POOF
[This message has been edited by NicoleinNH (edited June 10, 2007).]
POOF
[This message has been edited by NicoleinNH (edited June 10, 2007).]
You already know that if you or your child has a peanut allergy you need to avoid peanut butter. Some...
There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...
Are you looking for peanut-free candies as a special treat for a child with...
Do you have a child with peanut allergies and an upcoming birthday? Perhaps you'd like to bake a...
Most nut butters provide all the same benefits: an easy sandwich spread, a great dip for veggies, a fun addition to a smoothie. But not...
Hurm...
[I] have Tufts.
Jason
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[b]* Obsessed * [/b]
Our perscription coverage only allows 2 epi-pens at a time. I get around it by staggering my refills so the epi-pens don't all expire at once.
As far as your school situation goes, why not have your dd self-carry (not self administer) 1 and keep another in a central location?
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Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish and egg)
Joey (7 NKA)
Allison (3 MFA including milk, butternut squash, several fruits and suspected shellfish allergies, avoiding tree nuts, RAST - for peanut)
Ryan (born 12/27/05) nka *knock on wood*
My dd self carries 2. We also have 2 in the school office (it is possible dd would forget her med bag one day- God forbid- so I believe it is necessary for 2 to be in office also). I have 2 others for home.
Our doctor writes the rx for Epi 2-pack Quantity 3. So we get 6 at a time for one copay. Very lucky indeed but I would pay 6 copays if necessary to have the amount I do.
I would be very unhappy if I were not allowed more than 2. VERY UNHAPPY....
Good luck.
'''
[This message has been edited by NicoleinNH (edited June 10, 2007).]
wow, that really stinks :-(
Do you have an FSA (flexible spending account)? It'll help defray the out-of-pocket cost a little bit anyway...
Adrienne
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30-something survivor of severe peanut/tree nut allergy
poof
[This message has been edited by LaurensMom (edited June 17, 2007).]
I received the same later earlier this week.
I wonder if they deny more or approve more requests for additional EpiPens. Either way, it's still a pain in the neck. It's another step to take before school starts each year.
I always thought Tufts was the best health plan around, but how could they put our children's lives in danger this way?
I'm planning on refilling every EpiPen I have in December. That will keep us safe for the first quarter of the next school year.
Yes, I will definitely write a letter to Tufts.
If your child's allergy is covered under an IEP, is the school responsible to pay for epi pens required to implement your child's plan, whether you can afford to or not? I mean, if the number of pens is written into the plan?
No advice, not sure, just wondering--I've always paid for my own epi's even tho the number is written into and detailed in my child's IEP....
Just re-raising one theme in the above replies--self-carrying. My child has had an epi-belt with two pens at his waist since he was 3 and beginning jr kindergarten. He is 12 now and never leaves home without the belt. It is something he does not question. I don't think that I would ever expect him to self-administer if someone else was around to do it but he has always had the pens on his person as part of our safety strategy. He knows how and practices with an orange and expired pens but even adults I know say they can do it but in their emergencies, others have done it for them. The school's expectations around self-administration and ability should not affect your child carrying these life-saving products.
Caitlin's 6. I dont expect her to self administer.
I think 1 in the office, 1 in the room, and 2 at home... 2 in the 'carry bag' (AKA diaper bag).
I wonder how this'll work. Our RX for epis is at Target. I just call and 'refill' each yr, as long as there are refills available, kwim? (it said on the container).
If the rx is for '4' (2 twinpacks) or '6' (3 twinpacks) what should I expect Target to say to me, kwim? (based on what Tufts is saying)
I wont refill (knock on wood) til end of school yr, so...
Jason
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[b]* Obsessed * [/b]
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