wheat allergic son also

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Hi, I have read alot of threads on this BB but I haven't read any with children having a wheat allergy. I was just curious if anyone else out there goes through this other extremely hard allergy? Any questions or advice would be appreciated. Thanks, Kathy

On Dec 14, 2005

Umm... yeah [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

What do you want to know, kwim? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Email me.

Jason Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye, Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all Nuts Sara 2-13-98 NKA (Avoiding Nuts) Meghan 2-28-03 NKA (Avoiding Nuts) [url="http://community.webshots.com/user/jtolpin"]http://community.webshots.com/user/jtolpin[/url]

------------------ [b]* Obsessed * [/b]

On Dec 14, 2005

My youngest, 3, is allergic to wheat. We also avoid all gluten for other reasons. Luckily he is not the child with PA & TNA. It is very hard to avoid wheat! I would LOVE to discuss ideas and such.

On Dec 14, 2005

Count me in as well. My son is allergic to gluten, dairy and nuts. It is very difficult, but sharing info is a great way to start to get things into control.

Do you have any specific questions? I would love to help you out.

On Dec 14, 2005

Thanks for replying!! I thought I was mostly alone in this situation. My DS is 23 months old he was diagnosed when he was 18 months old because we did blood tests to see if he was allergic to peanuts as well. He was always throwing up when he when started baby food, except when he ate oatmeal. You think the doctor would have caught it when I told him. He is much better now that we are strictly avoiding wheat and wheat gluten. It is extremely hard to find foods suitable for him. I have to order most on line. I have to make almost everything he eats, because he is extremely sensitive. He also has asthma, is allergic to dust, smoke, cats and mold. It would be great to hear some other stories on how you guys found out and how you cope day to day. More later. Thanks for responding, I feel much better knowing I'm not alone. Kathy

On Dec 14, 2005

Wheat here too. My son is only wheat allergic. My dd has m/e/p so we tested son just to check for allergies before introducing solids.

He has had an accidental exposure and reacted so we know it is a real positive.

Wheat is the MOST painful allergy for us, with milk following a close second.

The only happy part for me is that I'm in a huge support group, and in the six and older age group...all have outgrow wheat allergies.

On Dec 14, 2005

Your story sounds very familiar. My son is allergic to gluten, dogs, cats, dust and mold as well. He is also severely asthmatic. He takes Palgic (antihistimine), Flovent 220 (2 puffs/day), Nasonex, Singulair and Albuterol/ Xopenex as needed.

Yes, I cook just about everything he eats. We order a lot from Ener G foods. He really likes the Enjoy Life cookies and cereal bars. We use the Arrow(something) pancake mixes with pure maple syrup. Used to eat Tings and Veggie Booty, except he had a reaction recently. Everything else pretty much is homemade.

My ds was diagnosed with the gluten allergy when he was actually only around 4 months old. His excema was out of control, and we already knew that he was allergic to dairy and was restricting that. But the excema was getting worse and worse until we has RAST testing. We found out that he was allergic to our puppy, cats, dust and gluten. He was NOT tested for nuts at that time. (Kind of disappointed at his peditrician for not ordering it for nuts, but can't change the past).

My ds is 4 as of yesterday, and we are actually doing a food challange for wheat on January 3rd. We are so hopeful as it's such a difficult allergy to deal with!

On Dec 14, 2005

Hi...my daughter is allergic to Peanuts and I am intolerant of wheat so I'm always looking for things we can both eat.

Tinkyada Pasta...its a rice pasta, but doesn't get soggy like other rice pastas...they told me its a totally peanut free facility. I get this at Wild Oats Grocery. [url="http://www.tinkyada.com"]http://www.tinkyada.com[/url]

Enjoy Life foods which I found through this website: [url="http://www.enjoylifefoods.com/cart/department.asp"]http://www.enjoylifefoods.com/cart/department.asp[/url]

Miss Roben's all kinds of foods for special diets...I like that you can target foods free of your specific allergens. [url="http://www.allergygrocery.com"]http://www.allergygrocery.com[/url]

Ener G foods I haven't tried them yet...They do not use peanuts, but they DO have products containing TREE NUTS. I contacted them about their flour and they have told me the flour IS free of nuts/peanuts, so I may be trying them out... [url="http://www.ener-g.com/store/products.aspx?sn=Flours&cat=10"]http://www.ener-g.com/store/products.aspx?sn=Flours&cat=10[/url]

On Dec 14, 2005

Yep, allergic to wheat *and* gluten intolerant. I just get lucky sometimes.

ygg (also allergic to soy, peanut, papaya, penicillium molds used in cheesemaking, natural rubber latex, and a zillion herbs)

PS. there are plenty of threads. Check in off topic and snacks. Also, search for "celiac"--that should bring up a few, too.

[This message has been edited by krasota (edited December 14, 2005).]

On Dec 14, 2005

My Jason used to be wheat allergic... he outgrew it about 2 years ago.

The wheat allergy actually made it easier to avoid peanuts, IMO.

------------------ Cheryl, mom to Jason (8 MFA including peanuts, tree nuts, shellfish and egg),Joey (6 NKA) and Allison (3 MFA including milk, butternut squash, several fruits and suspected shellfish allergies, avoiding tree nuts, RAST - for peanut)

On Dec 14, 2005

I have to agree, Cheryl. When dd was wheat and soy allergic it was far easier to convince others NOT TO FEED MY KID. When it is only tn/pn/egg that can kill her, everyone seems to want to try. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Just surviving those early years makes it easier to handle the inevitable setbacks that we all experience with PA.

Our dd was always a "barfy" baby...with eczema... hmmmm.... think pediatrician would have thought of this, huh? but noooooo- he wanted us to begin introducing solids at 4 months old!!! We finally complied at 5 months. We didn't have a clue that she had a wheat allergy-- simply included it in her initial RAST at 11 months old as a negative control. Since we knew she couldn't be allergic to that. (laughing at how silly we were)

Anyway, to make a long story short, our daughter went from a placid, wan, sedentary toddler who barfed all the time to a sunny exuberant walking little girl in about two weeks. yikes.

I am trying to recall what bread we used... thinking that it was Enjoy Life brown rice. Ener-G foods is great, but the bread might as well be cardboard. Our dd would never eat it, and after I tried some, I couldn't blame her.

We also just used corn tortillas for a lot of bread applications. And rice and quinoa pasta. Quinoa itself can be pretty nasty if you don't rinse it with something acidic (like vinegar or lemon juice). Amaranth makes great stuffing for peppers and stuff.

On a brighter note, I was a TERRIBLE baker before this... and once dd outgrew the wheat allergy at 3 yo, whooohee! I discovered that wheat flour, when combined with yeast and something for it to eat, just WANTS to make bread!! It could have been my greatly refined skill set, I suppose.

Anyway, don't get discouraged. LOTS of our kids started out as toddlers/preschoolers with many many food allergies. The great news is that most of them really do outgrow the wheat and dairy allergies by the time they are school-aged. A lot of them even outgrow the egg allergies by then. And once you have experienced either evil triad of He** (dairy/wheat/eggs or soy/wheat/eggs) most food allergies seem much easier to work around. (Our daughter had fruit gelatin for her second birthday.) I mean, yes, cooking everything entirely from scratch all the time is a hassle, but at least you can pat yourself on the back that you have the right ingredients to work with. KWIM? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] The day will come. And your allergist will be amazed by your positive attitude when you just don't care that your child isn't properly outgrowing that last one of the three.

Hang in there.

[This message has been edited by Corvallis Mom (edited December 15, 2005).]

On Dec 15, 2005

I'm in the same boat... my daughter is allergic to peanuts and tree nuts (airborne reaction with p/n) and she is wheat intolerant. I have celiac disease which means I can't have any gluten. We manage! But it makes it a lot harder because a lot of gluten free foods seem to have nuts or are made in factories with nuts.

These companies are both gluten (wheat) and nut free:

Blue Chip Group [url="http://www.bluechipgroup.net/"]http://www.bluechipgroup.net/[/url]

Cherrybrook Kitchens [url="http://www.cherrybrookkitchen.com/"]http://www.cherrybrookkitchen.com/[/url]

Eco Natural [url="http://www.econaturalsolutions.com/"]http://www.econaturalsolutions.com/[/url]

Sunstart Bakery [url="http://www.sunstartbakery.com/allergy.cfm"]http://www.sunstartbakery.com/allergy.cfm[/url]

Namaste Foods [url="https://www.namastefoods.com/"]https://www.namastefoods.com/[/url]

Ruby Range [url="http://www.therubyrange.com/"]http://www.therubyrange.com/[/url]

Cause your Special [url="http://www.glutenfreegourmet.com"]http://www.glutenfreegourmet.com[/url]

Vermont Nut Free - there pure chocolate stuff is gluten free but they can't guarentee stuff like candy corn or truffles. [url="http://www.vermontnutfree.com/"]http://www.vermontnutfree.com/[/url]

Good Luck!

Susan

On Dec 15, 2005

We are not avoiding wheat but last year I was at a daycare where 1 child was allergic (2 wheat, egg, milk) I made her cinamon toast for breakfast & it was a huge hit with her.

I used Rice bread (very heavy) dipped it in Applesauce & a little bit of cinn. In the fring pan melted a bit of marg. & then fried the apple toast. Served with maple syrup. Yummy

On Dec 15, 2005

Everyone has been so helpful. Thank you very much. I don't feel so alone anymore. The links will be very helpful to me and I am grateful.

My son was also a very barfy baby, just maybe you would think that the doctor would catch that and think something is not right. Oh well, live and learn.

Anyway, thanks again and if you guys have anymore info it will be greatly appreciated.

Kathy

On Dec 17, 2005

Count my DD in here too. She's allergic to milk, wheat, soy, peanuts and tree nuts.

Wheat and dairy are definitely the hardest to manage for me, and I agree that avoiding wheat makes it easier to avoid nuts.

Anne

On Dec 20, 2005

MY 3 year old son too. He was just diagnosed with celiac disease. He is also PA (airborne) TN,dog, cat, mold, red food dye, asthma, Latex. he to has exzma. He has been gluten free for about 4 weeks, the exzma has cleared up, as well as the gastro- intestional problems. Thank God. That was just plain gross. He has gained about two pounds. We found out on a fluke. I'm glad we found out, but it is very overwhelming.. I too make everything that he eats. This friday my father in law and I are going to try to make ravoli for my son. That was always his favorite. I also use brown rice breadcrumbs for breading on his chicken nuggets. I season With Italian herbs and a little salt and pepper. Everyone in our house loves them. I'm glad that were all here for each other it's much better then beating my head against the wall.

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