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Posted on: Thu, 05/29/2003 - 12:58pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Synthia,
Sorry you are having to go through all this! I just sent ya an email.
Many hugs,
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 05/30/2003 - 7:25pm
scaryupamon's picture
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Joined: 05/28/2003 - 09:00

Is there any chance you could put her into another school? This one sounds unsafe. Surely there is some alternative..?

Posted on: Tue, 06/03/2003 - 12:50am
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

Synthia, I'm not sure what you mean by a stand alone 504 and why you want that. My son had an IEP for speech before he even started school, since he was receiving speech services at age 3. Then when he started school, I told them he needed a 504 for food allergies. Since he already had the IEP, they do not do a separate 504. They add the allergies to the IEP. It falls under "other health impaired" or something like that. I wondered why they do it that way and my mother (a special ed teacher) said it is just standard practice. The IEP encompasses everything. The protection is the same.
What I don't understand is why your daughter has a 504 for speech? Seems it should be an IEP, since speech affects her educational plan, not her physical well-being.
Kids with multiple issues generally have an IEP, since it can include both educational and health problems. Then anything else that crops up later is just added onto the IEP. The good thing is once you have the IEP it is so easy to add things to it.

Posted on: Wed, 06/25/2003 - 11:07am
synthia's picture
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Joined: 10/05/2002 - 09:00

Sandra Y
I was asking for a stand a lone 504 for
FOOD ALLERGIES because when her IEP was finished she would no longer have a IEP.
To my understanding she will no longer have a
504 either once her IEP is finished.
Once she has a 504 for allergies(food & environmental that will stay with her thru
her school years.
When her allergies flare up it effects her
strength,vitality and alertness.
When she has a anaphylactic reaction it effects her skin,respiratory,cardiovascular,and digestive
They did not give her OHI designation.
Which I think is part of the problem not to mention other problems with the school.
Other flages were thrown up in my face,like a
comment from the nurse saying they had a child in the school that has a allergic to bee stings and carries a Epi-pen.The statement was,The child came to the nurses station saying she was stung by a bee and the nurse sayes she does not see anything and just gives her bendryl.
In another statement the nurse sayes we have a diabetic in the school,but we don't think he is diabetic.
And the last statement the nurse sayes to me
at the meeting were I had my dd with me,"we
could watch your dd better then you can.
These and other statments and the way they (the school staff) has handled this case, I
and dh do not and will not put her in this
school.
This is only a few of the list of reasons why
WE THE PARENTS will bring our dd up to speed
for kindergarden.
I will not allow any group or school or what ever to say We the parents have NO say in our dd's education or health.
Love this site
synthia
I am still researching and learning.

Posted on: Thu, 06/26/2003 - 2:23pm
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

Synthia,
I am just sorry they are giving you so much trouble. At our school, after some initial resistance, it was quite simple, but they are used to the process since 25% of the kids at our school have IEPs! OHI is a catch-all that is commonly used here. I can't imagine why they would deny it for your daughter. Obviously, allergies are health impairments so they shouldn't deny it.
After my son finishes speech and the IEP is no longer needed, he would simply switch to a 504 for the allergies/asthma.
They are not doing it correctly at your school and if the nurse is gossiping about other kids' health issues that's a bad sign. Sounds like you're smart not to send your daughter there after all. Good luck.

Posted on: Fri, 08/08/2003 - 12:48am
synthia's picture
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Joined: 10/05/2002 - 09:00

Hello everyone
In light of the past 8 months dealing with this school.DH and my self will not put Little v in this school.
We have sent a letter stateing she will not be attening this year,We look forward to working with them in the furture.
The school and the district are in receipt of our letter.
Just received this from the District on accommodation for dd.
CLASSROOM
An IEP has been developed for-----
A classroom emergency protocol has been developed for-----(I have not seen this)
A full-time paraprofessional has been hired to provide one-on-one assistance for---
The Epi-Pen will be carried in a "fanny pack" by the paraprofessional.
A separate lunch and snack table is available for students eating "peanut-free food" such as school lunches.
Staff will encourage students not to share food.
Students will wash hands and the table will be wiped after each mealthat students eat in the classroom.
Students to wash hands when returning from the playground.
----- will only eat food either sent in by parents or approved by parents.
Parent will supply snacks to be kept in the freezer and will be provided to ---when her classmates have a birthday.
Teacher to provide parent with birthday date list.
The Pre-K teacher will be available to "shop" with the parent for appropriate classroom snack choises.
Parent to view ingredient list of products purchased by school for snacks and cooking activities.Parent to determine if ----- will participate in the activity and/or eat product.
Staff is trained in CPR and first aid.
Parent will provide a "safe-food" list to staff (we have provided this)in April.
Parent will provide a list of ----- "warning words" to staff.(This has been done twice)
Parents will provide a list of allergic reactions and behaviors to staff.
The Alexander the Elphant video is available for classmates to view.
An evening meeting can be scheduled with classmatesparents/guardians for Mr and Mrs----- to provide information specific to food allergies.
A letter,sent home to parents in the pre-k class informing them of a student with a peanut allergie,asking them voluntarily omit sending peanut products to school.(One parent indicated that the only thing her child would eat is peanutbutter).
(She related that she would continue too send her child to school with peanut butter).
A notice was placed in the school newsletter,----informing parents of a peanut sensitive child and asked them to respect any notices they may receive.
School Food Service
A menu was sent home to parents with peanut butter crossed off. The school received a phone call from a parent objecting to the deletion of peanut butter as a choice.The parent stated that it was a inconvenience for her to pack a peanut butter sandwich for her child,when one could be readily available in the school cafeteria.
School Food Service purchased a manual for the school through th Food Allergy Network.
Peanut oil is not used by school food service.
School Health Services
A Health Care Plan and Emergency Care Plan have been developed for -----(I have not seen this).
No medication will be administered to ----- if the Physicians Authorization Form has been altered.Instead in the case of a emergency,911 will be called.
The school nurse has provided Epi-pen training to identified staff.(I would like a list of the staff that has been trained).
The school nurse has consulted with ----allergiest regarding clarification of orders.
Parent to discuss with physician the need for benadryl orders.
The school nurse suggested the use of gloves with manipulatives.(A letter was sent stating we the parents donot want gloves put on -----).
A plan has been developed for---- should she need services in the clinic.(I have not seen this).
Walkie-talkies are available between the clinic and the classroom.
An Epi-pen is stored in the clinic.
School Wide Accommodations
School staff has viewed the food allergy video.
Chapter 5 from The Peanut Allergy Answer book was provided to staff.
Staff awareness training was provided at a faculty meeting.
District Accommodations
A consultation between---physician and the district's consulting physician has occurred.
District Food Services purchased a book and video on food allergies for the school.
District staff provided Mrs---- with the name and phone number of the mother of a student at ---------.The student has severe food allergies.
Thank you for the opportunity to work with you to devise a plan of reasonable accommodations for ------.We look forward to working with you in the future
Respectfully
Department of Student Services
Dh and I are asking for copy's of Health Care Plan and Emergency Care plan,and the plan they developed should she need services in the clinic.We the parents have not seen these
plan's.
Love this site
Synthia

Posted on: Fri, 08/29/2003 - 3:15am
synthia's picture
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Joined: 10/05/2002 - 09:00

Just a up date
As of today-- Got a call from a hospital that has Infants & toddlers Early Intervention program.
Because of our looooow income Kid care has sent me to (CMS) Childern Medical Services.
Little v is covered under there policy for health insurance,which will cover her new testing and let her get services (if needed)
in the hospital setting.
I have explained what has happened in the last year with little v's school problem.
The head speech lady has asked for copy's of the report and test's that child find did.
I will be more then happy to supply her with those test's.
As it stand's now she will get re-tested.
We are on the right track,Wish me luck!!
Love this site
Synthia

Posted on: Fri, 09/12/2003 - 3:24am
synthia's picture
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Joined: 10/05/2002 - 09:00

I am in tears right now (HAPPY TEARS).
As I thought little v does not need a full
day of services. I will wait for the full report to come back and then post a up date.
I would like to thank everyone for there help
and say WE THE PARENTS KNOW OUR CHILDREN THE BEST. My gut was right.Hang in there parents
On a another note I would like to think CMS
and there staff Ms J for there help and for caring for our kids.
Now I will focus on educating little V's
school she will be attending in fall of 2004
Love this site
Synthia
Love this site
Synthia

Posted on: Fri, 09/12/2003 - 5:07am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by synthia:
[b]I am in tears right now (HAPPY TEARS).
[/b]
So happy for your good news. Tell us more when you can. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Gail

Posted on: Mon, 12/08/2003 - 7:28am
synthia's picture
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Joined: 10/05/2002 - 09:00

reraising for a new member
Love this site
Synthia

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