Hi I am new here. My son is 3 years olds and had a severe

Posted on: Thu, 01/02/2014 - 3:29am
austinsmommy's picture
Joined: 01/02/2014 - 10:27

Hi I am new here. My son is 3 years olds and had a severe reaction to peanuts for the first time over Christmas. We ended up rushing to the ER and having an epipen administered moments after we arrived. It was scary and I am shaken and pretty much afraid of ever leaving him. Hoping to meet other parents on this site to help myself and my husband navigate this new development in our life.

Posted on: Sat, 01/04/2014 - 10:40am
mom1995's picture
Joined: 11/09/2004 - 09:00

Sorry for the difficult event. As the mother of a now 18 yr old daughter the very best bit of advice I can give is you can not let it define your sons life. There will be moments when the urge to run and hide will come. Help your son to learn to manage his world and not let it be an excuse for not doing things. Will there people who won't get it? YES. But that can be said of everything. Empower him and lead by example on how to stand up without disrespecting others.
'We never let our daughter use it as an excuse but at the same time we did not allow others to leave her out. She is a senior this year and she has the ability to stand up to ANY authority figure and keep herself safe. She has had to a few times but I know she will be able to go off to college next year and keep herself safe. When the time comes to enter the work force I know she will already have the tools to deal with folks who just won't get it.
She has attended public schools the whole time, she has gone to camp, she has gone on sleep overs, birthday parties, played sports and most every other typical kid event. All the while she is in the worst 1% case. She will be going to the ER if she touches a surfaces that has residue. She is allergic to all nuts so being proactive and aware is a state of being.
Read all you can, know your stuff when school time arrives, and don't ever be affraid of asking for things that will keep your son safe. Anyone who does not get it educate, quantify and if all else fails tell them they don't have a spot in your childs life. That is their choice.
This sight is a GREAT source of knowledge so know there truely is no such thing as a dumb question. Just ask someone will know. On the flip side you may also get those rogue bad seeds even here . But even they are a learning tool for the stupidness in the world.
Good luck. It is not as bad as you feel right now. ????

Posted on: Mon, 01/06/2014 - 1:25pm
rudy117's picture
Joined: 01/06/2014 - 19:38

We discovered my daughter's nut allergy when she had a reaction after eating a granola bar when she was six years old. When I realized what would be required to keep her safe, I was hysterical. I thought I was going to have to take extreme measures such as home schooling her, etc. First and foremost, you have to read the label of everything your son eats, even if it doesn't seem like something that has nuts in it. The first time I realized that I was going to have to read EVERYTHING, I was buying red hots to make homemade applesauce. They were processed in a facility with nuts. Then I knew what would be required. You have to read the labels of the foods every time you purchase them as well because sometimes the manufacturer changes the food product inside the package. For example, my daughter used to be able to consume Hostess doughnuts, but the allergen statement changed a year or so ago and now states that it may contain nuts. If you haven't already, go to your pediatrician or see an allergy specialist who will probably prescribe an Epi-pen and Benedryl(I didn't know to do this). Carry them with you, without fail. Follow up with further testing to be sure that it is only peanuts (my daughter is allergic to tree nuts too). Go online and research what foods to avoid and alternate names of nut products. You must also read the labels of sunscreens, lotions, shampoos, soaps, etc. Those products sometimes contain nut oils (shea butter, macadamia nut, ginko biloba). Also, if you have a bird or hamster, check the ingredients of the pet food. My daughter reacted to hamster food. Read the stories of others who have been affected (even if it is scary) so that you will have a broader understanding of what can happen. You may read about a scenario you may not have thought of. Above all, be vigilant. You may come across others that think that you are over the top cautious, trust yourself, that's what it takes. Finally, this is all very overwhelming and scary, but life does feel normal again, it just takes time and knowledge. My daughter was diagnosed seven years ago and we have had only a few minor reactions. No anaphylaxis. I have not once had to use the Epi-pens (although they always go with us). In time it will be just a minor inconvenience and not a major source of worry.

Posted on: Tue, 01/07/2014 - 12:59pm
AmberC.'s picture
Joined: 10/21/2013 - 15:35

Another important, crucial thing to know is this: the epi-pen is always your first line of defense. Those who have died from anaphylaxis have died from using Benadryl instead of the epi-pen.
They have the new "talking epi-pen." I highly recommend it.
As well, flying on airplanes is forever changed. Make sure you check policies before flying.
When you eat out, you should ask the manger first, and put it this way, "Can you accommodate a life-threatening peanut allergy?" If they can't, you have to walk away.
These are all tips I wished I had known when we started out.
There will be seasons where you think about this more than other times--learn to live with it, but always respect it!
God bless!

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