DS 17 mo. Analphalactic

Posted on: Thu, 06/30/2011 - 12:25pm
Fkaerin's picture
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Joined: 06/30/2011 - 19:22

I am a first time mother of my dear son CJ, born January of 2010. We make a great team. After a stressful birth from shoulder dystocia ending with chest compressions, CJ and I have battled with food his life here on earth.   At the age of 4 weeks CJ began suffering with severe episodes of GERD as a result from MSPI. He ended up in the ER after choking one evening. After getting past what was not just colic, he was RX'd 20 and then 40 mg of Zegerid by our lovely GI Dr. Because GI symptoms including bloody stool, reflux, incessant crying and horrible rashes, did not subside I began the TED at 4 months and exclusively breastfed him until 6 mos. on this diet. At a year we performed an upper GI endoscopy with a biopsy and PH probe followed by a RAST test. Reflux was present but not severe. The esophagus showed furrows but no abnormal amount of eosinophils were present. The RAST test showed a level 1 on peanuts and considered negative. All others were 0.

At 17 months after being successful with all other food trials, and having been advised to do so,  I trailed peanut butter. CJ had 3 bites loved it. About a minute later he began shoving his hand in his mouth and screamed. He rubbed his eyes and his face turned bright red broke out and swelled up. He threw up  three times and had trouble breathing. I called 911 and gave him 6.5 mg of benadryl against the nurses wishes. The ambulance came and he was fine by the time we made the ER. The benadryl saved his life and we were sent home with two Epipen Jrs. 

We continue to battle together. 

Posted on: Tue, 07/05/2011 - 5:42am
cervonil's picture
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Joined: 04/28/2010 - 12:30

So glad you were smart enough to give him benadryl and call 911. It is a tough battle, but it gets easier when you start finding foods that are safe for him. Are they going to do any further allergy testing, or since the reaction just assuming he is not allergic to peanuts? You should definitely follow up with an allergist. I'm sorry things have been so tough, but I can tell from your post that you are the type of mom that will do everything possible to keep him safe - good job mama!

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