We are new here.. really need support..

Posted on: Thu, 10/21/2004 - 10:09am
terrade's picture
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Joined: 10/21/2004 - 09:00

Hello,

My name is Joanne and my son's name is Sebastien. We live in Canada and I thought Sebastien (11 months today) was perfectly healthy until 2 weeks ago. We were wrapping Halloween candies and my step-dad put an Oh!Henry bar and touched his lips with it. I said no but it was too late and done. Sebastien lips started swelling and then his face. We called 9-1-1 and they took like 15 mins. to get there. His whole body was beat red. If I didn't know it was my son I probably would not of recognized him because the poor little guy was so swollen. They gave him a shot in the ambulance and another one at the hospital.. We stayed in the hospital overnight and when we got out his bottom lip started swelling again so back to the dr. office for another shot. He was given two types of meds.. benadryl for a week and something else.. o.k. now my questions..
RAST test came back today and doc said highly allergic to peanuts.. Other nuts didn't show up as allergetic so should I still worry about other nuts. We have an EPI pen....
Is it true that every reaction gets worse?
I am sooo scared for when he starts school or sleepovers..
I guess kids can actually die from this which terrifies me..
Is there a certain time limit for the epi pen.. I mean I know asap but if it is not given can they die like within minutes.. ugghhh.. I am just stunned that he has this because no allergies in our family... Thanking you in advance for your support and any info you can give me..
Joanne and Sebastien..

Posted on: Thu, 10/21/2004 - 10:37am
lalow's picture
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Joined: 03/24/2004 - 09:00

I am sorry this happened to you and hope your son is doing better. You are at the right place for support though and there are a number of people here that have gone through similiar experiences.
It is usually recommended that you keep you son away from all nuts at this stage atleast 1) because of cross cantamination possibilities and 2) because your son has a greater liklihood of developing new allergies if exposed to tree nuts at a young age. Other things you might avoid longer than others are egg and fish.
I hope this helps.. As far as the epipen is concerned I believe they say if you use it you have about 20 minutes before the effects might wear off. It is usually recommended you carry two with you at all times.
------------------
Lalow
James 3yrs NKA
Ben 21 months PA,MA,SA

Posted on: Thu, 10/21/2004 - 11:47am
falcon's picture
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Joined: 07/03/2004 - 09:00

Welcome. My heart goes out to you. When I first found out about this board, I spent a lot of time on the the Safe and Unsafe Manufacturers, Snack topics. And avoided the Reactions topic since I was worried it would scare me even more. Eventually, I began reading the Reaction topic and found that it helped me a lot more than it scared me. Gave me a much better idea of what to look out for in a wide variety of reactions and how to respond. There is a lot of discussion on this site about epipens as well. The Manufacturer's topic helps steer you towards "safe" foods and saves you a lot of time. Also helps you feel more comfortable trying different foods, if you read that several other folks have tried it and have received the same information as you did from the food manufacturer.
I found it helpful to just read as much as possible on this site and to get some of the books recommeded. Also, checking some of the links to other sites is a great way to learn more and increase your confidence in dealing with food allergies.

Posted on: Thu, 10/21/2004 - 2:05pm
momjd's picture
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Joined: 02/24/2002 - 09:00

Marianne Barber's book- The Parents Guide to Food Allergies, provides a good overview on living with your child

Posted on: Fri, 10/22/2004 - 1:05am
Anonymous's picture
Anonymous (not verified)

Hi Joanne, and welcome to the board. I'm in Ontario too.
I agree with the advice someone gave about staying away from all nuts. There is a risk of cross contamination, and also, I think it would be confusing for children. Peanuts are NOT nuts, they are legumes, but that's kind of confusing.
It isn't absolutely true that every reaction gets worse - but act like that anyway. Because the next one CAN be worse.
As you read through these boards to find out what is/is not safe, make sure you are reading Canada specific information. Sometimes the same company has different labeling in different countries.
You said the Oh Henry bar touched his lips. Does that mean he didn't actually eat it? Make sure you start reading labels closely. Below the list of ingredients they sometimes write *may contain trace amounts of peanuts*. Stay away from them.

Posted on: Fri, 10/22/2004 - 2:13am
mistey's picture
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Joined: 01/18/2004 - 09:00

I just wanted to say welcome to pa.com. I'm sorry your son had the reaction, but you're at the right place. I have learned SO MUCH from the people here.
The beginning can be so overwhelming. But know that we are here and we care.

Posted on: Fri, 10/22/2004 - 3:38am
anonymous's picture
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Joined: 05/28/2009 - 16:42

terrade - I still consider my son to be perfectly healthy. He just can't eat peanuts! Your son is still a healthy boy! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
Lynee', mom to:
Cade - PA, egg whites, seasonal
Carson - NKFA, seasonal

Posted on: Fri, 10/22/2004 - 5:00am
terrade's picture
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Joined: 10/21/2004 - 09:00

I just wanted to say thank you sooo much for the feedback and support. We really needed it and I am sooo happy to have found this board.
Joanne

Posted on: Fri, 10/22/2004 - 5:17am
CorinneM1's picture
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Joined: 06/20/2002 - 09:00

Hello Joanne.
This is a wonderful board, with supportive parents and individuals who know exactly how you feel and understand.
Here a few things that immediately helped me. First off "The Peanut Answer Book". Well written, easy to understand guide for those who have PA, or parents of children with PA. This is a lifestyle change for your family, an somewhat of a stressor, but with education and constant vigilance you will find a comfort level.
There are various "comfort zones" here, I find. Some allow their children to eat "may contain peanut/nut products", some do not. Some have taken actions with their schools to install a 504 plan (look under Schools for all the info here), some homeschool, etc etc.
For us, the important immediate things that we needed to do and continue to do are: (1)read every label on every product that you purchase everytime. Seems like a lot, but in a few weeks it becomes habit. (2)We ask questions everytime we go out to dinner, and have found places that we frequent often where we know is safe for our son (Aidan, age 3/also PA only). (3)educate our family members on the use of the epi pen, and update them on PA, what is permissible, and what is not. (4)stay away from places like bakerys, ice cream parlors, asian and mexican places (unless called and ensured that they are nut free--also check out the resturant link here for more info). (5)Traveling has been something that we enjoy and have continued to do with proper precautions. (6) have more than one epi pen. Have two in your diaper bag, one or two at home in a easily accessible drawer or area, one or two for caregivers if apply. (7)get a medialert braclet. Your son may be a little small for this, but in the future it may be something that you want to have on him. (8)Have your son tested yearly or biyearly for allergen levels.
Also, since he is small (around the same timee that my son had his first reaction) delay other allergen foods, such as eggs till 3 and talk to your ped about when to introduce milk, soy and others. We waited till our son was over a year to introduce milk and soy, and just recently gave him eggs. There is a thought that if one is allergic to one food, the chances of being allergic to another food is higher. To date, Aidan is allergic to peanuts only. We don't plan on ever giving him tree nuts due to the high risk of may contains with other nuts.
You will get through this, and we will help you.

Posted on: Fri, 10/22/2004 - 7:36am
domesticgodess's picture
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Joined: 08/26/2003 - 09:00

Another Ontarian here!
Like your son mine had his first reaction before a year old (9 Months)
he swelled lilke a morbid balloon.
He had another reaction about a year later it was alot milder than the first, the third reaction almost killed him. This allergy is a finicky one. Some reactions really severe some not worth noting. Its the nature of this beast we call PA!
My son's scratch test showed severe his rast test showed mild but, his reaction was
off the charts. No, test is a sure thing for this allergy.
I am absolutely not trying to scare you, just sharing my personal experiences. This allergy is also controlable. It will be a long road but, possible.
I steered clear of all nuts from the first reaction, and still do now. We did not have him tested for tree nuts until last year ( postitive results) but the doc said it was wise to just stay away from them. I would do that if I were you. As well as the eggs until about 3.
You will find the support you need here, I have been dealing with this allergy for 9 years and still need opinions and still learn something new all the time.
Do not hesitate to ask your doctor for clear advice, you understand. Knowledge is power.There is no such thing as a sttupid question.
That's my best advice.(for now!;p)
~Jenna

Posted on: Tue, 10/26/2004 - 1:01pm
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Welcome! My daughter is 9. Just wanted to say that it gets sooooo much easier when they get older. I don`t worry about her anywhere near as much as I used to (still do worry of course, but don`t feel as stressed). As they get older, children with food allergies become very responsible. I think they are actually more responsible than the average child at any given age. By the time my daughter started preschool at age 3, she was responsible for only eating her own food. I told her that her photo was in her lunchbox. If you don`t see your photo, don`t eat your food (in case two different kids have the same lunchbox). One day the photo came out and she skipped her lunch. She was not sure it was her lunch. That was around age 4. By about age 8, she knew how to use an epi, and is 100% responsible for telling people if they need to wash their hands, she has corrected many slip ups by the school (for example when they had her eat in caf on peanut butter day although she was not supposed to, she went and got an adult and said she could not go in there).
So it gets much easier with time. I agree with the person who said just worry about what to do to protect him now at the age he is. The rest will come with time. As they watch how you handle various food situations, they incorporate it pretty much on their own just by observation.

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