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At the time that I last re-raised this, I did contact Chris again about having a section of the board for Multiple Food Allergies and he was going to look into it.
I know that should one of my children (or myself) develop another FA, I'll be coming here and I think that's the general feeling amongst everyone.
Let's see what happens. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I just don't think I can separate my allergies like that. It's honestly not an attempt to be hard to get along with.
But, for instance, if someone is asking something about kids carrying epi-pens - well, I can get involved in that discussion, but chances are at some point I'm going mention insects. e-belt and insects go together in my head at all times
If people are talking about anaphylaxis - I can get involved in that discussion, but chances are at some point I'm going to mention sesame seeds. sesame seeds and anaphylaxis cannot be separated in my mind - ever.
If I have to start thinking 'I can't talk about sesame seeds in this thread' - then it means I cannot talk about anaphylaxis. I can't. And if I can't talk about insect allergy in particular threads, then I can't be involved in any of the threads about schools or kids. None. I cannot separate those things.
[i]It's all or nothing.[/i]
No--I get that AM. Which is why I posted my ana reaction to shellfish in GI reaction thread in the adults board. Given a MFA board at that moment, I still probably would have done the same thing, because what I had to say concerned GI reactions.
For those of who only have GI reactions, we know those reactions are not very common, and we have more to learn from each other as far as the ana reaction goes. So I posted there because I had actually gone anaphylactic and I wanted to share my experience so others would be aware of it. With a GI reaction (and if newbies are reading this-these reactions that a certain group of us are having don't involve vomiting--perhaps nausea, but not some of the regular things we expect with anaphylaxis), it's hard to know when to use your epi, and I shared when I decided to use mine.
For the record, I wasn't calling for a parsing out of every FA conversation. Goodness no. We do have a lot to learn from each other--and even how others dealing with other FAs have to avoid.
I think for me, the problem is seeing other FAs posted in the manufacturers and restaurants thread without indicating that allergy in the subject line that gets to me. Sometimes there's a big red angry face or thumbs down icon and lots of replies and you'd think just from looking at that thread without opening it that the product or restaurant is unsafe for PA when the post was actually about another FA. Argh. These aren't frequent, but frequent enough to confuse. And obviously I don't rely on subject lines, but then when going back and trying to remember if I've read a thread (there was recently one like this on a restaurant we frequent), I have to think, "Oh yeah--this wasn't about peanut at all."
Anna Marie, no, I definitely hear what you're saying. I think McCobbre is saying things really well as far as explaining why it would be okay to have a separate section of the board. Also, with say *simple* (if there are any) questions re EA or MA or any other FA's other than PA, if there was a separate section, then they could be raised there rather than people trying to figure out if they go under Main Discussion (or wherever) or if they go Off Topic.
But definitely NOT saying that anyone wants the board to be solely PA related with any discussion of anything else placed under a separate section. I'd suggest that there are probably a lot more people here dealing with more than simply PA than there are people dealing with PA + something else. KWIM?
To-day (I mean, this moment), I honestly don't know. I know when the thread was raised it was thought that perhaps a separate heading was an okay idea and then when it was re-raised again, especially since the board had changed a lot (increase in discussion of other FA's), Chris did say that he would look into another header. Not a big deal one way or the other.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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"That was Polanski. Nicholson got his nose cut."
Quote:Originally posted by AnnaMarie:
[b]I just don't think I can separate my allergies like that. It's honestly not an attempt to be hard to get along with.
But, for instance, if someone is asking something about kids carrying epi-pens - well, I can get involved in that discussion, but chances are at some point I'm going mention insects. e-belt and insects go together in my head at all times
If people are talking about anaphylaxis - I can get involved in that discussion, but chances are at some point I'm going to mention sesame seeds. sesame seeds and anaphylaxis cannot be separated in my mind - ever.
If I have to start thinking 'I can't talk about sesame seeds in this thread' - then it means I cannot talk about anaphylaxis. I can't. And if I can't talk about insect allergy in particular threads, then I can't be involved in any of the threads about schools or kids. None. I cannot separate those things.
[i]It's all or nothing.[/i][/b]
Would you say it's just part of [i]educating[/i]? I mean, how many PA folks would stifle themselves about something food allergy related just because the conversation isn't about [i]peanuts[/i]?
Quote:Originally posted by csc:
[b]Anna Marie, no, I definitely hear what you're saying. I think McCobbre is saying things really well as far as explaining why it would be okay to have a separate section of the board. Also, with say *simple* (if there are any) questions re EA or MA or any other FA's other than PA, if there was a separate section, then they could be raised there rather than people trying to figure out if they go under Main Discussion (or wherever) or if they go Off Topic.
[/b]
who's to decide if it's "simple" or not? I mean, "simple" might be an individual thing. Is anything ever simple? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Hypothetically, if there were a "MFA" forum, and a topic could go either way: pa related or not, (and this may be very individual) how about letting the poster decide where to post it? I mean, if it's their question, their idea, their concern, and it has concerns that could relate to either forum, I'd be more prone to respect their desire as to where it's placed rather than "redirect" them. KWIM?
Momma Bear, you can take me to task over the simplest of words. However. No, nothing is ever "simple". I know what I meant but I don't know how to explain it.
As far as when there is a MFA section of the board, if there ever is, I think it would be Chris' decision if he didn't think something was okay somewhere. I don't know.
I think Anna Marie said it quite well in that she obviously can't separate her sesame allergy when entering a discussion and when she's discussing other things (like Epi-belts) she's actually relating it to an insect sting allergy.
Personally, I see the points that McCobbre made very well - the fear you have when you see a recall or discussion about a manufacturer about something not being okay and you immediately think PA; but on the other hand, the board has been running this way, and more progressively so since I joined six years ago, so I don't know.
Sorry, trying to get two kids ready for school, missing an Epi-Belt, and I don't think I'm being very coherent, so please go easy on me. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Simply re-raising. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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If tears could build a stairway and memories a lane, I would walk up to heaven and bring you back home with me.
we need more smilies. or curmudgeons. (lol) probably one more than the other.
Yes, we do!
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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If tears could build a stairway and memories a lane, I would walk up to heaven and bring you back home with me.
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