Hi - 1st time poster / peanut allergy mommy

Posted on: Thu, 04/15/2010 - 5:18am
ElliesMom's picture
Joined: 04/15/2010 - 12:10

Hi -

I'm brand new to the world of peanut allergies and looking for more information and support.

My daughter had her first peanut reaction back in January (a few months shy of her 3rd bday). She touched a peanut butter sandwich to her lip and immediately felt ill, asked for milk/water, made faces like she act a lemon. Within minutes her upper lip doubled in size. It was extremely frightening. We gave her benadryl and were directed to go to the ER for evaluation. Within an hour her symptoms subsided and there was no wheezing, hives, vomiting etc.

We've had a follow up visit with an allergist who performed skin prick testing for Peanuts only. She was diagnosed as "+4 / severe" based on her skin reaction. No blood testing done and we are directed to return in 1 yr for repeat skin prick (again Peanuts only) although we are cautioned to avoid ALL nuts from her diet and our household.

She was first exposed to peanuts at around 18mos with no issues; she had PB cookies, reeses PB cups; PB sandwiches etc. on many occasions for the past year and 1/2 without issue up until her reaction this past January. It was my assumption that after the first few exposures with no reaction we were in the clear but apparently that is not the case...

If anyone has any advice as to what we should do next I'd greatly appreciate it. We carry our twinjet everywhere and are crazy about being peanut free. She starts preschool next fall and although it's a nut-free pre-K I'm still really nervous her teachers won't be able to spot her reacting etc...

thanks for listening :)


Posted on: Thu, 04/15/2010 - 6:17am
cmvervais's picture
Joined: 03/09/2010 - 16:21

My 2.5 year old daughter was diagnosed last month. It is definitely shocking and scary! She ate the end off a pretzel with peanut butter filling, and her whole face got swollen with hives. Fortunately, it didn't affect her breathing, etc, because I had no idea what I was dealing with!
I guess you probably already know, but the biggest thing I have learned is to never trust labeling (if you are in the US), and to talk to manufacturers directly to determine if the product was made on shared lines with nuts. I've had to start baking alot of our breads and desserts from scratch, since it's hard to find some kinds of processed foods that are nut-free.
As far as school goes, I would have a special snack box in the classroom for your daughter. If the class has any cooking projects, or treats brought in from other parents, then she can choose a treat out of her box. That way you don't have to worry since you can't read all the labels.... I also have a medical id bracelet for my daughter to wear at preschool. You should give the teachers a written plan as to how to deal with an allergic reaction.
Good luck, I'm new to this too. It's definitely life-altering, but I think it's manageable as long as we plan ahead and do our homework on safe foods.

Posted on: Fri, 04/16/2010 - 4:21am
BestAllergySites's picture
Joined: 03/15/2009 - 21:46

Welcome ElliesMom--CMvervais gave you some great advice!
I know it is confusing and overwhelming to get a new diagnosis. You are doing great just by coming here and educating yourself.
The most important steps are:
1. Always carry your EpiPen
2. Be cautious with any and all foods
It sounds like you've got the EpiPen issue down. Regarding foods--as CM said above--you need to be careful about packaged and processed foods. US labeling law only requires companies to list whether there is peanut IN the food item not in the facility or on the share equipment.
Many companies clean their lines and or allergen test. It's up to you and your own comfort level.
We try to support companies/foods made in allergen free facilities but do eat some name brand items without issue. It just depends on the brand and food.
We also keep all peanut and tree nut products out of our home.
Regarding school--as long as they are comfortable with food allergies and giving the EpiPen--you should be fine. If the school is nut free--chances are they get food allergies.
A word of caution--make sure they inform you of any class activities involving food or food containers (washed out peanut butter jars) so you can review and determine if it is safe or not.
Hang in there, it will get easier the more you read and learn!
Hope that helps!

Posted on: Thu, 08/26/2010 - 5:06am
marlinafig's picture
Joined: 08/26/2010 - 11:59

Hello I am a new mommy and very new to allergies as well. My ten month old daugher was at a big family event and was given snacks from her grandma shortly after her face swelled she was covered in hives and was having difficulty breathing. I rushed her to the ER where I was told She was having an allergic reaction and most likely peanut. I was given two Epi pens and some Benadryl like medicine. I am visiting my family for a few more days while my husband is deployed. I fly back home very soon and I am TERRIFIED to get on a plane with her. Any advice? I have no food allergies, so, I have never dealt with this.

Posted on: Thu, 08/26/2010 - 12:36pm
Mrsdocrse's picture
Joined: 01/16/2007 - 09:00

My advice for flying is call the airline. Let them know ahead of time. Get there early and ask the gate agent if you can board early and wipe everything down. Ask them at the gate what the policy is. Some will have a buffer zone. some will announce it and ask they passengers refrain from eating any peanuts... I always bring my own snacks anyway. We have fly a couple of times a year and have not had any issues. Life will be an adjustment from now on. When you get home call and make an appointment with an allergist and look for a local support group.
Good luck!

Posted on: Sun, 08/29/2010 - 9:14am
BestAllergySites's picture
Joined: 03/15/2009 - 21:46

When flying we always do the following:
Fly airlines that don't serve peanuts (if we can)
Preboard the plane.
Bring wipes to wipe the tray, arm rest etc.
Bring our own snacks and always bring Epi Pens.
We do not let our child play on the floor or in between the seats.(after an in flight reaction years ago. Whatever is dropped on the floor gets wiped/washed or put away until it can be cleaned.
I hope this helps. We've flown many times since - all reaction free!

Posted on: Fri, 10/08/2010 - 8:30pm
jagmohan's picture
Joined: 10/09/2010 - 03:26

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Posted on: Sun, 10/10/2010 - 5:39pm
bettytaylor23's picture
Joined: 10/11/2010 - 00:28

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Posted on: Thu, 10/14/2010 - 4:08am
wehatepeanuts's picture
Joined: 10/12/2010 - 11:49

Elliesmom, Im also new to this...And heart broken..Ill be on here often if you need to message me , feel free

Posted on: Mon, 10/25/2010 - 2:15pm
marlinafig's picture
Joined: 08/26/2010 - 11:59

Thank you,
Thank you for all the tips. We flew and landed safely. I even threw her first birthday party without a hitch. I am still adjusting and I know when my husband returns from his deployment he will need to adjust as well. I love this site and any information I can get my hands on. Trying to give my baby everything! I dont want her to miss out.

Posted on: Tue, 11/16/2010 - 5:22am
wehatepeanuts's picture
Joined: 10/12/2010 - 11:49

Welcome! Ellies Mom
Your story sounds almost identical to mine.Except my daughters eyes were all swollen , and hives aorund mouth..Just by touch of PB..Never ate any!.
And yes, my daughter goes to preschool next yr, adn the one she may go to is not what they call peanut free..
They follow all the rules, but more like they do in elementary school...They said they are so used to this, and they take it very seriously..Im trying not to worry as she will go 2 days for 2 1/2 hrs each day..SO I dont thin a lot of eating will be involved, but this whole thing still freaks me out...


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