Son newly diagnosed - I have a MILLION questions

Posted on: Sun, 08/09/2009 - 12:24pm
SarahLiz's picture
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Joined: 08/09/2009 - 19:13

My two-year-old son was just diagnosed with a peanut allergy. Unfortunately, the allergy specialist we saw wasn't overly helpful. He was nice and offered to answer any of our questions, but at that point, I was really overwhelmed and didn't have much to say. Now, however, is a different story. I've been doing a lot of research online and have some questions...

1. Do you have your child wear a medical alert bracelet?

2. Should my son's daycare keep the EpiPen in his room? Right now they have it locked in the director's office. That seems too far away if there is an emergency ...

3. How many EpiPens do you have on hand? Should you always have two available? Like two at home, two at daycare, two at Grandma's, etc.?

4. We booked a flight for October BEFORE we knew about my son's allergy. It turns out we are flying Northwest/Delta and THEY SERVE PEANUTS! I am FREAKING OUT! I need some advice about this.

I would really appreciate any help. I have ordered the Peanut Allergy Answer Book, but in the meantime, I need some advice, answers, support. I am overwhelmed. I just want to do what's best for my son.

Thank you!

Posted on: Sun, 08/09/2009 - 11:46pm
BestAllergySites's picture
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Joined: 03/15/2009 - 21:46

Sarah,
Welcome to peanutallergy.com, I'm glad you found us!
It is very common to leave the allergists office like you are in a bit of a fog after a new diagnosis. Hopefully I can help with some of your questions.
1. Yes, my son (age 6.5) does where a medical alert bracelet. He did not in the early days when we were with him all the time, but now feel it necessary when he is at school etc. He's gotten quite used to it and doesn't mind it at all, and we started with it late.
2. Epi pens should be with or near the child and NOT, I repeat NOT locked up. There should be one in his room and the teacher can carry a fanny pack/epi pack with one where ever he goes. Locking an epi pen up has proven dangerous for some children. There is the issue of who has the key, finding the key, fumbling with the key etc.
3. I have two at all times (currently epi jr) in the event that one fails or I need another dose. Yes, you should have 2 everywhere. Better safe than sorry.
4. You could 1. cancel your flight if possible. If not then I would call the airline now and warn them of your allergy and that you would like a. peanuts to not be served or b. a buffer of a row or a few rows in front and behind you where peanuts are not served. Also remind them at ckin and upon boarding the plane. Also, you should pre-board.
I really don't know if they will accommodate you or not. My son had an in flight reaction on southwest at about the same age after sitting on the floor between seats for a few minutes.
Keep in mind that even if they do not serve peanuts during your flight, they will have on prior flights and the plane will still be contaminated. The planes are cleaned, but more thoroughly in the am so an early flight is best.
If you must fly with them, bring wipes to wipe down the arm rests, tray etc. Bring or get a blanket to drape on the seat if you feel it is necessary. (This is why preboarding is handy). Don't let your son play or sit on the floor. Ask others around you or have the flight crew ask the entire plane not to eat their peanuts or tell them there is a passenger with a peanut allergy.
I hope this helps some. Any questions feel free to ask. It will get easier in time! :)
Ruth

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