trip to the ER last night

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I don't even know where to begin. I stayed up all night listening to DS breath. He had an anaphylactic reaction during DD softball game last night. We don't know what caused it. It started with him saying his eyes and hands hurt so I gave him a Benedryl. Then a few minutes later he was covered in hives and complaining his throat felt funny. Then the wheezing and coughing. I injected him right away and had another parent call 911. It took about 10 minutes for the ambulance to find us.

By the time we got to the hospital his face was quite swollen, but his breathing was fine.

This was very different than his other reactions, he hadn't eaten anything for over an hour, and complaining of "sore" hands. He had just been in the bushes near the softball diamond, then on the monkey bars of the playground, then rolling down the grassy bank. The cottonwood fluff is flying now and a few parents thought that was the cause, but that has been going on for over a week. I just can't think of anything different. I guess we are in for another trip to the allergist.

Thanks for letting me unload.

On Jun 4, 2003

Cynde, First of all let me say I'm so sorry to hear what you are going through! I know from experience that this is a very emotional time!

Is there a chance that another child who had eaten a peanut product played on the monkey bars before your son? This would be my guess as to the why of the reaction, especially since he said his hands hurt. I often worry about that when my son is on the monkey bars.

You'll both be in my thoughts and prayers! Valerie

[This message has been edited by CVRTBB (edited June 04, 2003).]

On Jun 4, 2003

Cynde,

My feelings go to you as well. We all know how it feels the morning after.

Peg

On Jun 4, 2003

Thanks for your replies, I too thought of the PB/monkey bar connection, I don't know if we will ever know. I have an appointment with our GP tomorrow and will try to see the allergist ASAP to try and rule out something environmental.

On Jun 4, 2003

Contact-reaction? Some peanut shells in the grass?

Hope your little guy recovers quickly!

What an ordeal...

On Jun 4, 2003

cynde,

Sorry to hear about your ds reaction.

Kudo's for handling the situation the [b] right[/b] way.

On Jun 4, 2003

Arachide and smack, thanks for your kind words. I did not notice any PN shells, but did not see everywhere he had been. Another friend of mine said her daughter had a sore hands & eyes reaction to the lime that they use to line the ball field. But he never really went on the field. It was a breezy night and some of the lime could have been blown on to the grassy bank where he was rolling??????? The possibilities never seem to end.

On Jun 4, 2003

cynde- sorry to hear of your son's reaction. Hope he is doing better today. Was it in an area where people picnic? Take care mae [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jun 4, 2003

Mae, thanks for your response, no it was not a picnic area. It was just a school with a playground and a grassy bank leading down to a softball diamond.

He is doing fine today, I am showing more ill effects than him. He got a great nights sleep while I stayed up and watched him, and is enjoying playing hookey, while I keep an eye on him and try to mud some gyp-roc from our recent renovations. I am so tired I can hardly see straight.

On Jun 4, 2003

Cynde - what a scare for you all. You handled it like a seasoned veteran! Hope you all get a good night sleep tonight. Warmest regards, Syd's Mom

On Jun 4, 2003

Thanks, Syds mom. Unfortunately I feel like a seasoned pro. This was my 3rd time injecting him in a year and a half, that's just way too much practice.

We forgot that he was supposed to be the one to inject himself. He said he doesn't want to because it hurts, even though he knows what the alternative is. He was crying when I pulled out the epi, but I didn't even take the time to explain to him that I had to do it. I just went into autopilot and did it, now I feel like I should have been more reassuring and tried to calm him down as well as injecting him quickly. I guess no matter what happens we second guess how we handle things. At least the outcome was good.

On Jun 4, 2003

And you learn every time so second guessing in this case is a good thing because it makes you sharper next time.

Really, it sounds like you did fine.

Your son was probably crying because he also remembered his other hospital visits and how miserable they are. He did fine too!

Peg

On Jun 4, 2003

Peg, thanks for the positive spin on second guessing. I think your right, it's a way of improving every time.

On Jun 5, 2003

I should mention that DS had bad stomach cramps and diarrea last night (24 hours after the anaphylactic reactions). He had absolutely no other symptoms, so I drove him to a walk in clinic, the doctor saw him right away and checked his vitals and said he was fine.

Would this be considered a mild biphasic reaction or was it just a kid with an upset tummy?

On Jun 5, 2003

I'd vote for biphasic any time. Good you took him in again.

My son at 17 was working for his dad one day. He walked into the filing room and the nurse's kids were making PBJ sandwiches.

DS walked into a wall of PB. My husband gave him an antihistamine and called me. No further reaction.

I came to get him and he cried all the way home in the car. I forget how scary it is for him. Big six foot kid crying like that broke my heart.

He said he was remembering how awful he felt after the last ER visit and was not willing to go thru that again.

Peg

On Jun 5, 2003

Hi Cynde,

So sorry to hear about the reaction. It must also be frustrating as you are not certain exactly how he was exposed to the allergen. Hope your child is feeling better today.... [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jun 6, 2003

Thanks Erik, he is physically better, but emotionally it really took a toll on him. My daughter had a softball game last night(I had to go because I'm the coach), and of course DH was still on afternoon shift. I told DS to get ready to go and he begged me not to make him, even though I told him it was a different park. Luckily my parents were visiting so my mom stayed home with him.

Before he hated staying home from games, because there are lots of little brothers coming with girls on our team. They all play together and have a ball. It just kills me that DS will willingly miss out on that now because of his fears. We will respect his feelings and not force him to go, we have told him he needs to trust his instincts when it comes to his allergies because ultimately he has to live with the consequences.

We just went to the Dr. yesterday and he is trying to fast track him to see the pediatric allergist at our local Children's hospital. I will post here when we go, and will hopefully have some answers.

On Jun 7, 2003

cynde- our ped. allergist at Vancouver's Children's was Dr. Dean - he was excellent. Let us know how it goes. mae [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jun 7, 2003

Cynde-reading about any reaction is always such a jolt to my equilibrium...I am so sorry that happened! It sounds like you reacted remarkably clear headed and fast enough. Waiting 10 minutes for an ambulance must have felt like forever!!! Thank goodness the epi-pen kept his air passages clear.

I think it is wise of your son to steer clear of the softball games. There are many other things he can be involved in that will bring him as much or more joy while also being safe.

Personally, I get so anxious in situations that I perceive to be potentially unsafe (more than the normal risk...) that it is no longer enjoyable to be there. So I am more inclined to redirect my energies to a "safer" activity - keeping it in perspective that "there are different strokes for different folks". For e.g. some folks don't go to baseball games because they do not want to risk a reaction to peanuts. Some folks avoid the games simply because they think baseball is boring! (no offense to any fans! just a handy example.)Doesn't really matter what your reason is sometimes...what does matter is where a person redirects to insure that his/her life is rich - not burdened and preoccupied with what s/he is not involved in because of the allergies.

However,since this was an ambiguous situation, it clearly creates a more unsettling feeling, especially since it sounds like he has been to so many games before this incident, without any issue.

It is so similar to suddenly having a reaction to a food that has been safely eaten a million times before...Those vaccines can't get on the market fast enough!!!

Sorry to go on and on... glad he is feeling better and hope you are too.

On Jun 8, 2003

Mae and kstreeter, sorry I haven't been here for a couple of days, coaching my DD softball tournament. Luckily DH was home to look after DS so he didn't have to come with me. Thanks for your responses.

Mae, it might have been Dr. Dean that we saw before, I can't remember, and our GP never got a report from childrens, they called and requested it now. I will update this thread after our appointment which can't be soon enough.

kstreeter, our DS doesn't play ball because of our concern over his allergies, he does Karate and piano. Softball is the only sport that DD likes, and I would hate to have her quit. I am currently the coach because no-one else would do it, and if I didn't there would be no team for DD to play on.

If the results of the allergists appointment indicates it was something environmental, I will have to quit coaching, because DH works shiftwork and I have to take DS to at least half the practices and games.

On Jun 8, 2003

So sorry to hear about your son's reaction. You did great and glad to hear he's feeling better.

My son is playing baseball (7year old). I am always noticing peanut shells and yesterday pistachio shells all over the bleachers and grass. I am worried about the dugout since they are always goofing around and the parents let them have food in there as well. I will check more carefully from now on. My daughter is pa too. Yesterday at the game I had to watch her with the pistachio shells everywhere. (She is allergic to pistachios too).

Good luck and the good news is, the worst case scenario happened and you handled it beautifully. Tell your son now that you all know what to expect there is nothing to fear.

Good luck!

On Jun 9, 2003

pamom, thanks for the kind words, the support here is priceless and it has been very cathartic for me to unload to people who understand.

I know what you mean about the mess around the ballfields, in the bigger parks we play at there are lots of sunflower seeds (Spitz), luckily I haven't seen any of PN or TN shells. People can be such slobs, it's amazing.

On Jun 12, 2003

Hi,

I know that it is a few days (6??) now since the reaction but just wanted to throw in my support too. I'm so sorry to hear about the rection - and hope that you and DS are beginning to feel back to normal. (Although as we all know, sadly it takes more than just a few days to get over any reaction, psychologically at least.)

Congratulations on handling it so well - we all know exactly what we SHOULD do, but actually doing it correctly like you did when you are under pressure is really hard. Well done!

Your DS is a very lucky boy to have such a great mum.

Keep up the good work!

Hope your son stays safe,

Louise.xx

On Jun 12, 2003

Thanks for your kind words Louise, the support here is wonderful.

I just wanted to update that we have an appointment for next thursday at Children's. The normal wait is 5 or 6 months so I guess our GP convinced them this was a pretty serious situation.

Mae, I found out we saw Dr. Ferguson last time, so I think that is who we are seeing again.

On Jun 19, 2003

Just wanted to update that we had our appointment at Childrens Hospital this afternoon and DS is allergic to peas, which he had eaten for dinner that night. He is also allergic to grass pollen, but the allergist thinks it is highly unlikely that he would be anaphylactic to grass pollen and only react that one evening. The doctor felt the peas were the cause, but did not rule out the peanut butter on the monkey bar theory. We now have to avoid all legumes, which I think will be easier than PN (I hope).

Thanks again for all your kind words and support.

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