Tips On Posting Effectively

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Last night, I was going through the Main Discussion part of the board to try to find one particular thread. I did find it on Page 5. But, in so doing, I also recognized, that perhaps I could add to the part of this Discussion part of the board and suggest some Tips on Posting.

First of all, I think it's important to note that there is NEVER any question too stupid to ask here. If the question is in your head and you require an answer for it, it's not stupid. So, ask your question.

There are many different sections for Discussion on this board, all with appropriate titles. When first beginning to post, you may want to check out what goes under each Discussion heading - what the heck is under Living with PA or what are people discussing under Products?

There is also a Search feature on this board (which we did lose for a short time). If you feel your question is general (i.e., not specific to your own situation alone), you may want to do a Search of the board and see if the topic has already been raised previously. Then, depending on how long ago it was raised, you can decide whether you want to raise it again or not.

What I find, and it's only because I have been posting for some time is that if someone raises a question that I know has been raised before and discussed A LOT, I will find the particular previous thread and re-raise it to compliment the new thread that has been raised. I do not do this to tell the person posting the new thread that they should NOT be posting this thread again, but I do it because they may get additional information from people not posting on this board any longer or from people that had already answered the question once or twice before and aren't up to answering it again. I often do this and hope that no one is ever offended that I do. It is not to negate the new thread in any way.

People posting and reading this board travel it in different ways. Some old-timers, like myself (and I mean that as far as my actual age as well [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] ), simply click on the Daily Topics heading and scroll down that to see if there is anything for that day we would like to read.

Other people start in Main Discussion and work themselves down the Discussion headings as time allows. Saying this may make some of you feel as though you *should* put everything under Main Discussion so that it does get noticed for sure.

However, I also believe that you have to sit back and decide if what you are asking or commenting about warrants being placed under the Main Discussion heading on the board, or is there a section of the board where it would be more appropriate?

I've noticed that there are separate threads on different food allergies and I am in no way trying to offend anyone. The thing is, this is a peanut allergy website. We do all recognize that most of the people posting here are dealing with more than peanut allergies. I'm wondering if greater response to questions about different food allergies might not get a better/greater response if they were placed in the Off Topic section of the discussion board, simply because in Off Topic you could basically start your own mini-board about that particular food allergy.

Check out the Living with PA section of the board. To me, it's a much under-used section of this board. A lot of things being discussed under Main Discussion are actually things that would fit more easily under Living with PA (IMHO).

Last night alone, on the first page of Main Discussion I saw quite a few threads going about very specific food products, which would normally be placed under Manufacturers - Food (Safe and Unsafe).

Oh, and I should add that please don't think I'm all high and mighty here, I have certainly done my share of placing posts under headings where they should have been placed elsewhere. I think where I'm coming from now is that when people are attempting to read and post on the board, a lot of people are finding it cluttered and disorganized (this is not only coming from me).

I'd like to use an example of something that happened to me months ago. I had received an e-mail from Christie's (Nabisco) re Chips Ahoy and Oreo cookies and their other products. When I went to post the information, I must have pulled up at least ten threads where this information was appropriately posted and warranted. Last night again, I saw another either Chips Ahoy or Oreo thread going.

The other thing I do do, if I really want something to get attention (which basically means placing it under Main Discussion), but I feel that it isn't Main Discussion material, say something under Schools, I will post my topic under Schools but also post the same title under Main Discussion with the orange arrow smilie (above) directing people to read that thread under Schools. That way, there is no response under Main Discussion and that thread is quickly relegated from the first page of Main Discussion but the other thread under Schools does get the discussion or attention.

I'm really hoping that this doesn't come off as sounding harsh or terrible or bi*chy. I just know that things can get cluttered up easily.

I noticed with a lot of topics being posted under Main Discussion (and it isn't simply symptomatic of it being summer and not much activity on the board - there were 45 topics yesterday alone running), it's very easy for someone's very valid concern, question, or whatever, to quickly be relegated to Page 2 without one single response (it's usually the people that have not had a response to their thread at all that I attempt to answer in some way because I do feel really badly when that happens).

I know that I have discussed this with other members and their feelings are the same as mine. I thought I would try to help out a little so that the board appears to be organized and running smoothly (even if the people posting, such as myself, aren't! [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] )

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Aug 17, 2001

Cindy -- While I have no problem seeing "other" food allergies segregated a bit, I'd rather they not fall into the Off Topic area. My perception of that particular zone is that it's more of a chat area, for things that are related to PA only in that PA folks/families are the posters!

Perhaps we could have an "Multiple Food Allergy" section? "MFA" information posted here has been helpful to me on more than one occasion, and I have been pleased to be able to pass on some of what I have learned while dealing with Matt's allergies.

For example, a lot of us do our own baking, rather than go with processed baked goods, or do so simply to expand our limited "safe" choices. Those of us having to bake without eggs (or wheat, or whatever) often have to be pretty creative to end up with something resembling food -- and it is encouraging to share our successful results, rather than risk creating disaster upon disaster, particularly when we're working with pricey ingredients, like some of the safe chocolate/cocoa products.

I really do understand what you're saying, Cindy -- and if I may use a friendly parallel -- in my case it's the asthma posts that aren't relevant to our situation, but I would certainly not want them to be bumped into the OT area, either...they are more specific to the allergy issue than favorite books or actors/actresses!

Just my .02.

Sue (who decided that this post needed a [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )

[This message has been edited by M'smom (edited August 17, 2001).]

On Aug 17, 2001

Sue, great idea! I'm wondering if this is something you could approach Chris about. If we could have our own Multiple Food Allergy discussion heading.

I do know there is a thread running under Living With PA entitled Multiple Food Allergies (only because I started it) but that doesn't seem to really encompass everything you would like to have in one area.

As I said, I didn't mean to offend anyone by suggesting Multiple Food Allergies went in the Off Topic section. It was top of the head thinking as I couldn't think of any other section where they would fit. And you came up with the solution - make a section where they would fit.

The only reason I even mentioned food allergies in my Tips on Posting was that because in going through Main Discussion last night I saw a couple of threads, with little or no responses, about other food allergies. I felt badly for the people posting, but I also wasn't able to contribute at all to help them out and felt that if they had a different/better place to post their specific allergy, they may have gotten some response.

I am fairly active in asking questions about asthma and their possible connection to PA or it's repercussions when your child is also PA. This questions I usually raise under Living with PA, and as with everything, if someone doesn't have an asthmatic child, they don't have to enter the thread. But when it comes to actual Asthma links to other websites, I have placed that type of information under the Links discussion heading of the board. I have also placed different medical information links under the Links section of the board.

Again, I think you have a wonderful idea, especially because, as I did note above, most of the people posting here are not dealing with PA alone. I really do think that you should e-mail Chris and ask him to consider this.

I am sorry if I offended you, but in suggesting Off Topic, I did actually get you thinking about what really *should* be done.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

[This message has been edited by Cindy Spowart Cook (edited August 17, 2001).]

On Aug 17, 2001

Cindy --

I'm not the slightest bit offended! Glad you aren't either. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] The asthma issue was the best other yours/mine/ours example I could think of. Definitely relevant, but not something everyone has to deal with.

I'd actually be pleased to have a separate forum, as it would help me streamline my time. Which actually would be a good thread -- what other things in our lives have had to give way to the time spent managing PA/MFA?

At the moment, in our household, it's the laundry! I actually went out in public in the next best thing to my PJ's today -- I have been staying up late nights in the kitchen, trying to stock the freezer with some of our favorites (spaghetti sauce, zucchini bread and the like) while fresh produce is inexpensive and available. We really do eat well, but it can be pretty labor intensive sometimes. Alongside the laundry situation, for the first time ever, I have considered having someone come in to clean. Won't do it, but the fact that I have considered it tells me I'm about at my limits...

(We also were in a moderately significant car accident recently, which has added thrice-weekly physical therapy to my summer schedule. Never a dull moment in our household!!)

Sue

On Aug 17, 2001

Sue, not only do you have reason to contact Chris with an excellent idea but you also have a good thread starter there too! Excellent stuff!

The reason, I think, myself, that Chris would be receptive to a discussion heading for multiple food allergies is that it still means people are coming to his website rather than going somewhere else or joining a group such as POFAK. They would still be coming to PA.com as their main source of information (for those that do, I know that not everyone does), but they would also be able to get information and get the same encouragement, concern, caring, support, etc. that PA parents receive here but about the other food allergies they're also dealing with.

I know I did post a few months ago about whether people had any other websites they visited for their concerns, and PA.com was THE site that was visited. Now, I'm not clear if I asked it in a PA only kinda way or if it was all inclusive.

I do know that for me, although I use FAAN for educational materials for my son's schools, etc., I did find it rather disappointing that they didn't have a discussion board and wondered where people would find a wonderful, well known website that dealt with multiple food allergies as this one does so well with PA. (Now, for those of you who require this disclaimer, I am in no way saying that FAAN *should* have a discussion board - I understand that that is not part of their mission statement).

And I do feel the need to reiterate that the only reason I did mention multiple food allergies at all was because people are posting about other allergies and getting little or no response. It's quite obvious people feel comfortable posting here, so, Sue, you're definitely right-on, give them an appropriate heading to post under.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Aug 17, 2001

I really like the idea of a new board for other allergies. Maybe it could encompass asthma and other medical conditions as well?? I know there have been a few times I've had questions about Logan's other allergies and medical problems that I've been reluctant to post because there hasn't been an appropriate spot. It's been a bit of a disappointment because I know I would be able to get some great advice from the wonderful members here!

Rebekah

On Aug 17, 2001

I did e-mail this thread to Chris earlier tonight in the hopes that he would have a look at it and see what we have, what I think, well thought out.

Again, Rebekah, with what you posted, it reiterates that THIS is the place that we come. THIS is the place that we feel comfortable posting. It's like, for the most part, we're all one big happy family and we do appreciate hearing from people that we already *know* and whose judgement and advice we value and appreciate.

I do know that Chris responded quickly when he realized the some members recognized the need for the Off Topic section. I personally think that that particular section helped us all get to know one another a heckuva lot better because we were talking about different things other than PA, but again, with people that we already felt we *knew* and felt like talking about other things with.

It's interesting how my search through Main Discussion last night for one particular thread and me noticing people posting about food allergies and getting little or no response and somehow including this in my Tips on Posting (and thank heaven no one has accused me of being high and mighty since I believe I am the first person other than perhaps Chris - I may be mistaken - to provide some tips, as this was not my intention at all), and we end up with a whole new really positive thing happening.

Excellent stuff! Chris, are you hearing us?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Aug 18, 2001

Yes, we can look into this further.

------------------ Stay Safe,

[email]Chris@PeanutAllergy.Com[/email]

On Oct 27, 2001

time to bring this up again

Sue

On Oct 28, 2001

Sue, since you did bring this one up again, I thought I *should* add one very important point I forgot in my initial post.

If you're new to the internet, when you go to choose your UserName, for heaven's sake, do NOT use your real name or a variation thereof that will be easily recognized. Why not? Because, if you're like me and come on here and talk about different stuff that's going on with your PA child's school (not necessarily positive things), you cannot refer your school to this excellent website unless you want them to see what you've said about them! LOL!

I was VERY new to the internet when I found this site and didn't know any better. I do have another UserName for this website when my old one blipped out on me sometime this year, but now that I have bugged things up for myself, I continue to use my real name.

Definitely don't use your real name or a variation thereof.

Sue, if you don't mind my asking, why did you feel it was time to bring this one up again?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Oct 28, 2001

Hi Cindy,

I'm glad you asked.

There are a lot of new people to this board. When I first started the board I wasn't real sure where to post things or how to do a search - seems a lot simpler now LOL.

Anyway, I thought you made some great points, as usual, about using and posting on the board.

Subjects are really getting out of whack again and I hoped that a reminder (yours) might help get things a little better organized. People may get more responses on their posts if they put them under the topics that fit the best.

O.K. Is that enough reason's [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Sue in Sunny Arizona

On Oct 30, 2001

Sue, you're too cute! Don't tell me you're another member (I do know another one besides myself) that goes into an absolute tizzy if the board is a mess and there are things posted all over the place! Now, the other member and I both have OCD and we believe it has something to do with that but it does drive us absolutely buggy when the board is a mess! Have you ever considered whether you might have OCD? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Actually, you made an excellent point though, there are a GREAT number of new members. Thanks for the compliment by thinking that my post was something worth re-raising when it comes to posting!

And by the way, since I'm moving in less than 2 days now, I would LOVE to be going to Sunny Arizona, but I'm remaining in Ontario, looking forward to dipping temperatures and snow!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Mar 28, 2002

Simply re-raising!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Apr 2, 2002

Raising again.

So many new people!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 5, 2002

Cindy, Sorry I didn't see your post/question to me asking "Have you ever considered whether you might have OCD? " until now. I guess I just missed it [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Anyway, in answer to your question: I have considered it [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Sometimes I wonder [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Our PA seven year old daughter is OCD and takes meds for it. They help her so much I can hardly believe the difference in her when she is on the meds VS off the meds.

I bet you are thinking OCD is in the genes and she got it from me! Nope! Remember she is adopted!

Maybe this OCD stuff can be taught and I was a good teacher. Just kidding.

I am not OCD that I know of - never been diagnosed - but I do love to have things fairly clean and orderly!

I think the PA issue can make one OCD LOL!

Stay safe and thanks for the chuckle!

Sue in Sunny Arizona

On Apr 6, 2002

Sue, the reason I had asked if you were OCD or not was because my best friend and I, both members here, go absolutely bonkers when the board is a mess and that's why I came up with the tips for posting effectively. And, we think it's because we both have OCD and like things orderly (or, in my case, *certain* things orderly as my home certainly isn't [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] )

I do understand that OCD can be quite serious and I am not attempting to make a joke of it for those people who suffer from it severely. I felt the need to put that in because Sue and I are joking, but then I've also admitted that I do have it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Also, Sue, I definitely think that PA has something to add into the OCD mix, haven't really sat and examined it, but I'm sure it has become part of mine in some way. Hmm, another thread starter [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

I'm glad you got a chuckle, always much needed, I find!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Apr 24, 2002

Another tip:

DON'T TYPE YOUR POST ALL IN CAPITAL LETTERS PLEASE. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

In N'etiquette, it is the equivalent to yelling, since CAPS emphasize things. A message written all in CAPS is hard to read - you don't want your post's message lost because someone didn't want to read it written in CAPS!

Carolyn

On Apr 24, 2002

Can someone tell me how to edit my post? I can't figure out how to get back in once I have submitted it.

On Apr 24, 2002

Hi no peanuts [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Just click on the icon right above your post that has the pencil on it. That gets you back in. Happy editing.

Carolyn P.S. Holy fast response! I just noticed our posts are a minute apart. Timing... [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

[This message has been edited by Cayley's Mom (edited April 24, 2002).]

On Apr 24, 2002

When I'm in a really wicked mood (surprisingly, to most, it doesn't happen that often [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] ) about the disorganization of the board, I feel like posting a reply simply using the orange arrow above as my smilie and directing the person to the *proper* section of the board. Then, of course, I realize that we were all newbies at one time, aren't all control freaks, and deal with Main Discussion board clutter without being mean!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Aug 15, 2002

Simply re-raising! Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Sep 24, 2002

Simply re-raising to compliment Sue's re-raising of About This General Discussion Board under Main Discussion.

Also, a point I've been meaning to add for some time.....

If you're a long winded poster like myself, learn how to paragraph. I remember BENSMOM saying that it was hard to read my posts because I wasn't paragraphing and if you look back at any of my old threads, it's certainly true. So, if you find yourself getting long winded (heaven forbid [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] ), try to paragraph things out.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Dec 3, 2002

Hi Cindy,

Just raising this great topic for the new members - I can't help it if you have good info [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Sue in Sunny Arizona

On Dec 14, 2002

I am new here, and have successfully posted a couple of times, but most of my posts (replies) have not appeared. I've followed the same procedure for all. What's up with that is it normal?

------------------ Cynde Punch

On Dec 19, 2002

Hi Cynde,

This happens sometimes with some web browsers. Check the web settings on your computer to be sure that they are set to refresh correctly such as each page (or similar option depending on your browser). Some members have told us when they experienced this a trick they found was to click on "refresh" on their browser, or to leave and come back as their computer would update the page for them. The post you made probably posted fine, it is just that you as the poster couldn't see it. The rest of us can usually view it fine and immediately after you post it.

We are working to hopefully correct this and other small problems with the board software so if you have not yet joined PeanutAllergy.Com as a supporting member please do so. Keeping the boards up and running is part of what your membership money does.

------------------ Stay Safe,

[email]Chris@PeanutAllergy.Com[/email]

On Feb 14, 2003

raising

On Aug 1, 2003

Thought I'd re-raise to drive a few older members batty and start a riot [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] and also because Sue hasn't for quite some time and there are a lot of new members.

Caution: this is only one member's tips of posting effectively and do not have to be read or adhered to at all. They were simply posted to be helpful. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On May 28, 2004

Simply re-raising. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Aug 16, 2004

Simply re-raising.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jul 18, 2005

Simply re-raising. I've just done a search of the board to find a couple of old threads that I thought would compliment a new thread running. I cannot believe how many questions running to-day have already been asked and answered. Yes, I understand the threads are sometimes old.

My point would be that there is a search feature here that *can* be quite helpful, even if wanting to get new information about a topic that has already been discussed.

For example, even the other night when I posted something re lupine flour, I wanted to link to other threads and when I did a search, lo and behold, there were 25 threads re lupine flour, so I didn't link them.

I'm not saying anyone has to do a search before they raise a question. What I am suggesting though is that sometimes if you do a search you may not have to pose the question - the answer may already be on here.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jan 29, 2006

Simply re-raising to compliment something McCobbre had posted in another thread. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Jan 29, 2006

So now I am not supposed to ask questions about any allergy but peanut????? I know this is a peanut allergy board but some allergies go hand and hand.

On Jan 29, 2006

Quote:

Originally posted by josh'smom: [b]So now I am not supposed to ask questions about any allergy but peanut????? I know this is a peanut allergy board but some allergies go hand and hand. [/b]

I'm of the opinion that it's ok if you talk about other allergies, just start your thread in the right area and make the subject of the thread (that everyone sees while glancing through) adequately descriptive. There are many on here who have multiple food allergies and multiple life threatening food allergies.

welcome :-)

Adrienne

------------------ 30-year old survivor of severe peanut/tree nut allergy

On Jan 29, 2006

Quote:

Originally posted by josh'smom: [b]So now I am not supposed to ask questions about any allergy but peanut????? I know this is a peanut allergy board but some allergies go hand and hand. [/b]

oh well then slap me and call me silly. I posted a recall related to allergies other than [i]peanuts[/i] in the "alert and recall" board. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

Considering there are members dealing with more than one allergy here, and some of them dealing also with PA, [i]I considered it related to PA[/i]. Does that make sense?

[b]Big Boolean Thing[/b]. Ya know?

Maybe I'm too [i]open-minded[/i]. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

On Jan 30, 2006

[b]Maybe I'm too open-minded[/b]

ROTFLMAO!!! I've got to come to this forum more often!!!

BTW, Josh's Mom --- post as many questions as you like -- even non-PA!!! I will agree that many of us have multiple issues that we are dealing with & many things do go hand in hand. I would guess, too, that if you put a question in the "wrong" place many of us would forgive you (but it is helpful to kind of try to figure out which forum, because you might get more specific answers to your questions, as not all members regularly visit the same forums & threads.). [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

On Jan 30, 2006

Quote:

Originally posted by gvmom: [i][b]Maybe I'm too open-minded[/b]

ROTFLMAO!!! I've got to come to this forum more often!!!

[/i]

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum22/HTML/003313.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum22/HTML/003313.html[/url]

[img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

On Jan 30, 2006

If you are gonna use that as a come back... well, I'll answer there, for fear we might get a penalty flag thrown at us for posting in the wrong forum!

Headed to Off-Topic right now......

On Jan 30, 2006

This thread was started five years ago and the board has changed significantly since then. That's why we were trying to explore having a separate heading, but as part of the main part of the board (not Off Topic) for Multiple Food Allergies.

Now, we just discuss them all in the same threads, but as I believe agauthier pointed out, with a heading saying maybe, "hey, help with MA or EA".

I actually re-raised this thread because McCobbre had suggested to tidina that she not post in capitals and one post in this thread explains why it's not okay in netiquette terms.

The board is a lot more open to a lot of things now than it was five years ago.

josh's mom, sorry, didn't mean to get you upset. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Maybe this is what Anna Marie meant by a KABOOM about to happen, but really it shouldn't.

I can edit my post, but the person who responded initially, I don't think they're still posting, so they can't edit their response.

Then, my response to that person was really a question for Chris about a new heading for the board - Multiple Food Allergies because I think ALL of us recognize that most all of us aren't solely dealing with PA.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Jan 30, 2006

You know what? I just re-read this whole thread and paid particular attention to the part about other food allergies. To me, there was nothing offensive in there. What I was saying, was that I found, five years ago, if someone posted about another FA, they weren't getting the same type of response that they would have gotten had they posted about PA.

So, we went back and forth with ideas, right from the first post, and thought hey, great idea. Because PA.com is the place that people come to. Chris was approached with the idea of having a separate heading, not Off Topic, so that other FA's could be discussed with other members who are dealing with the same FA's (other than PA but probably also including PA) with other members who are dealing with them as well.

Still to this day, I can't help another member dealing with EA, MA, or any other FA because I'm dealing with PA only (touch wood).

I still think what we proposed to Chris was done well.

So, josh's mom, please re-read, and untie those knickers. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Jan 30, 2006

[b]To me, there was nothing offensive in there.[/b]

I'll second that.

On Feb 28, 2006

And I'll third it. And it's funny--I just read this thread tonight--just came upon it. Did you raise it in response to my post about the cross-contaminated shrimpy tongs in the Adults with PA board under the GI tract only thread??

Anyway, I read the entire thread without realizing that Cindy reraised it for me, really appreciating it, and then BOOM. giggle.

Yes, as much as so many of us have to deal iwth multiple FAs it would be nice to have a separate board for that. I do get frustrated when I see product warnings and restaurant warnings for allergies other than peanuts--mostly because there's an initial "Oh no!" adrenaline rush. And then the response is, "we don't have to worry about that."

But this board deals with food allergies like no other one I've seen. And ironically, I sense more in common with Adele my GI reaction to shellfish (and still I think to peanut) than with other folks on the Allergic Living shellfish boards who never ever ever post. It's dead over there. There's no community. At least I can learn from Adele's experience, even if it's not from shellfish.

So I'm seeing two "sides," if there must be sides. We have a lot to offer each other--it'd be great to have a place here dedicated to that so we wouldn't have to crowd the regular places dedicated to peanut. But since (1) many folks don't go to OT and (2) people mess up, the regular places will probably be crowded regardless. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

On Mar 1, 2006

At the time that I last re-raised this, I did contact Chris again about having a section of the board for Multiple Food Allergies and he was going to look into it.

I know that should one of my children (or myself) develop another FA, I'll be coming here and I think that's the general feeling amongst everyone.

Let's see what happens. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Mar 1, 2006

I just don't think I can separate my allergies like that. It's honestly not an attempt to be hard to get along with.

But, for instance, if someone is asking something about kids carrying epi-pens - well, I can get involved in that discussion, but chances are at some point I'm going mention insects. e-belt and insects go together in my head at all times

If people are talking about anaphylaxis - I can get involved in that discussion, but chances are at some point I'm going to mention sesame seeds. sesame seeds and anaphylaxis cannot be separated in my mind - ever.

If I have to start thinking 'I can't talk about sesame seeds in this thread' - then it means I cannot talk about anaphylaxis. I can't. And if I can't talk about insect allergy in particular threads, then I can't be involved in any of the threads about schools or kids. None. I cannot separate those things.

[i]It's all or nothing.[/i]

On Mar 2, 2006

No--I get that AM. Which is why I posted my ana reaction to shellfish in GI reaction thread in the adults board. Given a MFA board at that moment, I still probably would have done the same thing, because what I had to say concerned GI reactions.

For those of who only have GI reactions, we know those reactions are not very common, and we have more to learn from each other as far as the ana reaction goes. So I posted there because I had actually gone anaphylactic and I wanted to share my experience so others would be aware of it. With a GI reaction (and if newbies are reading this-these reactions that a certain group of us are having don't involve vomiting--perhaps nausea, but not some of the regular things we expect with anaphylaxis), it's hard to know when to use your epi, and I shared when I decided to use mine.

For the record, I wasn't calling for a parsing out of every FA conversation. Goodness no. We do have a lot to learn from each other--and even how others dealing with other FAs have to avoid.

I think for me, the problem is seeing other FAs posted in the manufacturers and restaurants thread without indicating that allergy in the subject line that gets to me. Sometimes there's a big red angry face or thumbs down icon and lots of replies and you'd think just from looking at that thread without opening it that the product or restaurant is unsafe for PA when the post was actually about another FA. Argh. These aren't frequent, but frequent enough to confuse. And obviously I don't rely on subject lines, but then when going back and trying to remember if I've read a thread (there was recently one like this on a restaurant we frequent), I have to think, "Oh yeah--this wasn't about peanut at all."

On Mar 2, 2006

Anna Marie, no, I definitely hear what you're saying. I think McCobbre is saying things really well as far as explaining why it would be okay to have a separate section of the board. Also, with say *simple* (if there are any) questions re EA or MA or any other FA's other than PA, if there was a separate section, then they could be raised there rather than people trying to figure out if they go under Main Discussion (or wherever) or if they go Off Topic.

But definitely NOT saying that anyone wants the board to be solely PA related with any discussion of anything else placed under a separate section. I'd suggest that there are probably a lot more people here dealing with more than simply PA than there are people dealing with PA + something else. KWIM?

To-day (I mean, this moment), I honestly don't know. I know when the thread was raised it was thought that perhaps a separate heading was an okay idea and then when it was re-raised again, especially since the board had changed a lot (increase in discussion of other FA's), Chris did say that he would look into another header. Not a big deal one way or the other.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Mar 2, 2006

Quote:

Originally posted by AnnaMarie: [b]I just don't think I can separate my allergies like that. It's honestly not an attempt to be hard to get along with.

But, for instance, if someone is asking something about kids carrying epi-pens - well, I can get involved in that discussion, but chances are at some point I'm going mention insects. e-belt and insects go together in my head at all times

If people are talking about anaphylaxis - I can get involved in that discussion, but chances are at some point I'm going to mention sesame seeds. sesame seeds and anaphylaxis cannot be separated in my mind - ever.

If I have to start thinking 'I can't talk about sesame seeds in this thread' - then it means I cannot talk about anaphylaxis. I can't. And if I can't talk about insect allergy in particular threads, then I can't be involved in any of the threads about schools or kids. None. I cannot separate those things.

[i]It's all or nothing.[/i][/b]

Would you say it's just part of [i]educating[/i]? I mean, how many PA folks would stifle themselves about something food allergy related just because the conversation isn't about [i]peanuts[/i]?

On Mar 2, 2006

Quote:

Originally posted by csc: [b]Anna Marie, no, I definitely hear what you're saying. I think McCobbre is saying things really well as far as explaining why it would be okay to have a separate section of the board. Also, with say *simple* (if there are any) questions re EA or MA or any other FA's other than PA, if there was a separate section, then they could be raised there rather than people trying to figure out if they go under Main Discussion (or wherever) or if they go Off Topic.

[/b]

who's to decide if it's "simple" or not? I mean, "simple" might be an individual thing. Is anything ever simple? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Hypothetically, if there were a "MFA" forum, and a topic could go either way: pa related or not, (and this may be very individual) how about letting the poster decide where to post it? I mean, if it's their question, their idea, their concern, and it has concerns that could relate to either forum, I'd be more prone to respect their desire as to where it's placed rather than "redirect" them. KWIM?

On Mar 3, 2006

Momma Bear, you can take me to task over the simplest of words. However. No, nothing is ever "simple". I know what I meant but I don't know how to explain it.

As far as when there is a MFA section of the board, if there ever is, I think it would be Chris' decision if he didn't think something was okay somewhere. I don't know.

I think Anna Marie said it quite well in that she obviously can't separate her sesame allergy when entering a discussion and when she's discussing other things (like Epi-belts) she's actually relating it to an insect sting allergy.

Personally, I see the points that McCobbre made very well - the fear you have when you see a recall or discussion about a manufacturer about something not being okay and you immediately think PA; but on the other hand, the board has been running this way, and more progressively so since I joined six years ago, so I don't know.

Sorry, trying to get two kids ready for school, missing an Epi-Belt, and I don't think I'm being very coherent, so please go easy on me. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 7, 2006

Simply re-raising. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ If tears could build a stairway and memories a lane, I would walk up to heaven and bring you back home with me.

On Aug 10, 2006

we need more smilies. or curmudgeons. (lol) probably one more than the other.

On Aug 10, 2006

Yes, we do!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ If tears could build a stairway and memories a lane, I would walk up to heaven and bring you back home with me.

On Aug 17, 2006

We have the search feature why?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ If tears could build a stairway and memories a lane, I would walk up to heaven and bring you back home with me.

On Aug 17, 2006

Quote:

Originally posted by csc: [b]We have the search feature why?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[/b]

I think the problem is that (even though I'm glad it's here and is free) is that we have an antiquated bulletin board program. It doesn't have a very good search engine...as in...it doesn't pull up individual posts with the search terms, but instead pulls up the entire thread.

Mind you, I'm an instructional web technologist and am extremely saavy online b/c I design and program systems. Sometimes on here, I'll do a search and get extrememly aggravated at the enormity of results and having to read through threads that have 5-6 pages in order to find the post I need!

I can see how it could be very overwhelming for noobs who may not know the best search terms or not even be aware of words to search for!

I should post my new searching strategy, though multi-stepped, where I do a search, open the thread page, and then use my Google toolbar to search the page I'm on and it highlights the words...much less time consuming, though a bit convoluted for some.

Adrienne

------------------ 30-something survivor of severe peanut/tree nut allergy

On Aug 17, 2006

I totally agree with you Adrienne. It can be downright impossible and overwhelming at times. Not to mention, when you do find something, it can be completely outdated. So, why not start a new thread, no harm in that, in my opinion. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Type in search for "Epi-Pen"...I mean, come on, do you know how many posts that is mentioned in? Probably thousands!

I'm taking a wild guess this thread was raised due to the new Epi-Pen thread today!

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