we just found out

Posted on: Mon, 07/19/2004 - 4:19am
nheiges's picture
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Joined: 07/19/2004 - 09:00

We were in the emergency room for several hours Sunday night with our eleven-month-old son after he ate a peanut butter sandwich at a birthday party. We were an hour away from home when the symptoms started and we made the trip to the emergency room in about 40 minutes. It wasn't a life-threatening reaction and Prednisone finally got the symptoms to go down, but the doctor warned that subsequent reactions could be worse. Everything I've read on the internet so far scares the crap out of me!! There was already so much to protect him from - car accidents, child molesters, choking hazards, unsupervised swimming pools, a whole world of dangers for a little baby - and now, peanuts! I just wanted to find some other parents who are dealing with this and learn how to keep him safe and still lead as normal a life as possible. Thanks to any who reply.

Posted on: Mon, 07/19/2004 - 4:56am
PeanutKate's picture
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Joined: 05/24/2000 - 09:00

Hi. It is a scary time when you first have to learn how to deal with this condition. My son, now 10 has been living with this all his life and he is fine. We work hard at ensuring that he has opportunities to do everything that other children do. You will find some wonderful unbiased info at [url="http://www.aaia.ca"]www.aaia.ca[/url] and [url="http://www.foodallergy.org."]www.foodallergy.org.[/url] I also rely on the input and advice from members here. This is an invaluable community but always remember that this is personal not medical advice and there are lots of conflicting opinions here. I love this site for the wealth of opinions but you must choose your own path. There will be lots of decisions for you to make--my advice--choose reasonable risk over no risk as living must include some risk. Take care.

Posted on: Mon, 07/19/2004 - 5:04am
Anonymous's picture
Anonymous (not verified)

nheiges, welcome! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Sorry to hear about your wee guy, but at least you found us! Please remember that there is never any question that is too stupid to ask and have answered here. You will find information, support, caring, concern, and encouragement here. Sometimes a lot more so than you do in *real* life.
Take baby steps right now as you learn what you need to learn to keep your child safe right now.
My PA son is 8-1/2. He was diagnosed at 18 months. It is a journey and it is a journey that changes with different experiences, different ages, different stuff just going on.
Try to take it one day at a time and don't worry too far off into the future. Find out what you need to find out now to keep your son safe now and go from there.
Are you planning on seeing an allergist?
Were you prescribed an Epi-pen at emerg?
Yes, there are certainly differing opinions here, as PeanutKate mentioned (for example, I wouldn't say that FAAN was "unbiased"), but bottom line, at the end of each day, we're all in this together and all share at least ONE thing in common - PA.
Glad you found us. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Sorry you had to. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 07/19/2004 - 9:58am
kkeene's picture
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Joined: 10/20/2003 - 09:00

Welcome
Your expience sounds very familiar. my son was 10 months at the time. Now he is 3 1/2 & doing good.
There are wonderful sites as already mentioned.
Please feel free to ask questions if you have any. We all try to help each other as much as posible. There truly is nothing nicer then having other people that live with PA to talk to, as they understand, As you will find out.
You didn't mention what state or prov. you are in. I have noticed several people share info & form a small support group once they realize how close they are to other members.
I personally am in Mich./Ont.
feel free to email me if you ever need anything.
Best wishes
[This message has been edited by kkeene (edited July 20, 2004).]

Posted on: Mon, 07/19/2004 - 1:26pm
Anonymous's picture
Anonymous (not verified)

kkeene, I'm confused (what else is new, I know [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ). How can you be in Ontario and Michigan?
I know I read somewhere I think to-day that you said you live where your husband works but would prefer to live elsewhere (or something). Sorry. Not phrasing it correctly. It's been a long day.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 07/20/2004 - 3:02am
nheiges's picture
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Joined: 07/19/2004 - 09:00

Thanks for the welcome! This seems like a really helpful website/community. We have an appointment with an allergist in half an hour.

Posted on: Tue, 07/20/2004 - 7:14am
Anonymous's picture
Anonymous (not verified)

nheiges, please let us know how it goes. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 07/20/2004 - 8:04am
nheiges's picture
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Joined: 07/19/2004 - 09:00

What a long day! We saw the pediatrician this morning, the allergist this afternoon (love the allergist :-)) and then a phlebotomist at another place where he got blood drawn. That was really no fun for the baby. I was rather frantically trying to distract him with the cellphone ringtones and got one or two smiles among the cries. The allergist said it sounds like PA and the blood test is for peanuts as well as "the seven majors." We'll know in a week. The allergist is good for me because he isn't an allarmist sort of person. I felt more relaxed after talking with him. He was encouraging that if we can keep him from having more reactions he may either grow out of it, or not have severe reactions when he is older. Thanks for asking!

Posted on: Tue, 07/20/2004 - 8:16am
Anonymous's picture
Anonymous (not verified)

nheiges, do you go back in a week for the results? He only tested for the eight major food allergens, nothing else? Blood test? Was there a reason why he only tested for the eight?
Were you prescribed an Epi-pen to-day or is the allergist waiting for the results to come in?
Yes, your son does have a 20% chance of outgrowing the allergy. The key is keeping him reaction (anaphylactic) free.
Good stuff! Please let us know what happens next week. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 07/20/2004 - 9:46am
kkeene's picture
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Joined: 10/20/2003 - 09:00

Alternative to Mainstream what can't a person be in two places at the same time???
Sorry had to ask [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I'm in different countries for my different personalities, LOL
No, Really
I am from Ont. but live in Mich. I live near the Windsor/Detriot boarder & often spend time in the Sault Ste Marie (us & Canada)Area.
Sorry I didn't make that more clear the first time. lol
I'm just used to having like 2-3-4 location for my life.
I am lucky as for being able to get both Canadian & Us products. I just wish I could get Chapman's home before it melts. lol

Posted on: Tue, 07/20/2004 - 10:14am
nheiges's picture
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Joined: 07/19/2004 - 09:00

Yes, he did get a prescription for an epi junior pen (I have to get it tonight after he's asleep - we were just too tired to make another stop today). They took blood because the doc thought the skin test might provoke an allergic reaction. Yes, the eight major allergies plus an overall allergy level test (I don't remember what he called it and I'm not sure I understood correctly). We'll get the results next week, and I'll take notes. Does that sound like what an allergist should do?
I was in Windsor once - lovely city! Especially after spending time in Detroit!

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