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Posted on: Mon, 02/03/2003 - 12:46am
synthia's picture
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Joined: 10/05/2002 - 09:00

Mommabear
I have asked her that.
With nothing in writing yet,Ihave asked her that from day one.
I do have a advocate going to the next meeting with me.
My DH is going to try to go and met these people.
I also released one phone call to her doc from dist doc refering to pa recations only.
The head ESE lady will also be at the meeting.
Iam also going to ask to visit the class at lunch time with the advocate,
The IEP states that the letter that went home was to be returned with a signature on it so we now it was read.
At the last meeting statments were made to the effect that they can't do that.
We are not going to give up.
My DD life is on the line.
Love this site
synthia
[This message has been edited by synthia (edited April 19, 2003).]

Posted on: Mon, 02/03/2003 - 1:01am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Synthia,
You posted:
"With nothing in writing yet,Ihave asked her that from day one."
Interesting. I have found Peer review to be very enlightening.
Will you physician write a letter to the nurse? Inquiring if there are any issues that have not been addressed (with regard to medication and administration)? I am such a stinker.
MommaBear

Posted on: Mon, 02/03/2003 - 2:27am
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Rae
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Joined: 03/28/2000 - 09:00

Synthia, I fixed my problem! Tell Kim thanks!
"they can't do that."
There is a difference in "can't" and "won't". I saw you wrote an advocate will be attending with you; I hope he/she has been able to supply you with much valuable information.
Before reading this thread, I sent you some information on some agencies in your area.
Rachel

Posted on: Mon, 02/03/2003 - 5:34am
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Joined: 12/06/2002 - 09:00

Hi Synthia,
You are absolutely right, a peanut/nut free
classroom for your child is absolutely necessary!
My perception is that the reason they want a dialogue from your allergist is to prove that Little V has the potential to have a reaction from PB/N products being brought into the classroom in a closed receptacle such as a brown bag, lunch box, igloo, etc. If it can be proven that it could cause a reaction from being in an enclosed receptacle, then they may be able to have legal bearing to do not allow them to brought in the classroom or both you & the school district may have to add an amendment to the established guidelines. Otherwise, they may only be able to offer to lock up brown bag lunches in a locker or place them on top of a tall piece of furniture, or ask that all students drop off their lunch in the office, something to that effect. Sorry, my intention is not to sound offensive, I'm just not familiar w/what all your child's disability entails.
Its possible that I have interpreted their actions, however another option is to ask for clarification & to also ask for copies of the they are using on FA & the guidelines they are using on learning diabilities. This will give you some insight on where they are coming from, and also it just might provide a loophole for you.
As for training in the use of the Epi-pen, direct them to FAAN, [url="http://www.foodallergy.org"]www.foodallergy.org[/url] or call the district superintendent to provide this training while you are in attendance, if possible. You may also want to look up volunteering at your child's school here on this website.
When my dd began kindergarten, the principal nor any of his staff were trained in anything about FA. Believe me, I was stunned because the principal had told me that there was a PA kid entering first grade. All they knew is that when he walked by his teacher in the classroom as she opened a jar of peanut butter he immediately went into anaphylactic shock. His parents had not provided an Epi-pen for the school & also here in AZ, EMTs do not carry them.
Getting the training was easily, having the principal accept was difficult & alot of heartache. Persistance made it possible. It
is still alot of work because my daughter is one grade behind the other PA child. Every year I have to instruct either the teacher who had the PA kid the year before or instruct a new teacher who has heard about that child's parents. To everyone it appears that they expect the school to take full responsibility for their child, I also believe this to be true because the principal has to demand an Epi-pen every year from the parents.
Even though having a child w/PA is & can be an enourmous amount of work, it certainly is worth it!
Stay safe & take care of yourself also Synthia!

Posted on: Tue, 02/04/2003 - 1:43am
synthia's picture
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Joined: 10/05/2002 - 09:00

Hello everyone
Just a small VICTORY and one small step.
The school that DD hopefully will
attend just sent out a small artical in the monthly news letter.
That a child will be atteneding has a peanut allergy.please respect the letter that will be going home.
When I get the news letter in my hand I will type it in.
One small step in the right direction.
Love this site
synthia

Posted on: Tue, 02/04/2003 - 3:33am
river's picture
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Joined: 07/15/1999 - 09:00

synthia, your my hero!

Posted on: Wed, 02/05/2003 - 10:57am
Rae's picture
Rae
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Joined: 03/28/2000 - 09:00

Synthia, When is your meeting? Keep us informed as to how it goes!
Good Luck,
Rachel

Posted on: Wed, 02/05/2003 - 8:45pm
synthia's picture
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Joined: 10/05/2002 - 09:00

Rae
I have givin them all the paper work,and release for one phone call.
Waiting to hear from them.
Nothing has of yesterday.
love this site
synthia

Posted on: Fri, 02/07/2003 - 9:10am
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Joined: 05/28/2009 - 16:42

Synthia - How was the night out at the Improv with your DH? Glad you are getting some time for yourself, in between keeping a tight leash on things at the school.
How did little V do with her tonsil surgery before christmas?

Posted on: Fri, 02/07/2003 - 10:14am
synthia's picture
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Joined: 10/05/2002 - 09:00

Syds mom
The Improv was great,DH stayed home with kids.
For once in a very long time I was able to not think of the pa issue.It help me clear my mind,and go forward with a plan.
Little V surgey was hard on her,the day after surgy she was addmitted in to the hospital for 5 days .
Not drinking or eating.
While in the hospital she had a rection to the rosfin antibotic.Mind you this is a child that refuses to take any thing oral.
One more thing to add to the list of allergy things.
As for the school I called the state # Cams mom gave me.The state nurse for Fla.
She called the school and called me bake that afternoon.I called the person she suggested that happens to be the 504 lady and aske her reffering to the last call with her was:My DH and I are requesting a PN/TN classroom.
The 504 lady said she would tell the principal and get back with me. I had to call her back today.I asked if anybody was trained yet she didnot know,Iasked if anybody looked at the videos yet,she didnot know.Itold her I droped the docs not stating that Little v could not be put into a room full of p-products.She didnot know I had gave them a letter.How ever she did say she got the doc letter on giving the Epi-pen and the liabilty part had been scraced out I told her I did that and initaled it.She did say that they were cking with the legal dept to see if that was ok.
I had the nurse ck off every thing that I droped off and date it and sign it also I droped off 2 books I bought out of my own pocket.The nurse says who do you want me to give these books to,I sugg. that she read them first so she could help others to understand. Iam trying to be nice but its very hard.
I Will not give up!
Love this site
Synthia

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