Posted on: Sun, 01/18/2004 - 11:00am
sillyfeline's picture
Joined: 03/28/2001 - 09:00

ive been in and out of here for a while in desperation. but i need to stop now. im just getting hurt. so bye and ty to those who genuinely tried to help. i just cant take any more of people repeating the same things until im in tears cuz they are so busy "being right" that they dont even hear what is truth. its not support and its not for me. im up to over a dozen food allergies and basically reacting no matter what i eat so really all i wanted was a friend not people insisting something ignorant. im sorry if i ever made anyone feel as bad as i do here. take care. bye

Posted on: Sun, 01/18/2004 - 11:42am
Rae's picture
Joined: 03/28/2000 - 09:00

Sorry to see you go. You've given lots of good, and helpful advice here. My PA girls depend on PA adults advice, like yours, that I read about. Stay healthy, and reaction free!

Posted on: Sun, 01/18/2004 - 12:48pm
Anonymous's picture
Anonymous (not verified)

sillyfeline, oh my soul, what has happened? I haven't seen any interaction between you and anyone else on the board where something negative happened. I'm not saying that because I didn't see it, it didn't happen, I'm saying I must have missed something. [img][/img]
My best advice to you, as someone who has been hurt really badly by stuff that has gone on here (and also probably hurt other people as well unintentionally) is if you find that it's a particular person bothering you, ignore them. Just walk on by.
Do you know how many dedicated long time members we basically lost last year? Sure, we lose members every year due to different circumstances (i.e., people don't feel that they need the board like they used to and that's okay), but last year there was a mass exodus. There are also people posting always walking on eggshells or only posting when they need information or can add something really quick to a conversation and then they're gone again.
Do I have to stay up all night (which I really don't feel like doing) and re-raise every thread that you have participated in to see what happened but also to re-raise the threads and show you how much you have contributed to the board and how helpful you have been to other members?
You *should* know I'm capable of doing that.
I've really found for me, personally, I try not to get upset anymore. Do I still? Yes. But, for the most part, I just try to walk on by. I figure first of all that fellow members offer me support, encouragement, caring, concern and information that I don't get anywhere else in my life (I truly mean that) and hopefully I offer something in return.
Or, is it threads that you're not participating in but you just don't feel comfortable with the titles of them or something? I always click on daily topics to see what's going on for the day and if something doesn't strike my fancy, I don't go into the thread.
There was one on to-day's list, in fact, and I *could* have answered, realized my answer would be contentious at best, probably offensive (it was a religious question), so I chose not to answer.
Please re-consider.
I really don't want to stay up all night, but I can start the search now. [img][/img]
Best wishes! [img][/img]

Posted on: Sun, 01/18/2004 - 1:12pm
mae's picture
Joined: 07/12/2002 - 09:00

siilyfeline sorry you didn't find support here - i did - but i have a pa child and am not pa myself. i hope you find support -medically and any other way you seek it.
sometimes i feel incredibly stressed by the whole pa phenomenon - other days its just part of our lives - for our whole family.
hope to see you back
[This message has been edited by mae (edited January 18, 2004).]

Posted on: Sun, 01/18/2004 - 1:24pm
Anonymous's picture
Anonymous (not verified)

sillyfeline, I did do a search of your posts since you became a member in 2001. From what I've read so far, and it hasn't been much, I've seen you offering support and information to other members, raising excellent questions, etc.
Of course, I have to go through all of your posts to find out what thread(s) something negative happened in.
But I really want to say that from what I looked at tonight, you have offered us PA parents a LOT.
Please re-consider. [img][/img]
Best wishes! [img][/img]

Posted on: Sun, 01/18/2004 - 1:32pm
erik's picture
Joined: 05/15/2001 - 09:00

Hi Cindy..
It will take you forever to search everything.. here is the summary. This is why sillyfeline is leaving in case people are wondering. It is because we are all so "dense and insensitive" according to her. I had thought everyone was trying to help.
Quote:Originally posted by sillyfeline:
[b]nobody knows what to think. i defy everything written on food allergies. now im up to 12, 6 just developing in the last few mos. my reactions sometimes have 12hr delays and linger in my system for several days. at this rate, i will be completely out of foods to eat by age 35. some months it happens a dozen times. happened today and may have cost me my job. i know theres nothing anyone can do and no one can even find reasons for the irregular reactions or acquisition. (im 29, for petes sake and had no severe food allergies as a child). i cant do it anymore and its not like theres any hope. i dont know what to do. i really just give up. one of these days itll just be fatal. i dont even know why i shared. there isnt any help out there.[/b]
Quote:Originally posted by dmbb:
[b]Could you get to Mount Sinai School of Medicine to see Dr. Sampson or Dr. Sicherer?[/b]
Quote:Originally posted by sillyfeline:
[b]Why bother?[/b]
Quote:Originally posted by Going Nuts:
[b]I was not aware that Drs. Sampson and Sicherer don't see adults, but I'd bet they know someone good who does. Good people tend to know other good people.
I don't blame you for being frustrated, but please don't give up!
Quote:Originally posted by AnnaMarie:
[b]I can't remember who, but there is at least one adult on this forum that sees Dr. Sampson. He may have children as the largest part of his practice, but, it isn't all of it.[/b]
Quote:Originally posted by erik:
[b]There should be good allergists in NYC who see adults. I know there are several good allergists here in Toronto that see adults. Maybe try going to a hospital affiliated with the university (taeching hospital) as they may have younger and better trained allergists as well as older and more experienced allergists.[/b]
Quote:Originally posted by ajinnj:
[b]I think doctor Sampson will see you even though you are an adult-- just explain your situation. You may have to wait several months for an appointment but it's worth. Like Going Nuts said, if Dr. Sampson will not see you (which I highly doubt) then he will definitely be able to refer you to someone. [/b]
Quote:Originally posted by sillyfeline:
[b]i wish there were suggestions, but most, like erik just keep repeating how i should insist on seeing a pediatric specialist who wouldnt see me. sigh. people are so [i]insensitive and dense[/i] sometimes[/b]
[This message has been edited by erik (edited January 18, 2004).]

Posted on: Sun, 01/18/2004 - 1:50pm
momma2boys's picture
Joined: 03/14/2003 - 09:00

Just found this as well, BTW Cindy, its in the Adults Living With Peanut Allergy Forum.
Sillyfeline, Im sorry you feel you got no support here, but from your posts I think you need to find help fast. I sense a desperate, depressed, defeated person. I know you said you cant afford therapy, but there has got to be free help for you somewhere. Please find it before its too late.
I wont pretend to know how you feel or have any advice to make it better for you, but we are not bad people here. We dont want to see you feel this way.

Posted on: Sun, 01/18/2004 - 1:51pm
MommaBear's picture
Joined: 09/23/2002 - 09:00


Posted on: Sun, 01/18/2004 - 2:00pm
erik's picture
Joined: 05/15/2001 - 09:00

Thanks Momma Bear - I have to learn how to do that (linking) sometime. [img][/img]

Posted on: Sun, 01/18/2004 - 2:05pm
Anonymous's picture
Anonymous (not verified)

erik, thank-you. [img][/img] No, I never would have found it. As I said, I think in this thread, I've never been in the Adults Living with PA section. I think I have twice, so not never. I don't even lurk there, have not read anything there at all. I see topics from that section in the Daily Topics and that's all.
My reason for not going into that part of the board may seem weird. I'm scared. I have enough stuff to worry about with Jesse right now (and some days nothing to worry about, just in the back of my mind) that I don't want to go to that part of the board and let my mind wander to when he's a teenager and beyond. Do you know what I mean?
Okay, if that's what it is, simply the interaction in that one thread, sillyfeline, again, I would say, please re-consider. You have offered a lot to this board as I've already posted.
Now, you may not feel as though you got the response you wanted in your thread and I understand, as best as I humanly can, where you're coming from. You feel defeated by your allergies.
Please let people help.
This wasn't for food allergy testing but regular allergy testing (don't know if there is any difference) but do you know when I was a kid I went to the same allergist (Dr. Norman Epstein on St. Clair Avenue West in Toronto) that I later saw again when I was in my mid-20's. He was considered quite *good* in Toronto in *those* days.
Is there NO chance that Dr. Sampson can see an adult? Is he a food allergist only (see I continue to amaze everyone with stupid questions I can still ask [img][/img] ) or does he deal with other allergies as well (i.e., environmental). So that means he's not only a specialized allergist (i.e., food), but also beyond that, a pediatric one, so even more specialized?
I'll check out the thread now, but I do hope sillyfeline that you decide to stay. If you're at your wit's end, perhaps you're just seeing words on the screen and not hearing the people's concern that have posted to you.
Seriously. [img][/img]
Best wishes! [img][/img]

Posted on: Sun, 01/18/2004 - 2:11pm
MommaBear's picture
Joined: 09/23/2002 - 09:00

Quote:Originally posted by erik:
[b]Thanks Momma Bear - I have to learn how to do that (linking) sometime. [img][/img][/b]
speaking of, have you set a wedding date yet? [img][/img]


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