What do we really want?

Posted on: Thu, 03/08/2001 - 12:25pm
creek14's picture
Joined: 06/13/2000 - 09:00

pSitting here with this broken leg, well, I guess I have just had too much time to think. Let me preface this post be saying that I am not trying to be controversial, this is just something I am struggling with lately. /p
pWhat will it take to make us happy?/p
pIn a perfect world, no one would ever grow peanuts again. No more label reading, no more Epi's, no more worrying about hidden peanuts. Obviously that isn't going to happen./p
pWe want them off planes, that seems like a no brainer. Seems no one has to have peanuts from here to St. Louis. /p
pMost of us want it out of schools. Honestly, I ride the fence on this one. Sometimes I do, other times I'm not sure. My daycare serves PB once a month, my feeling is, if you serve it only 12 times a year, can't you find something else for those 12 days. But there are 5 PA kids in the daycare and they are very good at keeping them safe./p
pThere are approx 3 million PA people in the US. That means there are over 270 million that arenn't. Where do their rights stop and ours start?/p
pOf course p's can kill in minutes. But so can cars. Who amoung us would give up their transportation in empathy for a family that lost a member to an auto accident. Yes, it is a stretch, but there is a parallel there. Do we really have the right to demand p's be removed from any where? I'm just asking the question./p
pGuns kill. Look at the school shootings that plague this country. But I bet that there are card carrying members of the NRA on this board./p
pI know that there are smokers on this board. And you know that those cigarettes are killing you. Granted, not as fast as a P can, but they still are killing you. Would you let someone take those from you?/p
pSeveral people didn't think that woman did enough to rid her house of P for the birthday party for her niece. Do we have the right to police what people have in their house?/p
pI just want some ideas. What do we want realistically? Would we be satisfied with better labeling? Should we lobby for seperate lines for P and non P foods? Instead of bitching and moaning (excuse me) about how no one wants to help keep our children safe, let's pick one area and let's get organized. One area where we put all our efforts. And after we win that battle, we will move on to the next./p
pMe? I want Oprah and Rosie to do a segments on PA. That would get the message out to millions of people. And once the message is out, then we can start tackeling the labeling and school and all the other issues./p
pWhat do you want?/p

Posted on: Thu, 03/08/2001 - 1:07pm
EILEEN's picture
Joined: 04/06/1999 - 09:00

Me, I only want 2 things.
1. Peanuts/peanut out of school classroom to accomodate a pa child (ideally pb out of schools.
2. Peanuts no longer the airline's snack of choice (thus no more fear of flying).
Real friends will understand and make accomodation when we visit (it is a good selection process!)
I love the idea of getting organized and doing something rather than just talking about it (well writing about it).

Posted on: Thu, 03/08/2001 - 1:58pm
andy's picture
Joined: 04/26/2001 - 09:00

Each reaction I have had has been because people put peanuts or peanut butter in a food that I would never have guessed would contain it. It is the unknown that is the biggest potential problem for me. In an ideal world I would like to see people educated and restaurants state clearly their use of peanuts or peanut butter in any meals. Andy

Posted on: Thu, 03/08/2001 - 9:16pm
Christine's picture
Joined: 02/03/1999 - 09:00

What do I want? A few things. Number 1--RESPECT!! I want the allergy or the danger of the reaction because of the allergy so ingrained in the general public's minds that when I say "my son has a peanut allergy" they will automatically do what needs to be done to keep him safe. I want the same reaction to his allergy that I get when I say "my son has asthma." When I tell a daycare center or school or coach that my son has asthma I get a wonderfully sympathetic look, lots of cooperation, and tons of understanding. I have a daycare center that is willing to administer his inhaler 3 times per day and set him aside to rest if he is breathing too hard. This same daycare center gives me a puzzled look when I mention peanut allergy, they can't change their 12-times a year peanut butter lunch (but they can easily give an inhaler 3 times per day), and they don't want to read labels or put any effort into it. So, I would like peanut allergy or any life threatening food allergy given the same respect as other life threatening conditions, i.e., asthma.
Secondly, I would love better labeling. I would love all food companies to HAVE to be sure that nothing is contaminated without using the "cover your ass" attitude.
And, last of all, like others have said, I want peanuts removed from airlines.
After that is all done, I think I'd be pretty happy.

Posted on: Thu, 03/08/2001 - 11:52pm
katiee's picture
Joined: 05/09/2001 - 09:00

This is a tough question to answer. I guess what I want most is an end to the constant fear that somehow my son will have a reaction. I hate living in fear but for me, that's what living with my son's allergy boils down to because no matter how cautious I am, how much I explain, educate, etc. that fear just never goes away. I want better labelling, a want a truly peanut free school (at present the school my two older kids attend and that Wade will attend in another year declares itself peanut free but is far from it).
I would love it if just once when I explain Wade's allergy to someone new, that they would not give me that "deer caught in the headlights" look that makes me feel like somehow I'm asking for too much in hoping they understand. I would love it if my family "truly" got it and I could visit without having to police every family gathering that includes food.
I too would love to see Peanut Allergies and other potentially fatal food allergies discussed on Oprah and Rosie. I've contacted the Oprah show and received the standard form letter in response. Personally, I can't see Oprah taking on the Peanut Lobby in the US, not after her experience with the Beef Industry anyway.
I want global awareness about this allergy...validation if you will because there are so many people out there who still think we are a bunch of zealots. Wish sometimes they could walk a mile in my shoes before assuming I'm just another nut (no pun intended).
Sorry for the negativity, must be a full moon making me more cranky than usual.
Katiee (Wade's mom)

Posted on: Thu, 03/08/2001 - 11:54pm
e-mom's picture
Joined: 04/23/2000 - 09:00

I have to say that my wish is very simple--in so many words.
I want a cure!
It may be very unrealistic but that's what I want. Then I wouldn't have to deal with everything else regarding PA. I wouldn't have to worry about my son eating anything. I wouldn't have to worry that when he eats something and gets a little red bump is it PA related?
So where's my genie to grant me my wish? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 03/09/2001 - 4:29am
WoozerMom's picture
Joined: 12/28/2000 - 09:00

This thread is a good idea.
I agree with Eileen's two choices. Get peanuts (and other nuts, too) out of schools and airplanes.
Food labeling is really necessary, too. We all rely heavily on food labels.
I also agree with Katiee's thoughts about public education.
Other than that, I don't want much else. I can effectively watch out for peanuts/nuts if those those ideas are implemented.
We probably should come up with a really basic list, and all of us could do everything we can to see that it is implemented. I think getting this peanut/nut allergy plan going is a little like babies learning to walk. First we should crawl, then walk, then run, and then conquer the world. The hardest part will be the crawling and walking.
I have worked in jobs where I did public relations and advertising as well as public speaking. I always sat down and made a written plan of what I needed to do, a timeline for accomplishing it, and my target audience. Then I followed through.
Maybe each one of us should do that in our own communities.

Posted on: Fri, 03/09/2001 - 2:13pm
Liz's picture
Joined: 01/17/1999 - 09:00

What I want is a cure, because otherwise I'd like to see a compete ban of all legume products (peanuts, soy, beans, peas) and I know I'm not going to get that.

Posted on: Fri, 03/09/2001 - 8:50pm
Anonymous's picture
Anonymous (not verified)

Gee, all the above are excellent wants- I'll add a few more
1. safe places to eat for my multiply allergic son.
2.social events that don't always involve food risks.(Scouts, church,school etc)
3.that we are successful in building a home that safe for my son (free or molds etc.)
4. That his CAP RASTS come way down on the three allergies that can be outgrown.
5. the peace of mind to be able to let my kids have a puppy-with no fear of it causing life-threatening asthma trigger.
6. Support from groups knowledgeable about food allergies- in helping find safe foods for son with several food allergies that aren't the in the "top ten list".
7. Mandatory labeling of which natural fruit colorings are in candies-but I'd be pleased if there a way around companies right not to tell.
8. I wish I'd never see that "Why did are bring your kid here to eat"- stare when attempting to find one item he can safely eat there.
9. I wish I could come home from work and fix everybody in my family one meal.
10. I wish my son can stay free of skin infections and succuessfully be off antiboitics. (On day 7 without it)
11. I wish my son could go three days with out saying "I don't feel well" or better yet that he could say "see ya, I'm going..." without fear of do they have cat or other animal, are they going to serve any safe food.
12. I wish that he can enjoy the water and get a chance to learn to swim and that other kids wouldn't stare at him like he's from another plant when he skin is in a flare.
[This message has been edited by JanBP (edited March 10, 2001).]

Posted on: Fri, 03/09/2001 - 10:20pm
ConcernedMom's picture
Joined: 01/31/2001 - 09:00

With regards to the comment that cars kill people, but we are not going to stop driving cars sounds like my husbands approach to my daughter's peanut allergy. He tells me she has a greater chance of being killed in a car accident than of dying from her allergy. Well I told him, when I put her in the car, I have her in her booster seat and drive carefully. That's how I protect her! But when it comes to protecting her from her allergy, well that's much harder! We parents can read labels and ask questions, but unfortunately that is not good enough. I think better labeling is the biggest issue we should tackle. After all, my daughter doesn't have to be able to eat at restaurants, but she's got to be able to eat at home! I don't expect manufacturers to have dedicated lines for peanut products, but I just want them to warn us of potential cross contamination. Knowledge is power and what we don't know CAN kill us (or our children)!
I am glad there is this website so I can be better educated and have somewhere to vent and feel I am not alone.

Posted on: Sat, 03/10/2001 - 7:40am
Triciasmom's picture
Joined: 08/03/2000 - 09:00

I really think there is a huge difference between the risks of peanuts and the risk of cars. If someone runs over my child with their huge Ford Excursion SUV, it is pretty clear that it was a bad thing. But if someone were to find my child in a store, lost and scared and offer her a cookie while she waited for her mommy, it is not so clear that this is a bad thing.
Really, people who aren't informed about PA have no idea how peanuts affect a peanut-allergic individual (or that person's stressed-out mommy). And they certainly don't know how to read a label for peanuts or know that certain companies don't label well, etc.
So what do I really want? (in no particular order)
1. I want people to know about PA. I want them to know how their innocent-seeming Snickers bar or trail mix could kill my baby.
2. It is really unreasonable to assume that peanuts will be banned any time in the next million years or so, since we can't even ban cigarettes. (Imagine this: a ban on peanuts that would lead to peanut "speak-easies" and illegal peanut trafficking. Defiant young people standing on the corner, eating a PB&J sandwich.) [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] So how about having peanut-free zones? This would be particularly useful at baseball parks.
3. How about a cure?
4. A magic empathy wand that I could wave and instantly make people understand.


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