Our little girl...

Posted on: Fri, 02/19/2010 - 1:48pm
CaboPeanut's picture
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Joined: 02/19/2010 - 20:26

We have two kids, a boy, 6 and a girl, 3. Mia was diagnosed with severe PA at one-year, a 5 out of 5. We discovered this after a heart-racing incident at a resturant, wherein she broke-out in hives started coughing uncontrolably, until her lips turned blue. Children's Benedryl stopped it quickly. The episode was due to oral contact with a peanut-butter sandwich three hours prior. We now carry an Epi-Pen

Since then, we've been very PC, or Peanut Concious, reading labels and not taking any chances with foods that were produced on equipment that also...

We've been told she has a 30% chance of growing out of the allergy.

I see peanuts everywhere!

Our son goes to the public school we're going to have to send her to, and they serve peanut-butter sandwiches every Friday at lunch! How do I communicate with an AZ school to stop this? Can I? Can we rightfully disrupt American tradition, one that I whole-heartedly agree with, for the sake of our fears, right or not?

WHAT'S THE BEST WAY TO APPROACH THIS?

Posted on: Mon, 02/22/2010 - 5:48am
BestAllergySites's picture
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Joined: 03/15/2009 - 21:46

CaboPeanut--Lots of questions and concerns to answer there in your post.
The best way to approach this is to figure out what it isyou want and NEED to keep your peanut allergic child safe.
That being said. Yes--you do have rights.
Life threatening food allergies are considered a hidden disability under section 504 and ADA.
This means that any school that receives state funding--must make accommodations to make sure your child is safe in school. What those accommodations are are up to you and the school to figure out.
So I would:
1. Figure out what it is you want and need.
2. Make an appointment with the school to see what their comfort level is and to develop a care plan
My school had no policy regarding kids with food allergies and do to my efforts they now do. They also used to serve peanut butter sandwiches and have since stopped.
The key is to really identify what you need to keep her safe and then go in and negotiate it with the school. It also helps to have an allergist letter on hand outlining the allergies and their severity.
My website has an extensive section on dealing with food allergies and school.
http://www.bestallergysites.com/allergysupport/allergy-101/school-resour...
Any other questions--feel free to ask. I promise--it will get easier in time and the worries to lessen. :)

Posted on: Sun, 02/28/2010 - 3:31pm
CaboPeanut's picture
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Joined: 02/19/2010 - 20:26

Thank you so much! That was so helpful. I found the brochure for AZ on your site. Just what I was looking for. Thank you! Thank you!

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