i cant take it anymore

Posted on: Sun, 01/11/2004 - 9:21am
sillyfeline's picture
Joined: 03/28/2001 - 09:00

nobody knows what to think. i defy everything written on food allergies. now im up to 12, 6 just developing in the last few mos. my reactions sometimes have 12hr delays and linger in my system for several days. at this rate, i will be completely out of foods to eat by age 35. some months it happens a dozen times. happened today and may have cost me my job. i know theres nothing anyone can do and no one can even find reasons for the irregular reactions or acquisition. (im 29, for petes sake and had no severe food allergies as a child). i cant do it anymore and its not like theres any hope. i dont know what to do. i really just give up. one of these days itll just be fatal. i dont even know why i shared. there isnt any help out there. i defy all the common beliefs in the field and its not like anyone thinks adults are really worth treating in any meaningful research way anyhow. shrug.

oh, incidentally, continental arena in rutherford, nj sells unshelled peanuts at their concerts. just fyi.

Posted on: Sun, 01/11/2004 - 10:06am
anonymous's picture
Joined: 05/28/2009 - 16:42

Hang in there. We all get discouraged at times. I know it isn't easy. My son is PA and I am sure he gets it from my side of the family. I had terrible ezcema as a child and am currently dealing with it again for the first time in 30 years. I can't believe it is back. I am also having other symptoms to indicate some kind of allergic reactions.
Let's hope the upcoming vaccine will help PA individuals. There is light at the end of the tunnel!

Posted on: Sun, 01/11/2004 - 12:09pm
Jana R's picture
Joined: 02/09/1999 - 09:00

Hi sillyfeline. I've been wondering about you - I remember your posts from a few months back. I'm so sorry to hear your situation is not improving. Please try to stay strong and keep seeking answers and support.
Take care

Posted on: Sun, 01/11/2004 - 12:10pm
Anonymous's picture
Anonymous (not verified)

My heart goes out to you!!! Have you considered contacting the doctor's that are conducting the Tanox studies? Perhaps you can participate and get some protection from the injections...or perhaps your doctor can help figure out a way to prescribe it for you. Do you have asthma as well? I think that the US doctors can prescribe one or another of these medications that seem to inhibit the food allergic reactions...It seems that perhaps you it would be helpful to find a new allergist that really will take an interest in what is going on with you and be willing to "think outside the box", to find some way to help you!

Posted on: Sun, 01/11/2004 - 12:23pm
Anonymous's picture
blair (not verified)

Know this is a long shot but have you had your B12 levels checked? I know of a friend who kept developing sensitvities and late reactions to many many foods and it turns out that she wasn't processing B12 and currently takes a shot once a month? or week? and can eat most foods again. She was sensitve to some type of eye drops that played into all this was happened 10 plus years ago.
Hope this helps and that you figure out what's trigging this situation of more allergies.

Posted on: Sun, 01/11/2004 - 1:29pm
dmbb's picture
Joined: 10/12/2002 - 09:00

I'm so sorry to hear you sound so sad today. Please stay strong. I don't know if it will help but here are some suggestions I thought of. Maybe you could look into Xolair, which is the anti-Ige drug that is approved for Asthma. Also, I've heard of people with multiple food allergies going on a rotation diet to try to prevent additional allergies. Maybe a new allergist could help. Or maybe even a counselor with experience with people with chronic illnesses.

Posted on: Sun, 01/11/2004 - 7:01pm
toomanynuts's picture
Joined: 08/23/2003 - 09:00

Hi SillyFeline!
I too, was wondering how you have been since I hadn't seen your posts for so long. Sorry that you had another reaction and that your allergies are not improving.
Do you see an allergist regularly? What are your food allergies? Have you tried any Alternative Medicine Doctors as well as Western Medical Doctors. What about seeing a Nutritionist?
Sorry about so many questions but my
DD 3 1/2 and myself have a lot of food allergies as well as PA/TNA. We see an Allergist, Alternative Medicine Doctors a Regular Medical Doctor and a Nutritionist about once a month - in addition to our Allergy Meds we also take Supplements and Vitamins. We have seen great improvement in our allergies and our health.
You have other options if one Dr. isn't able to help you see if you can find someone who can.
A lot of people that post here have children with food allergies but there are a lot of adults that have them as well. So we do understand and maybe we can offer you advise, ideas or whatever you need.
I know that it can be very frustrating especially when you foods are limited and your hungry and want something different.
You can always contact me at my e mail [email]toomanynuts@att.net[/email] and I'd be happy to give you information on the safe foods that we have found as well as Dr's and some supplements that may help.
I like you have a hard time trusting manufactures and can get very frustrated with allergies and not finding safe foods. But I know that there are options and you will be okay!
Stay safe and don't stay away from the boards for so long. Lots of people here care about you too!

Posted on: Mon, 01/12/2004 - 4:04am
Anonymous's picture
Anonymous (not verified)

sillyfeline, please check your e-mail. The address listed in your profile.
And take care.

Posted on: Mon, 01/12/2004 - 9:49am
erik's picture
Joined: 05/15/2001 - 09:00

Maybe if you try a new allergist? Some allergists do care about adults. Sounds like you've had some bad experiences. Good luck. Maybe someone on this site who lives in your area (NYC??) can recommend a good allergist for you.

Posted on: Tue, 01/13/2004 - 10:25am
sillyfeline's picture
Joined: 03/28/2001 - 09:00

I've been to other allergists. Most are horrid and condescending and tell me that since I don't fit the paradigm it must not be happening. My allergist now is the only one who actually figured out the soy issue 2yrs ago. i commute to upstate to see him. NYC healthcare is unforgivably AWFUL. It's about money and fame and the standard of care is lower than I ever thought possible. The only person I've liked in this city in 4yrs of chronic illness and injury is my back surgeon. As for the studies, I've never heard of any that don't want to induce anaphylaxis, which I just won't consent to. And the other dozen allergies usually exclude me. At this point, I genuinely think some of my reactions may be IgG not IgE. And I think it IS hopeless. In the last 6mos alone, I've managed to develop allergies to egg, wheat, cheese, tomato, apple, orange, coconut, and sweet potato. Thats on top of the others (peanut, nuts, soybean, peas, carrots, etc). Almost all my reactions affect my breathing now, onset delays of up to 12hrs, and not completely passing for 5days. Often they just recur. After I had back surgery, I had an entire month of reactions followed by a raging unidentifiable stomach bug (and boy arent CT scan contrast dye reactions fun), and now a whole host of new allergies all at once. I don't remember being healthy anymore. Only upshot is I'm down almost 30lbs. I don't think new doctors are in any way helpful. I've been to WAY too many to believe that hope exists of a decent allergist in NYC. And I think I just burned the only thing in my house I could've eaten. I half hope this does just kill me.

Posted on: Tue, 01/13/2004 - 11:47am
dmbb's picture
Joined: 10/12/2002 - 09:00

Could you get to Mount Sinai School of Medicine to see Dr. Sampson or Dr. Sicherer?


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