Re-Intro

Posted on: Fri, 03/30/2007 - 12:10am
jami's picture
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Joined: 09/02/2004 - 09:00

Hello,

It has been a year or so since I have been on these boards.

First I couldn't figure out my password and my email had changed. And--the reason I needed to take a break--

My younger son has also acquired food allergies--sort of--

My oldest DS - is 7 years old--Has been allergic to Peanuts/ Tree nuts since 13 months old--first exposure to peanut butter. I had gestetional diabetes and ate nuts everyday for the protein. He also has lots of environmental allergies and Asthma that is finally well controlled. He presently goes to a Catholic school - not small by any means -and a pretty large population of Kids with food allergies and one full time nurse and a part time nurse that is in the cafeteria (also near the playground). He does not have a 504 --but we have a very good plan that the vp, nurse, teacher, dr.s and I have put together.

My youngest DS is now 4. Obviously he was not exposed to nuts when I was pregnant/nursing. Or exposed at home. (I am a SAHM) It was obvious that he had environmental allergies. He has been on zyrtec since he was 6 months old and he had ear infections for most of the first year and half--then he had tubes--only 1 ear infection sice his tubes feel out a couple of months ago.

When he turned 3 my older son's pulmonary dr. (he has had more problems with asthma than allergies--so we saw a pulmonologist). suggested we give my younger son (who had never been exposed to nuts) a bite of each tree nut wait a week give another bite---then if all of these were fine--try peanuts the same way. I didn't want him to go to preschool without an epi-pen or eat snacks freely unless I knew if he was allergic.

The first bite of almond (the first "nut" we tried) he started gagging. I was in complete denial --even with everything I knew--I thought the nut was just weird for him--I had him take another bite. So now he threw-up and started breaking out in hives.

In the next week we spent alot of time in the er--he reacted to peas, and milk. I jump started his system. (well-maybe he was already allergic to milk--and I denied it) I become very depressed for several months.

He still has mystry reactions - he has been skin tested, rast tested--his total ige is not even raised--his allergists say that he is not allergic! Every test he has been given (skin, rast) always comes back negative. The allergists claim that it is impossible to have reactions without any of the tests failing. We even took him off all allergy meds because all environmentals have come back as negative. That was 3 weeks ago--I started him back on Zyrtec this week the ruuny nose and swollen eyes and the phlegm are too much for me--it is not a cold.

I have a fabulous family dr.--Who does not ? that he is allergic. The problem is that DS seems to gain new allergies all the time and/or become more sensitive--I think to milk--- And I want some answers-we are on our 4th specialist this year. His preschool is nut free and the don't serve obvious milk products during class time (he has his own snack box. He comes home with hives most days. I pulled him out of school for awhile--but the allergists say it isn't allergies.

I don't think that I am depressed anymore. Mostly I am angry and afraid of what else could be wrong with my child and why can't I get an answer.

So-I am back and I found my password--

Hello--and Thanks for letting me read without responding for a year while I have tried to get a grip on life.

Michelle

Posted on: Fri, 03/30/2007 - 5:16am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Can you find an allergist who is willing to do a double-blind food challenge? This is really the definitive test for food allergies. The other tests are not perfect, and can absolutely have false negatives.
You may want to check out [url="http://www.kidswithfoodallergies.org"]www.kidswithfoodallergies.org[/url] There are many families there dealing with similar situations. One approach is to put him on an elimination diet to find out which foods he does tolerate and then you will be able to trial foods one at a time to see what you can add to his diet. It is best to do this under a doctor's supervision so that you are sure your child is getting adequate nutrition.
Keep trying to find a doctor who will try to help you figure out what's going on. Doctors who just say, the test is negative, therefore there's no problem are not helpful! Something is wrong, and whether or not it is food allergies you need to figure out what it is.
I hope this helps--it's so frustrating when our kids are sick, and we can't figure out what's wrong.
Cathy
------------------
Mom to 7 yr old PA/TNA daughter and 4 yr old son who is allergic to eggs.

Posted on: Fri, 03/30/2007 - 11:12am
luvmyboys's picture
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Joined: 05/25/2006 - 09:00

What about esophogeal ecolitis or something similar? I think the best experts in your part of the country are at children's in Cincy. There have been previous posts. I don't know much about it but i've known 3 families dealing with it and all went to Cincy....hmm I can't find a post on this...I might have the name totally wrong? Something to do with an organism called ecenophils?
luvmyboys
[This message has been edited by luvmyboys (edited March 30, 2007).]

Posted on: Fri, 03/30/2007 - 10:49pm
luvmyboys's picture
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Joined: 05/25/2006 - 09:00

I raised the most recent discussion last night under main discussion for you.
Luvmyboys

Posted on: Sat, 03/31/2007 - 2:06am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Are you referring to eosinophilic esophagitis and eosinophilic enterocolitis? Eosinophils are not a separate organism, but a type of immune cell produced by the body. The inflamation in the digestive tract is not caused by an IgE allergy, so skin and blood tests for IgE allergies would be negative. However, sufferers often experience multiple food intolerances. The only way to diagnose it is to do a scope of the esophagus and intestines and do biopsies to look for eosinophils. It's worth asking the doctor about.
Cathy

Posted on: Sat, 03/31/2007 - 4:38am
luvmyboys's picture
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Joined: 05/25/2006 - 09:00

yup that's it - thanks.
luvmyboys

Posted on: Sat, 03/31/2007 - 5:41am
jami's picture
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Joined: 09/02/2004 - 09:00

Thank You! Momcat and lovmyboys
Sometimes I can't think of any more options--I just know there has to be an answer--however scary it is.
I will check out these leads.

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