New here and a scared mommy

Posted on: Wed, 02/04/2009 - 1:02pm
Danaj's picture
Joined: 02/04/2009 - 19:40

HI guys,
I think I might have found the website I need. Our daughter(2) was just diagnosed with PA. She had eaten peanut m&m's and a nutter butter cookie at Christmas with no problems then a few weeks ago...we were making cookies...and she broke out in hives and her eye sweled shut. After a skind test we sound out she was positive for PA. The Dr told us te scale goe to 4 and she's a 4+. My heart sunk...and I ave been so scared ever since and can't think of anything else. i just don't even know where to start...we have removed the peanut products from our home and the "may contain" and the products that state they were made in the same plant as peanuts...but it's all the gray area that scares me. Where do I start??

Posted on: Wed, 02/04/2009 - 11:35pm
scmom24's picture
Joined: 02/04/2009 - 06:05

I totally know where you are coming from. I posted I think yesterday my story about my son. I'm sure at some point he had some contact with peanut something before his first reaction... but not anything that I can remember. Anyway... our first reaction was much the same as yours and it was very scary. Now knowing that he has PA is even worse in some way. I am at a loss as to where to go or what to think. Sometimes I think I'm going overboard and other times I think I'm not doing enough. I hope this is the right place to get the answer and support we both need as new PA moms. I feel for you....

Posted on: Wed, 02/04/2009 - 11:43pm
doofusclo's picture
Joined: 12/03/2006 - 09:00

Sorry you have to join us. You might start with one of the good books on the subject. People like The Peanut Allergy Answer book and Food Allergies for Dummies.
There are some great internet sites like this one.
You also need to find a good allergist who can answer your questions and prescribe an epi pen jr.
You might want to consider getting your daughter a medic alert tag to speak for your daughter if you cannot.
Food that say may contain or made on same equipment or made in the same plant might be cross contaminated with an allergen. Most of us feel like it is not worth taking the chance and avoid those foods. You should know that manufacturers are not require to put those particular warnings on foods. So if you don't know a food you call and talk to the manufacturer.
Being scare and depress is normal. Your lovely daughter has a condition that make her different and vulnerable. It is tough.
I cried for a couple of days after finding out my daughter had allergies to milk, eggs, peanuts, tree nuts, and rice (the allergist didn't really believe that one until her scratch test.) You are going to be scared but you can adjust to this.
I would also say look at the FAAN site. They have a place where you can sign up to receive food recall warning (mostly because foods where not labeled properly).
You also need to talk to your daughter about it. She needs to be able to say no when people offer her a treat you have not checked.
Try not to get overwhelmed by the information.

Posted on: Thu, 02/05/2009 - 2:21am
ElizabethY's picture
Joined: 12/18/2008 - 05:36

Danaj - The initial diagnosis is really hard, I'm sorry. I have a two year old with a PA, too. I don't have much to add to the suggestions that have been made, other than to offer the fact that there is a lot of research in the works now, and we're really hopeful we won't have to deal with this for too long.

Posted on: Fri, 02/20/2009 - 2:29pm
Geeno's picture
Joined: 02/20/2009 - 21:24

Yo I was diagnosed around the same age, I'm 22 and living strong so don't worry too much.
Make sure everyone around her knows, daycare, teachers, classmates, friends parents. Teach her to read ingredients ASAP, it'll strengthen her reading skills and responsibility early on. It never hurts to also have an adult double check.
It's easier to avoid that you'd think. Whenever I tell people about my allergy the typical reaction is "I wouldn't be able to deal with it!". As long as you instill the understanding in her, she will grow into a lifestyle that is cautious and peanut free.
Watch for cross contamination!

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