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Posted on: Sun, 06/01/2003 - 11:15pm
Anonymous's picture
Anonymous (not verified)

I have started my son carrying his own epi-pen. Right now it is in a fanny pack, but that's temporary. I was hoping to get a sturdy fanny pack that would fit his waist, but now I'm thinking about the e-belt. Could anyone who has one answer a few questions for me?
Does it fit properly around a small waist? My son is five. I had to sew in the belt of the fanny pack.
Is there room for any antihistamine? He carries two chewable antihistamine (as he has not had an anaphylactic reaction our first line of defense is antihistamine).
Any and all opinions welcome.

Posted on: Mon, 06/02/2003 - 7:12am
CVB in CA's picture
Joined: 10/15/1999 - 09:00

My son has the small size e-belt and he is 7. He is very slender and only wears slim size pants or all-around elastic waistband. He is about 20 and 1/2 inches in the waist.
Although Zoni recommended the next larger size and taking it in, we are happy with the small one. He is no where near outgrowing it.
It's quite rugged and is wearing very well. I feel like I got full value now, though it does seem very pricey up front. However, I have certainly spent my share on little fanny packs, eyeglass holders, cell phone holders, etc. They didn't work as well, last as long, and were more noticable.
Problems- 1) A child sitting behind my son kept snapping the cap off when my son sat at his desk in school. The teacher could not see this, so kept reprimanding my son for turning around. They were moved apart so the problem was solved. I'm sure this kid would have tried to open a fanny pack also, but he could not seem to resist pulling the velcro seal strip that holds the cap down.
2) I have had to tape his prescription onto the belt because the epi pen fits so tight in the holding tube. The school insists the prescription be visible on the belt. I wish there was a plastic window on it or something similar for instructions, etc.
3) Our dog finds the belt irresistable. She loves to chew the leather cover over the plastic tube holder and the rest of the belt as well. It probably smells like her "pack mate" and it's chewy besides. I have to constantly make sure it is not left in her reach when it is removed at home.
4) I'm also wondering if there is anyway I an ever going to be able to get it clean again. It's absorbed a fair amount of playground dirt and sweat after a year. It's not machine washable due to the leather cover. Maybe zoni should offer it in heavy ballistic nylon instead of leather.

Posted on: Mon, 06/02/2003 - 12:28pm
Anonymous's picture
Anonymous (not verified)

CVB, a few questions regarding the problems:
1) If the epi-pen is held in by velcro, is it tight enough not to fall out?
2) I could have the same problem here. Our school also insists prescriptions be labelled properly. (Sounds like a good idea to me, but I never considered about the carrier causing a problem with that.)
3) We don't have a dog [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
4) Has dirt gotten inside the epi carrier? Is there a concern that it might not work (if dirt covered the end)?
My son is very active, and the class goes to the playground daily.
This still sounds better and safer than the fanny pack we are currently using.
Have you contacted the manufacturer with your concerns? When enough people have the same complaint sometimes these companies actually listen.

Posted on: Tue, 06/03/2003 - 5:03am
anonymous's picture
Joined: 05/28/2009 - 16:42

When I ordered Ryan's e-belt, the co. rep. asked for his waist size and made a recommendation to me on which one to order. I believe it can come with the antihistamine pouch, but I gave my folder of info to one of Ryan's future teachers for review yesterday.
Ryan wears his everyday to school and dirt on the velcro or the cap unsnapping isn't an issue because he wears it under his big shirts. Virtually everyone forgets he wears one, including his teacher.

Posted on: Tue, 06/03/2003 - 6:56am
CVB in CA's picture
Joined: 10/15/1999 - 09:00

We have never got dirt or sand inside the protective tube holder of the e-belt. It is just big enough for the pen, not including the yellow transparent plastic tube. That is why you can't stick the presciption on the yellow tube- it won't be in the holder. If you put the scrip right on the pen, you would obscure the instructions and make the diameter too large for the pen to fit.
The cap fits tightly on its own. The velcro strip is just extra insurance and helps pull the cap off. It makes a small muffled "whomp" noise like a rubbermaid container when it is opened it is so tight. (Probably the big attraction to yanking the cap off for that other kid).
My son does wear it under his shirt, but his shirt is usually not tucked in. Or at least it seldom stays that way. The real dirt on the belt is mostly from him rolling around in the dirt and grass as little boys tend to do. It's been sort of a cumulative thing.
Also, he often wears it against his skin under the shirt so has sweated into it, etc. It is like the amorphous sort of grunge that can accumulate on the inside wrist band of a watch than actual honest dirt. That is what bothers me more.
The belt has also been soaking wet once or twice, but the epi was well protected. I wouldn't recommend immersion, but certainly not a concern if hit by a water balloon.
What I ended up doing on the prescription was cutting epi pen box up. I took the section with the scrip on it and covered it with transparent packing tape front and back. Then I taped that around the holder several times with the tape. This is that packing tape that is about 3" wide on a fat roll. It held up well, but I check on it periodically. The tape on the inside wears a bit. The tape touches the nylon belt, but not the leather tube. It forms a loop over the tube. I'm not describing this well. I am renewing the pen now and plan to laminate the scrip over at the copy shop rather than using so many layers of tape.
My sons belt does not have the anthistamine pouch or the inhaler holster as there just wasn't room. The tube pretty much covers the width of his back. He can't actually wear the tube part to the side as he is too narrow in that dimension. He either wears it across his back or across his stomach. He rotates the tube part to the front when he rides in the car or is in a chair that digs it into his back.
I didn't think about all this stuff until I responded to the post. I suppose I should send Zoni the original comments.
I also have one of the small snap cases from FAAN. I have forgotton the brand name of this one. It has a sliding lid you can put name and address, etc. and inside there is room for two pills, a pen and the scrip. However, it is just no way as sturdy as the ebelt. I use it inside a fanny pack or purse as the backup pen. I think it is very good for that.
It also has a magnet strip on the back of the snap case. In my experience the magnet is only big enough to demagnetize credit cards in your purse, not strong enough to hold it to the refrigerator exterior as recommended. The concept is that you take the pen off in the house, then put it on the refrigerator at home. Then it will be in most needed location, same location all the time. I tried it and all it does is slide down a bit and then fall off onto the floor.

Posted on: Tue, 06/03/2003 - 9:42am
Anonymous's picture
Anonymous (not verified)

Thank you so much for your help. Tomorrow I have to order one. I'll call medic-alert and order both his bracelet and the e-belt.
Thank you.

Posted on: Wed, 06/18/2003 - 10:59am
Anonymous's picture
Anonymous (not verified)

DS got his e-belt today. SUCCESS!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
The belt from medic-alert is the zoni, but where the velcro closure is it has the medic-alert name and symbol.
I took the instruction page out of the original container and cut the ends off - leaving all the writing, I just cut off the blank ends - and I pulled the prescription info off the tube and taped it on the french side of the instructions. It fits in the carrier around the epi-pen. I also cut the corners off one chewable benedryl and it fits in on top of the epi-pen.
He prefers it under his shirt (for now anyway). He had such a grumpy day today. This was the only thing he didn't get upset about - he couldn't wait to go out so he could wear it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Thanks for all your help.
[This message has been edited by AnnaMarie (edited June 19, 2003).]

Posted on: Fri, 09/12/2003 - 2:35am
Jodi's picture
Joined: 10/28/2000 - 09:00

I have been looking at the e-belt, etc.. to see what I could get for my PA kindergartener to wear, but I really for one don't like the price I see on them and two, don't like that there isn't room for the liquid Benadryl. I feel the need to keep that liquid Benadryl on him. I don't feel comfortable with the tablets. I just had my neighbor who is a good sewer take a fanny pack and cut it down to a smaller size so it wouldn't be so bulky. Fits the two epis and a trial size bottle of benadryl. Going to try it next week for school and see how it goes. If it doesn't work, will have to break down and get the e-belt or something, just hoping to avoid the cost...

Posted on: Fri, 09/12/2003 - 7:46am
Dawn's picture
Joined: 02/22/1999 - 09:00

We decided to go with the e-belt. (ds is also in kindergarten)
I, also, didn't like the cost, but chose it for it's durability. The tube that the epi slides into is very strong and will withstand my rather rough and tumble 5 yr old's antics on the playground. I wasn't able to fit even the Benadryl chews in it, but feel that while it is crucial to get the Benedryl, it can be given after the epi. Benedryl is kept in every room my child will be. (Along with extra epi's in the office and lunchroom.)
The playground was the touchy point, where someone would have radio for the epi. I'm okay with them radio-ing for the Benadryl (is that foolish?)
Anyway, it fits my son nicely and although I've had to enlarge the belt loops on most of his pants, it works wonderfully for us. 2 children have fussed at it a little bit, the first week, but it was nothing my son wasn't able to handle on his own. And now, everyone is used to it and no one bothers him. It is only for school, though. When we go out, we use our regular "Epi-kit" with 2 epi's and lots of Benadryl.
Just our experience [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Dawn (edited September 12, 2003).]

Posted on: Mon, 10/06/2003 - 12:02am
Jodi's picture
Joined: 10/28/2000 - 09:00

Has anyone ordered/used the medipouch that FAAN sells? I was just looking at their website. Asking as they are cheaper than the e-belt, but I don't know if I like the design as well.


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