Unhelpful healthcare community

Posted on: Wed, 07/15/2009 - 3:53am
Dyane's picture
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Joined: 07/15/2009 - 10:16

How does your healthcare community measure up?

Our pediatrician is A+ material. We would never consider another. The problem we have is that his support staff, as well as the hospital, the walk in clinic and my doctor's office, is unhelpful.

Our daughter's birth was under less than ideal circumstances and we have just now (16 months later) finished with physical therapy and at the same time learning she has a peanut allergy. She has always had an epipen as there was a reaction when she was a newborn to a baby lotion, or so we think, which resulted in a trip to the E.R.

When I asked for information on this allergy, the nurses referred me to the library. Nothing I found was written within the last DECADE. I went to the walk-in clinic to speak to a nurse, who looked around and found no literature on food allergies. I called the allergist, who has yet to call me back. I left another message that I need help finding current info. I called my doctor's office and they were rather snotty. They asked why I did not call her doctor and when I explained, she accused my doctor of slacking. (He has no clue this is going on--he is out of the office and he will be LIVID when he hears of this!) When I explained this was only for peanuts and not other nuts, she asked me what other kinds of nuts I thought were out there. I was tempted to ask "Other than YOU?", but was nice and explained that tree nuts are different.

How can hospitals and doctors' offices not have this information? Does anyone else have this problem? What websites or books do you all trust? I feel more helpless at this time than when we were back in the NICU. At least then, the nurses were very helpful.

I can't wait for our beloved pediatrician to come back!

Posted on: Wed, 07/15/2009 - 8:24am
jenniferbfab's picture
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Joined: 05/04/2008 - 12:43

You may want to consider switching offices to find the sort of support you are looking for. Every office is SO different.
I do feel that it was difficult to get good information from the doctors offices and allergists we have visited. We had tried a few different allergists for my son's eczema before we even knew about his PA. It took about 4 tries before we found someone we had confidence it! On the other hand, I found a wealth of wonderful information online and also read Dr. Young's book (The Peanut Allergy Answer Book) from cover to cover.
I began to visit websites for information and support. Some of the websites I started with were:
http://www.foodallergy.org
http://www.allergicchild.com
http://www.kidswithfoodallergies.org
http://www.allergymoms.com
http://www.foodallergysupport.org
and of course this one!
Then, I began to read blogs because I found I appreciated the personal perspective. Some of the blogs I read initially included:
http://allergicgirl.blogspot.com/
http://nut-freemom.blogspot.com/
http://peanutfree.blogspot.com/
Over time I have come to find many more excellent allergy blogs. Blogs are a great place to find personal tips, sort of like word-of-mouth at the school drop-off or pick-up line! Some of my favorite allergy blogs are listed on my blog, http://www.foodallergybuzz.com.
Jennifer B
www.foodallergybuzz.com

Posted on: Wed, 07/15/2009 - 10:27am
BestAllergySites's picture
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Joined: 03/15/2009 - 21:46

I agree with Jennifer, you may need to switch allergists. Not all doctors have the same information, beliefs, etc. Unfortunately what you are going through is not uncommon.
If you can't get a recommendation from someone you trust-the American Academy of Asthma Allergy and Immunology has an allergist finder http://www.aaaai.org/
My website has listings of great allergy related companies and we are updating it often. I'd like to have a more extensive allergist section-but it's difficult as again-they are not all created equal. But at least at my site you can do a search for whatever topic/product/etc. you are looking for and will find a website to match.
Any questions-definitely let us know!
Ruth

Posted on: Wed, 07/15/2009 - 1:50pm
Dyane's picture
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Joined: 07/15/2009 - 10:16

Thank you so much! As I said, her pediatrician will not be happy at what happened while he was away. I think she is special to him because of what we went through and he was there during the whole ordeal at birth, so he does offer her special hands-on treatment for everything.
I finally did get a call back from the allergist he recommends and we have an appointment on Wednesday.
I will check out all of the links you so kindly provided!

Peanut Free Store

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