We are having WAY too many reactions.Help! -long

Posted on: Sat, 09/27/2003 - 7:19am
anonymous's picture
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Joined: 05/28/2009 - 16:42

We are fairly new to all this so I've been reading as much as I can on the different topics here, and other sites. My daughter is 10 yrs old, She has always has minimal exposure to Pn as her brother tested positve as a toddler to a blood test. He has never had a reaction so we figured it was wrong, but with all of our other allergy we couldn't take the chance one would develop in any of the kids. Shea has had a had an anaphylactic reaction of some degree at least once a week since it started in late May. Only twice have we been able to say for sure she ingested peanuts. All the others the Dr.s said was from a unknown filler in this or that. Or NATURAL FLAVORING!!!!!(he said it was usally meat or peaunt based)
I am tired of learning this stuff after the fact from ER Dr.'s. We are going to a new allergist at Children's Mercy Hospital soon, who is supposed to deal with ANA a great deal. Though, the Dr.'s at the last practice were supposed to be so great too.
He tested her for several genetic disorders first, then skin tested her for everything. PN are the only thing that came back positive, but I can't believe she is being exposed so often!
OH yeah, it's not soy either, she was tested.
I spent the night agian at the Emergency room Wednesday night crying, She's starting to cry all the time about it not being fair,because I don't let her horse around for a day or so after(posting another topic on that)
Could this be some other illness you've heard of?

Posted on: Sat, 09/27/2003 - 7:30am
maggie0303's picture
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Joined: 04/14/2003 - 09:00

Sorry to hear she is having so many reactions. Do you know what she ate before some of the reactions? Does she have pollen and ragweed allergies? My dd reacts to fresh fruits and vegatables and is not "allergic" to them. It is her pollen and ragweed allergy causing her to reacts to certain fruits, etc. This is called oral allergic syndrome.
This can be very confusing and frustrating when you can't find the source. Do you keep a food journal? Maybe this would help. Sorry for so many questions. I'm sure you will get this under control soon!
Maggie

Posted on: Sat, 09/27/2003 - 8:01am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Shea has no other allergies, that we know of, and they covered her back 3x over 3 weeks doing skin tests.
Thanks though, I do think that happens with me.

Posted on: Sat, 09/27/2003 - 10:45am
nancy023's picture
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Joined: 12/12/2002 - 09:00

Poor Shea. I bet it will be hard for her to make all the adjustments at ten that my kids made as babies and toddlers. I believe it is possible to test negative and still be allergic to things. Maybe your mother's intuition is telling you there is something she has been eating that could be causing this. What are her symptoms? Are they always the same. It would probably be a good idea to keep a food diary of "everything" she eats for a week.
Hang in there. You will find an answer, and it will get easier. When my son was a baby, we were in the emergency room probably a dozen times before we found out all of his allergies.
[This message has been edited by nancy023 (edited September 27, 2003).]

Posted on: Sat, 09/27/2003 - 11:45am
darthcleo's picture
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Joined: 11/08/2000 - 09:00

This may be an obvious thing, but since I don't know you, I have to ask...
Do you pay attention to the little labels that say "May contain traces of peanuts", "manufactured on shared equipment", and whatever else they print out there?
There are *TONS* of those, even on products that you wouldn't expect.
So PA parents think they're not exposing their children, but they've never been told about those labels, and how important it is.

Posted on: Sat, 09/27/2003 - 11:50am
Danielle's picture
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Joined: 04/08/2003 - 09:00

What type of genetic testing has your daughter had?

Posted on: Sat, 09/27/2003 - 2:12pm
nikky's picture
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Joined: 11/14/2000 - 09:00

I don't have any advice...sorry. I just wanted to say that I'm so sorry you're going through this. How horrible to keep reacting and not know what is causing it. You're poor daughter. You will be in my prayers. I hope you can find the cause soon.

Posted on: Sat, 09/27/2003 - 11:02pm
mom2zoe's picture
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Joined: 06/08/2002 - 09:00

Sorry to hear about Shea's reactions! That must be hard--esp. since she's already 10 and this is all new to all of you. You had said she had skin prick test done; however, I do know that some do not react at the skin level--you may want to think about blood tests too--CAP RAST or RAST test. Also some reactions may be delayed so a SPT may not be that accurate in that sense.
I hope Shea doesn't have anymore reactions. Please check out POFAK (a yahoo group)and ask
if any moms had dealt with this type of reactions as well. Hope this somewhat helps.
JEn

Posted on: Sun, 09/28/2003 - 2:55am
becca's picture
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Joined: 05/22/2001 - 09:00

Are the reactions always after eating? Are you confident it is peanut exposure causing all of these reactions.
In a lecutre I attended by Dr. Young(author of the Peanut Allergy Answer Book), he discussed anaphylaxis in general. There are rare cases of people who suffer anaphylaxes episodes and it is not neccesarily to foods or any obvious triggers. It is called idiopathic anaphylaxis. Just a thought, assuming you are careful about the cross contaminants in foods.
I do not have any solutions, but was just thinking perhaps it is not a food allergy but some other trigger. becca

Posted on: Sun, 09/28/2003 - 9:14am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Shea was tested forseveral types of angioedema I know 1 just happens when ever the another when there is stress on the body(menstration, pregnancy, illness, etc.).

Posted on: Sun, 09/28/2003 - 9:34am
margaret's picture
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Joined: 11/01/2000 - 09:00

Becca took the words right out of my mouth. I have also heard of idiopathic anaphylaxis. I hope you find out what the cause is soon and am sorry you are going through so much.

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