WHO allows their mildly but PA child eat things that MAY have touched peanuts.

Posted on: Tue, 05/01/2007 - 3:39am
My2girls's picture
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birthday cakes, cupcakes, bakery cookies, etc.....WHO allows this?

Do parents who have children with mild PA eat these things, but just always have benedryl and epi pen in bag/stroller/book bag?

Posted on: Tue, 05/01/2007 - 3:49am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

NO. No, no, no.
There is no such thing as a 'mild' peanut allergy. I know this is overwhelming at first.
You will eventually come to terms with this, even if you have not seen a nearly fatal reaction in your own child. Consider yourself [i]lucky[/i] that you got a diagnosis that didn't involve EMS and intubation. But please realize that the next reaction very well could, with no warning that the allergy has become 'more severe.'
Tips:
* NEVER, EVER think 'just this once.' Have rules and live by them.
* Rule number one should be that your child NEVER goes anywhere without the ability to have a reaction treated immediately. With epinephrine.
* Rule number two-- avoid ALL ingestion, including 'possible' ingestion of traces of peanuts. (Yes, this means most bakery goods and bake sale items are permanently off limits.)
* Trust your instincts about who 'gets it' and who doesn't. Do not leave your child in the care of a person who doesn't.
* Read, read, read. Read labels, read books and articles, read information from this website and others (like FAAN, FAI, allergymoms, etc.).
* Recognize that it will take time to adjust to your new lifestyle. You will figure out what 'feels right' to your family-- but the next few weeks to months are going to be a little rough on everyone. Just realize that and give everyone a little breathing room there. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 05/01/2007 - 3:54am
Danielle's picture
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Joined: 04/08/2003 - 09:00

I double that - no such thing as a mild case of peanut allergy. One day it may be a stuffy nose and the next full blown ana. It is a lot to take in but you can do it.

Posted on: Tue, 05/01/2007 - 3:58am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Honestly, I don't think anyone can fairly say that there is such a thing as a "mild" peanut allergy. You have to treat it as serious, this allergy has the possibility to be life-threatening, fatal. Your child's next reaction could be far worse than hives.
But everyone will tell you they each have their own comfort zone. I personally do not let my ds have any may contains, it can be just too risky. Benadryl and a epipen are great for an accidental injestion, but just because I have them doesn't mean I'd intentionally let him eat a peanut or soemthing cross contaminated with a peanut.
My ds was dx 4 years ago, and honestly, I felt like it was the worse day of my life. But it does get easier and I might not be as paranoid as I first was, but we are probably even more diligent in keeping him safe. I think it's also important to keep a peanut free home (but that's just my comfort zone). I think it would be just too confusing to keep track of what one sib could eat and not another. And I'd always worry what knife I had in which jam jar etc. I know life is not fair, and that's what I tell my kids, but I don't let my non-PA child eat peanuts/may contains either. (You had mentioned the non-pa twin in a previous post.)
I am sorry you are going through this, but count your blessings too! There's alot worse our children could be "suffering" from!
Chrissy
[This message has been edited by ccm'smom (edited May 01, 2007).]

Posted on: Tue, 05/01/2007 - 3:58am
Happymommy's picture
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Quote:Originally posted by My2girls:
[b]birthday cakes, cupcakes, bakery cookies, etc.....WHO allows this?
Do parents who have children with mild PA eat these things, but just always have benedryl and epi pen in bag/stroller/book bag?[/b]
To answer your question though--- yes there are people who do this. A friend of mine seemed like she got mad at me when I emailed her our list of safe candy suppliers etc--- I was trying to help. She told me they will still eat chinese food, they still give their child candy with may contains, they still use bakeries--- she said they like to "test the limits." I'm not even sure she has epi-pens. So yes there are parents with a loose comfort level.
I have to be honest, I was very uneducated at first. I knew noone with food allergies. My doctor said anything that we were giving him that was fine, would be ok. He was 3.5yo when diagnosed. For the first year after he was diagnosed he ate some things produced in a factory with peanuts (I never gave may contain-- though I know now it really was still just as bad), we used bakeries. Our doctor was very lax. We weren't even given epi-pens until I saw his associate. His associate gave me info on FAAN, and then I started learning everything I know now. Now of course all of those things are off limits, and I consider myself very very lucky that we never had to go to the ER, before we realized how careful we really need to be. He had some very bad stomach viruses in those years that came on very aggressively very quickly--- now I wonder if those were reactions.
We do have a nut-free home. I do not even buy things for anyone in this house that's processed in a facility or may contain (we even make our own chinese food, which just isn't the same). My non pa son doesn't even get the things that my PA son can't have. We're very diligent now.
The one thing we struggle with is major league baseball. I know most people will not go to a game, but he has been 4 times before being diagnosed, and he was ok. My boys really love going to baseball games, but that's the only thing we consider doing that most would not with lots of benadryl, epi-pens (and zyrtec in his system)--- a sheet covering his chair, and all of our shoes come off (to get scrubbed before) he gets in the car. We'll see about that one.
[This message has been edited by Happymommy (edited May 01, 2007).]

Posted on: Tue, 05/01/2007 - 4:12am
krc's picture
krc
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Joined: 01/16/2007 - 09:00

The first time dd had pb on toast, she became a little red around her mouth.
Didn't think too much about it, she had/has extremely sensitive skin and moved on.
Dh gives her pb on toast another time. Very red around mouth and keeps wiping off her tongue. We give Benadryl and think, "Hmm, could she be allergic to peanuts?" (This was in 97-98 so not as common)
So we simply quit giving peanut butter. Oh, I wish I could go back in time and inform myself!
Halloween 98. Dd sneaks a bite of Snickers from my mom's Halloween candy and WOW!! Full blown anaphylaxis. Super super scary and we were lucky to be able to get the help we needed in time.
Minor peanut allergy? I don't think so. You never know what that next reaction is going to be like. If I would have gone by her first reaction, I would have assumed "mildly" allergic. Her blood tests came back greater than 100. She also tested positive to most tree nuts and soy.
We take our Epi-pens with us everywhere. We read each and every label. Avoid all bakeries and birthday cakes or ANYTHING that may have come in contact with peanuts/nuts. We do not eat "may contains" or "made in a facility".
Peanut allergy is too unpredictable. You never know what the next reaction is going to be like.
I know it's alot at first. Nine years later, I still have questions and am learning new things but it is manageable.
And there is so much helpful info on pa.com. I wish I would have know about it back then.
------------------
10 yo dd- PA,TNA, tests pos to soy, CATS, many environmentals, Asthmatic
5 yo dd- NKA, avoiding nuts
3 yo dd- outgrown milk/soy, avoiding nuts

Posted on: Tue, 05/01/2007 - 4:13am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Happymom,
We were just at a Blue Jay game on the weekend. There were some peanut shells and ds did get two very small hives above his lip, from touching something. But that was partly my fault for not ensuring he washed his hands (for the third time) before eating his safe cookies from home. If you take the precautions you mentioned, I am sure you'll be fine to enjoy a game.

Posted on: Tue, 05/01/2007 - 5:32am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

Unfortunately, there is no such thing as mild allergy--all food allergy has the potential to react anaphylactically at the next reaction. See the latest in memoriam in reactions for an example of someone who thought his allergy only mild and is so unfortunately dead suddenly. There are so many uneducated or misinformed doctors that still believe that one reaction can be used to predict the next. Carry epis and avoid may contains and live life to the fullest. We go to baseball games, hockey games, etc. , my son goes to a camp that I have educated about food allergy and where I am now cook for the weeks that he is there. He now even manages a two night canoe trip with the Scouts with safe foods. We have strict rules such as eating separately at school and no foods are ever allowed in the classrooms or gym or computer lab or library that he uses at school. I am providing these examples to demonstrate that you can strictly avoid foods and balance risks and live a full and exciting life. Still living and managing allergy risk after 45 years for one family member and 12 years for the other.
Take care.

Posted on: Tue, 05/01/2007 - 6:15am
Peg541's picture
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Joined: 12/29/2002 - 09:00

My son had a very serious reaction eating a bakery cookie that we found out later had SAT next to peanut cookies.
You'll develop a comfort zone.
Peg

Posted on: Tue, 05/01/2007 - 7:16am
Greenlady's picture
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Joined: 06/30/2004 - 09:00

There are plenty of families with PA that just avoid obvious peanut products but still eat cupcakes, etc. They don't tend to be the ones who post on these message boards, though. I know of three such families in my neighborhood. So far, they seem to be fine.
But it is a medical fact that peanut allergies are very unpredictable, and that many of the fatalities are people who had only mild reactions in the past. That is why some people say that there is no such thing as a "mild" peanut allergy.
So, even though we used to eat bakery foods with no problems, after doing some reading, I decided not to take the risk any more. Thus that is my "comfort zone."
However, I don't call the manfacturers before letting my son eat a food - I go by the labeling. Since companies are not required to label for possible cross-contamination, then it is possible that my son has eaten food that may have touched peanuts. Other families only eat food manufactured by companies who label for cross-contamination, or companies they have called. Again, "comfort zone."
You will find your own comfort zone as time goes by.

Posted on: Tue, 05/01/2007 - 8:48am
Spoedig's picture
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Joined: 09/17/2004 - 09:00

ditto on the no "mild" allergy.
I like how both my son's pediatrician and allergist stated the situation.
"Each exposure CAN lead you closer to anaphalaxis". You may not have a "reaction" that needs an Epi when exposed, but you have been exposed.
Thankfully, my son has gone 9-1/2 years without an ingestion reaction (5 years for contact reaction - playing with a child who had eaten pb earlier in day).
[This message has been edited by Spoedig (edited May 03, 2007).]

Posted on: Tue, 05/01/2007 - 9:54am
My2girls's picture
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thanks everyone. it is really hard to handle on day one. i appreciate the response on this board..xoxo

Posted on: Tue, 05/01/2007 - 10:32am
alliedhealth's picture
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Joined: 06/10/2006 - 09:00

I second Corvallis mom's statements- I'd try to obtain the article in the recent FAAN newsletter that reviewed the factors associated in recent fatalities as a starting point- baked goods are right up there with asian and mexican foods as risks; along with epipen not readily available. Also many parents of children who have had fatal reactions in recent newspaper articles have said " we knew... had the allergy, just didn't know it was that bad. Had only had mild reactions prior.."
The good overview article by Weisnagel is a must read [url="http://www.allerg.qc.ca/peanutallergy.htm"]http://www.allerg.qc.ca/peanutallergy.htm[/url]
So- in answer to your question- never-There is no such thing as a mild allergy- per Burks and other researchers you are allergic or you are not.
[This message has been edited by alliedhealth (edited May 01, 2007).]

Posted on: Tue, 05/01/2007 - 10:46am
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Joined: 05/28/2005 - 09:00

I used to, before I was fully educated. Then my DS had a number of reactions, and each one worsened. One of the reactions was to Stouffers Animal Crackers which are now labeled as a "may contain" product. Others were to bakery items like muffins.
We do NO bakery stuff now and very few items baked in other homes (only good friends I completely trust). No chinese (!!!), no mexican, very few trips to ice cream parlors, and limited eating out.
You'll find your comfort zone...reading here is a great start...I wish I had found this site sooner instead of learning the hard way and having my DS have exposures that could have been avoided.

Posted on: Thu, 05/03/2007 - 12:28am
MommyMegan's picture
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No way in heck I'd eat anything with a peanut or tree nut warning on it, of any type.
I know someone (Adrienne?) here WILL eat Kit Kats, by Hersheys, and they have the manufactered label on them. She trusts Hershey enough, but then again, that's HER comfort zone.

Posted on: Thu, 05/03/2007 - 1:19am
saknjmom's picture
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Joined: 04/02/2003 - 09:00

it does boil down to comfort zones, but I think there are a lot of ill conceived comfort zoners out there, KWIM???
One mom at karate has this criteria, if it says may contains, she sits DS on the counter and lets him eat some of it. He is not allowed to get up. She watches him closely. If no problem in 10 minutes, he continues eating it. If no problem, it's on the safe list. (this was pretty much verbatum from the mom. sounds very rational, right?) I pointed out that the MAY part is where her flaw is, may one time may not the next. She really didn't know any better.
So, I think it's a good idea to base your comfort zone on good solid information and knowledge of what the risks are. Combined with your past experiences and your child's history.

Posted on: Thu, 05/03/2007 - 4:17am
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Joined: 12/02/1999 - 09:00

Here's the way I look at it... Would I eat or allow my child to eat something that may have arsenic in it? What about something that might have come into contact with feces? If the answer is no there you go.
Rebekah

Posted on: Thu, 05/03/2007 - 4:24am
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Joined: 12/14/2006 - 09:00

Before I came here and learned a MOUNTAIN of information...I was a mom that allowed this...it's sad I know(and scary!) But I didn't know any better. I was given an Epipen and a hand out and sent on my way. I thought if the food didn't have blantant nuts in it, it was okay!!!! YIKES!!!! Up until last fall that was life, no worries unless it was nuts or pb contained. He even ate plain M&M's! So imgaine as I started learning information how freaked I was. It was also hard on my kids because I was drastically changing comfort zones and they didn't understand. I wish I would have knows from the start how deadly this is. They need an allergy school or something, required courses for parents! Anyways....I don't allow any *may contains* or any *made in a facility* anymore. You just can't take the risk, and many do. I have learned and I won't make that mistake again. I am glad I found this site before something terrible happened. He has had many reactions too(throat squeezings) so I was lucky, very lucky it always worked out(because I didn't even know to use the darn Epipen!!!! I though I used it when he passed out, OMG!!!)
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Thu, 05/03/2007 - 4:51am
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Quote:Originally posted by MommyMegan:
[b]No way in heck I'd eat anything with a peanut or tree nut warning on it, of any type.
I know someone (Adrienne?) here WILL eat Kit Kats, by Hersheys, and they have the manufactered label on them. She trusts Hershey enough, but then again, that's HER comfort zone. [/b]
Yes - that's me, and it's ONLY for the HERSHEY's Kit Kats in the US...and ONLY...because I called (but now over a year ago) and found out what "same facility as peanuts" means to Hershey and to THOSE Kit Kats.
Other food items...if it says anything about peanuts/treenuts (I'm also TNA), traces, same equip, same facility I DO NOT eat it.
I don't eat bakery items or baked goods from other peoples homes either.
Adrienne
------------------
30-something survivor of severe peanut/tree nut allergy

Posted on: Thu, 05/03/2007 - 10:57pm
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

My back-fence neighbors DD was dx'd as TNA as a small child, but they never took it very seriously. Never asked questions, didn't carry an epipen, ate bakery goods, etc., and she was fine - for awhile.
About 3 years ago she at a supposedly safe cookie that was on a tray with madadamia cookies. She had a massive, bi-phasic reaction.
Since then, she has also become PA, contact and airborne sensitive and reacts constantly.
The only predictable thing about these allergies is that they are unpredictable. Our allergist told us early on to forget about numbers, size of wheals, etc. You either are allergic, or your aren't. Period. All food allergies, especially PN, TN and SF should be treated as potentially deadly.
So the short answer is, no, we don't eat anything like that! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Amy

Peanut Free Store

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