Who\'d have thought I\'d be up against THIS person regarding allergies ...

Posted on: Thu, 08/23/2001 - 4:09am
teacher's picture
Joined: 11/02/2000 - 09:00

My own husband is giving me a hard time regarding the lengths that I want to go to to protect our son.

In another post I was proudly declaring all the new "things" I was excited to buy to ease my son into preschool and kindergarten over the next year. As a former teacher (and my husband is a teacher as well), I know the benefits of providing resources to the classroom teacher.

I wanted to have our own EpiPen trainer and poster to lend to the teacher. (It would also be useful at home, as I am the only person in Andy's life who is technically "trained" on the EpiPen.) Hubby decided that we will take an old EpiPen that has expired and "disable" it and use it for practising. Can this really be done? He said I should ask the pharmacist, but frankly, I don't want to look like an idiot! I trust you guys and your experiences more.

I wanted to buy Andy some pins that say "Don't Feed Me, I Have Severe Food Allergies," as Andy has a speech delay, and cannot say this for himself. Hubby's reaction is, "Why spend four bucks on something you can make yourself? Get an old pin, glue some paper on it, and write it in bold felt pen." Personally, I don't think someone would take that as seriously as it needs to be taken. What do you think?

I was also planning on buying the Alexander video tapes, teacher's guide, and coloring book to provide to each of Andy's teachers in his primary grades. Hubby's response to that is, "Why should WE pay for that? Tell the school they have to buy it." I laughed at him, ESPECIALLY because he's a teacher and should know better himself ... Assuming the school would pay for such a thing (and I don't think that they would, but I am a pessimist!) he is assuming the teachers would simply go and use it on their own every year. I don't trust that they would. I think that if I bring it to them, though, and tell them they can use MY copies of these things, that they are more likely to use it appropriately and return it. If it's just left up to them ... well, I don't trust them. What do you think?

I'm so frustrated! My husband is known for his, ahem, frugal nature. But I can't believe that he's not willing to spend $50 to protect his own son! (For the record, he says that if the school won't buy the video, then we will, but he won't spend the money until the school says they aren't interested.) I would rather be more pro-active than that. I HATE the idea of putting this all in someone else's hands.

I should emphasize that he is fully in favor of us having all these tools and things, he doesn't discount their value in Andy's life. He just wants to put the responsibility for PAYING for them on somebody else. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I feel so bad for our son right now ....

So ... what's your take on all these things he says ... the EpiPen idea, the "home-made" pins, and the videos? I will tell him what you guys think, as you have all been dealing with this much longer than we have. I'm sure you have better ideas than I do. Thanks in advance!

[This message has been edited by teacher (edited August 23, 2001).]

Posted on: Thu, 08/23/2001 - 4:56am
torontosue's picture
Joined: 06/08/2001 - 09:00

First off, the epi-pen trainer has that same "spring-loaded" feeling of the actual epi-pen. An expired epi with the needle removed wouldn't give you the same feeling. Personally I think it is a small price to pay to get it.
The buttons you might be able to make on your own using your computer and printer and get them looking sort of professional...cover it with that wide tape or laminating stuff maybe...then again, how much can an actual pin cost??? I think I remember paying about $3 a pin when Taran was much younger and couldn't speak for himself.
I never had the videos, but had a few books (No Nuts for Me and another that I don't remember but has since been lost). Either dh or I go into the class the beginning of the school year and make sure the teacher knows how to use the epi, make sure his emergency form gets posted, leave the books for them to read to the class, etc.
While this year it may seem like a lot of stuff to buy, just remember every year there is a new class and a new teacher and you will be re-using the trainer, video or books, it works out quite cheap considered over the years. I really doubt that you will get the school to buy these things.....we are still fighting our school to keep our kids supplied with the essentials, like pencils!
Good luck with dh, I hope you can convince him to cave and get this stuff!

Posted on: Thu, 08/23/2001 - 5:10am
KatiesMom's picture
Joined: 03/01/2000 - 09:00

Yes I can believe you husband....
I order by epi trainer from FAN and paid for it be I think I since read that if you call up DEY they will send you one for free. There is one advantage of using an old epi that has expired and hasn't been deactivated(on an orange), when people see the needle, it sort of brings home what they're doing and how serious it is. I've used both to train.
As for the button, get one professionally done - it will get more respect and probably last longer.
There is NO amount of money too much to keep your son safe. Just keep remembering that and keep your husband in the dark on how much your spending.
You're right, you can't depend on the school or the teachers to do things on their own, they need prompting.

Posted on: Thu, 08/23/2001 - 5:45am
Claire's picture
Joined: 04/19/2000 - 09:00

This is my only comment. I always give Chris the old epi to practise on a fruit of some sort. My doctor recommended this and I love this guy to death and totally trust anything he tells me to do. Alsot the trainer is a great help as well. That is up to the parent in charge I feel.
The only problem i have is that when My son has had reactions I can not imagine him having an ounce of energy to give himself the epi anyway. He went down fast the last time. i really feel that any practise our children can get and education we can give is great. Best wishes claire

Posted on: Thu, 08/23/2001 - 11:49pm
anonymous's picture
Joined: 05/28/2009 - 16:42

The way to deal with a frugal husband is to reason with him from his point of view. Can you point out the costs of an emergency room visit and ambulance ride, and weigh that against the $50 "investment?"

Posted on: Fri, 08/24/2001 - 2:29am
barb1123's picture
Joined: 04/08/2000 - 09:00

I would never use an old Epi to train. What if someone stuck themselves accidentally. Then you'd be in real trouble when someone sued you or god forbid, died.
Does your hubbie control the purse-strings? If not, I'd use your own earnings (if you have any) to purchase said items. Over here in Ireland the Area Medical Officer does all of this (video, training, booklets, etc.) for free. So I guess I'm lucky.

Posted on: Fri, 08/24/2001 - 3:30am
ErikaP's picture
Joined: 07/24/2000 - 09:00

I know this doesn't address the big issue, but, epipen trainers are now being packaged in with the epipen double packs. The next time you get your son's RX refilled, make certain to get the double pack and you will get a trainer for free.

Posted on: Fri, 08/24/2001 - 12:00pm
momof4's picture
Joined: 03/26/2001 - 09:00

I am using my expired epi-pen to go to the school with an orange to let the teacher(after hours) use it and see how it really feels. It surprised me the first time I did that. Also, everyone keep telling me the school should be paying for all the supplies I have purchased for them. The way I see it, sure it has been alot of money, but I know they are getting all the information I want them to have. I have had many meetings and taught the staff at my daughters school everything I need them to know. I am also glad I bought the book about the laws, since I know what my rights are it has made the meetings and 504 plan much easier to deal with. So spend what makes you feel good. I also had the two posters laminated so they would stay good longer. I have both of them up in the cafeteria at the school.
Take care and good luck.

Posted on: Fri, 08/24/2001 - 1:32pm
Renee111064's picture
Joined: 07/05/2001 - 09:00

Hello Teacher,
Dey Labs will send you out epi-pen trainers and pamphlets also in regard to their epi-pens. It only takes up to 5 days regular mail to receive the trainers. I just received mine. They are in California and the phone number is 1-800-755-5560. Give them a call. I received 4 trainers. I will give our school three of the trainers for the teachers and I have kept one to train my son's friends parents and my family.
As for the buttons and other materials that you want to buy for your son. I personally would ask my husband, Whats the dollar amount that you would put on your son's life? There is no dollar amount for the price of his health and saftey. My pa son starts kindergarten on Monday 8-27-01. I have bought things that I feel of importance that he will need to survive the school year including pins, stickers and a t-shirt that says " Severe Allergies to food, Please do not feed this child anything." I wish you luck and hope that your husband will look at things in a different light.
Best wishes,
Renee [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 08/24/2001 - 1:38pm
Renee111064's picture
Joined: 07/05/2001 - 09:00

sorry Double post.
[This message has been edited by Renee111064 (edited August 29, 2001).]

Posted on: Sat, 08/25/2001 - 10:11pm
Shawn's picture
Joined: 09/07/1999 - 09:00

Teacher - perhaps if you pointed your husband to another topic on the board - "Spokane Boy Dies from School's Mistake". It pretty well confirms that you can't possibly go overboard in protecting your child when strangers will be caring for him


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