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Posted on: Fri, 10/17/2003 - 1:07pm
abbylukesmom's picture
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Gosh! After reading these postings I am sitting here with tears in my eyes thanking God for my son! It's a long Hx, but I'll sum it up........he has reactive airway disease & is also allergic to all dairy products......he turned 2 in June...he had never had any trouble with peanuts, but, for some reason, I became suspicious of them...I would not feed him anymore peanut products...In July he had one tiny bite of a peanut butter cracker that my FIL gave him-he refused to eat anymore. About 45 minutes later he was in his stroller (we were shopping) I looked over at him & he was unconscious & blue. I screamed for help & someone had laid him on the ground & was going to give him CPR. His eyes then fluttered open, but he was extremely lethargic, he remained that way for over 3 hours. The hospital kept him for observation because every test they ran came back normal. During the night he had a grand mal seizure-it was horrifing! He was hooked up to monitors & I remember looking at his heart rate, it was 0...like something you see on tv.....my husband has a cousin with a PA son, she told me they will run all the tests & will find nothing because it is a PA. She was right!!
In retrospect my DS has had another episode a month before, while he was sleeping. I heard him fall out of bed & when I went to check on him I couldn't rouse him. I checked his vitals & they were fine. I brushed it off as him being tired. But after the shopping episode I thought back & remembered when had went to dinner at one of those places that serve peanuts on the tables that day & my DS had eaten only 1 peanut & broke out with one hive on his face!Now it all makes sense!
I had him allergy tested & it was negative to both a skin test & a rast test-which is crazy! He broke out with hives on every extremity after eating only a few plain m&m's last month. Last week he got ahold of a chocolate mint cookie & it gave him hives. Now I am paranoid about everywhere we go & everything he eats! After reading the above posting I know my son has had his guardian angel working overtime! He is on zyrtec daily & I have an epi pen, but now I definately want to get another one!
I have been looking at alot of PA sites and there's one that says sometimes their isn't hives-just a collapse-that reminded me of my son.
Thanks for everyone's postings here-it has taught me alot! I will definately not be afraid to use the epi pen!

Posted on: Sun, 10/19/2003 - 3:52am
redtruck's picture
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Let me preface by saying that in 4 yrs since my dd has been diagnosed pa,we have never had to use an epi. On a couple of occassions she has thrown up...now is that from a possible pn/tn ingestion or just something didnt agree with her stomach as with us adults from time to time...not certain.
However, we decided long ago not to use benedryl since we were told by our allergist (and this makes sense to us) that it can mask some symptons of an allergic reation, thus delaying our use of an epi or getting her to hospital, much like an asperin will mask the symptons of a headache. And we definately don't want to mask any symptons like hives, swelling etc, in case they grow into larger ones or more of them etc. So we gave up our benedryl and carry only the epis.

Posted on: Sun, 10/19/2003 - 6:41am
Carefulmom's picture
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I`m with Redtruck. The only time I ever use the Zyrtec is if dd has insect bites which itch a lot and I only use it if I am sure it is insect bites. About the hives only, I did notice dd had one hive when I picked her up a few months ago, and I did not use the epi. I watched and within 20 minutes it was gone. I have no idea what it was due to.
To abbylukesmom, just wondering if your child was on Zyrtec when the skin and rast tests came out negative? If so, can zyrtec give you a false negative?

Posted on: Sun, 10/19/2003 - 8:36am
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[This message has been edited by deegann (edited March 15, 2004).]

Posted on: Sun, 10/19/2003 - 9:39am
abbylukesmom's picture
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Carefulmom,
Well, he did have the zyrtec with the RAST test, but not with the skin test. I am not sure if it would give a false negative. I will have him retested in July to see what it shows then.
I have another question, maybe you can answer it: I have noticed on several occasions that when I am rocking him to sleep at night (he's my last baby-hard to give it up) that he scratchs the palms of his hands alot & his arms too. There are no visible hives, but he really tries to dig into them. It's not everynight-just occasionally. He does take the zyrtec every day-could it be he's been exposed to some peanut traces & the zyrtec is helping mask the symptoms? These are the nights that I usually sleep with him, because I worry so much! Any ideas?
[This message has been edited by abbylukesmom (edited October 19, 2003).]

Posted on: Sun, 10/19/2003 - 2:06pm
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Abbylukesmom, if he is allergic to dairy, are you eliminating all milk from his diet? (meaning reading all labels, etc.) I am asking because I am thinking a chocolate mint cookie would have milk in it? If you are not reading all labels for milk (including casein and whey which are parts of milk protein), I am thinking maybe the itching is due to milk ingredients in something he is eating? It is hard to know because he is on Zyrtec daily, so we don`t really know if he would have hives with his itching if he were not on Zyrtec, so it is hard to know if the itching is allergic or something else. If he really isn`t on anything with milk ingredients (my dd is also allergic to milk so I know how many kinds of cookies have to be excluded from their diet), then maybe it is a variant of excema. Or, even though this is way off topic, but when my dd had scabies, she itched at night on her hands and feet tons. There wasn`t much rash, just scratches where she had been scratching herself. Seems like if it were scabies it would be every night though. Anyhow, it is hard to know what is going on with him on Zyrtec daily. What is the reason for the daily Zyrtec? Somehow, it just doesn`t feel right to me---if my child were needing Zyrtec daily I would want to know why. About the skin test, I remember my allergist telling me around age 2 that sometimes the immune system is not developed enough at that age to give a postive skin test. I remember my dd tested positive to milk and negative to soy, but to me she appeared to be allergic to soy. That was how it came up. He said to stop giving soy, because she was so young that she might not yet have a positive skin test to soy. She never had a rast, but a CAP RAST is supposed to be very accurate (although I don`t know if it is accurate at age 2). Maybe he should have a CAP RAST. If it is positive then you will know for sure, if it is negative I am not sure how much that will help. Here is what I would do. When he has a night where he is itching, assuming you are reading all labels for milk already, write down everything he had within the last few hours when he is itching. Maybe if you write it down, you will find something that he always has right before he is itching. Obviously I am assuming that you are already reading all labels for peanut and "may contain", shared equipment with peanuts, etc.

Posted on: Sun, 10/19/2003 - 2:48pm
abbylukesmom's picture
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Carefulmom
I should confess that sometimes I have been too lenient with the dairy products. I never give him milk, cheese, yogurt, etc, but occasionally a chocolate cookie here a couple cheese crackers there. I have definately been more careful since his reaction to the may contain peanut traces chocolate cookie last week. You have brought up a good point-it may be the dairy. His usual reaction to dairy is belly aches, diarrhea, & chroinc coughing w/vomiting (asmathic). But, from reading so many of these postings the past few weeks I understand how reaction can change at any time! How could I be so stupid! When we first discovered his milk allergy (he tested negative on that too) he was on four different meds daily trying to control the reactive airway disease (RAD). After we took away dairy products we weaned him off all of his meds except zyrtec prn. He has seasonal allergies so that is why he is taking it daily. We live in the Ohio River Valley which is known for being one of the worst places in the U.S. for allergies. Fall & winter is the prime time for RAD his allergist said to keep him on the zyrtec until a good hard frost hits. Anyway...sorry to babble....he does have a little runny nose now & some eczema acting up too. I used to keep a food diary for him-I will start it back up tomorrow & I will definately be vigilant! Thanks so much for your imput!
No one has told me that a 2 year old's immune system may not be developed enough to test positive to the allergens. It sounds like you have a great allergist. I should start looking for another one because he certainly never told me that! What else is your child allergic to?
I have been label reading-when we first found out about the dairy I made a card with all the other wording that meant milk & carried it with me everywhere!
p.s. If you have any special recipes that you would like to share I would love them! He is also allergic to soy-we use rice milk!
[This message has been edited by abbylukesmom (edited October 20, 2003).]
[This message has been edited by abbylukesmom (edited October 20, 2003).]

Posted on: Mon, 10/20/2003 - 2:08am
Carefulmom's picture
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Abbylukesmom, no time for a long post because I am at work, but I just wanted to say don`t feel bad that you have not been reading labels every single time for milk. I only knew to do it because our allergist told me to. My dd is 8 and is allergic to milk, eggs, and peanuts. She outgrew the soy allergy. Her milk reactions also changed with time---first it was blood in stool, diarrhea, crying non stop (probably due to abdominal pain), as she got older it became nasal symptoms and wheezing. Anyhow, don`t feel bad about the past, but I do think you should read every label and eliminate all dairy from his diet. I know that my dd`s last milk reaction was from a product mislabeled, but it didn`t have much milk in it, and all she got was nasal symptoms (she sneezed for 20 minutes straight and got a very stuffy nose). The point is that these trace amounts of milk in some kids can still cause symptoms (and by the way it looked like hay fever but I believe it was a milk reaction). And yes, our allergist is great. I never would have known to look for casein or whey on the label. He is the one who gave me the epi. I never thought I would be using it, and when the moment came (first time she had egg), I was so glad I had it. More later, have to run. Oh, one last thing, if your child has not had egg yet, I would wait. If he has had egg and is okay, then don`t worry about it. Any chance his symptoms are due to egg? That is a pretty common allergen in toddlers.

Posted on: Mon, 10/20/2003 - 11:53am
abbylukesmom's picture
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Carefulmom,
Yes, he has eaten eggs-several times. As far as I can tell he is fine with them. I don't let him eat fish or shrimp-I want to wait until he is retested just to be safe! I have began his food diary today. Thanks for your advice! You've been a great help!

Posted on: Tue, 10/21/2003 - 1:59pm
Soapy Jo's picture
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Joined: 10/20/2003 - 09:00

My 3 1/2 ds (PNA/TNA) CAP RAst 15/100 has had three reactions: the initial to an accidental bite of PB at 14 mos; second to bread in freezer that escaped our clearout following the diagnosis (a may contain); third this summer with a plain hamburger bun from an in-store bakery not labeled for cross-contamination (stupid, stupid on my part!) Each time his got face a little rashy and one eye got itchy and started to swell up. We have only given him Benadryl, watched and were prepared to give Epi -- except the inital when we didn't have it. He didn't have any breathing problem or wheezing (otherwise I would've given epi right away). The posts make me worry about waiting on the Epi, but in our experience (maybe very lucky!) Benadryl has done the trick. I am going to ask my allergist (who is very good and publishes on pa)for exact instructions.
The other question Chris at pa.com asked when I registered was "how long would you wait after giving the first epi to give the second one". I didn't really know. I know they work quickly and if it didn't work in like a couple minutes, I'd give it again. Does anyone have a better answer to this?
I know this is in many other threads too but just to remind other new people to carry two epi's and make sure they are from different Lots just in case.

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