would you insist on a Cap/Rast test?

Posted on: Tue, 09/07/2004 - 10:15pm
melissa's picture
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Joined: 07/05/2004 - 09:00

I just can't quite give this up...DS is 19mos. At 9 mos he had hives w/ eggs...skin tested positive. At the test, she also tested for milk, corn, peanut...all negative. At 16 mos had a bite of pb...had a couple hives around mouth and in the spots where he has eczema flares...gave Benadryl, drove to Dr, nothing else happened. Went back to allergist, skin tested again for egg and peanut, both positive this time. Asked for a blood test...she said it wasn't necessary. Had to change Dr's due to insurance...he said it wasn't necessary. I'm not at all trying to pretend I know more than they do, but I can't get it out of my mind that we NEED this test...I even typed up a letter to send the allergist w/ all the things i've learned here and other places...I really want to have an idea of his "numbers" so we can have something to compare it to in the future...in addition, he had an accidental egg exposure (cooked in a biscuit at Cracker Barrel) and no reaction...am I being unreasonable in wanting this? I really want some opinions on this...I searched the site for Rast v. skin testing posts and still cannot decide whether to send the letter.
Thanks in advance,
Melissa

Posted on: Wed, 09/08/2004 - 12:38am
Anonymous's picture
Anonymous (not verified)

Melissa,
When I have my kids tested I prefer the rasts/Cap tests mainly because it does not involve any possible reaction. They just take the blood and do not put your child at risk with putting the allergens on the skin. I guess I am lucky that way in our allergist takes our concerns seriously and will do either test. If I were you, I would insist on the blood test if that is what you prefer and if your allergist will not work with you, then try to find one that will.
I have had both my kids go through a skin test once and have learned that I don't want them to go through the stress of those tests. Taken blood may not be fun but it is over quickly. Hope that helps! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 09/08/2004 - 2:43am
b and c's picture
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Joined: 09/03/2004 - 09:00

Melissa,
You are in charge of your children health! The doctor may have an opinion, but you decide what's best for your children. We may be talking about life and death. No harm can come from a Cap-Ras test, but not knowing is stressing you out.
Call your doctor and schedule the test, he's not going to refuse, and if he does, replace him.
The health and safty of your children comes first, not the Doctors ego.
Good luck and keep us posted.
Brian

Posted on: Wed, 09/08/2004 - 3:13am
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Joined: 10/18/2003 - 09:00

My DS had a reaction to eggs at 10-11 months and I had him sent to the allergist. He did the skin prick test and we learned of the peanut allergy.
He gave me the Epi-pen and said they'd do a blood test on him "when he comes back next yr", then said for him to come back in 6 months, so I thought that was when he was going to be tested.
New to the food allergy thing, I stressed out for a few days and someone had mentioned the blood test.
I called the allergist's office, hoping I could persuade them to do the test, but they basically said the test would give a better result if we waited longer, so I finally gave up.
When we went back at 20 months, I asked the doctor if he'd consider going ahead w/the blood test, and he was more willing than I thought he'd be.
I explained we were hoping to put DS in daycare and would like and "idea" of the "seriousness" (for lack of better term), of his allergies.
He sent him for the test and he's Class 2 to egg yellow (.87), Class 3 to peanuts (4.87?...a little less than 5), and Class 3 to egg whites (9.89?, a little less than 10).
So....he's Class 3 on egg whites and peanuts, but "more allergic" (in my mind) to egg whites than peanuts, b/c of the numbers.
He has terrible eczema on his feet, and sometimes his knees and elbows. The dr gave him erythromycin, hydroxizine, and Lidex ointment.
He took the ery for about 2 months and then the dr took him off, but we still put the Lidex on his feet at night, and we can really tell a difference if we miss a night.
We used Elidel for several months with great results, but then it seemed to not be effective "overnight", so we mentioned it to the dr.
You'll hear differing stories about which test is better...one person says the blood test is, one person says the skin prick test is.
We've been very lucky, he's had 2 reactions (to egg) and none to peanut. The first reaction we didnt really realize what had happened or what he ate, and the 2nd reactino was obvious, all he had was eggs.
He's never gotten peanut "knowingly", but I used to give my twins peanut butter crackers and I'm reasonably sure he got some of those at some point.
We only learned about the PA when he had the SPT.
It's been a little over a year since his egg reaction and so we've been reaction free for a year, unless you count the eczema, but he's had that since birth and I dont know of anything that irritates it other than heat.
[This message has been edited by new2PA (edited September 08, 2004).]

Posted on: Wed, 09/08/2004 - 4:10am
pgrubbs's picture
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Joined: 10/27/2003 - 09:00

I think you should insist. I tried with my old allergist and it did no good. The new allergist- immediate! Due to insurance, we will have to return to our old allergist, so i am ready to have to stand up for things again.

Posted on: Wed, 09/08/2004 - 6:12am
Joesmom's picture
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Joined: 07/15/2004 - 09:00

My son's allergist and pediatrician both prefer the skin testing over the Rast Tests. They both believe the results to be more accurate. I went in to the allergist within the last couple weeks, and asked him (again) if maybe we could run a rast test on my PA son. He agreed this time, sying it would give us a different "angle" at which to view his allergy.
If I were you, I would ask again. If it's an insurance thing ( I think they are expensive tests), then maybe offer to pay for it out of pocket.

Posted on: Thu, 09/09/2004 - 4:43am
melissa's picture
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Joined: 07/05/2004 - 09:00

Thanks for the replies! I put a call in to the dr today...I want the test if for nothing else just to have one more piece of info...this is a serious, life-altering illness and I want to know everything I can...I'll update everyone w/ the doctor's reply, but I've decided I want him to have it, regardless of the dr's opinion, and whether or not my insurance will pay.
Thanks again,
Melissa

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