We got our E-belt today...

Posted on: Tue, 04/02/2002 - 12:01am
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p...and our son likes it. He enjoys wearing it over his clothes. I told him, however, if he goes to school in September, he has to wear it under his clothes. Too many fingers poking at it and asking questions make me a little uneasy about him carrying it. He has to follow strict rules on carrying it, so "out of sight, out of other little minds" is what we're going to try to do at school. /p
pAny comments on this approach, anyone?/p

Posted on: Tue, 04/02/2002 - 1:53am
KatiesMom's picture
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Katie has worn and epi-belt at school since the beginning of November. It's very convenient for her. Most days she forgets she has it on. She never wears shirts tucked in so the belt always ends up under her shirt. I agree that under the shirt is better for the reasons you stated.

Posted on: Tue, 04/02/2002 - 2:27am
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My kindergarten son wears an Allergy Pack (a shot holder that is attached to his regular belt) He goes to a private school with a dress code that requires he wear a belt and a shirt with a collar that is tucked in. He loves his Allergy Pack and has never had a problem with the other kids. The first time he wore it he explained to the other kids that it held his shot and could only be opened by a grown up. They were all fine with that and I think its more a case of being such a familiar sight that they don't even think about it. It may be different in a public school with more kids (there are 16 in his class) but we have never had a single problem with him wearing it on the outside.
As a side note we met my out of State cousins at McD's last night that I had not seen for almost 10 years and the first thing they noticed was his Medic Alert Sports Band and his shot holder.
Take Care,
Valerie

Posted on: Tue, 04/02/2002 - 6:51am
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Joined: 06/23/2001 - 09:00

Our little guy will be 4 at the end of August and he is going to school for the first time at that time.
We want him to wear an epibelt too since he will be at art, music, in class, gym etc and it is good for him to have it on his body at all times. We have a single epipen belt holder from FAAN. Don't want him to wear a heavy fanny pack but maybe that is better.
What should he wear? Where can i buy it? what do you use? thanks!!

Posted on: Tue, 04/02/2002 - 10:42am
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Ryan's Mom - My son has been wearing his e-belt for 3 years. In grade 1 he wore a small fanny pack, but we found it too cumbersome - it got in the way on the play structure and during gym, etc. It also got very dirty inside and we found the actual Epipen, eventhough it was in a toothbrush holder, was all dirty with sand and could have been jammed when we tried to use it. We find with the e-belt all of these issues are solved. It's not cheap, but I think it's more than worth it. He wears it on the outside ALL THE TIME. I think it's important as part of the allergy plan for your child to have the children he's in class with look at the e-belt and epipen, understanding why he has it, what's it's used for, what a reaction looks like, etc. in age appropriate language. Hiding it is the LAST thing I'd do. It's important that everyone knows what it is and where it is. It's a badge of honor. Of course reinforcing at that age that only an adult can open it and use it is all part of the process, but the children should be part of the safety net. I heard of one parent who decided not to "make" their child wear their Epipen, because it got in the way while they were trying to use the washroom and the little boy had a accident. The mom has now decided that the epipen should stay in his backpack - DEFINATELY not what I would do but it just shows you how different people are about this kind of stuff.
AAA - The company that makes the e-belt is Zoni Inc. They are linked to this site at [url="http://www.peanutallergy.com/e-belt.htm"]http://www.peanutallergy.com/e-belt.htm[/url] or directly to their site at //www.zoniinc.com. Either way, mention you're a member here - I think you get a deal, but don't quote me on that!

Posted on: Tue, 04/02/2002 - 1:56pm
AlwaysAvoidAnaphylaxis's picture
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Joined: 06/23/2001 - 09:00

Thanks. Very similar to the one FAAN sells and we have two of those. With this, cannot carry benadryl but that is OK. Also cannot carry two epipens but guess that is okay too, provided the first one works. I think FAAN may have a belt where you can carry two with you at all times. will log on to [url="http://www.foodallergy.org"]www.foodallergy.org[/url] and look for it.

Posted on: Wed, 04/03/2002 - 3:02am
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Adam has had his e-belt for about a year. He puts in on every which way, either over clothes or under. I am the one who tends to put it under his shirts as it has drawn some negative attention from older children in his school. I am comfortable with it under his shirt. People have still noticed he is wearing it. Adam is now 6 1/2, and wears it with no problems or complaints.
To address the concern that it may be "hidden", you can have inscribed on the medic alert bracelet "carries epi-pen on person".

Posted on: Wed, 04/03/2002 - 8:00am
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Joined: 05/28/2009 - 16:42

Wow! Thanks for all you comments and ideas.
Just this afternoon, when I went to the gym, Ryan had his e-belt on. One of his playmates in the playroom was curious about it and was asking questions. The playroom director got Ryan's attention and motioned for him to be quiet about it and tuck it under his shirt. Ryan's one of the oldest there, so I thought that was good advice. A lot of small kids tend to poke and prod as they ask questions. Many of them are really not at an age at which they can understand what it's for anyway.

Posted on: Sat, 01/11/2003 - 9:33pm
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raising.

Posted on: Sun, 01/12/2003 - 1:04am
Nick's picture
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AlwaysAvoidAnaphylaxis : the Zoni E-belt is available in a "double" ... have a look on their site [url="http://www.zoniinc.com"]www.zoniinc.com[/url]
N

Posted on: Sun, 01/12/2003 - 6:20am
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Joined: 12/10/2002 - 09:00

I got my son the double e-belt after his last anaphylactic reaction. It was so severe I thought I was going to have to inject him twice. Luckily I didn't have to, but I thought since his reactions seem to be getting worse each time, I didn't want to take any chances.
The belts are expensive, but when you consider they save lives, they are well worth it. My son has the little pouch on his for the benedryl tablets which has come in very handy on many occasions, for his other minor (just hives) allergies.
As for the school, he started wearing his in grade one when they started doing music, gym, recess, library etc.. without their classroom teacher. He wears it under or over his clothing, depending on his "style" that day.
We have just over 200 students in the school and they all know what it is, and we have never had any problems with anyone trying to touch or grab. The students have been well educated since the school has become peanut free. Our son knows not to open it to show anyone because it is very dangerous, and needs to be kept safe, so it is ready to go when/if he ever needs it again.
------------------
Cynde

Posted on: Sun, 06/01/2003 - 11:15pm
Anonymous's picture
Anonymous (not verified)

I have started my son carrying his own epi-pen. Right now it is in a fanny pack, but that's temporary. I was hoping to get a sturdy fanny pack that would fit his waist, but now I'm thinking about the e-belt. Could anyone who has one answer a few questions for me?
Does it fit properly around a small waist? My son is five. I had to sew in the belt of the fanny pack.
Is there room for any antihistamine? He carries two chewable antihistamine (as he has not had an anaphylactic reaction our first line of defense is antihistamine).
Any and all opinions welcome.

Posted on: Mon, 06/02/2003 - 7:12am
CVB in CA's picture
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Joined: 10/15/1999 - 09:00

My son has the small size e-belt and he is 7. He is very slender and only wears slim size pants or all-around elastic waistband. He is about 20 and 1/2 inches in the waist.
Although Zoni recommended the next larger size and taking it in, we are happy with the small one. He is no where near outgrowing it.
It's quite rugged and is wearing very well. I feel like I got full value now, though it does seem very pricey up front. However, I have certainly spent my share on little fanny packs, eyeglass holders, cell phone holders, etc. They didn't work as well, last as long, and were more noticable.
Problems- 1) A child sitting behind my son kept snapping the cap off when my son sat at his desk in school. The teacher could not see this, so kept reprimanding my son for turning around. They were moved apart so the problem was solved. I'm sure this kid would have tried to open a fanny pack also, but he could not seem to resist pulling the velcro seal strip that holds the cap down.
2) I have had to tape his prescription onto the belt because the epi pen fits so tight in the holding tube. The school insists the prescription be visible on the belt. I wish there was a plastic window on it or something similar for instructions, etc.
3) Our dog finds the belt irresistable. She loves to chew the leather cover over the plastic tube holder and the rest of the belt as well. It probably smells like her "pack mate" and it's chewy besides. I have to constantly make sure it is not left in her reach when it is removed at home.
4) I'm also wondering if there is anyway I an ever going to be able to get it clean again. It's absorbed a fair amount of playground dirt and sweat after a year. It's not machine washable due to the leather cover. Maybe zoni should offer it in heavy ballistic nylon instead of leather.

Posted on: Mon, 06/02/2003 - 12:28pm
Anonymous's picture
Anonymous (not verified)

CVB, a few questions regarding the problems:
1) If the epi-pen is held in by velcro, is it tight enough not to fall out?
2) I could have the same problem here. Our school also insists prescriptions be labelled properly. (Sounds like a good idea to me, but I never considered about the carrier causing a problem with that.)
3) We don't have a dog [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
4) Has dirt gotten inside the epi carrier? Is there a concern that it might not work (if dirt covered the end)?
My son is very active, and the class goes to the playground daily.
This still sounds better and safer than the fanny pack we are currently using.
Have you contacted the manufacturer with your concerns? When enough people have the same complaint sometimes these companies actually listen.

Posted on: Tue, 06/03/2003 - 5:03am
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Joined: 05/28/2009 - 16:42

When I ordered Ryan's e-belt, the co. rep. asked for his waist size and made a recommendation to me on which one to order. I believe it can come with the antihistamine pouch, but I gave my folder of info to one of Ryan's future teachers for review yesterday.
Ryan wears his everyday to school and dirt on the velcro or the cap unsnapping isn't an issue because he wears it under his big shirts. Virtually everyone forgets he wears one, including his teacher.

Posted on: Tue, 06/03/2003 - 6:56am
CVB in CA's picture
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Joined: 10/15/1999 - 09:00

We have never got dirt or sand inside the protective tube holder of the e-belt. It is just big enough for the pen, not including the yellow transparent plastic tube. That is why you can't stick the presciption on the yellow tube- it won't be in the holder. If you put the scrip right on the pen, you would obscure the instructions and make the diameter too large for the pen to fit.
The cap fits tightly on its own. The velcro strip is just extra insurance and helps pull the cap off. It makes a small muffled "whomp" noise like a rubbermaid container when it is opened it is so tight. (Probably the big attraction to yanking the cap off for that other kid).
My son does wear it under his shirt, but his shirt is usually not tucked in. Or at least it seldom stays that way. The real dirt on the belt is mostly from him rolling around in the dirt and grass as little boys tend to do. It's been sort of a cumulative thing.
Also, he often wears it against his skin under the shirt so has sweated into it, etc. It is like the amorphous sort of grunge that can accumulate on the inside wrist band of a watch than actual honest dirt. That is what bothers me more.
The belt has also been soaking wet once or twice, but the epi was well protected. I wouldn't recommend immersion, but certainly not a concern if hit by a water balloon.
What I ended up doing on the prescription was cutting epi pen box up. I took the section with the scrip on it and covered it with transparent packing tape front and back. Then I taped that around the holder several times with the tape. This is that packing tape that is about 3" wide on a fat roll. It held up well, but I check on it periodically. The tape on the inside wears a bit. The tape touches the nylon belt, but not the leather tube. It forms a loop over the tube. I'm not describing this well. I am renewing the pen now and plan to laminate the scrip over at the copy shop rather than using so many layers of tape.
My sons belt does not have the anthistamine pouch or the inhaler holster as there just wasn't room. The tube pretty much covers the width of his back. He can't actually wear the tube part to the side as he is too narrow in that dimension. He either wears it across his back or across his stomach. He rotates the tube part to the front when he rides in the car or is in a chair that digs it into his back.
I didn't think about all this stuff until I responded to the post. I suppose I should send Zoni the original comments.
I also have one of the small snap cases from FAAN. I have forgotton the brand name of this one. It has a sliding lid you can put name and address, etc. and inside there is room for two pills, a pen and the scrip. However, it is just no way as sturdy as the ebelt. I use it inside a fanny pack or purse as the backup pen. I think it is very good for that.
It also has a magnet strip on the back of the snap case. In my experience the magnet is only big enough to demagnetize credit cards in your purse, not strong enough to hold it to the refrigerator exterior as recommended. The concept is that you take the pen off in the house, then put it on the refrigerator at home. Then it will be in most needed location, same location all the time. I tried it and all it does is slide down a bit and then fall off onto the floor.

Posted on: Tue, 06/03/2003 - 9:42am
Anonymous's picture
Anonymous (not verified)

Thank you so much for your help. Tomorrow I have to order one. I'll call medic-alert and order both his bracelet and the e-belt.
Thank you.

Posted on: Wed, 06/18/2003 - 10:59am
Anonymous's picture
Anonymous (not verified)

DS got his e-belt today. SUCCESS!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
The belt from medic-alert is the zoni, but where the velcro closure is it has the medic-alert name and symbol.
I took the instruction page out of the original container and cut the ends off - leaving all the writing, I just cut off the blank ends - and I pulled the prescription info off the tube and taped it on the french side of the instructions. It fits in the carrier around the epi-pen. I also cut the corners off one chewable benedryl and it fits in on top of the epi-pen.
He prefers it under his shirt (for now anyway). He had such a grumpy day today. This was the only thing he didn't get upset about - he couldn't wait to go out so he could wear it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Thanks for all your help.
[This message has been edited by AnnaMarie (edited June 19, 2003).]

Posted on: Fri, 09/12/2003 - 2:35am
Jodi's picture
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Joined: 10/28/2000 - 09:00

I have been looking at the e-belt, etc.. to see what I could get for my PA kindergartener to wear, but I really for one don't like the price I see on them and two, don't like that there isn't room for the liquid Benadryl. I feel the need to keep that liquid Benadryl on him. I don't feel comfortable with the tablets. I just had my neighbor who is a good sewer take a fanny pack and cut it down to a smaller size so it wouldn't be so bulky. Fits the two epis and a trial size bottle of benadryl. Going to try it next week for school and see how it goes. If it doesn't work, will have to break down and get the e-belt or something, just hoping to avoid the cost...

Posted on: Fri, 09/12/2003 - 7:46am
Dawn's picture
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Joined: 02/22/1999 - 09:00

We decided to go with the e-belt. (ds is also in kindergarten)
I, also, didn't like the cost, but chose it for it's durability. The tube that the epi slides into is very strong and will withstand my rather rough and tumble 5 yr old's antics on the playground. I wasn't able to fit even the Benadryl chews in it, but feel that while it is crucial to get the Benedryl, it can be given after the epi. Benedryl is kept in every room my child will be. (Along with extra epi's in the office and lunchroom.)
The playground was the touchy point, where someone would have radio for the epi. I'm okay with them radio-ing for the Benadryl (is that foolish?)
Anyway, it fits my son nicely and although I've had to enlarge the belt loops on most of his pants, it works wonderfully for us. 2 children have fussed at it a little bit, the first week, but it was nothing my son wasn't able to handle on his own. And now, everyone is used to it and no one bothers him. It is only for school, though. When we go out, we use our regular "Epi-kit" with 2 epi's and lots of Benadryl.
Just our experience [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Dawn (edited September 12, 2003).]

Posted on: Mon, 10/06/2003 - 12:02am
Jodi's picture
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Joined: 10/28/2000 - 09:00

Has anyone ordered/used the medipouch that FAAN sells? I was just looking at their website. Asking as they are cheaper than the e-belt, but I don't know if I like the design as well.

Posted on: Mon, 10/06/2003 - 2:12am
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Joined: 05/28/2009 - 16:42

Jodi:
You may think I'm a crazy epi-holder shopper, but our needs have changed overtime, so I've done alot of comparison shopping on these products.
We currently have:
1 Double E-belt (from Zoni) - I wore this before Syd entered school. It's now in semi-retirement at home, until Syd's waist is big enough to wear the adult double e-belt.
1 Single E-belt (from Zoni) - Syd wear this now exclusively when she's at school/out of the house.
6 Single Black tubes(from Medipouch)
I did not purchase Medipouch's carrying case because it was just a flimsy black material case sewn on a belt to hold these black tubes in - the tubes themselves are very strong and durable, so if you have spare epi-pens for the house or office, want to keep them dark and protected but do not need these spare epi-pens worn on a belt, these are great tubes to hold the epi in. I think they were around $6.00 a tube.
2 Tote twins (from MedicAlert Canada)
In our Tote Twins (suitable for two epi-pens or 1 pen and 1 or 2asthma puffers) we have 1 back up epi pen (which sits inside a MediPouch black tube inside this tote twin)and the asthma rescue puffer - these Totetwins are not worn, but one is kept in the teachers desk and one is always in my purse. This product is soft yet durable.
The Tote Twin can be also hung from your own belt hook vertically or looped thru a regular belt, worn horizontally like the e-belt does.
For an active child wearing any epi-belt, if your looking for an alternative to the zoni E-belt, I would recommend the Totetwin worn in combination with the MediPouch black tube - the combination of purchasing these two different products (the MediPouch tube thick and hard, the ToteTwin case thick, soft yet durable) from these two different manufacturers makes it a very strong/durable combination product, and at the end of the day, it may be a cheaper alternative to the Zoni belts (not factoring shipping costs and taxes here in Canada. It also would allow a small amount of benedril to be carried with a single epi-pen and the puffer instead of the second epi-pen, if required.)
Now that Syd self-administers her asthma puffer at school, I was looking for a side asthma inhaler pouch to attached to a strong Epi-pen belt, without having to buy a third Zoni E-belt. I contacted AllergyPack (hey - I really am an Epi-case shop-a-holic!) who makes the Epi-pen PenPals and PenPal combo's.
The owner of AllergyPack recently sent me a mock up single epi-pen belt with side attached inhaler side pouch (no charge)- not a current product he carries but he does carry the double PenPal pouch with inhaler side pouch ,so he made this single epi/single puffer specifically for us to test out.
I thought that was really great customer service from AllergyPack.
When the AllergyPack PenPal product arrived, the material that all the AllergyPack products are made of would not withstand my now 4 year olds handling - the fabric was thin foam non-latex material - really thin and stretchy and I could see the velcro being pulled open weakening the stretch fabric to the point of ripping (since the inhaler needs to be utilized frequently, it wasn't going to make it a week before ripping.) Even the actual belt itself is made of this thin stretchy material, making it suseptible to breaking down/tearing over a short period of time.
The AllergyPack's PenPal case specifically for the epi-pen needs the epi-pen to remain in it's original thin plastic tubing case that the pharmacy gives you when buying the epi pen. The AllergyPack PenPal epi-pouch itself is a simple foam tube, covered by this thin stretchy non-latex material - it would not withstand active play like the zoni belt does - our zoni belt can be stepped on without disaster - if you stepped on the Allergy pack Penpal, the pastic pharmacy tube would crack and the epi-pen could very well be damaged. The zoni belt can go stomach first down slides and withstands any playground equipment that a just turned 4 year old can manage - all other products tested to date just don't have the where-with-all to stand up to an active 4 year olds lifestyle.
I sent this PenPal back to AllergyPack with my thanks for the mock up but I'll stick with the E-belt/epi-belt from zoni for now on, and will have to bite the bullet and order a whole new combo single pen/puffer e-belt from zoni/MedicAlert Canada.
Stay tuned, we may have a "used single e-belt" from Zoni on the horizon to give away sooner than later.
Hope all this verbal nonsense made some sense. Warm regards, [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Syd's Mom (edited October 06, 2003).]

Posted on: Mon, 10/20/2003 - 11:08am
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Joined: 05/11/2004 - 09:00

Any teens or adults out there wearing an E-belt? I have just ordered one for my 17 year old son. Up until now he has always used a small fanny pack. I think the E-belt will be a bit more unobtrusive.

Posted on: Sat, 10/25/2003 - 2:18pm
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Joined: 05/28/2009 - 16:42

KateB - I wore a double epi-belt (e-belt) from Zoni for the last 3 years - very comfortable - just like wearing an actual belt really - nothing bulky about it. My 4 year old is wearing her own E-belt now, (child size waist band) so my adult one is in retirement until she grows into the adult size. You're teen will so love it compared to a fanny pack. Let us know how he finds it.

Posted on: Sun, 10/26/2003 - 1:27am
Patb's picture
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Joined: 10/24/2003 - 09:00

How did all of you get the epi pen holder past the school? Do your schools allow the children to carry their own epi pen? Presently, our schools do not. Do most schools allow it???

Posted on: Sun, 10/26/2003 - 2:48am
KateB's picture
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My school board, in British Columbia, Canada, has a new policy on allergies in school, still in the Draft stages. In it they ask that all children with an epipen carry it on their person, with a second epipen to be kept at the office. This is new to our district, our peanut/nut anaphylactic children's classrooms are peanut/nut free, and our school is 'Peanut Aware', encouraging all students to leave peanut/nut products at home. So far the response has been good.

Posted on: Sun, 10/26/2003 - 2:52am
KateB's picture
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I forgot to say that this is the school I teach at, an elementary school, Grades K-7. I am not talking about my son's high school.

Posted on: Mon, 10/27/2003 - 4:39am
Anonymous's picture
Anonymous (not verified)

My son's school (Ontario, Canada K-5) also requested any child with an epi-pen carry one *on their person* and one in the office, unlocked.
The school is also has a *no peanut* policy.

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