What about a book about PeanutAllergy.Com?

Posted on: Fri, 01/18/2002 - 10:52am
TLSMOM's picture
Joined: 05/25/2001 - 09:00

I know this is going to sound loony, but I actually have been thinking about this for a long time.

I remember a previous thread about how to get Chris and PeanutAllergy.Com on the " Oprah Winfrey Show.

What does Oprah like to talk about on her show. BOOKS! Somewhat controversial ones at that. I remember what she went through by takeing on the Beef industry. Thats why I think she won't take on the allergy issue, includeing Peanut Allergy.

Anyway, I think this is a great idea. And it would make an educational, absorbing book. Maybe even 20/20 or some similiar program would cover it.

Chris could write it, if he wanted too. One of us could take it on. Personally, I can't write well.

These boards have introduced me to the most wonderful people with all kinds of perspectives and information that I've NEVER gotten from any of the many food allergy, PA, asthma, or eczema books I've ever read.

Personally I think it's a great idea.


Posted on: Fri, 01/18/2002 - 11:15am
smack's picture
Joined: 11/14/2001 - 09:00

Funny, I thought the same thing...about a book. I just love reading the "Chicken Soup for the Soul" books and I thought a good idea would be a Chicken Soup for the Food allergic Soul. You know, all the excerpts from stories in here.
Maybe we should contact the Authors from the Chicken Soup for the Soul books and they could help?

Posted on: Fri, 01/18/2002 - 10:30pm
anonymous's picture
Joined: 05/28/2009 - 16:42

TLS Mom,
What a great idea!
I love those Chicken Soup books too. I bet a lot of us have learned more from each other than we have at the doctor's office. My allergist is extremely competent, but even he didn't know about peanutallergy.com or 504's. Most people wouldn't know unless they accessed this site and learned about it from others.

Posted on: Fri, 01/18/2002 - 11:02pm
TLSMOM's picture
Joined: 05/25/2001 - 09:00

Smack: Great Idea!
I really like those books too. It could be about all the experiences that come with living with all food allergies, written by the parents and the adults that have lived it. The real feelings and emotions of it. These stories could offer information, love and inspiration. There could be separate chapters just on the most life-threatening.
Let me tell you my idea. I was thinking honestly of a way to get this website and peanut allergy awareness to the forefront.
There are some remarkable people and stories and advice that I've gotten from this website. I was thinking of a book about our stories that have stemmed from this remarkable web-site, includeing Chris's story and the hard work he has put in founding this site and becoming a real advocate and resource for us.
I remember almost feeling overjoyed when I first found out about PeanutAllergy.Com.
I'm being perfectly serious here.
I'd LOVE to hear even more ideas.

Posted on: Sat, 01/19/2002 - 8:02pm
williamsmummy's picture
Joined: 03/26/2002 - 09:00

what we need to do is just find someone to collect our personal stories and then pick the good ones and link them with all the info from peanut .com. . A nice shiny front cover with chris smiling on the front would look good !
Now what would we call it, any suggestions please?!!
how about,
"Peanut allergy .com, informed , supported, and living in a world of allergies "
hmm too long. rather wet and soppy, nah, bad choice, total rubbish
How about ," the story of peanut allergy .com ", (simple clear ....not bad)
or.... living with allergies in 2000 "?
okay , terrible suggestions someones bound to think of a better one. Now chapters, one of which must include funny stories, as well as all the obvious ones!

Posted on: Sun, 01/20/2002 - 12:34am
LaurensMom's picture
Joined: 05/23/2001 - 09:00

I think it is a great idea too.

Posted on: Sun, 01/20/2002 - 9:47am
boobrinamom's picture
Joined: 09/08/2001 - 09:00

The title's a gimme! "Peanut-Free Chicken Soup."
I've actually considered working on this or something similar for some time but never seem to find the time. Besides, every time I think I've got a handle on this condition where I have enough knowledge to write about it, someone or something comes along and sweeps the feet out from under me!
I know FAAN publishes something called "Stories from the Heart"...anyone read it?

Posted on: Sun, 01/20/2002 - 10:58pm
TLSMOM's picture
Joined: 05/25/2001 - 09:00

Thank you for your wonderful input.
I've often thought of contacting Chris about this. I should.
You have great idea's. I've heard of FAANS book, never read it.
Has anyone else read FAANS booK?
I think the book perhaps should most specifically address Peanut and Treenut allergies. I think the world should know about PeanutAllergy.Com.
I guess there isn't too much interest.
Thanks again.

Posted on: Mon, 01/21/2002 - 1:48am
smack's picture
Joined: 11/14/2001 - 09:00

I have just e-mailed Jack Canfield, one of the authors of "Chicken Soup". I was going to post what I said, but I didn't save it earlier enough and when I sent the e-mail it erased.
If I hear back from him regarding this idea for a "Chicken Soup" book, I'll let you know.
I have never heard of FAANS book nor read it.
I just think that the "Chicken Soup" books are read by millions, and the networks regarding food allergies are read only by those living with it.
Not to say that it's not a good idea to have one made from just Peanutallergy.com, because there should be.
Anyway, we that just posted in reply to TLSMOM's idea will keep our eyes on this one, and I'll get back to you.
Gotta go
In my e-mail I told Jack Canfield that the idea came from a few who belong to Chris Papkee's web-site Peanutallergy.com and a little about the web-site.
I hope Chris doesn't mind.
Chris, if you read this let me know if your ok with this.

Posted on: Tue, 01/22/2002 - 3:34am
cammie caver's picture
Joined: 01/11/2002 - 09:00

I think a Chicken Soup book sounds like a great idea. By the time everyone pooled their stories together, it would surely be enough for a book. If anyone takes this further, e-mail me at cammiecaver@hotmail.

Posted on: Tue, 01/22/2002 - 9:22am
smack's picture
Joined: 11/14/2001 - 09:00

Hi Guys,
I got an e-mail from "Chicken Soup" a Kathy Brennan-Thompson who is production Coordinator. I had to complete on line a proposal packet so we will see what happens with this! I saved it in my Microsoft Word so if I can get my husband to help me with cutting and pasting I will certainly post what I wrote.
Basically, I might need some help getting the word out if they do accept doing a book for the "Severely allergic". I would wonder how instead of the authors of the story getting the usual $300.00 if their story is accepted, would people be keen on donating a percentage to say, peanutallergy.com , research in finding a cure, changing labelling laws, just to name a few.
I'm not looking at this to make money for me, and I know most likely those that we get permission to use their stories will want to help make this a better place for the "Severely Allergic".
That's why I like the idea I had using the "Chicken Soup" name because check out their upcoming books on [url="http://www.chickensoup.com."]www.chickensoup.com.[/url] They have a book on EVERYTHING EXCEPT PEOPLE WITH LIFE THREATNING ALLERGIES.
Give me some feedback guys, TLSMOM,ryan'smom,
williamsmummy,Laurensmom,boobrinamom,cammie caver, and anyone else that's interested in this venue.
I'll check back after I get the kids to sleep.


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