What activities do you feel you/your child are restricted from doing becuase of pa?

Posted on: Tue, 01/28/2003 - 1:13pm
Renee111064's picture
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Joined: 07/05/2001 - 09:00

After reading Cindy's post about bowling, I was wondering what kind of activities do you do with your child outside of the home. What activities don't you do because of PA?

Personally I do the same with my pa son that I do with my other children.

We go to the movies, baseball games, AHL hockey games, bowling, skating, circus, the park, amusement parks, video games, etc.

I'm very fortunate he has never had a reaction outside of the home.

My ds is also in two different indoor soccer leagues. One is on turf the other a gym floor. Both sell candy with peanuts there.

I guess what I am saying is that we do everything. Yes we do take precautions but we haven't stopped going anywhere becuase of peanuts.

I feel that our comfort zone is so wide spread because he has never had a reaction other than hives twice at home.

I also understand that many children have airborne allergies and are restricted because of their sensitivity.

Just curious to see what other adults or parents of pa do with their children.

best wishes,

Renee [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

[This message has been edited by Renee111064 (edited January 28, 2003).]

Posted on: Tue, 01/28/2003 - 2:15pm
Peg541's picture
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Joined: 12/29/2002 - 09:00

We have avoided any activity that might involve peanuts. Baseball games, circus, certain restaurants. That's just part of DS lifestyle and if he can't go to a baseball game then I'm not going either. Luckily he is not interested in most of the things we avoid.
Peg

Posted on: Tue, 01/28/2003 - 2:42pm
momof4's picture
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Joined: 03/26/2001 - 09:00

We have had to change things for the whole family. My older daughter used to go to her friends and spend the night..and so on. Now she has her friends come here and doesn't go to many birthday parties, since I am not comfortable with my PA daughter going and doing the same. I made a mistake once thinking about the circus until I thought about the peanuts..so we didnt' go. We limit several things, but don't totally stop doing things. We go to the pool, ride bikes, go to the park, inlaws do the movies once or twice a year. The kids go to sunday school, which was scary in the start. The younger kids don't know anything different, so they don't care. The oldest is doing better about the rules being changed because of her sister. She even did a short report on her sister having life threatening allergy to peanut. Her teacher wrote at the top of it, that must be scary. She has included it in her daily life too, so it is our "normal", maybe not someone else's normal. She has never had a reaction that needed an epi-pen as of yet, but we try really hard to be safe. We have know about the allergy since she was little and never has been fed it.

Posted on: Tue, 01/28/2003 - 8:24pm
Claire's picture
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Joined: 04/19/2000 - 09:00

We never avoided any activity because of the allergy. We just always went into anything with our epi and well prepared. Kept a close eye on him at all times and never bought food from anyplace but home. We always had handiwipes on hand at all times and i would just wipe things off. I personally think that is why Chris has grown up to be such a neat kid. He hates dirt at the age of 16 I think the only time i have seen him dirty is at a football game.
I think that by taking them out into the world and teaching them how to handle any situation where there may be peanuts around is important in how they are taught to handle things when they grow up and are on their own.
As I have always said it gets harder when they are older because we no longer have the control. At 16 I worry more than ever. take care claire

Posted on: Tue, 01/28/2003 - 9:52pm
darthcleo's picture
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Joined: 11/08/2000 - 09:00

The only actual change the PA has brought to our family is that we no longer go to restaurants, nor do we order takeout.
I had to give myself a crash course in cooking, cause I didn't know how to boil an egg, but after 5 years, I'm getting quite good, and we no longer miss restaurant foods. Even better, hubby says he prefers my cooking by far :-)
The other big change is not 100% related to PA, but to my son's personality. We decided to homeschool.

Posted on: Tue, 01/28/2003 - 10:30pm
Anonymous's picture
Anonymous (not verified)

Renee11064, excellent question! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Then, when I started to think about my answer, I feel like BAD MOMMY because it would appear that I don't do a heckuva lot of things with either child outside of the home (or do I?).
When we lived in Toronto, pre Jesse's first anaphylactic reaction, I feel as though we did everything that was available to us there for a family with a toddler and a newborn.
We ate in restaurants, ordered food in, went to Center Island, travelled on the transit system, etc., all without any concern. Jesse went when he was 2-1/2 to a toddler group on Saturday mornings (couldn't tell my MIL how much it cost [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) and he was able to do everything that every other child did there.
Then, we moved to the little spit of a town where there was basically nothing to do. However, when there was, we did do it. We went to the circus (I posted about it here, it was disastrous, but I got such great advice here I think we could *think* about doing a circus again). Jesse went to story hour at the library (as did his sister later) unsupervised by me. We went to the beach. We went to country fairs.
Then, we moved here just over a year ago and the whole world seemed to open up to us, although one that I have to admit is a lot less scary to me re PA than it would be to move back to Toronto (but I have this *thing* about Toronto now [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ).
We have gone to the annual city picnic, we went to every event possible in the Waterfront Festival, the kids went swimming with their Dad at a public pool, we took them to the wading pool. Jesse is now taking karate at school.
I do know that I do check out any brochures that are at the school for different clubs, etc. that the kids could start to go to - I think it's about the time of year where I'm *supposed* to be checking about soccer, etc. as I did it too late last year.
Jesse did go bowling in Toronto. He also went with my girlfriend out for an evening with her daughter when we were in the other town and played mini-golf and other games and I had no plan in place re his PA with my friend, just his Epi-pen in her purse.
I loved that when we moved here, there was a movie theatre (actually 6 or 8) and that I could finally take the kids to see a movie.
The first week-end we were here, Monsters Inc. opened and we went to see that. We also went to see E.T. last March break. I asked about the food at the popcorn booth (or whatever it's called) at the theatre, but other than that, it wasn't any different than going with a non-PA kid.
So far, although we don't do a heckuva lot, I haven't come across anything that we can't do because of PA, except for the day camp that I had wanted Jesse to go to last summer that would not accept him because of his PA and he was the first child that approached them with PA so they didn't know how to deal with it (posted about here as well).
I think we do okay. I think we go out and about like any other family would. I really do. I don't think my kids have missed anything yet because of PA. Even with this bowling thing and Jesse not being able to go to-day because of the stomach flu (I keep asking him - are you sure you don't feel as though you could go bowling? [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ), we have already decided that we're going to go bowling as a family instead because he's missed it.
My 5 year old daughter had her first sleepover the other night. It was her friend's birthday party and her friend was able to choose one child to sleep over. As it turned out, my two kids were the only children that had gone to the party. My daughter stayed over there and I brought the little girl's sister over here (she's the same age as Jesse) to have a sleepover with Jesse. I know that Jesse was feeling something, I guess sad, because his sister had actually been invited for a sleepover and he never has, but hopefully his day will come. The Mom of the two girls, who is really PA aware now, even said to me, that she would be afraid to have Jesse sleepover.
Truth be told, I would be afraid to have Jesse sleepover at someone's house anyway. I was a big enough baby when my daughter seemed to stay so easily away from me Saturday night.
We probably have baseball games that we could go and watch, not major league or even minor league, but regular people and kids playing ball, but we're not really sports people, so I don't have to worry about that here.
And, as I said, should a circus come to town here, I would *think* about going again, simply because of the great advice I received here when we had gone to the circus in the other town and had such a disastrous time.
We do go to restaurants and we do order in food.
I don't know, I think we do everything that regular families do (even if it seems, as I write this, that we don't do anything at all [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] )
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Tue, 01/28/2003 - 11:03pm
mchammond's picture
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Joined: 09/21/2000 - 09:00

Renee - great question and I am really suprised by the responses. Cindy - I thought I was a "bad mommy" because we do a lot of stuff (sounds like you do too) but it is comforting to see that we are not alone. As I said in another post, ds diagnosed at 18 months but we did not really begin to understand until he was about 6 yrs old.
We go camping, movies, baseball games, started skiing lessons this year (with rented equipment), eat out and do carry out, bowling, etc.. he plays soccer & wrestles with consession stands selling peanut containing products. Did the circus once but not sure about that one again, there were peanuts everywhere!! DS has a couple of people that invite him to spend the night but not as many as his other buddies.
We normally check the place out first or at the very least call and never leave home without without the benedryl or epi. I try to keep wipes (idea after an incident when he was playing baseball - no reaction but pretty scary) with me.

Posted on: Wed, 01/29/2003 - 1:36am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

the only thing we absolutely never do as a family as a result of PA is go to those restaurants with peanuts all over the place or food places that have items that contain peanuts/peanut oil. in all other family situations we deal with things on a case by case basis and determine the risks before making a decision. however, when we cannot be with the girls (like at preschool, school, etc..) we have much stricter rules. in fact, we don't do preschool and avoid any type of activity in which me or my husband can't be there the entire time. we really try to educate the girls prior to public school starting because that's a whole new world. unfortunately, PA has pretty much put a halt to any plans my husband and i ever had of doing anything alone. we haven't had a babysitter in years and try to ask our (unreliable in terms of PA) relatives to watch the girls as little as possible. so...the girls miss out on some things, we miss out on some things, but PA hasn't been able to take a lot away from us as a family doing things together. joey

Posted on: Wed, 01/29/2003 - 5:34am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

We don't restrict bc/ of the allergy. We are very careful.. I always bring 4 epi pens, 2 bottles of benadryl and my emergency list wherever we go but I dont' stop the girls from going anywhere. I cannot let them live in a bubble. We go everywhere and let them do just about anything they want (within reason of course). We went to a festival where they were roasting peanuts so we had to leave the area so they didn't react to smell. We stayed at the festival but not in the general area of the peanuts. We went to princesses on ice and they loved it. The only places we dont' go are restaurants where they shell peanuts.
I feel it is my responsibility to teach them how to handle their allergy. They eat at restaurants.. learning how to ask questions to the waiters and staff. They go to parties and play sports and have playdates. Everyone knows they have the allergy and all their friends know. I don't want them isolated and I feel it's important they learn that this allergy is not a deterent for a happy successful life.
Just my 2cents
Lisa

Posted on: Wed, 01/29/2003 - 7:39am
California Mom's picture
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Joined: 07/14/2000 - 09:00

My daughter is 8, now, and for the most part she leads a very "normal" life, with play dates, public school, girl scouts, etc. I guess the two biggest limitations in our lives because of Leah's pa and tna, are eating out and traveling. My dh and I enjoy eating ethnic foods, but we are too frightened to try new or exotic restaurants with Leah. Also, we are afraid to travel anywhere where English is not the native language, because of allergy concerns. I also haven't sent Leah to different summer programs; preferring to keep her in one day camp where we can build a relationship with the staff and feel comfortable with her there. The thought of sleepaway camp gives me the shivers, as does any type of group overnight situation, especially if it also involves travel.
I think we do a good job with letting Leah experience as "normal" a chidhood as possible. Still, there are very real concerns we have for her that we wouldn't if she did not have life threatening allergies
Thanks for the thought provoking question and stimulating discussion. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Wed, 01/29/2003 - 9:24am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Up until now we really haven't limited activities at all, other than altering where (and what) we eat, and possibly foreign travel (not that it's too likely we'd be doing that anyway - at least until we hit the lottery!). Kevin has done everything any other kid does.
Our next challenge, however, will be camp. He's been fine at day camp, but now wants to go to sleepaway (shudder). Other issues aside, like why is sleepaway camp necessary anyway, this one has me floored. I just can't see letting him go.
One of his friends goes to a camp in Massachussets that is not peanut free, but they segregate the kids who eat PB. They also make a point of not allowing any peanut products on the busses going up or being brought in on visiting day. I suppose that's a start. Yikes, I think I'm breaking out in hives just thinking about it [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] .
Amy

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