135 posts / 0 new
Last post
Posted on: Mon, 02/03/2003 - 12:46am
synthia's picture
Offline
Joined: 10/05/2002 - 09:00

Mommabear
I have asked her that.
With nothing in writing yet,Ihave asked her that from day one.
I do have a advocate going to the next meeting with me.
My DH is going to try to go and met these people.
I also released one phone call to her doc from dist doc refering to pa recations only.
The head ESE lady will also be at the meeting.
Iam also going to ask to visit the class at lunch time with the advocate,
The IEP states that the letter that went home was to be returned with a signature on it so we now it was read.
At the last meeting statments were made to the effect that they can't do that.
We are not going to give up.
My DD life is on the line.
Love this site
synthia
[This message has been edited by synthia (edited April 19, 2003).]

Posted on: Mon, 02/03/2003 - 1:01am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Synthia,
You posted:
"With nothing in writing yet,Ihave asked her that from day one."
Interesting. I have found Peer review to be very enlightening.
Will you physician write a letter to the nurse? Inquiring if there are any issues that have not been addressed (with regard to medication and administration)? I am such a stinker.
MommaBear

Posted on: Mon, 02/03/2003 - 2:27am
Rae's picture
Rae
Offline
Joined: 03/28/2000 - 09:00

Synthia, I fixed my problem! Tell Kim thanks!
"they can't do that."
There is a difference in "can't" and "won't". I saw you wrote an advocate will be attending with you; I hope he/she has been able to supply you with much valuable information.
Before reading this thread, I sent you some information on some agencies in your area.
Rachel

Posted on: Mon, 02/03/2003 - 5:34am
LisaMcDowell's picture
Offline
Joined: 12/06/2002 - 09:00

Hi Synthia,
You are absolutely right, a peanut/nut free
classroom for your child is absolutely necessary!
My perception is that the reason they want a dialogue from your allergist is to prove that Little V has the potential to have a reaction from PB/N products being brought into the classroom in a closed receptacle such as a brown bag, lunch box, igloo, etc. If it can be proven that it could cause a reaction from being in an enclosed receptacle, then they may be able to have legal bearing to do not allow them to brought in the classroom or both you & the school district may have to add an amendment to the established guidelines. Otherwise, they may only be able to offer to lock up brown bag lunches in a locker or place them on top of a tall piece of furniture, or ask that all students drop off their lunch in the office, something to that effect. Sorry, my intention is not to sound offensive, I'm just not familiar w/what all your child's disability entails.
Its possible that I have interpreted their actions, however another option is to ask for clarification & to also ask for copies of the they are using on FA & the guidelines they are using on learning diabilities. This will give you some insight on where they are coming from, and also it just might provide a loophole for you.
As for training in the use of the Epi-pen, direct them to FAAN, [url="http://www.foodallergy.org"]www.foodallergy.org[/url] or call the district superintendent to provide this training while you are in attendance, if possible. You may also want to look up volunteering at your child's school here on this website.
When my dd began kindergarten, the principal nor any of his staff were trained in anything about FA. Believe me, I was stunned because the principal had told me that there was a PA kid entering first grade. All they knew is that when he walked by his teacher in the classroom as she opened a jar of peanut butter he immediately went into anaphylactic shock. His parents had not provided an Epi-pen for the school & also here in AZ, EMTs do not carry them.
Getting the training was easily, having the principal accept was difficult & alot of heartache. Persistance made it possible. It
is still alot of work because my daughter is one grade behind the other PA child. Every year I have to instruct either the teacher who had the PA kid the year before or instruct a new teacher who has heard about that child's parents. To everyone it appears that they expect the school to take full responsibility for their child, I also believe this to be true because the principal has to demand an Epi-pen every year from the parents.
Even though having a child w/PA is & can be an enourmous amount of work, it certainly is worth it!
Stay safe & take care of yourself also Synthia!

Posted on: Tue, 02/04/2003 - 1:43am
synthia's picture
Offline
Joined: 10/05/2002 - 09:00

Hello everyone
Just a small VICTORY and one small step.
The school that DD hopefully will
attend just sent out a small artical in the monthly news letter.
That a child will be atteneding has a peanut allergy.please respect the letter that will be going home.
When I get the news letter in my hand I will type it in.
One small step in the right direction.
Love this site
synthia

Posted on: Tue, 02/04/2003 - 3:33am
river's picture
Offline
Joined: 07/15/1999 - 09:00

synthia, your my hero!

Posted on: Wed, 02/05/2003 - 10:57am
Rae's picture
Rae
Offline
Joined: 03/28/2000 - 09:00

Synthia, When is your meeting? Keep us informed as to how it goes!
Good Luck,
Rachel

Posted on: Wed, 02/05/2003 - 8:45pm
synthia's picture
Offline
Joined: 10/05/2002 - 09:00

Rae
I have givin them all the paper work,and release for one phone call.
Waiting to hear from them.
Nothing has of yesterday.
love this site
synthia

Posted on: Fri, 02/07/2003 - 9:10am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Synthia - How was the night out at the Improv with your DH? Glad you are getting some time for yourself, in between keeping a tight leash on things at the school.
How did little V do with her tonsil surgery before christmas?

Posted on: Fri, 02/07/2003 - 10:14am
synthia's picture
Offline
Joined: 10/05/2002 - 09:00

Syds mom
The Improv was great,DH stayed home with kids.
For once in a very long time I was able to not think of the pa issue.It help me clear my mind,and go forward with a plan.
Little V surgey was hard on her,the day after surgy she was addmitted in to the hospital for 5 days .
Not drinking or eating.
While in the hospital she had a rection to the rosfin antibotic.Mind you this is a child that refuses to take any thing oral.
One more thing to add to the list of allergy things.
As for the school I called the state # Cams mom gave me.The state nurse for Fla.
She called the school and called me bake that afternoon.I called the person she suggested that happens to be the 504 lady and aske her reffering to the last call with her was:My DH and I are requesting a PN/TN classroom.
The 504 lady said she would tell the principal and get back with me. I had to call her back today.I asked if anybody was trained yet she didnot know,Iasked if anybody looked at the videos yet,she didnot know.Itold her I droped the docs not stating that Little v could not be put into a room full of p-products.She didnot know I had gave them a letter.How ever she did say she got the doc letter on giving the Epi-pen and the liabilty part had been scraced out I told her I did that and initaled it.She did say that they were cking with the legal dept to see if that was ok.
I had the nurse ck off every thing that I droped off and date it and sign it also I droped off 2 books I bought out of my own pocket.The nurse says who do you want me to give these books to,I sugg. that she read them first so she could help others to understand. Iam trying to be nice but its very hard.
I Will not give up!
Love this site
Synthia

Pages

Peanut Free and Nut Free Community

Click on one of the categories below to see all topics and discussions.

Latest Discussions

Latest Post by agrohimacn Tue, 02/25/2020 - 1:25pm
Comments: 0
Latest Post by krisztina Thu, 02/20/2020 - 4:49pm
Comments: 1
Latest Post by chicken Thu, 02/20/2020 - 4:45pm
Comments: 3
Latest Post by lexy Tue, 01/28/2020 - 12:21am
Comments: 6
Latest Post by JRM20 Sun, 01/26/2020 - 11:15am
Comments: 6
Latest Post by JRM20 Sun, 01/26/2020 - 11:11am
Comments: 5
Latest Post by Italia38 Wed, 01/15/2020 - 11:03am
Comments: 10
Latest Post by Italia38 Wed, 01/15/2020 - 10:52am
Comments: 2

Peanut Free Store

More Articles

If children begin to eat many different foods at a young age, there is much more of a chance that by the time they are in school, they will eat...

Those with peanut allergies often find that they are unable to enjoy dessert since there's always the...

If you've ever tried to find...

For those with peanut allergies, baked goods present a serious risk. Many baked goods do not appear to contain peanuts, yet were baked in a...

Those who have peanut allergies know to avoid peanut butter cookies, of course – but what about other...

Which candy bars are safe for those with peanut allergies? Those without allergies are accustomed to...

Are you looking for peanut-free candies as a special treat for a child with...

For those who have wondered whether airport x-ray machines negatively affect epinephrine auto-injectors, the folks at Food Allergy Research &...

Molecular allergy component testing identifies the specific food or environmental proteins triggering a person’s allergic reactions. Component...

An epinephrine auto-injector provides an emergency dose of epinephrine (adrenaline) to treat life-threatening allergic reactions. Those who have...

Misunderstanding the significance of food allergy test results can lead to unnecessary anxiety and dietary changes. The three tests used most...

It can be easy to overlook the presence of nut allergens in non-food items because the allergens are often listed by their Latin or scientific...

Tree nuts and peanuts are distinctly different. An allergy to one does not guarantee an allergy to the other. Peanuts are considered legumes and...

Welcome to the complex world of being a Peanut Allergy Parent. Get ready to proofread food labels, get creative with meals, and constantly hold an...

Take control of your food allergies! Get results in ten days and change your life forever! If you are tempted to use a home testing kit...

What can you eat if you can't eat peanut butter? Fortunately for people with a peanut allergy, there...

According to the Asthma and Allergy Foundation of America, one out of five people in the U.S. has an allergy. Because there is a...

Eliminating peanut butter is the best way to handle a rash caused by this food

If your baby or toddler develops a rash caused by peanut...

Nearly all infants are fussy at times. But how do you know when your baby's crying means something wrong? Some babies are excessively fussy...

For those who don't have experience with peanut allergies, going 'peanut-free' often seems as easy as avoiding peanut butter sandwiches and bags...