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Posted on: Mon, 04/07/2003 - 9:46am
river's picture
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Joined: 07/15/1999 - 09:00

We're all cheering for you synthia. Let us know what happens.

Posted on: Mon, 04/07/2003 - 1:57pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Synthia,
You are the one that told me..."you can do it, hang in there" So back at ya girl! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Like I told ya earlier tonight...move here and we'll fight it together, lol! Course I did have a better idea after all...we could both just move to Canada [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Many {{{hugs}}} to you, Virginia and Kim
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Edited to add Kim to my hugs, can't forget our computer guru! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
[This message has been edited by Cam's Mom (edited April 08, 2003).]

Posted on: Tue, 04/22/2003 - 8:51am
synthia's picture
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Joined: 10/05/2002 - 09:00

Ok, I pretty much had enough of this.
Just to bring all up to speed on the school
The school nurse states that she called the
allergiest and she mentioned to the allergiest about putting GLOVES on little V to keep her from contacting PB in the centers. And she says the allergiest said OK.
I would like everyones IMHO on that one.
I will not allow any more phone calls to any Doctors!!!!!
There will be only questions on paper.PERIOD!
I would not (IMHO) sugg.any one dealing with the school and Peanut allergy to allow any phone calls with out the parents being part of the call or in writing. Just a sugg.
As it is she stated that the doc (that is the allergiest)says He will write (If contact) on the Bendryl order, Nope he did not write it in.
The nurse states that I can not write it in.
And she also states that If she comes in contact with PN that they could call me instead of giving her benadryl.
I stated that that would be DETRIMENTAL to her health waiting for me to get to the school.
I also crossed through the liability part and would not agree to that part.
As it stands now she has a EPI-pen order for indegestion and/or life threating symptoms.
I have directed them to fan.org for educating material back in Feb, Have they done that,NO
they have not
I have asked for a Epinephrine Competency skill check List to be signed and dated by all of the staff that have been trained and who they were trained by. Have I received that? NO I have not
I also agreed to sending home a letter to parents (that I have posted on this site)and
the princiable agreed and said to have the parents sign and return it as proof the have received. Did I get that NO, and now they say they can't do that.
I need all the sugg,and IMHO's ,and IMO I can get Feel free to E-mail me or post.
Thanks for your help
PS this all started in Dec of 2002 and now we are at April 22,2003 and she is not IN SCHOOL!!
Love this site
Synthia
[This message has been edited by synthia (edited April 22, 2003).]

Posted on: Tue, 04/22/2003 - 9:12am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Hi synthia, Im a little confused, is the problem here mainly your dr., school,or both?
I dont understand why they would call you instead of just treating her and the dr. would say this is ok?
Now they really want your child to wear gloves all day to avoid contact? Is this something you approve of? IMHO this is going to make her stick out like a sore thumb. Kids can be so cruel and I see this as something they can pick on her for because its different than others.
I really feel for what you are going through, I dont know why they have to make everything so difficult.
Good luck, hang in there.

Posted on: Tue, 04/22/2003 - 9:26am
synthia's picture
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Joined: 10/05/2002 - 09:00

momma2boys
No I do not agree with the gloves.
The problem is with the school.
Because of the phone calls I have allowed,and was not a part of I feel this is a communacation problem.
Who said what?,Who sugg.? what, I don't know
for sure.
How ever I am looking in to that.
Love this site
Synthia

Posted on: Tue, 04/22/2003 - 9:35am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Synthia, My school also wants me to sign a form and on the bottom it says the dr can release all info to school and I will not sign it. Especially since my dr. really thinks this is no big deal, we are switching.
I just read all the rest of the posts in this thread and I want you to know you are not alone.
I feel so overwhelmed and upset about the whole school thing. I feel like crying all the time because it is so hard to know if yo are making the right decisions and how safe is it for your child?
There is such a small window of opportunity for them to treat this and how do you know how someone will react in an emergency?
Please be comforted in the fact that you obviously have a very supportive husband who is just as concerned as you are. My husband tends to think I over react and only look at worst case scenario. I really dont get a lot of input on this from him so I go it alone except for all of you helping me through this.
Together hopefully someday we can make it safe for our children.

Posted on: Wed, 04/23/2003 - 12:23pm
dmbb's picture
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Joined: 10/12/2002 - 09:00

As far as gloves are concerned, does this nurse really expect a preschooler to keep gloves on and not just pull them off. I can't see how a preschooler could hold a pencil, handle papers, eat lunch or manipulate objects with gloves on. Where would you even find gloves that small that would fit well? If the nurse is thinking of latex gloves, those are potentially allergic as well. It also seems that, even with gloves on, PB on a desk could get on her arms or elbows and cause a problem.

Posted on: Wed, 04/23/2003 - 10:33pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

WHAT???? How ridiculous! There is no way I'd allow my school to have Mariah wearing gloves. I can't imagine! I know you'll fight this one...as well you should! [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
Plus, I don't even understand the logic... how would wearing gloves provide any protection? I don't think I've ever heard of someone having a reaction only [i]on their hands[/i]. Hands are the transporter of residue... and wearing gloves doesn't do anything to change that.
It's rubbing your face (mucosal areas) w/ hands that have residue on them that's the problem. Adding a layer (gloves) doesn't do anything--- she'll still rub her nose (or whatever) with gloves on.
Jeesh! Will the doctor recommend that they tie her hands behind her back next? [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] I really question these people's (doctor and school nurse) competence.
I'm angry with you synthia and Kim. Please let me know if I can do anything to help.
Gail

Posted on: Wed, 04/23/2003 - 11:16pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by Gail W:
[b]I'm angry with you synthia and Kim. Please let me know if I can do anything to help.
Gail
[/b]
Hmmm.... that really didn't sound right. How about:
I'm angry [b]along[/b] with you, synthia and Kim.
Gail

Posted on: Fri, 04/25/2003 - 8:29am
synthia's picture
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Joined: 10/05/2002 - 09:00

Re-rasing
Love this site
Synthia

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