Does anyone else\'s allergist confuse them further?

Posted on: Fri, 05/09/2003 - 9:52pm
jennilee's picture
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Joined: 06/18/2001 - 09:00

I thought that we were doing relly well with my PA son. We have avoided another dreaded anaphylatic reaction for over two years.

On his last visit to his allergist I was encouraged to start putting an egg yolk into the banana cake I make for him on special occassions.(he has egg allergy as well as several others). I did this over the last 8 months and he was fine after digestion. On this visit his skin test showed that his egg allergy had risen by 3 points, and almost matched his peanut score. His allergist has told me to remove egg from his diet once again. I feel really confused.

I must admit that I left there feeling really disappointed. For some silly reason I interpretated Jedd's tolerance of the cake as a positive sign, that for a fleeting moment there was a chance of him outgrowing this condition. I know it sounds stupid, but maybe I am.

Does this mean that he will never outgrow his allergies, even just his egg one?I am really feeling the impact of his condition at the moment, because I know that he is too. He's at the age where he wants to be his own little person, and I am sensing sadness within him when we are in social situations. I used to say to him at the food table "No darling, you can't have that, it will make your eye sore, but you can have this(and I would give him a "safe" treat from home), and he would say O.K Mama. Now he's saying "No it won't", and getting upset alot. It breaks my heart to see him so miserable. It's like he's becoming aware that he's different some how.

I'm sorry about getting off the track, but I feel better now that I've unloaded. Does it get harder as they get older? How do we let them be their own person without making them feel ostracized?

please take care, jenni

Posted on: Fri, 05/09/2003 - 10:08pm
darthcleo's picture
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Joined: 11/08/2000 - 09:00

Has your allergist tested for raw eggs, vs baked eggs?
Supposedly, the baking breaks down the allergenic protein, so it is possible to be allergic to raw eggs, but not baked ones. At least that's what my first allergist told us. Our second one had no idea there was a difference, so who knows?
In our case, my son still reacts to omelettes, egg sandwiches, french toast, but does not react if the egg is in a cake. The temperature is higher and breaks down the egg protein. That's the explanation that was given to me.
There's a lot of contradictory info out there, and this one here (baked eggs vs other eggs) has never been infirmed or confirmed for me.

Posted on: Sat, 05/10/2003 - 4:26am
river's picture
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Joined: 07/15/1999 - 09:00

Hi Jennilee,
I'm sorry that you're feeling so lousy right now. It's always such a big let down when you suspect that the allergy has been out-grown only to find out differently.
darthcleo makes a good point about the possiblity of protein breakdown being behind your son's tolerance of the cake.
If you don't feel right about that allergist, you should find a new one.
I think that everybody on this site who has a PA child can relate to your broken heart. It's hard when you have to watch your child hurt over something like food. I remember once my son crying at a birthday party because when I had moved to another area of the room to help the hosting parent for a second, a tray of food came around and he was faced with trying to figure out if the food was safe or not, (most of the food there was safe for him to eat, but there were a couple of possible may contains.) He was had only just turned 5 years old and the stress was too much for him at that point. I thought how unfair it was that he had to feel so crummy at a birthday party of all places.
It sounds like your son is just as disappointed as you are, but can't express it in words, so he does it through behaviour. Try and keep upbeat and it should rub off on him.
Also, keep hope about the egg allergy. He still may outgrow it yet. My son used to vomit when he ate fried eggs, (he never tested positive for it.) Now he eats them without a problem.
Maybe you and your son should do something special together to pick you both up.

Posted on: Sat, 05/10/2003 - 10:52am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Well, not confused, but more surprised.
I asked Ryan's allergist about testing for specific common tree nuts--walnuts, pecans, cashews, and almonds. I was interested as to what his numbers would come up as since he ate tons of cashews before a PA diagnosis, ate pecans out of the bag, and ate cereals with almonds and walnuts with no problems.
He discouraged me because he asked, "Well what are you going to do if they come out as a positive on his blood test? Tell him not to eat them?" His point was that sometimes you can get a positive blood test, and not have any problems eating the "positive" food. He said he has several patients that come out with blood test positives to certain food and yet, can safely eat them with no problems. He said that any testing, whether skin or RAST, is actually an imperfect test. It must be considered in relation to the actual medical history of reactions. Basically, it's a highly individual thing.
He reiterated that he really didn't want to test since his medical history illustrates he has no problem to tree nuts. But he wrote them on at my insistence because I'm very interested to see what his numbers are on tree nuts, given our experience that he is not allergic to them. If they do come out as positives, I will advise Ryan to proceed with caution in this area. Science may indicate he is allergic, his own medical history does not, however, that could change at any time. BTW, we don't consume tree nuts anymore either because of cross-contamination issues.
[This message has been edited by ryan's mom (edited May 10, 2003).]

Posted on: Sat, 05/10/2003 - 10:43pm
jennilee's picture
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Joined: 06/18/2001 - 09:00

River, thanks for your kind and encouraging thoughts. I will try to stay strong for my son. I am going to take him swimming tomorrow whilst his sister is at kinder.
I am just wondering why Jedd's skin test to egg has risen. Is it because he has been exposed to and digested the protein? Does the histamine build up or lay down in his system, waiting to cresend into an anyphylatic reaction? Does anyone know? I feel so naive.
Thanks again to all
jenni

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