Worried about responses I\'ve been getting on PA in the news yesterday...

Posted on: Mon, 03/10/2003 - 10:47pm
robinlp's picture
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Joined: 05/14/2002 - 09:00

I've gotten 2 phones calls and a few emails about all of the PA "cure" in the news over the past 2 days. It really worries me because people who don't know a lot about PA suddenly think this is a cure and that all of our precautions are worries are over. I really worry about the effects that this will have on the "little" progress that we've already been making on labeling and people keeping our children safe.

Posted on: Mon, 03/10/2003 - 11:11pm
California Mom's picture
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Joined: 07/14/2000 - 09:00

I hear you. Even my dh seemed to get more excited about the latest news than I thought was warranted. As for labeling, etc., I think the buzz over this latest story will die down soon and there won't be much lasting effect. JMHO, Miriam

Posted on: Mon, 03/10/2003 - 11:26pm
esmom's picture
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Joined: 07/25/2001 - 09:00

I am having the same problem with people calling me and saying how great it is...
I went on msnbc last night to read more about it and as far as i could tell nothing has changed with tanoux and the problems with the lawyers fighting, in fact dr. Sampson was quoted in the article talking about that point. The news makes it sound like is a done deal, I wonder why all the sudden this is on EVERY news show???

Posted on: Tue, 03/11/2003 - 12:33am
Dawn's picture
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Joined: 02/22/1999 - 09:00

Me, too! Did you see the information Chris has posted about what was on the Today Show? In part, "(now) Allison feels she can go with her friends and everything is normal (now after drug)" Aaaack!
I was under the impression that pa individuals will still have a reaction, just [b]hopefully[/b] not fatal.
------------------
Be safe,
~Dawn~

Posted on: Tue, 03/11/2003 - 12:59am
buffalobeth's picture
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Joined: 03/18/2002 - 09:00

Didn't I read something on this site about a young boy who died during trials of this therapy? Maybe I'm dreaming!!!

Posted on: Tue, 03/11/2003 - 1:25am
ACBaay's picture
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Joined: 03/19/2002 - 09:00

Hi,
Buffalobeth, the boy who died was part of a study testing immunotherapy involving peanut injections, similar to current immunotherapy for environmentals(I think it was in 1996). The study was halted immediately, and the possible use of peanut immunotherapy was deemed too dangerous. This new treatment (not cure) injects anti-ige to limit the effects of the reaction (no peanut or allergens injected).
I think that the current media frenzy is a good thing, for the most part, because it does educate people on the severity of peanut allergies. It also might pressure the feuding pharmaceutical companies to work out a solution so that the trials can proceed. Although the research is now being published, hence the media attention, the trials ended almost a year ago, and the feud began 6 months ago. Nothing has happened or is allowed to happen until some agreement is reached.
I am also concerned about how it is reported, as if it fixes the problem, when in reality, there are still many questions, and it is, at the very least, years away. We also have to continue doing what we do to stay safe for at least a few years. It's great that it may be available in the future, but staying safe in the here and now, is vital. We absolutely need to continue to rally for the things vital in keeping our kids and ourselves safe (ie. good manufacturing practices and educating the public).
Andrea

Posted on: Tue, 03/11/2003 - 1:44am
buffalobeth's picture
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Joined: 03/18/2002 - 09:00

Andrea - Thank you for clarifying that for me...couldn't quite remember!

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