What does \'Safe\' mean to you?

Posted on: Tue, 04/13/2004 - 4:16am
jtolpin's picture
Joined: 05/28/2003 - 09:00

I saw a post on Dunkin Donuts, and am eager to see what people say on it.

But the more I read here, the more I see different comfort zones.

And the term 'safe' means so many different things to different people.

My DW who is anaph to peanuts is on WW now, so donuts are out. But when she WASN'T on WW, she would have no problem eating ANY of their donuts (was there a walnut one? She would not eat one like that)

She also wouldnt have a problem eating virtually ANY company's ice cream in a 1/2 gallon box (It'd be a given that its not a nut flavoured ice cream, kwim?). But mint chip, cookie dough, or any other flavour would be just fine for her.

That being said - How do the individuals here interpret 'safe'? Because, to our family (ok, to my DW, who wont eat donuts anymore), any donut from Dunkin's would be acceptable, especially a boston kreme [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

There are some of us whose comfort zones are very lax, and to some newbies that arrive here, it may be important for them to know that there ARE people with PNA that STILL eat most anything they want (again, thai food, PN products etc, being out is a given)

Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye, Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all Nuts
Sara 2-13-98 NKA (avoiding nuts)
Meghan 2-28-03 Outgrown Reflux - Alimentum feeder, Stopped Zantac - RAST neg to big 8

Posted on: Tue, 04/13/2004 - 5:17am
Peg541's picture
Joined: 12/29/2002 - 09:00

If it is a may contain we don't eat it. If it is "manufactured in" we don't eat it.
Donuts are too scary because of cross contamination. They use the same shelves and tongs for the peanut dounts as well as the plain ones. Too much of a risk.
My son had a reaction to an apparently cross contaminated cookie, it was a very big reaction.
Too much to risk.

Posted on: Tue, 04/13/2004 - 5:33am
klrwar's picture
Joined: 02/25/2004 - 09:00

I consider a product with an ingredient label "safe" when it has no peanut/nut ingredients listed and does not have the "may contain traces of..." or "made in a facility that also processes products containing..." type of warnings on it.
I consider restaurant food safe when (1) they go and check w/ the chef that there is no nuts/nut oils used in it and (2) it is not a baked sweet good (like a muffin, doughnut, cake, etc.). No. 2 is added because I know just from my label reading experience that those types of products are rarely safe from cross contamination in general...and I'm not going to give an uncontrolled environment like a restaurant the benefit of the doubt. I also shy away from giving my son ice cream in a restaurant - especially if they have a lot of ice cream dishes that have nuts in them...(again for fear of cross-contamination).

Posted on: Tue, 04/13/2004 - 5:51am
Danielle's picture
Joined: 04/08/2003 - 09:00

I consider safe a facility that does not process any peanuts or nuts in it. I am very strict. The only place we eat out unless we are on vacation is Mcd's and once in a very long while friends restaurants that are Italian and have no nuts on the menu.

Posted on: Tue, 04/13/2004 - 6:31am
CorinneM1's picture
Joined: 06/20/2002 - 09:00

I echo all of Pegs comfort zones. We don't use bakerys of any kind except for Krispy Kreme and Entemanns. We visit ice cream palors but stick with the soft serve ice creams.
We don't eat out at asian places, and limit our mexican to 2 places (one that doesn't have any peanuts, one that has peanuts in the mole sauce only). We eat at places that have pp&j on the menu, but they use the smuckers sandwiches and don't cut them, just plop them onto a plate.
We don't have nuts in general in our home, although my son is only PA.

Posted on: Tue, 04/13/2004 - 7:55am
Anonymous's picture
Anonymous (not verified)

Jason, this is an interesting, thought provoking question, IMHO. Having said that, I do need some time to think about my answer.
I'm not sure if others would consider my "comfort zone" lax or not. I only *consider* "comfort zones" of other PA parents in *real* life and for some reason, I'm able to comment on their "comfort zones" to myself or to everyone here. But I always respect and never question a PA.com member's comfort zone. Funny thing. [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]
Is the point you're trying to make is that yes, you can be PA or have a PA child and still lead a *normal* life?
Does my answer have to include donuts, in particular?
Great question. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 04/13/2004 - 9:28am
robinlp's picture
Joined: 05/14/2002 - 09:00

I don't really have much of a comfort zone. My DS does eat out...but we stick to restaurants that we have designated "safe" and stick to basic menu items...burgers, grilled cheese, pasta, pizza. We do not eat at Asian or Mexican Restaurants.
FOr treats, he only eats baked goods prepared by Mommy or Krispy Kreme. For ice cream outside of the house he only has soft serve at places that have been consistent w/ only serving vanille and chocolate soft serve out of the same machine.
As for packaged food...I NEVER give him may contains and always call or come here if allergen info is not obvious on the package...unless it is a company that I consider safe like General Mills.
So FAR, even though we have these guidelines we still feel like we have a normal life and our DS isn't really focused on food...which I think is a good thing.
[This message has been edited by robinlp (edited April 13, 2004).]

Posted on: Wed, 04/14/2004 - 12:34am
jtolpin's picture
Joined: 05/28/2003 - 09:00

>>I'm not sure if others would consider my "comfort zone" lax or not.
What your comfort zone? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Then I'll tell you how lax it is [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
> I only *consider* "comfort zones" of other PA parents in *real* life and for some reason, I'm able to comment on their "comfort zones" to myself or to everyone here. But I always respect and never question a PA.com member's comfort zone. Funny thing. [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]
I dont question comfort zones, per se, as we all have different ones. But the more threads I see with topics such as 'Is XYZ safe for my PA child?' -- The more I see answers like 'NO' and I stop and think about that... So these 'newbies' come in, maybe JUST dx'ed with PA and freaking out. They come here, and see people telling them 'DO NOT EAT THIS' because of 'it may contain..' or 'manufactured in...' and maybe they freak out a bit more.
Some people may like to hear the other side.. That some people's comfort zones are not that tight, and actually DO, lets say, go to dunkin donuts, have a donut and glass of milk... or go to mcdonalds, burger king, etc.. and as you put (and I believe) have 'normal lives'.
And I respect other peoples zones as well. But, there other solutions, right?
Is the point you're trying to make is that yes, you can be PA or have a PA child and still lead a *normal* life?
No, but YES it IS possible [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Does my answer have to include donuts, in particular?
NO [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] (But isnt talking about donuts exciting? Not as exciting as eating 1 dozen of them in one sitting, but still...)
Jason of the lax comfort zone

Posted on: Wed, 04/14/2004 - 1:13am
Anonymous's picture
Anonymous (not verified)

Jason, my "comfort zone" is posted in this thread:-
I haven't up-dated in 3 years, I believe, but I'm also fairly sure that it's the same as it was then.
I will, however, note that Jesse has not been able to have a donut in this town because ALL of the shops either have peanut products in them or "may contains" and I'm simply not comfortable with that anymore, for him, I'm not clear why.
My requirements of a "peanut free" classroom are still the same, have not changed.
We do eat out, mostly *kid* places like McDonald's and I don't wipe things down. We travel on transit here and again, don't wipe things down.
Sorry, can't be more clear right now, trying to figure out if I have to make the decision to take Jess to the hospital or not for his asthma. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 04/14/2004 - 2:23am
becca's picture
Joined: 05/22/2001 - 09:00

Well, when we first figured out dd's PA, I knew not of her TNA, or a relationship to one. I also knew she had an egg allergy I believed to *raw eggs*. I still cooked with eggs and fed it to her until the allergist told us no eggs at all. I still wish he never said it so I could still cook with eggs(I feel in my mother's intuition that she woud be fine). Oh, well, I hate to ignore a doctor's recommendation when I do feel he is a very competent one and he did give me his explanation for being conservative there.
Before coming here, my comfort zone allowed anything with a lable that was free of nuts or a warning of some kind of nuts. I never heard of calling a manufacturer and it never occurred to me to do so. My dd ate several items I no longer allow and never had a visible reaction.
I have questioned if I am "too careful" because it does limit her a bit here and there and confuses people who used to see me feed her certain things I no longer allow.
But, she is young and I think I will be more like Jason's "zone" once dd is older and I see that she is stable in her allergy, and when it is up to her to read lables and care for the allergy herself. I will teach her to read labels and ask questions and see how it goes. If we run into a problem, we can tighten up. I just want to be hypervigilant on the rare chance she could outgrow it. But if she gets to 10 or so and has not then I am rethinking things.... I may rethink them and keep it tight too! I don't know. becca

Posted on: Wed, 04/14/2004 - 3:28am
Anonymous's picture
Anonymous (not verified)

When my reactions first started I didn't know about *may contains* and *trace amounts* and I continued eating them unknowingly. I was taking about 5 antihistamines a day - not to prevent reactions, but to keep the reactions down to a dull roar.
Now, I would starve myself before I would knowingly eat a *trace amount*.
But Jason, I want to thank you for being willing to post how lax your *comfort zone* is. (With most people here limiting their choices, you could have been blasted.) The reason I want to thank you is, my sister is more like you. She eats some may contains, in fact with soy, there are some products that it's actually listed as an ingredient and she eats it. Her dh and I have to remind ourselves that she's an adult and able to make her own decisions - whether we agree with them or not - and not try to force her to live by our rules. Also, her list of allergies is so large that to avoid trace amounts of everything would be near impossible. But reading your posts often helps me accept her choices for herself without any nagging from me. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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