Do You Consider Yourself a Fanatic re PA?

Posted on: Fri, 02/16/2001 - 5:54am
Anonymous's picture
Anonymous (not verified)

pNow, ajas_folks provided in another thread, a really good definition of FANATIC, which was quite positive. But, for the most part, fanatic makes it sound as if you are part of the lunatic fringe./p
pI have had a few people mention this to /
They know a lot of PA parents that read this board regularly but do not partake in the discussion because they consider us a "bunch of fanatics"./p
pWhat do you think? Are we?/p
pPersonally, I don't think I am. I know that I ensure Jesse's safety but my comfort zone could be considered somewhat lax./p
pAnd my posting on this site is actually separate from Jesse's PA. It's what I enjoy doing. So, that's an obsession, if anything, nothing to do with being a fanatic about PA./p
pAnyone else?/p
pBest wishes! [img][/img]/p

Posted on: Fri, 02/16/2001 - 6:58am
anonymous's picture
Joined: 05/28/2009 - 16:42

Well, whaddya know - one of my favourite songs is "Lunatic Fringe" by Tom Cochrane! That must qualify me for the fanatic title...
Hmmmm... didn't know we were being perceived in such a negative way. Talk about hitting people when they're down.

Posted on: Fri, 02/16/2001 - 9:39am
Triciasmom's picture
Joined: 08/03/2000 - 09:00

Perhaps many of us that are perceived as fanatic would be better described as more vocal. These boards are the only places I can go and be totally understood. I really don't talk about Patricia's PA much outside of the boards unless someone is really interested in learning about it. In fact, I don't talk much at all. I am pretty introverted.
I carry a lot of my stress about PA silently. And I find that it is pointless to talk about my stress and concerns with family and friends who just don't see why it is so important to me.
I don't post a lot on the boards, but I enjoy reading posts from others who are dealing with PA and other allergies.
I guess that if I really spoke my mind, I would quickly be labeled a fanatic. I feel very passionately about the issues surrounding PA. We are all part of a support group, and I think it is okay and important to speak up about how we feel. We are all in this together. [img][/img]

Posted on: Fri, 02/16/2001 - 4:28pm
Anonymous's picture
Anonymous (not verified)

Triciasmom, this may come as quite a surprise to you and many others, but your post sounded like me to a tee - except for the number of posts! That was the only exception. Seriously! There's no need in going over the similarities, we are identical in this area, again, except for the number of posts!
Cayley's Mom, yes, I was actually saddened to learn that "we" were being perceived in what is generally considered a negative way. Now, I just need ajas_folks in here to provide that wonderful definition!
Best wishes! [img][/img]

Posted on: Fri, 02/16/2001 - 4:29pm
Anonymous's picture
Anonymous (not verified)

Can I just say that the board went wonky on me last night? Sorry. Best wishes! [img][/img]
[This message has been edited by Cindy Spowart Cook (edited February 17, 2001).]

Posted on: Fri, 02/16/2001 - 10:29pm
anonymous's picture
Joined: 05/28/2009 - 16:42

I saw myself in yout thread, too! Very well said!!
Am I fanatic about PA? I think, sometimes, yes. The 'rollercoaster' term fits me well. Some days I'm fine, others I'm fanatical. It's exhausting.
You've probably noticed I've been posting A LOT lately - I'm in fanatical mode this week. It'll calm down soon, and my posts will slow down, then something will trigger it again. I look forward to the downtime!
It's definitely reassuring to know that this site is here, that everyone here is here - people who TRULY do understand, and support you, no matter how fanatical you get!!!

Posted on: Sat, 02/17/2001 - 1:31am
Anonymous's picture
Anonymous (not verified)

I'm not quite sure how to respond here. (Connie at a loss for scary) [img][/img]
"Fanatic" according to Webster's dictionary means "marked by excessive enthusiasm and often intense uncritical devotion."
The first part of this definition describes my housecleaning and shopping...NOT dealing with peanut allergy. Now, "intense uncritical devotion" sounds more like peanut allergy precautions i.e., reading labels, peanut free home, hand washing, etc. So, if this makes me a fanatic, then so be it. I am intensely devoted to keeping my son alive and I am just sorry that comes with a label. But I guess like everything else in life...there is usually a label attached and well, to me it's just one more label to read! [img][/img]
I guess after seeing my son hauled off in Rescue and hooked up to machinary in the ER room laying there with meds pumping into him and swelling so badly he looked like something out of a Sci/Fi flick, call me anything you like.
Stay Safe.

Posted on: Sat, 02/17/2001 - 5:36am
arachide's picture
Joined: 08/16/2000 - 09:00

"...sticks and stones..."?
I'm just a mom looking out for her kid.
I post on this board regularly because I want to help contribute in my small way to the spirit of information sharing that is the heart of this site. Everyone is free to adopt an attitude of "take it or leave it" about any point brought up.
Fanatical, hum...? If there is a set of pa parents out there who label us "fanatics" (definition notwithstanding), why do they visit the site regularly? Why badmouth us to new pa parents who may have otherwise found comfort, support, and an answer or two here? Wouldn't that make this faction a bunch of "voyeuristic hypocrites"(definition withstanding).
My apologies for sounding off, but below-the-belt comments like that make my blood boil.
Whether it is a rant or an alert, kudos to everyone who is generous and kind enough to take a moment to post on this board.

Posted on: Sat, 02/17/2001 - 6:32am
Anonymous's picture
Anonymous (not verified)

I keep pondering this question in my mind after responding earlier to this thread and I just want to know how do these parents who call us fanatics keep *their* children safe? What are their precautions and comfort zones? Have they ever witnessed a reaction?
Oh that's right...they don't post!
[This message has been edited by Connie (edited February 17, 2001).]

Posted on: Sat, 02/17/2001 - 7:09am
KIM I's picture
Joined: 11/29/2000 - 09:00

YES I AM A FANATIC!! About my son's PA. If I wasn't how would anyone know not to give Nick a Milky Way,Kit Kat, or any other food that doesn't contain peanuts but may be cross contaminated with that nasty little nut. Nobody has more concern for your children than you. My good friend has a 9 year old daughter with diabetes, she is fanitical about her blood sugars. When ever we talk she tells me about the most recent highs or lows of her daughters blood sugars. It's a sounding off, I can't change anything but she feels better after talking about them. Just like these boards. Sometimes you just read and sometimes you share your experences and some times you vent. It all helps. Now that I admitted to being a fanatic I better find that definition on the other thread. Kim

Posted on: Sat, 02/17/2001 - 9:24am
Anonymous's picture
Anonymous (not verified)

arachide, I thought your post was excellent.
Now, I know a lot of PA parents that don't post as regularly as I do but read the board on a daily basis. It's kinda hard for me to understand people not posting because it's just not something I'm capable of doing. But, I can see reading the board and not posting.
Then, when there seemed to be a downturn to the board, a lot of people became frightened to post when they had been doing their regular posting (say, weekly) before. They were scared that their words would be taken wrong and it would be another "thread gone back" or that they would be personally attacked. So, I can also understand those people for not posting (although again, obviously, I'm not one of them).
Then I think there are people that simply like to read the board and are the type of people (although I'm not clear what type that is) that don't post on boards. So, they're able to get the PA information they need for the day, week, whatever, and don't post. And, I feel comfortable with that too.
All of those people, that aren't posting, for whatever reasons, I feel totally comfortable with them coming to this board and reading our posts and perhaps learning through our experiences.
When I first heard that this was being done, I actually felt kinda creeped-out. I know that I'm on the internet, I'm posting on a website, but the idea that someone is out there and just reading your posts and it's not someone that is contributing so you get to know them too, well it was kinda creepy.
I think this came up when the thread started with the person trying to sell us some magic potion that would cure all of our ails. I was really upset by this.
But then, to have other PA parents who read the site and then criticize us for posting what we post, I just find it disgusting. I think, at any point during this journey, any one of us, posting or not posting, may be considered a "fanatic". And, I can't understand, if they think we're fanatics, what they're in here reading our posts for in the first place. Is it just fuel for some bizarre fodder against us?
And, I guess the thing that irritates me the most (aside from being watched in cyberspace) is that if we, as PA parents, cannot get along on some basic level, and that, to me, would mean not calling other PA parents names or labeling them, then how can we expect non-PA parents to understand where we're coming from?
From what I could see from the above posts, you were all responding to what other people had said about us in general, but have any of you actually been called a fanatic by someone, aside from these unknown people?
I have. But, I think the person (who for whatever reason shall remain unnamed - or sorry, were there two of them?) confused fanaticism with what I posted in my thread starter - my obsession for this site. Believe me, they are two different things.
I wish I could remember what thread that was that ajas_folks had posted the great definition of fanatic in. I'm fairly sure it's under Living with PA and something to do with someone having had a bad experience.
Best wishes! [img][/img]


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