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Posted on: Thu, 12/06/2007 - 6:36am
SkyMom's picture
Joined: 10/27/2001 - 09:00

My dd's rast was over 100 in the first year she was diagnosed. Two years ago, after having no further reactions she was tested again. She still remains over 100.

Posted on: Thu, 12/06/2007 - 7:18am
maphiemom's picture
Joined: 12/01/2005 - 09:00

Perhaps since my daughters reaction was due to ingesting one single peanut with an instant reaction confirmed by the prick test, the doctor said there was no point to checking her blood. I can't imagine the benefit of the blood test, she did not out grow the allergy in the first two year , I don't think she will. When she is much older perhaps , but I don't see putting her through that at this time, which is what her doctor was saying.
I have only seen one allergist, he is super nice , and compassionate.
Our child is allergic to peanuts and nuts at all times at any level it can turn lethal without warning , numbers won't change anything. We all should air on the side of extreme caution , in my opinion.
Of course I am curious but not that curious, I will go by the severity of the wheal .

Posted on: Fri, 12/07/2007 - 5:03pm
Angeliquesmom's picture
Joined: 12/07/2007 - 11:58

My daughter was over 100 on 2 tests done over the last 4 years

Posted on: Sun, 12/09/2007 - 5:47am
LindyLovesA's picture
Joined: 08/10/2006 - 09:00

We are in the "over 100" club. I struggle with the testing though. DS had huge wheal with the lines going out on the SPT, blood test over 100, contact reaction (which is why we tested) and yet ate may contains everyday (potty trained with M&M), desserts with the nut scrapped off, Chinese every week, etc. before he was diagnosed. Now that we know, we obviously avoid, carry epi everywhere, get retested every year, etc., but I think they will figure out better test in the future, because the numbers don't seem to tell very much.
Also, doctorss won't challenge with numbers that high (highly predictive of a reaction), but they don't know severity based on the current testing. Also, I have read about people who eventually out grew with numbers over 100, so I will hope and pray to be in that club along with the rest of you.

Posted on: Tue, 12/11/2007 - 2:20am
lauramacf's picture
Joined: 01/25/2007 - 09:00

My daughter's peanut scores made the leap over 100 last year. Her scores for the previous 5 years were as follows: 25.8, 15.4, 19.6, 34.4, and 34.
I certainly freaked out when this happened, thinking perhaps she'd had an exposure or something terrible was happening and she was doomed. Our allergist explained to me that the RAST scores are not something you can look at as a finite measure--he said 100+ is not necessarily "3 times worse than 34," as one might assume. The way I think about it, in order to understand what he said to me, is that RAST scores are [b]nothing[/b] like temperature, where 100 degrees F is vastly different from 34 degrees F. That isn't how RAST scores work, and as we know the predictive value of them is vague. He said what made the difference in her scores could be more of "blip" than a huge leap--however, the score means that I pretty much have to accept that her bodying is focusing some effort in making these antibodies. She is a lean, mean, IgE-antibody machine, the peanut allergy isn't going away anytime soon.
He said the rising score is not necessarily a sign that she was exposed, or that her allergy is more severe now, or that her reactions would be worse, but simply that her body is not letting go of this allergy--that it has latched on to producing these antibodies and that she is, without a doubt, allergic to peanuts. He said this is probably a signal that she will not outgrow this allergy (she is allergic to many other things, too). Of course, nothing is set in stone and nothing about allergy testing is a certain science--he has had patients outgrow peanut when he thought certain they wouldn't. Since we avoid peanut like the plague, it doesn't change our actions, only confirms our resolve.
We aren't certain that our daughter has ever had a reaction to peanuts. She had one reaction that we think could have been peanut, but didn't actually see the food that she ate (she was a toddler at the time, and was being babysat by someone. We found peanuts on the floor, but she is allergic to so many other things it could have been anything.)
Some other posters are talking about their doctor's testing strategies. We haven't had a skin prick test for foods since she was a baby (and it was flubbed up by an incompetent staffer at a different doctor's office). Because she had 3 severe reactions, the doctor has always felt that her RAST scores are the best way of tracking the progress or decline of allergies at this point--we know how highly reactive she was at the time we started the testing, and so following the scores from year to year is the best option for us. But we will probably do a skin prick test later in 2008, and we are switching to doing RAST testing every 1.5 years now, rather than yearly to save her the stress of the yearly jab.

Posted on: Wed, 12/12/2007 - 11:55am
NoPeanutsPlease.com's picture
Joined: 02/22/2007 - 09:00

Originally Posted By: maphiemomI am in Canada and the doctor (nor others I have heard from)I deal with doesn't want to do a blood test, why are they done in the US , we base everything on reaction and prick test reaction, anyone's thoughts?
We are in Vancouver. I would recommend (not a medical opinion) that you seek out a paediatric allergist and specifically request a blood test. We are awaiting our results ... we are hoping for good news on eggs but peanut will likely be off the charts. The skin prick test for peanut resulted in a 14mm wheal on our daughter's arm.

Posted on: Wed, 12/12/2007 - 12:01pm
mharasym's picture
Joined: 04/20/2001 - 09:00

15YO son is part of the 100+ club - always has been, always will be. . .

Posted on: Wed, 12/12/2007 - 8:13pm
pfmom2's picture
Joined: 01/22/2006 - 09:00

My child actually is not over a 100, but still is contact, inhalation reactive, so my feeling is positive is positive. My child's first reaction was just to someone touching my child after eating it.
What do all of your allergists tell you about the numbers? I've heard varying opinions. Has anyone had testing done after a known exposure? Did the numbers fluctuate?

Posted on: Thu, 12/13/2007 - 4:20am
mpeters's picture
Joined: 10/28/2001 - 09:00

My daughters' numbers went from 35 at age 3, to 79 at age 8, to 100+ now at almost 10years old. She has had extreme reactions from the start, including severe contact sensitivity, so I definitely agree that positive is positive. I wondered if the rising number had to do with ongoing environmental contact. She did have a known ingestion one year ago that may have caused the bump up.
As far as testing, I have always refused skin prick for her because her contact reactions are so severe. I figure why cause another exposure when you already know the answer? We only pull blood when we are testing for something else anyway, just as a matter of curiosity.

Posted on: Sun, 01/13/2008 - 9:06am
wackattack69's picture
Joined: 12/01/2007 - 17:56

My daughter has had multiple RAST testing, and her IgG numbers are 24,444.......and of course I have been denied a 504.I am going to have a breakdown over this. I feel like a mama bear protecting her cub.I should have specified the above referenced number is for peanuts,of course.


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