We are under attack - any suggestions on how to handle?

Posted on: Tue, 09/09/2003 - 2:31am
Nutternomore's picture
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Joined: 08/02/2002 - 09:00

Due to leaks of some of the details of our son's 504, and some missteps on the part of our district, there is now a firestorm of controversy brewing re:my son's attendence at school.

This is not how one envisions making front page news. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]

Below are two articles from local papers, the first one is generally well balanced, the 2nd was written by an uneducated sportswriter who used inaccurate facts.

Contra Costa Times - [url="http://www.bayarea.com/mld/cctimes/6727529.htm"]http://www.bayarea.com/mld/cctimes/6727529.htm[/url]

SF Chronicle - [url="http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2003/09/09/MN79933.DTL"]http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2003/09/09/MN79933.D...

Needless to say, it's a pretty difficult day...

Posted on: Tue, 09/09/2003 - 3:01am
Nutternomore's picture
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Joined: 08/02/2002 - 09:00

Update - I've been contacted by school and I will have to pick up my child early. The media will be camping out at the school later today, and they recommend that pulling him a little early will spare him from having to deal with the crush of cameras.
I reluctantly agreed.

Posted on: Tue, 09/09/2003 - 3:07am
maggie0303's picture
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Joined: 04/14/2003 - 09:00

I am so sorry that you are going through all of this. I am very upset for you. I am glad that you will pick up your child early, as the media being there would be a pretty scary event for a five year old. I don't have a lot of time right now to write, but I just wanted to send some support. You will be in our thoughts today.
Maggie

Posted on: Tue, 09/09/2003 - 3:17am
leslief's picture
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Joined: 07/22/2003 - 09:00

I am so sorry to see this is you. I live in Mill Valley and am fuming from the front page article this morning. Alice radio was making fun of the child with peanut allergy and I came home this morning crying because I was so frustrated by the ignorance from which the article and the radio station was talking. There was nothing in the article to explain how serious a PA is or back you up. My dh wrote already sent an email to CW Nevius that I hope raises his consciousness at least to write a more educated follow up.
This article fuels the hysteria and ignorance of those who don't understand this isn't just "an allergy" and comes from the perspecitve that searching food for nuts is stomping on our rights. It was the perfect opportunity to present the seriousness of PA and Nevius chose instead to write a one-sided report fueling the fire.
I hope my dh's letter is published tomorrow and ideally that a followup article is written.
And again, I'm so sorry you are going through this.

Posted on: Tue, 09/09/2003 - 3:24am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

I just finished reading these articles and I cant imagine how you are feeling right now. It saddens me to read about parents being so insensitive about something that is a life or death situation for a small child. If that isnt parenting at its best!
Last I checked a 504 plan doesnt need to be approved by every parent in the school district.
How are the principal and superintendant handling this? Will they back you up 100%? Hopefully they will not cave to the pressure.
Im so sorry you are going through this, it must break your heart. My ds just started school too and whenever I say hes the one with the peanut allergy I get "OHHHH, hes the one!". So I know that many of them were saying the same thing about homeschooling.
Hang in there and stick to your guns. These people are disgusting. Keep us posted.

Posted on: Tue, 09/09/2003 - 3:59am
synthia's picture
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Joined: 10/05/2002 - 09:00

Be strong
Love this site
Synthia

Posted on: Tue, 09/09/2003 - 4:46am
Kim M's picture
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Joined: 06/09/2001 - 09:00

What bugs me most about these articles is the quote from the allergy-specialist-physician who says that there have been a "couple" of cases written up about airborne and contact reactions. Why do medical professionals refuse to acknowledge what every person here knows to be true? And I'm not speaking as a parent of a child who is airborne or contact sensitive, because as far as we can tell, she is not. But there are far too many stories on this site about those kinds of reactions existing and being very serious. This makes me crazy! And it encourages laypeople in their belief that we are all just hysterical and overreacting. Good luck to you, and stay strong. Hopefully this will blow over soon.

Posted on: Tue, 09/09/2003 - 5:17am
Dawn's picture
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Joined: 02/22/1999 - 09:00

Wow! I am so sorry that you are going through this! Know that you have tons of support here! {{{{{hugs}}}}}
Keep your hopes up - maybe this will turn into something very good. You will be in my thoughts and prayers!

Posted on: Tue, 09/09/2003 - 5:55am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Count me in as one of your many supporters. Can you think of anything we could do to help??? Do you want us to write letters to the editor? Send your principal a letter of support? Have you contacted FAAN?
Please don't hesitate to offer your ideas on what we might be able to do that would be helpful. I'm sure you'll just want to cuddle your little one a little extra today...
{{{{{{Big Hugs!}}}}}}}}

Posted on: Tue, 09/09/2003 - 6:04am
Linda-Jo's picture
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Joined: 07/30/1999 - 09:00

I'm furious! [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img] I can't understand the other parents' reaction. They seem so inconsiderate and selfish. What makes the life of one of their children better than yours? Obviously, those parents have never experienced their young child near death in a hospital emergency room.
I can't believe that comment to "home school" the child! Why isolate our kids so much, when we are trying to make them as normal as possible. I suppose they want you to "lock him in his room", too! I had someone say that to me once! [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
People now have to be more careful "where" they eat PB/nuts. In their own home is the best place! THat's what I tell the parents at my dd's school. I'm not asking you to give up PB, just eat it at home, away from my child! There are many other things to eat and stay healthy! Just ask a person with PA!
We're here for you! I hope things work out.
[This message has been edited by Linda-Jo (edited September 09, 2003).]

Posted on: Tue, 09/09/2003 - 6:27am
Jana R's picture
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Joined: 02/09/1999 - 09:00

Wow! I'm so sorry to hear how difficult the parents are being. Hang in there.
Did you know this story is now on the AP? Every now and then I do a search at [url="http://news.google.com/"]http://news.google.com/[/url] for peanut allergies or food allergies ("sort by date" for the latest) and this came up around the US - your name is even mentioned as far away as Florida.
Again, I repeat - hang in there and know you have our full support in your efforts to keep your little guy safe.

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