New Here...Frustrated Mom of PA Child

Posted on: Tue, 02/24/2009 - 2:58am
worriedseattlemom's picture
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Joined: 02/24/2009 - 09:46

Hello everyone.

I recently discovered this website and I'm glad I did! Great wealth of experiences to share. My daughter will be 5 this June and was diagnosed at 2 with with a +4 RAST for peanuts. Her first reaction (and only severe one....she's had episodes with mild hives since...but we've also been very, very careful and just plain lucky I think) was to a smidge or pb on a bananna slice and it was red, blotchy hives and respiratory distress.

She's also tested positive for sesame seeds, hazelnut, walnut, sunflower seeds. While scary, her allergies have been manageable until now. I'm looking at Kindergarten and I'm just so scared that I cry when I start to think about it. I've researched many options in my area and I'm just not satisfied that the staff takes this allergy seriously enough. They just have this casual attitute about it (as does many of my family members) and I'd just like to see how casually those same people would treat if they were leaving their child around a substance that could kill their child in minutes.

I've worked so hard to keep her safe and protected for the last three years and now I feel like I'm sending her into an environment filled with just what we've been avoiding! It's tough. I know that chances are she'll be just fine, it's just that slim chance that "what if" that is keeping me up at night. I'm considering home-schooling but my husband is totally against it and my daughter is SO social. She goes to a nut-free preschool and LOVES it, not to mention that I really don't want to homeschool. I have my own ambitions that will have to put indefinately on hold if I choose to homeschool, however I will make that sacrifice if it means keeping her safe.

Ugg. I don't know why I posted but it helps just to type these feelings out. I'm really struggling with what to do and it's helpful to read the boards and connect with others in similar situations.

Thanks for listening.

Posted on: Tue, 02/24/2009 - 3:42am
christinesmom's picture
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Joined: 02/24/2009 - 10:30

Hi. I'm Sarah. My 3 year old daughter was recently diagnosed with a peanut allergy. I have lots of questions that I hope I will be able to find answers for here. We were referred to a local allergist who seems pretty knowledgeable but after seeing him I still have a lot of questions. I feel funny about calling him back so many times. He's nice though and has always returned my calls. But then I come up with MORE questions. He prescribed 2 epi pens to start with. Is that enough? My daughter will be starting preschool in the fall and the school serves peanut butter and jelly for lunch at least once a week.
Thanks for taking the time to read.

Posted on: Tue, 02/24/2009 - 6:21am
jenniferbfab's picture
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Joined: 05/04/2008 - 12:43

Christine's mom: I think you need more epi's. You need at least 2 for school, at least 2 for home, 2 to carry on you. I say 2 b/c sometimes you may need a second or a mistake can happen (accidentally injecting yourself!)...I believe there are still coupons on the epipen site too, BTW
JenniferB
www.foodallergybuzz.com

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