Worried Mom of DD with PA and EA-LOTS OF QUES.

Posted on: Sun, 07/10/2005 - 8:57am
livsmom's picture
Offline
Joined: 07/10/2005 - 09:00

Hello to everyone.

I just found out 3 weeks ago my 2 1/2 year old daughter has PA. Last week she had 4 reactions (2 vomiting and 2 hives) and we learned after testing she is also allergic to eggs. I have lost lots of weight in 3 weeks because I am constantly sick to my stomach with worry. It's the first thing I think of when I awake each morning and the last thing on my mind each night in bed. Just the mere thought of losing my daughter is unthinkable and makes me want to vomit. I am scared to death to feed her, petried to eat out. She goes to a mother's day out/early learning program 2 days a week from 9:00 a.m.-2:00 p.m. and I worry the entire time. At lunch time I have knots in my belly and if my cell phone rings I could throw up just thinking it's the school. At 1:30 I think, we made it through another day. I have considered pulling her out, but she loves it so much. It's the only contact she has with other kids and has built strong bonds with the teachers and kids over the past year. I have met with the director and teachers and showed them how to administer the Epi-pen. They sit my DD at a peanut free table and promised to wash surfaces and all children's hands and faces after lunch. I provide safe snacks for the class so my daughter is not excluded and they have been told under no circumstances is she to eat anything not provided by me or approved by me. I have LOTS of questions for all of you about lots of different things. I have read lots of areas of this site and first of all want to say this is a great website. My daughter had her first reaction to peanuts at about 18 months - hives that went away with Benadryl. After this, no one explained anything to us and we just avoided nuts, that's it. She ate m&m's, nuggets cooked in peanut oils and other things that said "may contain traces of peanuts" and she has never had any other reactions. We ate at restaurants a couple times of weeks and our favorite foods were Chinese which she ate often and Logan's which has peanuts at the tables and shells all over the floor. We have flown many times while peanuts were served and my daughter even ate snacks with peanuts, we just pulled out the peanuts. God I think of how reckless we were, but no one told us. If she had had a severe allergic reaction before we found out, we would not have known what was going on and she probably would have died. I am so thankful we found out. I thank God everyday for watching out for her and now it is our jobs to eliminate peanuts, tree nuts and traces thereof and food that may have been contaminated from her diet and surroundings and believe me, I am taking this very serious. I have thrown away everything in my house that may or did contain peanuts or eggs. The only reason we even had her tested was due to what we thought were seasonal allergies. She has a long history of ear and sinus infections and was tested a few weeks ago to find out which things were affecting her. They checked peanuts just to see and it came back a 5+ (not sure what all the other numbers are I have been seeing on the board about % of being allergic, etc., maybe someone could clarify). Come to find out, she tested negative to the most common outdoor and indoor allergies so now I think it was all food related from the beginning. I can think back to so many occasions of her throwing up out of no where and her school saying "no one here has been sick." I thought she had an immune system problem. Two weeks ago she ate ego-waffles, something she had eaten lots of times before. The first time she had a couple of small hives which she told me were scratch marks, I bought it. The second time, she had about 8 hives on her face. She was tested for eggs and tested positive to egg yolks although we were told to eliminate all eggs and eggs proteins. Two days ago, she got hives in the corners of her mouth after eating an apple - something she has eaten lots of times before. Now, I feed her and watch....just waiting...hoping...and praying...not another food. I am now thinking all her allergy problems to date have all been food allergy related. After she was tested I met with her allergist and have done lots of research on PA and EA - quite scary. I have done lots of crying, lots of worrying, I have many fears, the general public and food manufacturing companies bring on lots of them, but am ready to move forward positively and work on public awareness, education and protecting my child and yours.

Here are my questions to all of you:

1) How can I help out with public awareness and education and getting schools to be peanut free?

2) How do you eat out?

3) What restaurants appear to be safe? I see McD's, but don't they cook the nuggest in the same fryers as fish? I was told to avoid fish for the likely possibility of my DD being allergic which I find is the problem with many fast food places.

4) Should I be concerned with any drinks? I still read ingredients, but can't on Slush Puppies which my daughter loves and has been drinking for years.

5) How do you handle family functions, holidays, birthday parties and the feelings of being excluded that our little ones feel? My daughter sits alone at lunch and it makes her sad. That KILLS me, but I understand. I finally got her school to agree to allow one child with a peanut free lunch to sit at the opposite end of the table with my daughter which seems to make her happier. I still worry, what if a piece of a PB & J sandwich is dropped and my daughter gets a hold of it. She is 2 1/2. She knows she is allergic to peanuts and eggs, but doesn't necessarily know what they look like.

6) If a manufacturing company tells you a product like pasta does not have eggs but is made on the same machine as pasta with eggs but there is an extensive cleaning cycle per run - would you trust it if your DD has never had a reaction?

7) My daughter was allergic to milk as a baby but tested negative on the scratch test to Casein and Whey - therefore, is it safe to assume she is no longer allergic to milk? I read milk can cause a serious reaction so I am scared to give it to her.

8) Has everyone's children's at some time or other had an anaphylactic reaction and if so, is it something I will most definitely recognize and should I feel comfortable that so long as the Epo-Pen is readily available and administered she should be okay?

9) How do you handle holidays with family members and what is the best way to educate your family so they understand the severity of it?

10) What is the best way to educate a school to make it peanut free?

11) Am I naive to think I can trust the labeling of Kraft and General Mills when they assure me with 100% certainty that their labels are accurate and will always list any allergen information.

12) How do you eliminate the fears and sickness and worry?

13) Has anyone had any bad experiences with condiments, drinks, pastas or sauces?

I know I have lots more, but my DD is begging me to play so I must go and play. Thank you all for listening and providing comments. I anxiously await your replys, comments and advice. THANK YOU, THANK YOU, THANK YOU.

------------------
Kym
Mom of 2 1/2 year old daughter with peanut and egg allergies

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Displaying 1 - 20 of 20
Latest Post by Italia38 Tue, 11/12/2019 - 2:43pm
Comments: 2
Latest Post by absfabs Mon, 11/11/2019 - 1:28pm
Comments: 2
Latest Post by absfabs Mon, 11/11/2019 - 1:23pm
Comments: 3
Latest Post by Italia38 Fri, 11/08/2019 - 12:10pm
Comments: 4
Latest Post by Italia38 Fri, 11/08/2019 - 11:47am
Comments: 6
Latest Post by sunshinestate Thu, 11/07/2019 - 3:43pm
Comments: 4
Latest Post by sunshinestate Thu, 11/07/2019 - 2:48pm
Comments: 7
Latest Post by penelope Tue, 11/05/2019 - 3:44pm
Comments: 12
Latest Post by penelope Tue, 11/05/2019 - 3:35pm
Comments: 13
Latest Post by absfabs Tue, 11/05/2019 - 2:11pm
Comments: 6
Latest Post by absfabs Tue, 11/05/2019 - 2:09pm
Comments: 5
Latest Post by chicken Tue, 11/05/2019 - 12:06pm
Comments: 5
Latest Post by sunshinestate Mon, 11/04/2019 - 1:44pm
Comments: 3
Latest Post by sunshinestate Thu, 10/31/2019 - 11:20am
Comments: 2

More Articles

For people who suffer from anaphylaxis, a severe allergic reaction that can result from an allergy to...

Anaphylactic shock (A-nuh-fih-LAK-tik shok): A severe and sometimes life-threatening immune system reaction to an antigen that a person has been...

In 1963 the American Medical Association designed a special symbol that would alert emergency medical personnel of special medical conditions when...

Finding allergy-free foods for an office potluck may seem impossible, but more options are available than you might think. Eating foods prepared...

One of the most difficult things for a parent to do is determine whether his or her toddler has a cold or a...

More Articles

More Articles

You no doubt have your own way of teaching people about your child’s food allergy, a way that suits your temperament, and style of communication....

Reliable peanut allergy statistics are not that easy to come by. There is a lot of available research on food allergies in general but not too...

Most people know that to enjoy whatever food safety accommodations an airline offers they need to inform the airline of their allergy prior to...

A 504 plan* documents food allergy accommodations agreed to by parents and their child’s school. Plans are typically created during a 504 meeting...

If there is a child at your children's school allergic to peanuts, the school probably discourages or may not allow peanut products to be brought...

If you are on a budget, but you need to wear some sort of notification that you have a peanut...

Unless we consciously carve out time for self-care, constant food allergy management can slowly erode our sense of well-being. Signs of allergy-...

Peanuts cause more severe food allergic reactions than other foods, followed by shellfish, fish, tree nuts and eggs. Although there is only a...

If you avoid peanuts, it’s likely you know the joy of cashews. Slightly sweet and smooth in texture, cashews provide not only relief to those with...

The prevalence of food allergy has dramatically increased over the past two to three decades, and not just among children. Preliminary results...

When someone in the family is diagnosed with a food allergy, a choice must be made whether to ban the problem food or foods from the home. The...

Looking for a fun way to share what you know about your own food allergies? Or are you hoping to educate the people around you in a fun way about...

According to the results of a new study, children lacking Vitamin D may be more susceptible to food allergies. Researchers working at the Albert...

If you or your child has a peanut or nut allergy, identifying the presence of nuts in food becomes a priority, but what if the written or spoken...

Soap allergies can cause a lot of discomfort and itching. If you suddenly develop a rash or bumps on your skin, you may suspect that you have an...