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Posted on: Sun, 12/29/2002 - 2:25pm
becca's picture
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Joined: 05/22/2001 - 09:00

Synthia, sounds like a great meeting and good plans. I would expect to need to monitor it all, and be sure there is proper follow through, but I am so happy for how it is going for you. It really sounds like they are taking things to heart, and making the proper plans. Good for you! It is so stressful, and you have done a great job getting the school readt for your little V. Becca

Posted on: Tue, 12/31/2002 - 1:11am
Peg541's picture
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Joined: 12/29/2002 - 09:00

Synthia, let me also add my congratulations to how well you have handled this situation. Your Little V is certainly blessed to have such an attentive and strong mother.
Stay strong
Best
Peggy

Posted on: Fri, 01/10/2003 - 9:50am
synthia's picture
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Joined: 10/05/2002 - 09:00

Iam back
This is the letter that was sent home to the parents. The school wrote the letter.
Dear Parents of Childern in Mrs ------ Class:
One of the childern in your childs class has a sever food allergy. The child is allergic to all nuts and nut produts. This allergy is somewhat common and each year we find ourselves with a small number of children(who are perfectly healthy,otherwise) with this serious concern. These children cannot eat nuts,nut butter,nut oil,products cooked in nut oil or products that might have nuts in them,(many chocolate candies,even plain M&M have ground peanuts in their chocolate formula).
Reactions may be swift and quite sever,even deadly. Reactions can occur from even touching peanut butter,for instance. It may be as simple as one child,who just ate a peanut butter sandwich,touching the arm of an allergic child with a hand that might have some peanut butter or oil on it. These sever reactions can begin as itchy rashes,hives,a stomachache, or a scratchy throat and very quickly progress to breathing trouble,throat closing,and anaphylaxis. If the response to these symptoms is not quick enough,a child can die.
In a elementary classroom situation,especially a primary grade situation,parents must recruit teachers and school personnel to share in their vigilance. We have medication on hand that will help control sever reactions and our nurse,the teachers,and key staff members are trained in its proper use. The food service manger is alwasy available to parents of allergic childern for advice and concerns since the cafeteria continues to serve thes products to other childern.
We are writing you this letter to go one step futher and hopefully recuit your help, as well with this matter.Fully understanding the popularity of nut products,peanut butter sandwiches or cookies, for instance,we are asking the other parents in these children's classes to voluntarily avoid the use of nuts and nut products in their children's lunches and in their classroom party menus. Again,this is voluntary gesture on your part. Your willingness to cooperate with this request will help make the school environment a safer place Thank you
Sincerely,
-------------
Principal
Sence the letter went hom the teacher has said that more peanut products have been comming in.And that one parent has stated that pbj is the only thing her chid will eat for lunch.
By the way this parent is a police officer.
The teacher has stated that a lot of children drool. They are hirring a pro prof to shadow her around.
I was also told that the IEP over rules the 504.and that it is better. Hummmmm?
The products that are being brought in are PEANUTs, pbj,PB crackers,Trail mix w nuts.
Iam a little short winded will stop for now.
Ad more later.
Boy do I have a lot of work to do,Do I need to get a lawyer for her now?
Love this site
Synthia

Posted on: Fri, 01/10/2003 - 11:38pm
synthia's picture
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Joined: 10/05/2002 - 09:00

This is the letter my DH and I would like to sent out.
Dear parents of childern in Ms.------ class
There is a child entering this class who has a SEVER (LIFE THREATING) PEANUT ALLERGY.
Even the slightest trace or ordor of peanuts,peanut oli,or peanut products can cause this child to have a sever allergic reaction,anaphylactic shock and possibly even DEATH.
To avoid the possibility of an allergic reaction,we ask that you PLEASE not send any peanuts or peanut products(including but not limited to: peanut butter,granola,cookies,crackers or snacks containing nuts of any kind)with your child to school as snacks or lunches.
Almost all nuts are packaged in factories that process peanuts so in turn almost all store-bought nuts contain peanut particles and dust which can cause a sever reaction.
We apologize for any inconvenience this may cause,but the consequences could be devastating to the oyher children with allergies.
Thank you
Any sugg?

Posted on: Sat, 01/11/2003 - 9:35am
California Mom's picture
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Joined: 07/14/2000 - 09:00

Well, I was about ready to say that the letter the school sent out seemed excellent; but then I read that more parents have been sending in peanut products since the letter went home. That is very sad and very scary. I am not sure about an IEP over riding a 504. I know there are others on the boards who have kids who qualify for both. Maybe you can do a search. I believe that Sue (from Sunny Arizona) [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] may have such a child. I do know that you should be able to have a peanut free classroom for your daughter. I think it is especially important for young kids, and particularly in a special needs class where some kids drool. It sounds like whomever wrote the first letter is very understanding of the situation. Now you just need the school to realize that your daughter requires the extra step of a peanut free class. It's so sad when other parents don't get it. Of course if it were their kids... Best of luck to you. Miriam

Posted on: Sat, 01/11/2003 - 1:58pm
synthia's picture
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Joined: 10/05/2002 - 09:00

Yes I think a peanut free class room is in order to.
I was so upset at the meeting.I had little v with me which made matters worse.All I could do was chase after her.
I feel very scared for her.
I have made up my mind she will not be go to school on the 16 of this month,there is not enough time for me to put to geather a safe classroom.To get all the paper work done in time.
Going to bed for now.
I realy got to talk to Chris
Love this site
Synthia

Posted on: Sat, 01/11/2003 - 10:42pm
synthia's picture
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Joined: 10/05/2002 - 09:00

Iam just bumpping this up so has to get more help.Please ,Some ?
Little v has a IEP,She has a communication problem,and significant comprehension difficulties.
She has speech-language and psychoeducational problem.
The short term objectives are
Understand simple pronouns
Demonstrate understanding of the meaning of at least 20 verbs in context by following directions during structured activities.
Understand spatial concepts susch as in,on,under,next to,in frount,in back
Under standing quantity concepts such as one,all,some,the rest.
She is often echolalic and has difficulty answering ?
Developmentally delayed
Least Restrictive Environment (LRE)
Student frustration and stress
Stydent self-esteem and worth
Distractidility
Need for inincreased supervision for safety
Difficulty completing tasks
need for communication dev
Am I supose to write the 504
Iam not a ecated a nough person to do the right thing for little v.
I feel the need to find some one to make sure se get the right safety for her class.
It was suggest that I no longer attend a nother meeting with out a advocat on her behalf.
Love this site
Synthia

Posted on: Sat, 01/11/2003 - 11:21pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

I hope this link helps.
[url="http://www.ncld.org/resources/index.cfm"]http://www.ncld.org/resources/index.cfm[/url]
MommaBear

Posted on: Sat, 01/11/2003 - 11:28pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

[url="http://www.ncld.org/info/legal_overview.cfm"]http://www.ncld.org/info/legal_overview.cfm[/url]
Just another link. Hope you will find it useful.
MommaBear

Posted on: Sat, 01/11/2003 - 11:29pm
river's picture
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Joined: 07/15/1999 - 09:00

synthia, my heart goes out to you. Having a child with special needs is hard enough, but having PA on top of that is even worse.
You said that you need help writing the 504. I'm suggesting that you contact the support people in your neighbourhood. Here in Canada each community usually has a Family and Children Services organization that can help with many things such as this. Although this site can provide plenty of support, you may need a helpful friend who is close-by and can interact with the school on your behalf.
Check your phone book to see what type of support is offered in community, and also, keep coming back here for more support as well.

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