2.5 year old w/peanut allergy

Posted on: Mon, 01/04/2010 - 2:05pm
Dmansmom's picture
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Joined: 01/04/2010 - 20:54

Hi, we just got our results today that my son is allergic to peanuts. They said he is a 4 on a scale of 1-6, with 4-6 being high allergic reaction. We found this out, Christmas day, from him taking a bite of my husband's peanut butter cookie with the Hersey kiss on top. He did not like it, spit it out and was swatting at his tongue. Within minutes his face was blotchy red, with hives, and he was scratching his throat. Luckily he did not show signs of a breathing issue, but it was still scary. I figured immediately this reaction was the peanuts and decided to get him tested ASAP. Months before I tried him on a PBJ sandwich, which he also did not like, but no reaction at that time.

At this point, I am happy to know about this to prepare for the future, but sad for my son to miss out on some really yummy things (my hubby and I are big fans of peanut butter flavored treats, which we will now have to go without)I also fear of his young age, the protection he will need since he is too young to take care of himself and know the difference.

My doctor is only having me keep Benodryl on hand and is not prescribing me an epi pen yet. This concerns me. I am hoping that I can find others who have gone through this to help me handle this situation. Life is stressful enough and I don't know how I will not constantly worry about my son's situation when he is out of my hands.

Posted on: Tue, 01/05/2010 - 5:31am
BeyondAPeanut's picture
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Joined: 05/23/2009 - 13:28

I am sorry to hear about your son. Welcome to PA.com, you have found a great place to help provide both emotional support, and practical safety information and resources. The diagnosis of a peanut allergy can be overwhelming at first, but as you become educated you will learn to manage the allergy and feel confident that you can provide a safe environment for your son at all times.
My initial concern after reading your email is that your Dr. did not prescribe an Epi-pen. Allergic reactions are not always the same and so your son's next reaction may or may not be more severe or even life-threatening. For this reason, I would encourage you to ask your Dr. for a prescription for an Epi-Pen, even if it means getting a second opinion, then make sure to have it with your son at all times.
Search the boards and ask questions. Knowledge is not only power in this case it is safety!

Posted on: Tue, 01/05/2010 - 6:27am
kalelpeanut's picture
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Joined: 02/27/2009 - 12:02

Please demand an Epipen as soon as possible. it can save your son's life!

Posted on: Wed, 01/06/2010 - 10:06am
RIMom's picture
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Joined: 01/06/2010 - 09:58

We just found out yesterday that our almost 3 year old son has a severe allergy and will be taking him for allergy testing ASAP. Fortunately we were able to get an EpiPen at the ER. I've never worried about eating things with peanut traces in them, but after the episode with a PB&J sandwich yesterday I'm very nervous.

Posted on: Wed, 01/06/2010 - 1:00pm
Dmansmom's picture
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Joined: 01/04/2010 - 20:54

I wanted to share that because of multiple people informing me that I should get an EpiPen, I have made an appointment with an allergist for a second opinion and to get more information on specifics for my son. I don't even know if he just reacts from eating, touching, etc. peanuts. I am hoping I can get some more answers to my many questions this way.

Posted on: Wed, 01/06/2010 - 1:04pm
BeyondAPeanut's picture
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Joined: 05/23/2009 - 13:28

I am glad to hear the you have made another appointment. I hope you get a perscription for an Epi-pen. Please let us know how things go, and how you feel after the appointment.

Posted on: Wed, 01/06/2010 - 11:18pm
BestAllergySites's picture
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Joined: 03/15/2009 - 21:46

Dmansmom and Rimom--welcome to peanutallergy.com!
I'm sorry to hear of both of your childrens reactions and new diagnosis. I know that receiving a new diagnosis is a very difficult and frightening thing.
I want to add that it does get easier over time.
Dmansmom--yes--get a 2nd opinion. Given your post I think it is crucial you have an epi pen on hand at all times in the event of a reaction.
You said you gave your child peanut butter once before without reaction. Typically the first exposure to a food does not cause a reaction but if the individual is or becomes allergic--the following exposures can. There needs to be an initial exposure to introduce the body to the food/allergen.
I too was a HUGE peanut butter eater. Over time I've reduced my peanut intake. We don't keep peanuts/products in the house but on occasion I will eat them out of the house. To be honest--for me--knowing that something could kill my child really turns me off to it. Over time I've just lost interest.
Sunbutter-sunflower seed butter-is a fantastic peanut butter alternative that you can bake with and use much in the same way as peanut butter. It doesn't taste exactly the same BUT it is close and you get use to it.
Regarding may contains and cross contamination--we avoid warning labels like may contains as a study showed that up to 10% of products tested with warning labels tested positive for peanut protein.
Also--as an FYI--some people react upon ingestion only. Some people react in other ways. My son reacts if he touches the allergen and touches his eyes nose or mouth in addition to ingestion.
Allergies can change over time so if a person seems allergic by ingestion only--keep in mind it can change.
Any other questions--feel free to ask. There is a lot of information here and I'm confident once you both get reading you'll feel much more comfortable with things. :)
Ruth

Posted on: Sat, 01/09/2010 - 7:40pm
TracyC's picture
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Joined: 11/01/2009 - 08:31

Dmansmom -
I would be very concerned with a doctor who refused to provide you with an Epi pen. The reaction you described is fairly significant.
To me, this shows a lack of understanding regarding PA/TA, and while that's to be expected from the general public, it is very disconcerting to have it come from a doctor.
This isn't medical advice, but there are no contraindications to administration of Epi in response to an allergic reaction, meaning there would be no reason NOT to give it if one was having anaphylaxis.
The fact that your son had the diagnosis of a PA and the doc wouldn't prescribe Epi is disturbing. Not sure this is the doc you want helping and guiding you over the coming years.
Tracy

Posted on: Wed, 01/13/2010 - 12:44pm
Dmansmom's picture
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Joined: 01/04/2010 - 20:54

Well, I wanted to thank everyone for your concerns. I took my son to an allergist today and unfortunately they could not do any testing to get more results because of a medication he is on from a cold, but will return next week for it. We did however get a prescription for two Twinject Epipens (one for me and one for his daycare). I also got a lot more medication with the fact that my son might have asthma, eczema, and different meds to clear up his sickness. I feel like my own drug store right now. I am still very overwhelmed with all this and am trying to take it one day at a time. My friend who has a daughter one day older than my son also, just recently, found out her daughter also has a peanut allergy among other things so we are going through this together.
I do feel much better that I pursued an allergist and am happy to be able to get more answers from someone who is more knowledgeable in the area.
On a side note, I received the book "Allie the Allergic Elephant" today in the mail that I ordered for my son. It is very cute and hope it helps him to understand his condition.

Posted on: Wed, 01/13/2010 - 12:51pm
kalelpeanut's picture
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Joined: 02/27/2009 - 12:02

My son loves Allie the Allergic Elephant book! =)

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