We Just Joined the RAST > 100 Club

Posted on: Wed, 01/04/2006 - 2:41am
SpudBerry's picture
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Joined: 07/23/2002 - 09:00

I know that there are several people on here that they or their little ones have a RAST score >100. My PA son just joined the club yesterday. My head is swimming - in "theory" I realize that the score he had 2 years ago (46) was just as life threatening as this one, but good grief, that doesn't mean that I actually wanted his test scores to show me >100.

I know that it won't change the way we live, we already had a pretty tight comfort zone.... but AARRRGGGGHHHHHHH!

Are any other of the club members around? How did you get past the news? Does it change anything for you? Or does it just add to the weight we carry around every day?

On a little bit of a brighter note, we had our PA son's twin brother tested as well this time - he got a big fat 0 - Yay!

------------------
Sherlyn
Mom to 6 year old twins Ben & Mike - one PA & the other not.
Stay Informed And Peanut Free!

Posted on: Wed, 01/04/2006 - 3:59am
Nutforce's picture
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Joined: 06/02/2005 - 09:00

My son started with a RAST >100, so he's been in the club from the get go.
I'm sorry your guy's score went up. The allergy is scary at any level/class, but I can understand how the >100 status would come as a shock after having a lower level.
I do find that people who know little about the allergy become more wide-eyed and respectful of our concerns as parents when I explain to them that anything over .35 is generally considered a positive allergy and our son's levels are over 100. But like you said, a peanut allergy is a dangerous allergy no matter what the level.

Posted on: Wed, 01/04/2006 - 4:00am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I'm sorry. This is hard news when you KNOW you haven't made any "mistakes," isn't it?
We've bounced around from >100, to about 88 kU, to back up >100. With NO major rxns to pn in over three years. We have not noticed any correlation in sensitivity or threshold either, as you probably know.
Kids like these TEND to be aerosol sensitive and contact sensitive, but beyond that, it varies too much from day to day.
*sigh* Occasionally, we get discouraged and think that maybe we do TOO much to protect our child-- after all, we've pretty much been rxn free for three years now. Might be time to relax the comfort zone, ya' know? But then we invariably get some reminder that not only are we dealing with RAST numbers that SCREAM "Do not *&^k with me" but also with a child that can be in full arrest in a matter of SECONDS, not minutes.
It makes it easier to explain to other semi-educated people why your child's food allergy is different from other "food allergies," though. "Off-scale" gets even their attention.
You just accept it after a while, and on some level you let go of the number. It just serves as a reminder to us that we are definitely not crazy for all that we do. And we do a lot-- homeschooling, etc...
Wishing you and your family peace.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 01/04/2006 - 4:20am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by SpudBerry:
[b]Are any other of the club members around? [/b]
I'm in *another* club?
oh, yuck. I hate clubs.
[i]just when I was getting used to the idea of being in a "special interest group".[/i]

Posted on: Wed, 01/04/2006 - 4:24am
Anonymous's picture
Anonymous (not verified)

Our little guy is in the <100 club too. It stinks to not see that number go down after 3 years of absolutely no exposure. It was at this point his allergist told me he will most likely never outgrow this allergy. THAT was depressing news since his first allergist told me the opposite.
I am more freaked out than I was before, but still taking the same precautions. What scares the heck out of me is when he becomes older and I don't have the same control over his environment that I have now. I just hope he will be level headed and smart enought to carry his Epi with him at all times and watch what he eats. The girl in Quebec that died from kissing her boyfriend who had eaten pb scares me to no ends!!!!!
I hold on the notion that there may be some sort of desensitization shots available by the time he's kissing girls!

Posted on: Wed, 01/04/2006 - 4:32am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Corvallis Mom:
[b]You just accept it after a while, and on some level you let go of the number. It just serves as a reminder to us that we are definitely not crazy for all that we do. And we do a lot-- homeschooling, etc...
[/b]
Should I understand this to mean I'm supposed to be homeschooling my >100 cub? (again?) News to me. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 01/04/2006 - 4:36am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

Sorry. we're not in the '>100 RAST for Peanut club'
Can I still play with you though?
I mean... I in the '>100 RAST for Milk or Egg' or something like that [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Jason
------------------
[b]* Obsessed * [/b]

Posted on: Wed, 01/04/2006 - 4:37am
MimiM's picture
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Joined: 10/10/2003 - 09:00

We're in the >100 (aka. "he's not one of the ones who will outgrow it")club.
Like you are doing, I just figured, we're not going to do anything differently.
Too high to outgrow.
We just need a cure!

Posted on: Wed, 01/04/2006 - 4:40am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

No No No, MB!! Just saying that this is what it means to US.
(BTW, we HS for a lot of reasons...)
I hate the notion of being in a special interest group too.... *sigh*
Does this mean we are "especially interesting" as well?
[img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Wed, 01/04/2006 - 5:16am
Nutforce's picture
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Joined: 06/02/2005 - 09:00

Jason, we'll let you into the club if you agree to design the uniforms and come up with the secret handshake.

Posted on: Wed, 01/04/2006 - 11:30am
ddcjtc's picture
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Joined: 01/04/2006 - 09:00

If the allergist said your child has outgrown his/her allergy would you be brave enough to test the waters?

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