What Little (or Not So Little) Things Do We Do Because We Have a PA Child?

Posted on: Wed, 07/09/2003 - 3:51pm
Anonymous's picture
Anonymous (not verified)

In your day-to-day living, what little (or not so little) things do you do differently that you know a parent of a child that isn't PA isn't doing? The things that other parents can just breeze through enjoying while we have little PA blips? Those kind of things.....

It's way past The Witching Hour and I should be in bed.

One of my major things would be watching my PA son like a hawk every time he tries a new food (and sometimes even one he's tried before) "just in case", even though it has been labeled "safe" or we have been told that it is "safe".

This comes to mind after taking my kids out for lunch to-day. There's a double decker bus called The London Deli (a chip wagon really). I asked all the requisite questions and it was "safe" for Jesse to eat there. But damned if I wasn't watching him like a hawk the whole time he ate his lunch.

Tonight, not PA related, but after his bath, Jesse had little patches of hives on his body. I quickly recognized that it was from rolling around on the grass (and this was after his bath and the hives still remained or worsened). So, antihistamine before he went to bed so he wouldn't scratch all night.
Just a little blip.

I'm sure I have a ton of others but my brain is too tired to recall.

What about everyone else?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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Posted on: Wed, 07/09/2003 - 8:30pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Buy an RV to travel/vacation so we have access to "safe meals/living area/supplies" if such is otherwise unavailable. It was very relaxing to have all the comforts of home and not have to check out hotels, airlines, restaurants, etc, if we didn't desire to.
[This message has been edited by MommaBear (edited July 10, 2003).]

Posted on: Wed, 07/09/2003 - 11:26pm
Anonymous's picture
Anonymous (not verified)

Well, as you both know, it's me with the pa, but it still makes some differences in what I do as a mom, such as;
Closely watch my son when he's eating anything new. I always worry he will develop this allergy. (Actually don't understand the science involved, maybe develop is the wrong word; does it just lie dormant until one day [b]KAPOW[/b]?)
It also meant that when he suddenly had a bad reaction to an insect bite I was mentally prepared. I understood how dangerous it could be and headed straight to the hospital. If I hadn't been living with pa I doubt I would have done that. I now carry 2 epi-pens for me and 1 for him (he carries his second). If I hadn't been living with pa I probably wouldn't have an epi for either of us. (His leg swelled from ankle to hip - not life threatening - so I would have assumed that's the worse to expect - but I know better.)

Posted on: Thu, 07/10/2003 - 12:45pm
wendysco's picture
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Joined: 05/03/2003 - 09:00

Thank You MommaBear! My dh and I thought we were crazy, we've always spoke of getting an RV, now we feel it's a necessity so the kids can have a peanut/soy free place to live on vacation.

Posted on: Thu, 07/10/2003 - 1:16pm
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Joined: 05/01/2002 - 09:00

So far away, such similar solutions. We usually holiday with our tent (and LPG fridge, gas stove etc!) so we know what's we're eating and are in control.
We rarely eat out, and never desserts. I don't have any of the morning tea cakes people bring in to work, or eat any food from out caf

Posted on: Fri, 07/11/2003 - 1:00am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

wendysco,
Personally speaking, our family was so pleased with our RV, that we went back to the dealer, (goodies in hand) and verbalized our satisfaction. We also noted that personally, and with regards to our family, [b]it was just like the commercials[/b]**
** [i]individual results may vary[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
We are already saving to buy a bigger truck, bigger RV, and better method to transport our alternate transportation at camp: golf cart (one of many alternatives).
As the song says:
[i]"You Just Get One Ride Around the Sun."[/i]
Big Hug,
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
[This message has been edited by MommaBear (edited July 11, 2003).]

Posted on: Fri, 07/11/2003 - 1:07am
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by helenmc:
[b]So far away, such similar solutions. We usually holiday with our tent (and LPG fridge, gas stove etc!) so we know what's we're eating and are in control.
[/b]
Tent camped before. I know you gotta have your ducks in a row to do it successfully. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Past weekend in Indianna there were history making rains (or at least record). Much surrounding where we camped is under water. [i]Many there did not know how to place tarps appropriately under tents[/i], failed to heed our well intentioned advice and ended up in our campsite about 3 am the first night. I also am completely sold on the idea of an [i]air conditioned[/i] campsite. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Still, tent camping [i]does[/i] allow for a much closer communion with nature (and each other).
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Fri, 07/11/2003 - 1:10am
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Joined: 05/03/2003 - 09:00

I'm glad to hear that MommaBear, I think it will be money well spent. Our kids are so sensitive we'd have to bring our own sheets to a hotel, I think it would be great to just come back to your own safe place, hose the kids down and settle in for a relaxing evening after a hard days vacation. The peace of mind factor alone has almost got to be worth the price. Our friends are bugging us to go to this campground, rustic cabins and a community bath/shower, I just can't imagine sticking my kids in some shower where they're using heaven knows what.

Posted on: Fri, 07/11/2003 - 1:17am
river's picture
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Joined: 07/15/1999 - 09:00

Most days and some days:
-Read labels
-Contact manufacturers
-Research the internet for information
-Be active on PA.com even if I don't feel like it
-Ask questions of people who will be caring for him at any given time
-Keep an eye out for dangerous foods in places where he goes
-Phone 'fun' places before we go to check for safety
-Question hosts or hostess before accepting invitations
-Pack safe food for trips or visits
-Make sure he always has an up-to-date epi-pen with him
-Find a 'with-it' school, (after 3 years finally accomplished that one)
-Find a 'with-it' summer camp
-Fix his medical alert bracelet everytime it breaks
-Complain whenever I see something I know is wrong and dangerous for PA children
-Email and phone manufacturers when they deliver on those peanut free products just to say Thanks!
There's probably more but this list is making me too tired to think.

Posted on: Fri, 07/11/2003 - 7:10am
Anonymous's picture
Anonymous (not verified)

river, what a wonderful, comprehensive list. The thing that amazes me is that we all do this naturally. It just comes to us naturally.
It's very rare that I sit back and think about how wonderful it must be for a parent not to have a PA child and not have to worry about all the things that we do worry about. I wonder with how much more ease their lives are spent, if any?
I think the biggest thing for me is when I do have to send Jesse off to school each year, knowing that he will be in someone else's care instead of mine. We don't get to enjoy the first day of Kindergarten angst that other parents do. We truly don't. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
And I guess sometimes I question my relationship with my non-PA daughter because I don't watch her like a hawk when she tries something new to eat, or she doesn't have to take an antihistamine after rolling in the grass, or I don't have to deal with her teacher as closely as I do Jesse's. Then, I realize, hey, that's the parent of a non-PA child.
Now, time to get ready for our town's parade!
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Fri, 07/11/2003 - 1:59pm
helenmc's picture
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Joined: 05/01/2002 - 09:00

Quote:Still, tent camping does allow for a much closer communion with nature (and each other).
Yep! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] You're point being???? [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
River - great list. We do them in an adult context, but we do 'em all... Well done for gettig it all down on "paper".
Geoff (Helen's hubby)

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