the bottom titled "What can you do" --
[This message has been edited by gvmom (edited February 04, 2007).]

Posted on: Sun, 02/04/2007 - 8:59am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Six weeks is a pretty long time to wait for this. Could it be that he is not sure what exactly you want? If it were me, after this long, I would offer to write the letter. Then the allergist can change anything he wants to change and sign it. I have done this at least three times in the past 8 years and it has worked out well. It says what I want it to say and it saves the allergist time.

Posted on: Sun, 02/04/2007 - 9:25am
chanda4's picture
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Joined: 12/14/2006 - 09:00

thanks careful mom, I gave him 4 copies of sample letters the first time I faxed him. Then last week I typed up a letter and typed his name at the end(as well as the new allergist and left it at the office)....all he had to do is sign it(I'd prefer letter head, but will take what I can get)....still have heard nothing. I think I've given him plenty of options here...and in the beginning he made it sound like this was a great idea. I'm just puzzled....but I'll find out why tomorrow night, he'd better have a good reason!!!
I'll be prepared to argue!!! Thanks!!!!
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Sun, 02/04/2007 - 9:52am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Oh, that is kind of a different story. Sounds like it is something other than he is busy. Maybe he did change his mind about wanting to do it, but I cannot figure out why.

Posted on: Tue, 02/06/2007 - 12:25pm
JRsMami's picture
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Joined: 08/08/2005 - 09:00

So Chanda, reading from other posts I assume you have been able to follow up, so is your allergist against the 504 designation in addition to the school wide bans? Just curious to know what came about your appointment.

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